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  1. #1
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    forgetting what people tell me

    Hello Im new on here and I really want some help. I forget when people tell me things and it can be instant.. My husband often says he has told me something and when he later mentions it I have no idea what hes on about.. my daughter came to visit me today with her new baby.. i asked when the midwife was coming to see her and she told me she spoke to the midwife in front of me 2 days ago and told me she was coming friday at 10.. i dont remember her speaking to anyone let alone telling me she coming friday! im 42 and its bothering me.. this has never happened before.. At first it caused rows as my husband thought i just wasnt listening to him but now he knows its an issue.. can anyone help? xx
    Last edited by vr1969; 03-04-2012 at 11:46 PM.

  2. #2
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    Hello and welcome to Talking Point.

    I am sorry you are so worried about your memory.

    If possible make a few notes of the incidents that are causing you and your husband some concern. Let your husband and daughter help with this. Then please go to your GP taking your husband with you if at all possible. Take the list with you or send it in advance to the GP.

    The main thing is to find out what is causing this although it can sometimes take time.

    You will get much support here so please let us know how you get along.
    Best wishes
    Jan
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  3. #3
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    Hello vr1969

    I am sorry to read about your memory loss.

    Please as BeckyJan says get some instances written down and get to see your GP. It is not only dementia (which is what I think you are afraid of) that causes memory loss. Thyroid problems, certain drugs - statins being an example and other things can all do this too. It is however important you get the right diagnosis.

    Please let us know when you have seen your doctor and best wishes to you.



    Quote Originally Posted by BeckyJan View Post
    Hello and welcome to Talking Point.

    I am sorry you are so worried about your memory.

    If possible make a few notes of the incidents that are causing you and your husband some concern. Let your husband and daughter help with this. Then please go to your GP taking your husband with you if at all possible. Take the list with you or send it in advance to the GP.

    The main thing is to find out what is causing this although it can sometimes take time.

    You will get much support here so please let us know how you get along.
    Best wishes

  4. #4
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    Thank you for your advice.. I will make an appointment with my doctor tomorrow and i will make notes of when my memory loss happens (so long as someone tells me first!) At first I thought it was just stress and found it quite funny, my children said I was having a senior moment but although its not very often I am concerned it may get worse.. I remember things from 30 years ago but forget things that happened yesterday.. its a strange feeling.. I will indeed let you know.. you never know it may be stress but better be safe than sorry

  5. #5
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    Hi,
    Please do ask your GP to give you all the tests associated with memory problems, it could be related to the menopause of course & this can play havoc with your memory I think. There is another lady on here who is your age I believe she has had many tests and finally a PET scan recently, have a look at her thread titled 'diagnosis'. She might be able to give you more advice than me.

  6. #6
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    Bodensee I think we ought to send you round all of our GPs and tell them what tests they need to do for us I mean it - when I go to the GP I really struggle to get across what I once wouldn't have had a problem with. But when forgetting is part of the condition - you not only 'forget' the symptom but forget to tell them about it. I try and write things down but still doesn't always work or get through.

    Maybe the person that did some thread I've read baout what GPs can do for people with memory problems is to automatically give them or offer these tests. MMSE test to me is no test really at all of someone cognitive ability and the GPs think they've done what's 'necessary' - but it's really a red herring in my opinion.

  7. #7
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    hi

    [QUOTE=vr1969;569999]Hello Im new on here and I really want some help. I forget when people tell me things and it can be instant.. My husband often says he has told me something and when he later mentions it I have no idea what hes on about.. my daughter came to visit me today with her new baby.. i asked when the midwife was coming to see her and she told me she spoke to the midwife in front of me 2 days ago and told me she was coming friday at 10.. i dont remember her speaking to anyone let alone telling me she coming friday! im 42 and its bothering me.. this has never happened before.. At first it caused rows as my husband thought i just wasnt listening to him but now he knows its an issue.. can anyone help? xx[/QUi


    hi this could be your hormones changing i work with demntia full time ! we all get forgetfull at times but if in doubt get to your gp and check it out !

  8. #8
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    sometimes it's really difficult to get doctors to take you seriously. my mum had thought she had Alzheimers for years, and mentioned it many many times as she has family history of alzheimers, but she was always brushed off, that everyone is forgetful at times and that it's not guaranteed to be alzheimers, and just wait until you hit rock bottom basically before we'll do any tests.

    Her GP was confident that it was going to be a parkinson's diagnosis, but in the end it was alzheimers.

    It's so hard and painful that it is such a hard process to get a diagnosis. My mum had, anti depressants, psychologist appointments, CT scan, MRI scan, and then finally a SPEC scan and appointment with a neuro-psych in order to get her diagnosis. It might not look like much of a list, but i tell you what, that took a good year to get all that done having to wait months in between each appointment with the "geriatric specialist", which in itself if just humiliating to someone who's only 57.

  9. #9
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    Quote Originally Posted by Sue J View Post
    Bodensee I think we ought to send you round all of our GPs and tell them what tests they need to do for us I mean it - when I go to the GP I really struggle to get across what I once wouldn't have had a problem with. But when forgetting is part of the condition - you not only 'forget' the symptom but forget to tell them about it. I try and write things down but still doesn't always work or get through.

    Maybe the person that did some thread I've read baout what GPs can do for people with memory problems is to automatically give them or offer these tests. MMSE test to me is no test really at all of someone cognitive ability and the GPs think they've done what's 'necessary' - but it's really a red herring in my opinion.
    I think what is disturbing here is that the lady is only 42 years old, GP's should be treating this age group as priority and ruling out serious underlying illnesses such as CJD, ME, Parkinsons, Huntingtons disease through blood tests and scans, this should be automatic at such a young age. Also if there is a family history of AD what about the test that Fiona Phillips has recently had, surely this test should be offered to younger people without question.
    If I had listened to my previous GP about a health concern I had a while ago, I would now be riddled with osteoporosis, they simply chose to ignore my concerns at the time not offer me a simple scan which by the way was the only way to diagnose my problem, I felt my GP was not listening to me, simply brushing my symptons under the carpet, I had no choice but to change to another GP who was fantastic and within 2 weeks I had a scan and results. I think this day and age you have to be assertive, GP's are very clever at dismissing your concerns, they don't tell even tell you about research trials which you may be eligible for, I have read about one for AD which is currently underway at the University of Leicester by Professor Giovanna Mallucci, who knows he may need people like vr1969 for trials and tests.

    another is at the prion clinic in London run by Prof.John Collinge which incidentally need younger people with early symptons for trials and tests according to the website.

    I always accompany my mother to her GP, I cant imagine she could cope without anyone with her, she certainly would not have received the help she has without me being there.
    Last edited by Bodensee; 11-05-2012 at 09:08 AM.

  10. #10
    Good morning vr1969

    I just wanted to welcome you to TP and to say i know exactly what you are going through and how you feel! i am 45 and have 2 daughters ages 22 and 3.

    i am going through mega testing (10 months now) and have had symptoms for almost 4 years. it took an awful lot of 'fighting' with the relevant health professionals etc to be taken seriously as younger people tend to be tagged with depression. stress. menopause etc etc. eventually i had to go to see my local MP in order to be listened to. within 2 weeks of seeing him i had an appointment at the hosppital! it seems to be that when you are younger you are not really listened to and i guess in a way i can understand that as dementia does tend to affect older people BUT thats not to say it doesnt affect younger people too and if you have concerns i would go to your doctor and explain just what is going on and how long its been happening. it may turn out to be one of the above things i mentioned BUT it may not be.

    all i can say is be prepared for a battle to be heard and taken seriously. also be prepared for endless testing from psychyiatrists, psychologists, neurologists etc and dont think it will be a quick and easy road.

    i do hope i havent frightened you but rather want to let you know what may be ahead. i do hope it turns out to be 'nothing serious' but if you are worried about anything im more than happy to help if i can.

    Linda xx
    Blessings are like glitter; they fall gently around us. You don't always see them until you look from a different perspective.

 

 

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