I didn't watch the bits that other people mentioned about lack of dignity, but it is so hard to preserve any dignity at all in this disease and people should know that as well.
Yes you’re right about that, but then that why it’s up to us the carer to preserve the dignity for them, when they do not have the mental capability to do it for themselves.
What I am trying to relay to you all is that change has to happen in the future in how we can raise the profile of dementia getting Terry pratchett on board is a positive move forward is trying to get this over to the general public at large , who have a negative perception of dementia .
They must be loads of people like him & younger who have a dementia are in the early stages that are still living good quality life with medication for AZ
You got to have a vision for the future by laying the ground work now to make change. Could be done by getting a group of young people who have early onset of dementia, who are taking AZ medication also who have children getting they permissions to follow they life in how its effects they children also .
show the public how the relationship changes with the parents, the positive side also how they cope with the change , the services that on offer or not how they feel of course it take a lot of courage for the family a very good producer to do it with dignity for the whole family.
The public know the negative side of AZ when it get to that stage with the incontinent, show it how it can be done in a positive way even with incontinent , so the general public can get an insight into how medication for AZ does work for some people even in the late stage film that .
OK its only some people the medication who for , but those " Some people " can help raise mover forward the profile of AZ
I wish I had film the before after how my mother was when she never had medication for AZ then when she was given medication, that what needs to be film , to raise the profile of dementia for the future. Following someone life with a young family will get to the heart of the nation , Just like it did with cancer .