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  1. #1
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    Got it right! Hospital check up

    Thank goodness that after my mistake last Tuesday thinking that I had a hospital checkup appointment! yesterday I got it right and Sumi and I were at the hospital bright and early for the brain scan which held no surprises as I had already realized that my condition has deteriorated drastically since two years ago, all the scan did was to confirm my ‘Mixed Dementia’ of Alzheimer’s, Lewy Body Dementia and Parkinson Disease although the consultant did say that I seem to be doing OK!

    Then it was my blood test and they seem to have wanted a lot of blood this time as they did a complete blood check so I had been fasting since 7pm the previous evening so it wasn’t until they had taken the blood that I could break the fast, then I had to fast again for ‘two hours’ and then have blood taken again but the test results didn’t show anything untoward apart from my cholesterol level and diabetes blood sugar were a bit to high which was a bit of a surprise as I don’t use sugar in any of my food or drinks so I will have to cut back on my carbohydrate intake such as bread, potatoes, and rice which is a bit of a blow as I do enjoy my own home made bread!!

    My eye test with the specialist only confirmed what the previous doctor had said in that they can’t do anything to improve my sight the specialist said its Dementia/Alzheimer’s related and as my condition deteriorates so will my eyesight become much worse which is a rather daunting prospect, anyway he did prescribe some medication being eye vitamins and eye drops and then I must go to the eye clinic every month for a check up and get medication.

    Overall the doctor said I shouldn’t get to concerned as I am doing quiet well although the hearing in my right ear is getting worse but do not need a hearing aid ‘as yet’ I said to the doctor (Maybe that’s not so bad, as I can now turn a deaf ear to things I don’t want to hear!!)

    The only thing that’s troubling me now is my teeth which for some strange reason have started to just fall out and I know I have another three teeth that are loose which I will have to have taken out ASAP, it’s not like a toothache its just a continuous discomfort in the gums which then seems to penetrate onto my brain and adds to my confusion!

    Apart from that I think I’m OK!! But I did say to the doctor and Sumi I think that maybe I’m starting to fall apart at the seams because of this dam dementia…

    Barry
    Barry

    Lost within my own world of Mixed Dementia

    Alzheimer's, Lewy Body dementia, and Parkinson's disease

  2. #2
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    Well it sounds like you had a thorough check Barry! You also sound in good spirits. Take care. x
    Izzy x

    'The best things in life are nearest: Breath in your nostrils, light in your eyes, flowers at your feet, duties at your hand, the path of right just before you. Then do not grasp at the stars, but do life's plain, common work as it comes, certain that daily duties and daily bread are the sweetest things in life.'
    Robert Louis Stevenson

  3. #3
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    Cool

    Thanks Izzy and yes I do feel OK today
    Barry

    Lost within my own world of Mixed Dementia

    Alzheimer's, Lewy Body dementia, and Parkinson's disease

  4. #4
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    Hello Barry, you sound positive and it's good to know you have had your hospital check up even if it did confirm a lot of what you already knew. Take Care.


    turbo

  5. #5
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    I good check up Barry and yes you are doing OK.

    Sylvia
    Carer and Member of the Volunteer Moderation Team

    I cried because I had no shoes until I met a man who had no feet

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  6. #6
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    Thank you all

    Many thanks my friends for your supportive replies, what I forgot to add was that I have always looked after my teeth brushing then three times a day and using oral mouth wash so the sudden departure ‘so to speak’ of some of my teeth was a surprise!! Which is maddening as I now have trouble eating the crusts of my bread! And according to my doctor its age related rather then dementia related so I said to her ‘Doc I’m only 65!’ Until Sunday!! Oh well never mind!
    Best wishes
    Barry
    Barry

    Lost within my own world of Mixed Dementia

    Alzheimer's, Lewy Body dementia, and Parkinson's disease

  7. #7
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    Hello Barry,

    First of all, it is really lovely when you are able to share your news with us I'm not yet 65 and I think I am falling apart at the seams too My teeth need major surgery but the cost is enormous Would you consider tooth implants which would be major reconstruction now but there'll never be the confusion later on about where your teeth are AND you would be able to continue eating your crusts

    It is very encouraging that the doctor feels you are doing OK under the circumstances. I always think your ability to post is an indicator of how you are doing. The gradual sight loss is a major issue and I also wonder whether this is something you might consider addressing now whilst you can. What do you think to trying to get used to 'voice recognition' on the computer? This would mean that you would be able to live to the best of your ability should the time come when you could no longer use the computer by sight.

    You and I share a birthday I will be away in Spain on Sunday so I will take this opportunity to say HAPPY BIRTHDAY TO YOU

    Love
    Helen
    Wife and Carer

  8. #8
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    Hi Helen
    Many thanks for the reply and constructive suggestions that I will look into at the computer shop which I must visit ASAP as my computer has more memory problems than I do which drive me mad!!

    What a great way to spend your Birthday in Spain, so as you will be away wishing you a very happy birthday for Sunday
    Love and best wishes
    Barry
    Barry

    Lost within my own world of Mixed Dementia

    Alzheimer's, Lewy Body dementia, and Parkinson's disease

 

 

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