This weekend and past few weeks have been a nightmare. Hubby has had two brain tumours in the past and now diagnosed with Lewy Body Dementia, part of his second tumour was left in place as it is pressing on his brain stem.
It's like a living hell sometimes and his condition has deteriorated quickly this year. Twice he's tried to smash the front windows with ornaments because he thinks he can smell fumes in the house and wants fresh air. Prior to this he was convinced that next door were out to get him (they're not obviously) but he goes on about it 24/7. His medication has been changed over the past couple of weeks and it helped with the paranoia but the "smell" problem seems to be getting worse. I'm his carer 24/7 and I'm finding it difficult to keep going, especially tonight when it felt like chinese water torture just listening to him go on and on and on. I've put a smoke alarm, carbon monoxide detector, aromas in his room just to try and take his mind off it.
The Social Worker came round and said she would look into carer help or respite and that's the last I've heard of her. This sounds awful but I wish I was on my own, even after being together for 45 years. I've always had to work as he never has due to various anxieties and after everything else, there's the dementia.
It's like a living hell sometimes and his condition has deteriorated quickly this year. Twice he's tried to smash the front windows with ornaments because he thinks he can smell fumes in the house and wants fresh air. Prior to this he was convinced that next door were out to get him (they're not obviously) but he goes on about it 24/7. His medication has been changed over the past couple of weeks and it helped with the paranoia but the "smell" problem seems to be getting worse. I'm his carer 24/7 and I'm finding it difficult to keep going, especially tonight when it felt like chinese water torture just listening to him go on and on and on. I've put a smoke alarm, carbon monoxide detector, aromas in his room just to try and take his mind off it.
The Social Worker came round and said she would look into carer help or respite and that's the last I've heard of her. This sounds awful but I wish I was on my own, even after being together for 45 years. I've always had to work as he never has due to various anxieties and after everything else, there's the dementia.