Please note that some of the features of Talking Point have changed since our Help videos were produced. The videos still contain lots of useful information about using and finding your way around Talking Point, however.
Advertising is not permitted on Talking Point. We do not accept posts from commercial organisations, their employees or families, which advertise or promote products or services. The promotion of commercial organisations, products or services via member usernames or profile listings is also prohibited, and may be subject to editing or deletion. This is a support forum, so please do not use it to try to sell things to other members.
Alternative and complementary therapies are a broad range of treatments that are outside of conventional medicine and are used to treat or prevent illness and promote health and well-being. Practitioners of alternative and complementary therapies are not trained to diagnose disease.
A therapy is considered to be 'alternative' when it is used instead of conventional medical treatment to try and treat a disease or symptom. If a therapy is used alongside conventional medical treatment, it is considered 'complementary'.
When discussing alternative or complementary therapies, please do not:
You can share your experience of taking or receiving an alternative or complementary therapy on Talking Point, but please do not make claims about their effects or encourage other members to follow suit.
More information about alternative and complementary therapies can be found in our factsheet:
Forum members may at times wish to use Talking Point to highlight a dementia-related campaigning issue.
Members who would like to post in relation to a campaigning issue should contact the Talking Point Manager in the first instance, to seek permission to post.
Once such requests have been approved, posts should be made in the Raising Awareness and Campaigning forum.
The Talking Point forum, by its nature, contains content that is adult.
A parent agreeing for their child to view and perhaps contribute to Talking Point must do so in the knowledge of the forums and their content.
Talking Point is a public site on the Internet, so anyone - including a child - who has the means to browse the Web can explore parts of this forum.
While anyone can view Talking Point, registration is necessary to be able to contribute to it. The registration process asks prospective members to confirm that they are 13 years of age or older. If a prospective member is under the age of 13, then permission from their parent or guardian will be sought, before their account can be activated.
As part of the registration process for a child who is under 13, a parent or guardian's email address has to be provided. Notification of the child's intention to register on the Talking Point forum is then sent out by email to that address.
The email asks the child's parent or guardian to complete and sign a form, before returning it to the Talking Point Manager at Alzheimer's Society. When the form has been received by the Talking Point Manager, the child's Talking Point account will be activated.
There is a very helpful resource called Wisekids, which contains a host of materials that might also be usefully read by adults, who are often less up to speed on Internet matters than children.
Netiquette is a particular topic in that category.
A quote from the How to use the Internet Safely (a Guide for Parents) guidelines from this site is:
"Talk to your children about the things that they may encounter online. Without scaring them, make them aware of chat room danger, web sites with inaccurate information, unsuitable material online and email from strangers. They should understand that people online are not always who they say they are."
If you register on the Talking Point forum, you will need to select a name to use that has not been registered already, as the forum will not permit multiple users with the same name, for obvious reasons.
What not to use
Because Talking Point is a fully public web forum, a username should never be selected that can identify the person using it. The username shouldn't be a variation of your real first and family name, for example. Neither should the name give any indication of the e-mail address of the person, or the telephone number, or the postal address.
The promotion of commercial organisations, products or services via a member username or profile listing is prohibited, and may be subject to editing or deletion.
The use of profane or offensive language in your username is also prohibited.
What to use
The main thing about deciding on a username is that you have to be able to remember it yourself! Apart from that, anything that has not been used before and that is acceptable under the Talking Point rules [that is, should not be offensive, for example] should be ok.
Please make sure that you are happy with the name you have chosen before you actually register it, as it cannot be changed afterwards.
Alzheimer's Society Central Office contact details are:
43-44 Crutched Friars
London EC3N 2AE
Tel: 0207 423 3500
To contact the Online Community Manager, click on the 'Contact' tab at the bottom of this page, or email firstname.lastname@example.org
Members of Talking Point are welcome to post their original written work (e.g. poems) and images on the forum. However, please note that written work, photographs taken or images produced by other people cannot be reproduced without the permission of the copyright holder (usually the author). Copyright applies to printed and recorded material, such as:
Such materials should not be reproduced in full, or in part, on Talking Point.
Messages found to be in breach of copyright legislation will be edited as appropriate.
You may find the following information about copyright useful:
The Intellectual Property Office's website provides general information about copyright: http://www.ipo.gov.uk/c-about.htm
The UK Copyright Service's website includes some useful and accessible information, including:
For health and safety reasons, members are not permitted to advertise items on Talking Point, whether for sale or donation.
This includes offers of second-hand equipment.
Members interested in fundraising for the Society by auctioning items on Talking Point, should contact the Talking Point Manager to seek advice before posting.
Alzheimer's Society factsheets provide information on a wide variety of topics relating to dementia:
Once you have registered a username and password with Talking Point, you can post messages and send private messages, and you can also see areas of the forum that are not available to guests.
Should you forget your password, you will not be able to log in, and you will be able to use the forum only as a guest.
If you forget your password, please email email@example.com, using the same email address as you did to register originally. In your email, sign off with your Talking Point username.
The username, together with the email address, give a level of security to your request.
When your password has been re-set, you will receive an email from Talking Point informing you of your new password. You will be able to change your password back to one of your own choosing via 'Your Account', once you are logged back in to the forum.
Talking Point supports and thanks people who are fundraising for Alzheimer's Society in the UK.
Fundraisers for Alzheimer's Society are encouraged to use the JustGiving website: www.justgiving.com/alzheimerssoc/ to raise funds online.
Supporters donating or pledging money through JustGiving can be assured that their money is going to help Alzheimer's Society in the UK.
Talking Point members are not encouraged to donate to Alzheimer's Society online via any other site.
Posts raising funds for causes other than Alzheimer's Society in the UK may be removed.
Charity Auctions on Talking Point
There will be restrictions on the types of goods that can be auctioned for charity, for Health & Safety reasons. For those people interested in fundraising for Alzheimer’s Society in this way, please contact the Talking Point Manager to seek advice before posting.
To ensure that Talking Point is as effectively supported and protected as possible, we have a structured ‘Infraction System’, to be used when the forum’s rules are broken.
What is the Infraction System?
The infraction system is an automated way for moderators and Alzheimer’s Society to issue warnings or bans (infractions) to users who do not follow the terms and conditions of Talking Point.
The system that we will be using is based on ‘yellow cards’, which can culminate in a ban being issued. These are generated by the forum software.
The following may be issued by a moderator or Alzheimer's Society, when Talking Point’s rules are broken:
1. ‘Yellow Card Warning’
This is a friendly reminder of the forum rules. This warning will last for 10 days on the user’s profile. Note that this will only be visible to moderators.
2. First ‘Yellow Card’
If the user contravenes the forum rules again within this 10 day period, they will be issued with their first yellow card. This will last for a further 10 days.
3. Second ‘Yellow Card’ & 1 day ban
If the user further contravenes Talking Point`s rules, during the 10 days, they will be issued with a second yellow card which will result in a 1 day ban.
4. Temporary Ban
If the user seriously contravenes Talking Point’s rules they may be banned until Alzheimer’s Society has been able to review the situation.
Any decision made in relation to an infraction is final. No correspondence will be entered into nor will moderators be obliged to further discuss the reason for the infraction with the user concerned. Please note that a log of users' infractions may be kept to assist with forum moderation.
The media should not contact members of Talking Point directly. If a member receives a direct personal contact from anyone in the media, please refer them to Alzheimer's Society.
When a member registers on Talking Point, they must agree to Talking Point's 'terms and conditions of use' before they can post anything.
In brief, here are the main conditions:
Frequently, interpretation of Talking Point's 'Terms and Conditions of Use' requires judgement on the part of moderators and the administrator, as few situations are truly clear cut.
As far as is reasonably possible, Talking Point will maintain a consistent stance in applying the 'Terms and Conditions of Use'.
For example, individual members, including moderators, may have differing views on what constitutes something that is offensive, and a post that is offensive to one person, may not be to another.
The responsibility for a final decision on interpreting the 'Terms and Conditions of Use' rests with the Talking Point Manager at Alzheimer's Society.
All volunteer moderators have personal experience of dementia, and as such, they may post into the forum exactly as other members do.
When a moderator does so, their contribution carries the same weight as that of any other experienced member, no more - unless they make clear that their post is one of a moderating nature.
Moderators have two main parts to their public moderating role:
Alzheimer’s Society has a responsibility to protect the privacy and interests of members of the Talking Point forum. This includes ensuring compliance with libel and copyright law.
Posting comments that are considered damaging to others’ reputations could leave both you and Alzheimer’s Society at risk of legal action. Therefore you are not permitted to say anything that might lower or damage the reputation of an identified person or organisation.
Even if you do not name the individual or organisation explicitly, please bear in mind that other contextual information you post may achieve the same result. While such comments may or may not be true, the Society is not in a position to verify the facts and therefore will always err on the side of caution.
Negative comments about an individual or organisation that could be interpreted as libellous or breaching copyright will be edited or removed by the moderating team.
Alzheimer’s Society encourages members to share their personal experiences on Talking Point, although you are asked to comply with the following requirements for the good of the forum.
Alzheimer's Society's factsheet, 'Voluntary Organisations', provides information on other sources of support: http://www.alzheimers.org.uk/factsheet/412
Personal endorsements of products or services that may be of benefit to our users may be permitted on this forum, but if you have any commercial interest please declare this openly and refer to our Help section on Advertising.
Alzheimer's Society does not endorse in any way, and expressly disclaims liability for any product, manufacturer, distributor, service or service provider mentioned or any opinion expressed in answers or comments in this area of the forum.
We ask you to keep any links that you post on Talking Point relevant to the discussion. Links which are not judged to be appropriate for this forum, or which contravene forum rules, may be removed.
To help keep Talking Point secure, and to reduce nuisance or ‘SPAM’ posts, new members may not post external links on the forum until they have posted ten bona fide messages. New members who wish to post links for legitimate purposes, e.g. fundraising or campaigning, should contact a member of the moderating team, or email firstname.lastname@example.org.
Alzheimer's Society is not responsible for the content of external websites. All members wishing to post content held on external sites are reminded of our guidance re. copyright.
Talking Point is a publicly visible online forum, which means that most of the information posted here can be viewed by anyone browsing the internet. Talking Point discussions often come up in Google searches on specific topics, and content from the public areas of the forum may be used in other Alzheimer's Society channels - for example twitter and the homepage of the Society's website.
To help maintain the privacy and safety of forum members, we strongly advise that you register on the forum with a nickname (please see our Help section on choosing a username).
We advise you not to include any information that might identify you when you post on Talking Point, unless you have no concerns about your identity being recognised. The more detail that you post about your circumstances (for example people’s real first names, the area in which you live, photographs, etc) the greater the chance that you, and/or the people you are writing about, may be recognisable to others viewing the forum (this can of course include family members, care home staff, and health and social care professionals). Please be aware that we may not be able to retrospectively edit or remove posts in the event of difficulty.
Maintaining other people's privacy
It is good practice, where possible, to seek permission before posting personal information about, or photographs of, other people on Talking Point.
Contact details and personal information
We do not permit our members to share contact details on the public forum (address, telephone number, email address, etc). Identity information can be communicated using the Private Messaging system, but it is not generally recommended.
Please do not post messages encouraging others to disclose contact details about themselves. When such details appear, they will be removed by the Talking Point team.
Please do not post messages with the sole intent of urging others to post personal information (e.g. images, stories) on other websites which may not have the same safeguards as Talking Point.
Before you can contribute anything to Talking Point you will need to register as a member.
Once you have registered, your basic membership details will be available for other members to see.
Nothing that can identify you is visible, unless you have used real personal information when registering - something that is strongly not recommended.
Please do not enter personal contact details into your public profile listing (email address, telephone number, etc); such details will be removed.
Some messages on Talking Point might cause concern to some people, for example:
For example, you may see advertising messages, messages from members who may be at risk of harm, or messages which are offensive or upsetting.
If you are concerned about any of the above, you should immediately report it to the moderating team. All concerns raised will be in confidence to the moderating team. The best way to do this is directly through the forum system by using the 'Report' button.
You can find the 'Report' button on the bottom right hand corner of every message posted on a discussion (these are also known as posts) and on every Private Message. You will see a warning symbol and the words 'Report Post':
Click this button and a box will appear. Type in your concerns about the message and press 'Send Report'.
When you press 'Send Report', an e-mail is sent to the Talking Point moderators and Talking Point Administrators. That e-mail will contain your Talking Point username and the email address you use for Talking Point, along with your message.
You can report a Private Message or a message on a discussion that causes you concern by using the 'Report' button.
What will happen after I have reported my concerns?
Your concerns will be considered by either the Talking Point Manager, the Talking Point Administrator, by all moderators, or by all moderators and Talking Point Administrator and Manager.
The concerns may be noted and the particular area more closely monitored or investigated for a while to learn more.
You may receive a reply saying that your concern has been noted but that it is not considered necessary to take action or you may receive a reply that says your concern is being acted upon.
If you see a message that causes concern please do not reply to the message on the forum, or take issue directly with the person who wrote it. Instead, please report it to the moderating team at the earliest possible opportunity – they have the experience to deal with most situations.
If, for any reason you would prefer not to contact all the moderators, and the matter is not urgent, you can contact an individual moderator, the Talking Point Administrator or the Talking Point Manager by sending a Private Message. Please include a link to the message which has concerned you or include the name of the discussion. You can also forward Private Messages.
If you feel that your concerns have not been addressed appropriately, or if your concerns relate to an area for which Alzheimer's Society is responsible, then you may wish to refer to Alzheimer's Society's complaints procedure.
We are responsible for ensuring that Talking Point is used in an appropriate way by researchers.
We can only ensure this if we are provided with information confirming that a research project has received ethics consent from the National Research Ethics Service (NRES).
We cannot allow the forum to be used to recruit participants for any studies without prior permission from Alzheimer's Society.
Anyone interested in posting a message about a research project should contact the Talking Point Manager before they post. This will help to avoid confusion, and assure forum members that all invitations to be involved in research which are posted, have been approved by Alzheimer's Society.
Students, researchers and professionals who are looking for general information about dementia, or who wish to canvass for opinions via the forum, are welcome to do so, provided they post publicly, and in the relevant section, Researchers, students and professionals.Please do not ask questions which may lead to forum members posting personal or contact information, and please do not post your own personal or contact details.
Researchers and students may also find it helpful to contact Alzheimer's Society's library, the Dementia Knowledge Centre, at email@example.com.
Sharing real life experience through the media is a crucial part of raising awareness of dementia. A single story can achieve more than a thousand facts or figures: it can give personal insight and achieve lasting change.
This is why you can help. If you are living with dementia or caring for a person with dementia and are interested in sharing your story with the media, then Alzheimer's Society would like to hear from you.
To find out more, please contact our press team at firstname.lastname@example.org.
Talking Point is an English-speaking community and as such, members are asked to post messages in English.
Alzheimer’s Society provides the following information and support for people whose language of choice is not English:
We provide several publications in different languages.
Our National Dementia Helpline can arrange a simultaneous language translation service for callers whose language of choice is not English.
Additionally, Alzheimer’s Disease International provides a list of dementia support organisations worldwide, many of which provide online information and support in languages other than English.
These online forums are meant as a support group for peer-to-peer discussions, and are not an official channel for Alzheimer's Society.
Moderators and Hosts are all volunteers, who are selected and recruited by Alzheimer's Society.
If you have any comments or complaints about Talking Point or any of its members, please write to email@example.com.
Terms and Conditions of Use: Last updated March 2017
Don't reply unknowingly to an old thread: Before you reply to any post, always check the date of the last message that was posted there. You will find the date and time of each post at the top left.
Remember that Talking Point is a public forum: Whilst Talking Point is a supportive community, remember that anything you post in the public forum can be viewed by anyone with access to the Internet. Never post information that might help someone identify you or where you live.
Ensure you abide by the forum rules: i.e. please don't use foul language or insults; don't name care providers or individual staff associated with them; don't promote a product with which you are associated; and don't 'hijack' a thread by taking it off-topic.
Remember that Talking Point members often post at times of stress: This can lead to mis-understandings and sometimes, conflict.
Talking Point is an online support and discussion forum, for anyone affected by dementia. It's a place to ask for advice, share information, join in discussions and - most of all - feel supported.
Anyone can visit the forum as a guest, and browse its content.
If you would like to communicate with others and ask your own questions, you will need to register as a member.
The forum is managed by Alzheimer's Society and supported by volunteer moderators.
Talking Point is available 24 hours a day, every day of the year.
Talking Point is not:
The main purpose of Talking Point is to support people affected by dementia. Other matters, such as active campaigning and soap-boxing, are welcome as long as:
Moderators will move or delete contributions that disrupt the benefits that the majority of members gain from Talking Point.
Talking Point is here for anyone who is affected by dementia.
The forum is public, and thus most content may be viewed by anyone who has an Internet connection and a browser.
Some content is able to be viewed only by registered members, and only registered members may contribute to the content of the forum.
There are five different types of active Talking Point members, who all use the forum in varying ways: New Users, Registered Users, Volunteer Hosts, Volunteer Moderators, and Administrators.
There are also some members whose accounts are no longer active, who are listed as ‘Account Closed’.
All members’ user-types are listed underneath their Talking Point usernames, both on their profile pages and next to their posts on the forum. You can read more about the different types of Talking Point members below.
Many members of Talking Point are ‘New Users’. A ‘New User’ is a person who has completed Talking Point’s registration process, agreed to accept the Terms and Conditions and has posted less than 10 messages on the forum. To help keep Talking Point secure, ‘New Users’ are not able to access all features of the forum, until they have posted 10 messages on Talking Point.
‘Registered Users’ are Talking Point members who have completed Talking Point’s registration process, agreed to accept the Terms and Conditions, and have posted on the forum more than 10 times.
’Volunteer Hosts’ are Talking Point members who provide extra support to the forum, and help to ensure that Talking Point is a welcoming place. Some of the things Hosts do to support Talking Point include welcoming new members and helping to direct members to useful resources.
Volunteer Hosts have personal experience of dementia.
’Volunteer Moderators’ are Talking Point members who help to ensure that Talking Point is a safe and comfortable environment for people affected by dementia. They provide support to forum members and also enforce forum rules when necessary.
Volunteer Moderators have personal experience of dementia.
‘Administrators’ are Alzheimer’s Society staff, and technical support staff, whose role it is to ensure that Talking Point is running safely and smoothly. Administrators provide support to forum members, volunteer hosts and volunteer moderators, and enforce forum rules when necessary.
Occasionally, users’ accounts may be closed. This may be at the user’s request, or occasionally, because a series of forum rules have been broken. Closing the accounts of genuine users is always a last resort, and steps will always be taken to avoid this.