Hard Weekend Mum now taking Ebixa

[Lucy emme]

Monday Again
I was with mum and Dad most of this weekend and past week as my partner has been away working for 14 days.
Mum seems to be getting worse by the day.
The confusion and fear is her eyes is so sad
The main things that are happening at the moment is Mum constantly asking to go home the only address she remembers is her childhood home
Mum is asking for her parents she looks so upset as we explain that she is home,she will wisper to me when Dad is out the room that he is horrible,then the moment he comes in ask him if he loves her.
Mum is also now starting to become incontinent and asks permission to go to the toilet.
Dad was so stressed Friday when I arrived after work that I took Mum out for a bit to B&Q we were there 15 mins before she started to cry.
The doctor and nurse that come to see Mum have now put her on Ebixa that she has been taking for 4 weeks we havent seen any changes in her behaviour but fingers crossed it helps.
I have struggled over the weekend with seeing Mum so distressed I just cant handle not being able to stop her fear or help her.
I sometimes think she would be better off not here anymore then I feel terrible for thinking that way.
Sorry for the Monday morning rant but I dont have anyone else to tell who understands..
Hope you all had a good weekend.
xxxx

[sad nell]

lucy sorry to hear of mums deteriation, it is so hard to watch the people we love suffer this way, and yes i have had similar thoughts so do not feel bad. Ebixa helped my husband alot originally, not so now but any improvment is so precious, once they increase the dose hopfully you will see some cognitive improvment and less agitation, trev also always wanted to return to childhood home, think it is where they felt safe as a child it is a very common symptom and it will pass, stay strong your dad will need your support love pam

[Grannie G]

I`m so sorry Lucy. This wanting to return to the childhood home is so common and yet even though we know it happens to other is so upsetting for us as carers.

When your mother asks if she can go to the toilet it`s because she does not recognize her own home and it`s awful. my husband does it too and it makes me think he feels like a visitor here.

I hope the medication soon beomes more effective. There is no way out of dementia and sadly we all have to live through the grief.

Take care xx

[Grommit]

Having been through these stages with Jean my wife I can thoroughly understand how you feel Lucy emme.

It is so hard to observe the decline and see the changes and there are times when you feel like locking the door and running away from it all.

The constant requests to "go home" can be very wearing. I used to walk Jean round the block and then, as we got near our door, remind her that this is her home. Sometimes she would accept it, sometimes not.

I believe that the Ebixa that Jean is taking helps but the biggest thing I have had to do is find reserves of patience and acceptance I never knew i had.

[Lucy emme]

Thank you for the support
Mum is up to 20mg on the Ebixa so fingers crossed it helps her.
The decline in our love ones is awful and I keep telling myself to be strong for Mum and Dad.
I just cant shake off the constant sadness I feel.
Love Lucy