Hello everybody
Just to let you know that while my husband STILL has not been formally diagnosed, I finally managed to speak to a neurologist (on-call, on a very difficult Saturday, wonderful man) who used two, no three words, that made a huge difference to me. They were "Poor man" and "Dementia". He also said that my husband should be started on Doneprezil immediately, and that it sounded like Lewy Body dementia to him…So I asked his PCP (GP in the States) who said he would prescribe it right away. I would love to know what others' experience with this drug is.
Because we had such a difficult day on Saturday (multiple episodes of me not being his wife, quite a lot of hostility on both sides) I actually managed to get good friends involved. Patrick (good friend husband) took my husband Joseph out to lunch and calmed him down, Kathy (good friend wife) took me in and made me make telephone calls until I spoke to the on-call neurologist. It was such a relief to open up to others, and for them to see what Joseph & I are going through. Patrick sat bemused through Joseph's stories about the other women who were making his life a misery. Then we all went to the cinema and out to dinner and had a lovely time.
Back in LalaLand the next day, but in a much more affectionate atmosphere. I have learnt a lesson in my own limits, and am just started learning lessons in forgiveness…
I know that others are dealing with much more difficult situations than i am, but I wonder if in some ways this period before formal diagnosis is one of the scariest? I am constantly second-guessing myself, and am having trouble trusting myself. Our children keep reassuring me that I can trust my own judgement, and that really helps.
Once again, thanks for listening. I listen to you too, and marvel at human frailty and resilience. Trust your own judgement, that's what I say.
Just to let you know that while my husband STILL has not been formally diagnosed, I finally managed to speak to a neurologist (on-call, on a very difficult Saturday, wonderful man) who used two, no three words, that made a huge difference to me. They were "Poor man" and "Dementia". He also said that my husband should be started on Doneprezil immediately, and that it sounded like Lewy Body dementia to him…So I asked his PCP (GP in the States) who said he would prescribe it right away. I would love to know what others' experience with this drug is.
Because we had such a difficult day on Saturday (multiple episodes of me not being his wife, quite a lot of hostility on both sides) I actually managed to get good friends involved. Patrick (good friend husband) took my husband Joseph out to lunch and calmed him down, Kathy (good friend wife) took me in and made me make telephone calls until I spoke to the on-call neurologist. It was such a relief to open up to others, and for them to see what Joseph & I are going through. Patrick sat bemused through Joseph's stories about the other women who were making his life a misery. Then we all went to the cinema and out to dinner and had a lovely time.
Back in LalaLand the next day, but in a much more affectionate atmosphere. I have learnt a lesson in my own limits, and am just started learning lessons in forgiveness…
I know that others are dealing with much more difficult situations than i am, but I wonder if in some ways this period before formal diagnosis is one of the scariest? I am constantly second-guessing myself, and am having trouble trusting myself. Our children keep reassuring me that I can trust my own judgement, and that really helps.
Once again, thanks for listening. I listen to you too, and marvel at human frailty and resilience. Trust your own judgement, that's what I say.