Newbie here! Feeling low
Hi to everyone here on TP, I have been lurking around, but have decided to be brave and post!
I've got to say first though how wonderful everyone is on this forum, there are so many kind, caring and knowledgeable people on here, it is great to see/read.
I am a carer to my dad (75) who has LBD and was diagnosed last year in mid May. Although looking back his symptoms first started at the end of 2010.
We (my son, OH and myself) had moved out in August 2010, he asked us to move back into his house (my childhood home) in April 2015, we moved back as I knew dad wasn't taking care of himself, this time with two new additions to the family in the form of my daughter and son, who are now 5 & 4 respectively, eldest son is 16.
I noticed that he was very quiet and you had to initiate communication as he rarely would. Then a few months later came the diagnosis of LBD.
His symptoms have gotten a lot worse quite quickly and his level of understanding/confusion is up and down like a yo-yo, I had him tested for a UTI just before Christmas, but it was clear. I am dealing with some difficult feelings, my husband and I are so tired as most nights he wandering and coming into our bedroom looking for a way out - he ALWAYS wants to go home! He is confused about where the toilet is, even though we leave the light on, door open and the toilet seat up for ease of use, he urinates on his bedside rug, in his chest of drawers, the bin, in his shoes etc.
He can rarely get himself dressed anymore, which is in stark contrast to 6 months ago, when he might've needed a little help
The thing is, and I apologise for the long post, I just want to know if there is anyone out there in a similar situation to me where everybody inc the person you are caring for all live under one roof?
How do you cope?
I had a very rough patch before the Christmas holidays and I am finding it increasingly hard to split my time between dad, my kids and doing chores etc, I am a full time carer. Especially with the youngest two, things have become difficult in regards to getting them to school on time and helping them with homework etc as I'm knackered, the head teacher has had to speak to me about their punctuality, I told her why and she referred me to SS, but I haven't heard anything from them as yet.
My husband works long shifts and I am the only (biological) child for my dad. I have brother, same mum; she passed away almost 15 years ago, but he has cut off all ties with the family and I haven't got a clue where he is. Dad has one brother and he doesn't help at all, despite being asked to and his nieces and nephews live in London
Most of his "friends" seem to of deserted him and I have lost contact with some people I thought were good friends as I have little time for myself anymore.
There are so many other things I want to say but I think I'll leave it for now.
Thank you to anyone who might have some advice for me, although I just wanted to vent as I find no one really understands, except for the lovely ppl here on TP.
And thank you for reading my novel!!! Too long