So bizarre !

jugglingmum

Registered User
Jan 5, 2014
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Chester
Just popping in to say been reading but not had time to comment this week. Been to another bank this morning to register LPA, and dau going away for a week with school and seems to have no suitable clothes (think I haven't bought her much in last 18 months with this going on) so off to local shops (Cheshire Oaks) and may have to pop into Chester later.
 

RedLou

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Jul 30, 2014
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Hope you have a chance to enjoy the mother-daughter shopping expedition, rather than it simply seeming like another thing to do in too-little time, JM. I know I got to the stage where life seemed like a tick-list because of the pressures.
 

yadit0

Registered User
Mar 26, 2014
21
0
Leicestershire
So Bizarre

Mils delusions/confabulations are getting more and more extreme - though Thank god, she isn't finding them upsetting and they are not stressing her out at all. But the sheer 'strangeness' and the absolute lack of logic behind them is breathtaking.

Just yesterday, we had her asking when her next exercise session was - you know, the one where she and the dog go to the gym!

We had her frantically looking for the 'Christmas Mobile phone' she had bought - she showed it to me, she said - the red one, that she is allowed to use to phone her brother at Christmas.

Last night she leapt out of her seat to go and 'clean that room'. What room? The one upstairs, where we play ten pin bowling, apparently - oldest daughter caught that one - I walked in to find Mil demanding that daughter accompany her up the stairs so she could SHOW her the bowling alley, and Mil then insisted that I went too. She went in every bed room, bathroom too - even opened the landing cupboard - but wasn't that worried when it couldn't be found.

This morning, she is worried about getting to her job at the theatre on time - the theatre where she wears the blue dress on the stage and there are horses :confused:

Because she isn't upset, then it doesn't worry or upset me, and its not stressful to deal with - but I am seriously puzzled by where on earth these odd ideas come from!

Ann Mac, I had a similar thing with my mum but only the once up to now she rang me very upset, saying she had heard her Grandson on the radio saying he and his family were going to the Seychells but they were not taking his grandmother, (My Mum) we normally all holiday together. Where an earth did she get that from The Seychells I have no idea, shes never been and would have no idea where it was, I could only presume she had heard it on the TV at some point as she never listens to the radio. I had to have a little chuckle to my self and say I wish.
 

Grey Lad

Registered User
Sep 12, 2014
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North East Lincs
My diary has gone now perhaps it is with my Hudl. Anyway what else have I got to do as Maureen is sleeping off the relentless verbal onslaught from an invisible. Thank goodness he won't be around again for a while. The hunt is on.......:D
 

2jays

Registered User
Jun 4, 2010
11,598
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West Midlands
My diary has gone now perhaps it is with my Hudl. Anyway what else have I got to do as Maureen is sleeping off the relentless verbal onslaught from an invisible. Thank goodness he won't be around again for a while. The hunt is on.......:D

I feel a poem coming on :eek:
It doesn't happen often....

But first I need to know... Are your wallet or hudl male? And you might want to change the name to hudl or wallet :D

https://m.youtube.com/watch?v=UQrHbbfGsDA


Sent from my iPhone using Talking Point
 
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Ann Mac

Registered User
Oct 17, 2013
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Morning all.

I'm working on the tree puzzle, 2jays - suspect I may find the answer to that, before I find the answer as to why Mil does what she does :rolleyes: :)

JM, Red is right - too often instead of taking time and enjoying things like a Mum/Daughter shopping trip, things like that do end of as something to be just 'ticked off' a list - I hope you and your girl managed to have a nice time together.

yaditO , I seemed to spend a fair bit of my thinking time trying to work out where some of Mils delusions spring from - sometimes, I can identify where the idea's come from, but other times, I'm completely stumped. Increasingly, though, there is no doubt that the TV plays a part and we now have to very discretly (because there are certain programmes she loves but which we know will set her off) try and be selective about what she views.

Where was the hudle, GL? Hope Maureen has recovered from the invisibles visit, bless her x

Had words with day care yesterday. Walked in to collect Mil, to find her very confused and agitated, she wanted to know if the visitors her son and Seamus were expecting had turned up?. Though she has a legion of Irish nephews and relatives, none have the name Seamus - the only Seamus she knows is our lunatic puppy, so I assume that's where that name came from! Anyway, reassured and said 'lets go', only to have Mil make a beeline for a plate of biscuits saying she must finish them first. Now, I've had 2 or 3 face to face conversations about Mil's weight with the senior staff there, I've spoken to them on the phone about her being given large bags of sweets as 'raffle prizes' or about her lifting sweets and chocolates from other relatives. I've reported the concerns raised about Mils breathing as a result of the extra weight after her COPD review, about how upset she gets at being increasingly breathless, about the worsening of her arthritis and about how difficult it is for her to bend and dry her feet, put on shoes and do numerous other things when she is carrying nearly 13 stones on a 5 foot frame. Each time, I'm told that they will stop the second breakfast of toast laden with butter as soon as she walks through the door, and stop the providing her with biscuits and cakes every time she asks. They have also said they will do something about portion control at meal times. But its clear that they aren't doing this - last week one staff made reference to her having her 'usual toast' on arrival and another said she had been asking for biscuits all day, adding that they had just given her 'plain ones' (rich tea and digestives)! Seeing her with the biscuits, I saw red - in front of all the other staff and in earshot of the lady in the kitchen, I told them it had to stop and that they weren't being fair to Mil. That I'd asked several times and was fed up with having to deal with the results of the weight gain and the upset it was causing Mil, as well as the damage to her health. That they were making life harder for both Mil and me. I wasn't rude, but I made it clear how fed up I was - there were a couple of surprised faces, they are definitely not used to me being an 'awkward' relative, but honestly - what do I have to do to get them to listen and act? Mil was not one bit bothered at this, concentrating instead on stuffing the last of the biscuits in her mouth, her only comment was 'It was only two biscuits, Ann' :rolleyes:

In the car, initially quite confused and a confabulation about her having been to the shops to pick up 'something for the woman who lives next door but one' led to a panic as she declared that she had left the shopping behind and please we had to go back for it as it was a 'present for the womans' Mum's birthday, an ornament' and she had to get it as the birthday was 'tomorrow'.

Back home, no nastiness, but oh my goodness - the delusions and confabulations :( We had the 'little girl', we had looking for dance shoes, a box of pots, looking for the letter from her nephew, asking where the room with the lights in it had gone, looking for the piles of clothes she said she had just ironed, all the cushions off the sofa as she searched for something she couldn't remember the name of, asking me where Ann had gone and where Ann's daughter was (as youngest was sat next to her). Oldest phoned to tell us how her primary school placement was going (the last thing she has to do to finish her teacher training) and she spoke to her Nana, who spent 5 minutes telling oldest about how she had spent all day walking by the river and - after asking about what Oldest was doing and being told again about how she had got a job - was amazed because her son's daughter had also just trained as a teacher and had got a job in Stockport too. When she finished on the phone, within less than a minute, she was telling me about when she taught in a primary school - after she came out of the army, that was :rolleyes:

The chatter and the confusion, with her groping for words and sometimes sounding a little garbled because of that, carried on all evening - as I said, not a bit nasty but boy, it caused ringing ears. I offered her meds at 8.30 and she said no, she wanted to stay up for a bit, but finally at about 9.30, OH simply told her it was time for meds and bed, and off she went. Helping her/making sure she put the pull ups on upstairs, she informed me she was getting worried she might be pregnant, as she hadn't had a period 'for months' - I reckon I did well to come up with telling her that no, it was the medicine she had 'last time you were poorly' that was causing the delay, not pregnancy - she accepted that, thank God, but again - the mind boggles!

Just after 3 a.m., on my way to the bathroom I heard noise from her room, and on checking found her stood in front of the wardrobe rifling through her clothes - but she let me guide her back to bed and settled straight back to sleep, so that was OK.

My camera finally arrived at 3.30 yesterday afternoon, having taken 11 and a half hours to make the usually 45 minute journey from Deeside, according to parcel tracking - must have taken the scenic route :rolleyes: Anyway, hoping to find time to have a play with that today, once I have the usual chores sorted.

Hope you all have a good day today x
 
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Grey Lad

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Sep 12, 2014
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North East Lincs
Hi AnnMac sounds like another busy day. The Hudl surface when I turned over a chair in the lounge. when I was looking for my diary. Now I am sure I had done that before.

I don't think Maureen has recovered from visit of invisible. She is clearly still tired and who wouldn't be after that ear bashing but there is more to it than that. As she is 'time travelling' she may be even more confused about where she is in her life span. She is clearly unsettled this morning and I haven't helped things by showing my irritation over a minor matter. It will be interesting to see how things go but my guess is that visitors cause confusion and mess up our routine. Unfortunately, as you know none of this helps.

Later Note: Maureen sobbing in bed that she wants to go home but realises she lives here and there is nothing to look forward to. This is a common response when her son comes. She wants to go back to a time when dementia was not having such an impact on her life. I think?
 
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LYN T

Registered User
Aug 30, 2012
6,958
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Brixham Devon
I'm glad you had a few words. 13 stones is far too much for a lady who is vertically challenged-it's no wonder that MIL has problems with COPD. As you say it's not fair on either of you.

You can buy weight watcher biscuits:) If MIL gets really huffy about lack of biscuits could they try those? Mind you I've no idea how calorie friendly they really are.

Ann- you have the patience of a saint.

Love

Lyn T XX
 

Spamar

Registered User
Oct 5, 2013
7,723
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Suffolk
No grey, she wants to go back to when there were no problems, which usually means childhood, although it can mean some nebulous state that doesn't actually exist.
 

Grey Lad

Registered User
Sep 12, 2014
5,736
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North East Lincs
No grey, she wants to go back to when there were no problems, which usually means childhood, although it can mean some nebulous state that doesn't actually exist.

I think we are not differing on this point. She simply does not like having dementia. Unfortunately, her default has always been flight: to run away rather than face up to difficulties in her life. I think this is making it even more difficult for her. But you can guess who suggest that I think to much. Here's a hint - they are not easy to see and they don't visit very often.:D
 

Spamar

Registered User
Oct 5, 2013
7,723
0
Suffolk
Don't forget, grey, nobody likes having dementia and nobody likes dealing with it!

Ann, bet you're having a fun time with new camera!

Had yet another blood test this morning, ostensibly so that the rheumatologist will have something up to date. Unfortunately, no appt as yet! The nurse asked if OH was still at home. When I said no, In care, she said I was looking much less harassed! Or maybe it's Launde! I know one thing, my sinusitis has got a lot worse since I got home and my eyes are really sore. Maybe need a bit of rain? It's dry as chips here!

OHs FNC this afternoon, that'll be fun!
 

SpringsEternal

Registered User
Jun 26, 2015
5
0
My mum not yet diagnosed with any form of dementia has had a fair few episodes of seeing things that are not there , the first time this happened she had been put on a very mild dose of anti depressants and was seeing people at the windows, someone tied up in the back garden ( she phoned the police over that one) and dancing talking cats. We put this down to a bad reaction to the tablets and all seemed fine for a while.

Recently she has started seeing my late father and can say what he was wearing in great detail although she is almost blind and can not even see the buttons on the telephone ,but I had put this down to grief as he only passed away 6 months ago.

The other day we were talking about a childhood friend of mine and she said that night she had "strange" thoughts but could only remember that she could see lots of "Ians" as in multiple doubles of my childhood friend. Is it possible that if she does have early dementia or even a more progressed dementia that she would know that these thoughts were " strange" ?.

I have no experience with this at all.
 

Cat27

Registered User
Feb 27, 2015
13,057
0
Merseyside
Don't forget, grey, nobody likes having dementia and nobody likes dealing with it!

Ann, bet you're having a fun time with new camera!

Had yet another blood test this morning, ostensibly so that the rheumatologist will have something up to date. Unfortunately, no appt as yet! The nurse asked if OH was still at home. When I said no, In care, she said I was looking much less harassed! Or maybe it's Launde! I know one thing, my sinusitis has got a lot worse since I got home and my eyes are really sore. Maybe need a bit of rain? It's dry as chips here!

OHs FNC this afternoon, that'll be fun!

It seems LA has done you a world of good :)
 

Ann Mac

Registered User
Oct 17, 2013
3,693
0
The Hudl surface when I turned over a chair in the lounge. when I was looking for my diary. Now I am sure I had done that before.

You know what, GL - that sort of thing happens all the time here ! According to my family, the invisible twins are responsible - do you know them? Apparently their names are 'Itwasn'tme' and Ididn'tdoit' !


It must be so horrible for you to see Maureen so upset - I hate seeing Mil like that, when its not temper or just being awkward, when she is just miserable at her situation, even though she can't explain it most of the time.

Getting used to the new camera, slowly but surely, Spamar:D I used a 5D mkII a lot whilst in uni - the difference between that and the earlier model - which is what I have now - is surprising! Having trouble at the moment with exposure compensation - easy to sort usually, but having trouble figuring out the way to do it on this camera - but I'll get there. The person I bought it from said he had had it 'reconditioned' - well, I think he has, but then left it siting without lens or cover, as the sensor is filthy! I've given it a good clean, but suspect that it will have to go into a specialist in Chester for a proper overhaul and 'deep clean' - images aren't affected, but I can see fibres and dust motes through the eye piece, and its annoying! Hope that appointment comes through for you soon - so stupid how long you have to wait these days. I've now been waiting since December for an 'urgent' appointment with the pain management clinic - not holding my breath!

Not holding my breath on day care responding appropriately, Red - I've asked and spoken about this wioth them so many times :( Lynn, I find the trouble with low cal products is that Mil still wants them in quantities that renders the low fat/low cal lable as useless! Easier to simply remind her that she has diabetes and must be careful or get poorly - or, I tell her its a shame, 'cos I'd love a biscuit too, but both she and I have to lose weight so we can't - sometimes, thinking she isn't the only one missing out is enough to settle her.

Still got Little Miss Chatterbox here this morning - mostly doom and gloom (I threatened to tattoo 'don't trouble trobule, till trouble troubles you' on her knuckles this morning - she's always blooming expecting the worst to happen! ). OH again got in bother with her for being 'too chirpy', reminded that he isn't a 'comedian' so doesn't need to be so 'stupidly happy' all the time. That's him told then! I got the blame for most of the confabulations this morning though - she was rooting by the coat rack for a downstairs loo that we don't have - she told OH that I'd said there was one there. I'd also told her that he was at the doctors yesterday and that youngest was off school ill. Obviously, I hadn't said any of those things and I still find it hard to get my head around how she can come out with something completely false, be reassured that its OK, this or that hasn't happened - then calmly switch the 'blame' for her mistake/misunderstanding onto the nearest handy person, saying that they have given her the wrong info!

Right going to get stuck into some sewing now - first of 6 patchwork cushion covers nearly finished, its times like this when I think that I really should think about getting a sweing machine!
 

Ann Mac

Registered User
Oct 17, 2013
3,693
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My mum not yet diagnosed with any form of dementia has had a fair few episodes of seeing things that are not there , the first time this happened she had been put on a very mild dose of anti depressants and was seeing people at the windows, someone tied up in the back garden ( she phoned the police over that one) and dancing talking cats. We put this down to a bad reaction to the tablets and all seemed fine for a while.

Recently she has started seeing my late father and can say what he was wearing in great detail although she is almost blind and can not even see the buttons on the telephone ,but I had put this down to grief as he only passed away 6 months ago.

The other day we were talking about a childhood friend of mine and she said that night she had "strange" thoughts but could only remember that she could see lots of "Ians" as in multiple doubles of my childhood friend. Is it possible that if she does have early dementia or even a more progressed dementia that she would know that these thoughts were " strange" ?.

I have no experience with this at all.

Not so much now, but certainly as little as maybe 12 months ago, Mil did seem to have some insight into the fact that her delusions/hallucinations were not real - she has asked 'did this or that happen - or have I been dreaming again?'. Sometimes telling her that the 'man with a gun' or the 'dragons' were just 'one of your daydreams, hun' was enough to help calm her down. As the illness has progressed these delusions/halucinations are I think becoming more her reality than real life is. She is so utterly convinced that what she is saying is 100% fact and true, no matter how strange or illogical - and like your Mum in describing your late Dad's clothes, the details she produces can be amazing. And if challenged, she is incredibly quick at coming out with either her idea of 'proof' of what she says or in changing the story quickly to counter whatever you say.

Phoning the police - because her husband wasn't home from work (she's been a widow for 20 years), or because she had been kidnapped, or was being poisoned or being threatened by people - was such a regular event at one time, you could have almost classed it as her hobby! We have the phone hidden when she is at home, now.

The mutiple people have been around for a long time, certainly the last 2 years at least - she will often tell me about what that other lady, who is also called Ann, has said and done - I'll help her have a bath, leave her to finish dressing afterwards and she will follow me downstairs 10 minutes later and tell me that 'that Ann made me have a bath' or that 'Ann has washed my hair for me'. The one thing I have noticed though, is that with all the multiples, often the other Ann, the other son (my OH) or the 'other' grandchildren are much younger than we all are now - I look on it at a sort of a time slip - a memory of one or all of us from younger days has popped up and she thinks its only just happened, or she half remembers that I've said something/done something, but her mind superimposes a vision of the younger me into her head, so she thinks its a differnt person.
 

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