I notice from other posts that people have been able to look at their loved ones brain scans or been informed of the test results (i.e. score number). How did you find out this information please? I called the Memory Clinic again this morning and asked for either an appointment to see them or for Mum's GP to be sent a copy of the results (which he doesn't have), so we can discuss it with him but they seem extremely unwilling to do either. I am therefore wondering if we have a legal right to know the information? All we were ever sent was a copy of the letter from the Memory Clinic to the GP stating Mum has mixed dementia.
The Memory Clinic did give Mum a prescription for donepezil but due to the side effects, they agreed she could come off of them. That was over a month ago and although we were promised a follow-up appointment, we have heard nothing and when I mentioned an appointment this morning, I was told they "will see if it is possible".
So we are left with the GP not having full details of Mum's condition and Mum having no treatment other than the amitriptyline which she has taken for years for bladder problems. Whilst they keep her calm, they were not prescribed specifically for dementia. As Mum sundowns all day and also wanders, it is very frustrating that we are getting no medical help. It is getting to the point where I wonder if it would be better if we should pay to see a consultant privately and get her re-tested/re-diagnosed so that at least we would be able to speak to a Doctor about her condition.
Any advice would be most welcome.
The Memory Clinic did give Mum a prescription for donepezil but due to the side effects, they agreed she could come off of them. That was over a month ago and although we were promised a follow-up appointment, we have heard nothing and when I mentioned an appointment this morning, I was told they "will see if it is possible".
So we are left with the GP not having full details of Mum's condition and Mum having no treatment other than the amitriptyline which she has taken for years for bladder problems. Whilst they keep her calm, they were not prescribed specifically for dementia. As Mum sundowns all day and also wanders, it is very frustrating that we are getting no medical help. It is getting to the point where I wonder if it would be better if we should pay to see a consultant privately and get her re-tested/re-diagnosed so that at least we would be able to speak to a Doctor about her condition.
Any advice would be most welcome.