Still not feeling to good as my head feels constantly lost in a fog of confusion, which isn’t being helped by the extreme heat and humidity we are having at the moment, its also making my granddaughter Fira and niece Melatie very uncomfortable and they keep crying from irritability which in turn is playing havoc with my mind and it just seems that everything I try to do this week is going wrong.
Then to top it all off today ‘Thursday’ late afternoon Sumi has a prayer meeting for our granddaughter Fira being one year old, I know that her Birthday was two weeks ago but this is all to do with it being a tradition on the day that Fira was actually born and the day that the Gregorian Calendar coincides with the Javanese Calendar which only has five days in the week… yes I know, it totally confuses me as well!!! But it means that this afternoon there will be over 60 guests in the house for the prayer meeting so Sumi, family and friends have been preparing and cooking for the past two days and today it’s extremely busy for something that only lasts “One Hour” and seems to be costing us a fortune, and causing a lot of noisy ladies pounding in my head! And to be very honest all theses frequent traditions and customs is something I just can’t handle anymore as they cause me a lot of anxiety so I’m looking forward to having a day out of the house tomorrow.
But one thing is becoming very clear ‘and that is’ that living out here and having mixed Dementia with Alzheimer’s and living within a community that has ‘NO’ Alzheimer’s society, ‘NO’ day care centres or Memory cafes, ‘NO’ telephone help lines, ‘NO’ dementia support systems and “NO” concept of what dementia is or how it affects a person is just an added burden on my brain and daily life but there is nothing I can do to alter the way things are as I’m stuck between the devil and the deep blue sea of home!!