My husband and I had our third appointment last week with the psychiatrist who has speciality in dementia. He saw my husband for the first time end of Feb this year.
We left with no diagnosis, good or bad I dont know any more. The Psychiatrist did dwell on possible illness in the family, mainly my husbands Dad's side, but we are not aware of anything.
We are now awaiting another appointment with the Neurologist who has been looking after my husband for the last three years at the end of the months.
The neurologist keeps telling me "no diagnosis is better than a wrong diagnosis". I think I am slowly beginning to understand and appreciate this, though it is just dragging on forever and at times it would be so nice to be able to explain to our children something more definite.
I now want a list of all the tests and investigations done for my husband and also the results. I want to have blood tests done at the PRION Clinic in London. I have had a good look at the web page but am unsure on which way to go. Do I ask the neurologist to do this, my husbands GP or do I just send off a letter myself.
I fear it is all about money and who will be paying the bill.