I was diagnosed with vascular dementia just over a year ago. We have learned about living with it, and have coped well with giving up work, losing my license and the other challenges it brings.
I really wanted to help develop treatments so that one day a diagnosis of dementia was not the life wrecking thing it is today.
Recently I had a very detailed MRI along with all the other tests we have done to diagnose dementia. This was to see if I was suitable for a drug trial. I was really hopeful that there might be medication to help with vascular dementia.
I have no problem coping with the fact that my dementia is not suitable for the drug trial.
The real bomb shell is that the MRI shows that in addition to the vascular dementia I also have alzheimers with lewy bodies.
I feel like I'm right back at the beginning of the dementia journey. I don't know what to expect.
I feel really really down.
Help
what do I do now?
I really wanted to help develop treatments so that one day a diagnosis of dementia was not the life wrecking thing it is today.
Recently I had a very detailed MRI along with all the other tests we have done to diagnose dementia. This was to see if I was suitable for a drug trial. I was really hopeful that there might be medication to help with vascular dementia.
I have no problem coping with the fact that my dementia is not suitable for the drug trial.
The real bomb shell is that the MRI shows that in addition to the vascular dementia I also have alzheimers with lewy bodies.
I feel like I'm right back at the beginning of the dementia journey. I don't know what to expect.
I feel really really down.
Help
what do I do now?