My partner of 16 years was diagnosed officially with Lewy Body Dementai with parkinsons in January,had Myloma for 16years ..even though we knew there were issues long before this but being 73yrs old was told his memory "age related".Anyway things were ticking along but three weeks ago he got an unknown infection and withing 3 weeks he is in long term hospital care with view to never coming home....not only am I losing my partner I have lost the benefits as everything ahs been suspended..this obviuously includes my carers allowance and income support...his Dla has been suspended...
at a total loss.
what it has highlighted is the how the carers who save the government £££££ by caring for their loved ones at home get forgotten at the drop of a hat..
the advise from job centre when I asked advise was basically get a job...there doesn't seem to be any emotional support..16 years I have cared for him he has Myloma as well..
feeling stranded
on top of this is have found paperwork and debt of £1400 4 diff companies payday laons...don't ask me where the money is I don't know yet..
moan over
at a total loss.
what it has highlighted is the how the carers who save the government £££££ by caring for their loved ones at home get forgotten at the drop of a hat..
the advise from job centre when I asked advise was basically get a job...there doesn't seem to be any emotional support..16 years I have cared for him he has Myloma as well..
feeling stranded
on top of this is have found paperwork and debt of £1400 4 diff companies payday laons...don't ask me where the money is I don't know yet..
moan over