Well after 8 weeks of mum not eating very much and for the last few days nothing at all she was admitted to hospital on Weds evening.The continual loo visits had eased in the last day but only as mum was so sleepy.I asked for a GP call on Tuesand rang 3x during day to be told she was very busy- no call or visit.
The very professional community dietician came to see her the next morning for the second time and found that mum wouldnt tolerate any nutrition supplements and had lost more weight. She rang GP and initiated the rapid response team visit that evening.All mums obs were OK and they took bloods.On weds evening they decided to admit her to my relief.
It was found her bowels were very impacted which explained a lot. Went in today and Nurse said mum had refused an enema, I had the dubious pleasure of persuading her to have one and holding her hand whilst they did so.It has been of limited success though mum has spent a lot of time in the loo.Tonight she was moved to another ward which initiated more confusion as she was put in a side room with ensuite WC. She thought she was being left in a toilet.I had to keep telling her that she was lucky to have her own room and ensuite,I have said to nurse that she may be better in a ward so she recognises she is in hospital.
Earlier in the day I had a very useful discussion with the registrar about mums future care, what I wanted to do and crucially was able to ask the difficult question about how soon will she die if she stops eating (as she has done now).Her view is that this does signify a worsening of her AD.On the other hand she was suprised at how alert mum was considering how malnouished she is.
She advised that GP should organise a written end of life plan.
What I would really like is for mum to have a live in carer and stay at home, that depends on finding the right person and funding.Has anyone done equity release to fund live in care??
I have alerted the SW of the situation,this the SW who didnt turn up last week. turns out she rang mum who cancelled the visit and changed the date. I said but mum has dementia...but she sounded very lucid (jaw drop smilie)....I dont know your mother...No but you've got all the notes in front of you!!!
Anyway she has told me I should be eligible for 6 weeks respite a year and will await discharge notification...
Next bowel update due tomorrow- bet you cant wait!