Hi Kazza, thanks for replying to my post. I am so sorry to hear what you are going through. It scares me what may lay ahead. How in the heck do you cope?? There needs to be a lot more understanding and awareness of this disease. I wish that people would include my Mum in conversations, rather than talking to me, just because she often goes off topics and says "strange" things. I have trouble trying to encourage her to make new friends.
We too are on our own. My sister has completely abandoned us too, I find that so selfish. I completely ignore her now, she's such an angry and bitter person. I did feel enormously stressed when Dad was dying because we were completely on our own looking after him. I suppose everyone's experience is different and I think that because it's been exactly 1 year and 1 week since my Dad passed away, I'm feeling quite emotional. I know that my Dad is safe and happy now. He was a good patient though, never complaining.
All you want to do is just love and protect them. It's just so hard and yet we're only at the beginning! I really do feel for you, Kazza. There seems to be a lot of people who don't understand or who can't be bothered to help out. A lot of "ignore it and it will go away" attitude.xx
We too are on our own. My sister has completely abandoned us too, I find that so selfish. I completely ignore her now, she's such an angry and bitter person. I did feel enormously stressed when Dad was dying because we were completely on our own looking after him. I suppose everyone's experience is different and I think that because it's been exactly 1 year and 1 week since my Dad passed away, I'm feeling quite emotional. I know that my Dad is safe and happy now. He was a good patient though, never complaining.
All you want to do is just love and protect them. It's just so hard and yet we're only at the beginning! I really do feel for you, Kazza. There seems to be a lot of people who don't understand or who can't be bothered to help out. A lot of "ignore it and it will go away" attitude.xx