thought i could cope now not sure.

[rumbosun]

Having spent 27 yrs in the Navy ,worked on oil rigs ,and done other odds and sods ,i thought i had done my time to spend an idyllic time with my wife in our retirement,go aboad see the grand kids in Botswana ,buy a motorhome ,a boat; What i had missed was the early signs ,coming and going you dont notice things ,coming home is a honeymoon,cant find specs .well that goes with age anyway ,we spent many years carravvanning in France and my wife Helen always without fail bought a bottle of Chanel no5 ,Poem on th way back home,,then one year she didnt because it was a waste of time because she could not smell it ,neither could she smell my expensive cologne,,maybe a bad cold ,,,so we go on ,,so i am working awy come home an on many occisions cooking chinese or other dishes had no inkling,of what was cooking,.Eventually after a good few years of saying you should go to the docs to see what about,she we did nothing ,afterall going to the doctor ,you admit something is amiss,dont go ,,allis well.i am running out of space,but the first sign is a loss of a sense,plus her mother died of this disease,so slightly generic ,,,she nursed her mum,,now we find ourselves in the same position as her mum and dad,,she cannot cope going out of the comfort sone ie our house,,me always being a freewheeler,am now on one and that is really going flat,,i am sometimes three people ,nick husband ,a *******,and the one who cooks etc but must go home before Nick comes in,,how i manage that i dont know ,,go to garden shed and reappear as Nick and show her the new flowers etc,, Buying the motorhome was a way of moving the comfort sone with us ,but the paranoia sets in ,if another turns up Helen is convinced they are after our spot,all this takes time convincincing all is well,and is wearing to say the least ,the society has done us proud ,with medication and support,,power of attorney etc,..Me i am drinking much too much more than i ever did in the services ,but after a day of whatever,,,my smoking has increased,and time off,just a nip to the shops to get supplies,and to think what the world could have been like ,without the cruellest of diseases.It destroys not one life..but all who care for that one..As a serviceman i can imagine the most compassionate alternative ,,,in my darkest moments..

[lis]

Having spent 27 yrs in the Navy ,worked on oil rigs ,and done other odds and sods ,i thought i had done my time to spend an idyllic time with my wife in our retirement,go aboad see the grand kids in Botswana ,buy a motorhome ,a boat; What i had missed was the early signs ,coming and going you dont notice things ,coming home is a honeymoon,cant find specs .well that goes with age anyway ,we spent many years carravvanning in France and my wife Helen always without fail bought a bottle of Chanel no5 ,Poem on th way back home,,then one year she didnt because it was a waste of time because she could not smell it ,neither could she smell my expensive cologne,,maybe a bad cold ,,,so we go on ,,so i am working awy come home an on many occisions cooking chinese or other dishes had no inkling,of what was cooking,.Eventually after a good few years of saying you should go to the docs to see what about,she we did nothing ,afterall going to the doctor ,you admit something is amiss,dont go ,,allis well.i am running out of space,but the first sign is a loss of a sense,plus her mother died of this disease,so slightly generic ,,,she nursed her mum,,now we find ourselves in the same position as her mum and dad,,she cannot cope going out of the comfort sone ie our house,,me always being a freewheeler,am now on one and that is really going flat,,i am sometimes three people ,nick husband ,a *******,and the one who cooks etc but must go home before Nick comes in,,how i manage that i dont know ,,go to garden shed and reappear as Nick and show her the new flowers etc,, Buying the motorhome was a way of moving the comfort sone with us ,but the paranoia sets in ,if another turns up Helen is convinced they are after our spot,all this takes time convincincing all is well,and is wearing to say the least ,the society has done us proud ,with medication and support,,power of attorney etc,..Me i am drinking much too much more than i ever did in the services ,but after a day of whatever,,,my smoking has increased,and time off,just a nip to the shops to get supplies,and to think what the world could have been like ,without the cruellest of diseases.It destroys not one life..but all who care for that one..As a serviceman i can imagine the most compassionate alternative ,,,in my darkest moments..

so sorry to hear about your pain know what it feels like to some extent - hang on in there

[Izzy]

I can empathise too. Stay strong. x

[Grannie G]

I didn`t notice the signs even though we were together and I had experienced it before with my mother. She also lost her sense of smell and I realised my husband had too , when he ignored the smell of burning toast.

I am another who has been where you are now and don`t envy you. However I hope you do manage to cope but please don`t wait to ask for help.

[geordie]

sending you sympathy and empathy. Not sure you can cope... my assessment of my ability to do so changes by the day because the needs fluctuate quite unpredictabley - another really challenging aspect of trying to care for someone with the awful illness. So..I suppose my comment is ...if you cope today ....see what tomorrow brings

[jeany123]

I am so sorry ,you are here with other people who just cope from day to day ,and we can only imagine what life would have been like ,keep strong!!! .


best wishes Jeany x

[hiphop]

hi from hiphop it is a hard place to be worn out and alone.I am married to a lovely man he did 25 years in the army and would be so mad if he knew what i went and still am going through.
He is in a home now the british leigion home sorry if the spelling is rubish. They are the best i feel.It was the best thing for him he is 59 this year and has been in a year now.It is 30 miles away but i go twice a week and it is like home from home.They might be of some help to you they gave me and hubby a nice holliday in one of their hotels

[rumbosun]

Hope this the way to reply,,my heartfelt thanks for your kind words,it shows me i am not the only one ,which in some respects i feel is a bit selfish,,i would not wish this on anyone ,but today i am smilie ,smilie , cant spell either,Hiphop..praps be better with semaphore ,flagwagging..

[Butter]

You are not the only one ...... keep posting ... people here really know where you are.

[winda]

I understand how you feel - I have been there myself.

Keep posting here - you will get all the support you need from others who are in the same position.