Hi, at this moment in time I feel completely overwhelmed..lost..really angry....and so, so sad!!
Yesterday went to the Drs, for the results of my husbands brain scan. He is 56. A couple of months ago he had a cough and cold, then suddenly struggled to stand up, got confused,was shuffling and wet himself. a visit to the Drs said that he had the flu, but they were concerned about the shuffling, and his legs and feet were very cold. They ordered a CT scan, and an Ultrasound as a precaution. The following day he was much better, definitely not the flu then!
We got the results yesterday which confirmed our worst nightmare... In the Drs words 'the theory supports the case for Mixed Dementia'. I personally thought that he might have Parkinsons, as his current symptoms seem to echo that. I am now wondering if he has Lewy Body Dementia, as I believe the symptoms are similar?
I personally think that he has always had some form of what would now be classed as a learning disability, when we were at school in the sixties, you were either bright or classed as couldn't be bothered, in his case he was told he was a dunce and would never amount to much. A dreadful stigma to place on a child. He has always struggled with reading and writing, however he now has almost 40 years of working as an engineer under his belt. He tends to learn by repetition, whether or not his struggles with reading etc, are in any way linked to his present condition is a question I need to ask next week at his first Memory assessment.
We can't get a Neurology appointment until August, and so at the moment he is still driving, working full time and also doing call outs with his job. I am so terrified of what the future holds for us, emotionally, physically and financially. We have no savings,as we have been paying a Mortgage in Spain for the last 10 years, as that was here we were going to live in the not too distant future. I feel as though our future is now non-existent.
So sorry for the long post, but any help or advice would be most welcome xx
Yesterday went to the Drs, for the results of my husbands brain scan. He is 56. A couple of months ago he had a cough and cold, then suddenly struggled to stand up, got confused,was shuffling and wet himself. a visit to the Drs said that he had the flu, but they were concerned about the shuffling, and his legs and feet were very cold. They ordered a CT scan, and an Ultrasound as a precaution. The following day he was much better, definitely not the flu then!
We got the results yesterday which confirmed our worst nightmare... In the Drs words 'the theory supports the case for Mixed Dementia'. I personally thought that he might have Parkinsons, as his current symptoms seem to echo that. I am now wondering if he has Lewy Body Dementia, as I believe the symptoms are similar?
I personally think that he has always had some form of what would now be classed as a learning disability, when we were at school in the sixties, you were either bright or classed as couldn't be bothered, in his case he was told he was a dunce and would never amount to much. A dreadful stigma to place on a child. He has always struggled with reading and writing, however he now has almost 40 years of working as an engineer under his belt. He tends to learn by repetition, whether or not his struggles with reading etc, are in any way linked to his present condition is a question I need to ask next week at his first Memory assessment.
We can't get a Neurology appointment until August, and so at the moment he is still driving, working full time and also doing call outs with his job. I am so terrified of what the future holds for us, emotionally, physically and financially. We have no savings,as we have been paying a Mortgage in Spain for the last 10 years, as that was here we were going to live in the not too distant future. I feel as though our future is now non-existent.
So sorry for the long post, but any help or advice would be most welcome xx