Do you all get lots of support from profesional bodies like memory clinic, alziemers society etc. We see someone from the memory clinic for about 40 mins once every 6 months and that's it.
I thought as dad is still at home and in late stages, carnt do a thing for himself and no mobility, they would keep an eye on dad to check were looking after him properly.Absolutely none. Mum diagnosed in hospital, I, being naive, said she’s self funding, handed a list of care homes, and told as soon as possible ❗️
Mum has since moved from southwest to Kent, and I’m not sure if any of officialdom knows (or cares) where she is, or more worrying, how she is.
We had a so called dementia wellbeing lady come every six months but it was really pointless. That's it. Only real help was from the district nurses when OH developed a pressure sore. They were wonderful. Good to hear from you. GxDo you all get lots of support from profesional bodies like memory clinic, alziemers society etc. We see someone from the memory clinic for about 40 mins once every 6 months and that's it.
No support from professionals other than those we pay for. My wife was discharged from the memory clinic back to the care of her GP in September 2016 but despite being in for various minor ailments we have not spoken to her GP about her decline for over a year. I have the name of a contact at social services and spoke to her once on the phone about a year ago. Once she realised that my wife was self-funding she was no longer interested. I have arranged day support privately and on the whole that has proved good.
Isn't this absolutely disgraceful? Just cannot believe the lack of support people with dementia get, absolutely shameful.
Mum is having someone come round the house tomorrow to have a ECG - a memory clinic request - is this normal? Thanks and good luck everyone with getting appropriate support. x
We had the OT out awhile ago and got a wheel chair etc , had to fight for 12 months to get sides on the bed.Nope, not a bit of help, and that includes the gp who was completely clueless. Social worker as much use as a chocolate fire guard.
You're going to find a lot of help here, though. Everyone here is very generous with their knowledge.
I'd suggest trying to get your GP practice occupational therapist involved, and also the district nurse. The OT can help with mobility issues, the DN for more medical stuff. Also try your local district council who may have a program of handrails/loo seats etc for making the house a bit more user friendly for the PWD.
But I'm sorry, you will have to push for everything, repeatedly. There is no joined up anything.
No never got as involved used to work with sw so I didn't bother them.In my experience you are left to your own devices unless you ask for help. Have you asked for an assessment from Social Services? This should be done for everyone who requests one no matter whether or not they are self funding.
My wife had to have that to ensure she was OK to be put on her meds as cardiac issues can arise. I would think it's common.
Yes, it is shameful, completely. I think in about ten years, the Government will have to face up to the tsunami of dementia but believe that even then it will only be to recommend PWD be cared for at home. I believe the coming Green Paper will say the same thing. I so wish I could do something to help. Gxxxxaka kindred.Isn't this absolutely disgraceful? Just cannot believe the lack of support people with dementia get, absolutely shameful.
Mum is having someone come round the house tomorrow to have a ECG - a memory clinic request - is this normal? Thanks and good luck everyone with getting appropriate support. x
Yes, it is shameful, completely. I think in about ten years, the Government will have to face up to the tsunami of dementia but believe that even then it will only be to recommend PWD be cared for at home. I believe the coming Green Paper will say the same thing. I so wish I could do something to help. Gxxxxaka kindred.