I echo what SouWester says - even though I'm with my wife 24/7 and she's a cheerful little soul, I do feel very lonely. It is very hard to go from loving husband to loving carer!
All the very best.
Phil
I totally agree with all of you. It is a very hard, lonely and empty life. My husband has FTD and it's so difficult watching the strong and independent man I married lose a part of himself everyday. It just tears me apart. I usually fall asleep crying and wake up crying the next morning and I think have I been crying in my nightmares all night long and one night will we drown in my sea of tears. It's so hard
People say to find something you enjoy doing. But that doesn't last forever and eventually we have to come back to reality.
Yes It is hard. I’ve lived with this for many years now and the country song ‘Cry me a river.’ could have been written about me. Seeing her suffer, I have said many times that I wished it was over for her sake. But as I have said in an earlier post on this thread, Saffie made me think again. I can honestly say that I have learnt to take one day at a time and, if I could coax one smile from MDW, I counted it a good day.
Now, being faced with the stark realities of end of life care, I find each moment needs to be treasured. Sitting by her bedside tonight, I sang ‘You are my sunshine’ and at one point her lips moved. A small thing, but it lifted me. I live in the moment, tomorrow will take care of itself.
Thinking of you and wondering how you are. Best wishes, Gwen x
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Apart from TP. there is no help for people like us.