Really need some support today. I just got back from taking my mum to Poland with my sister. It was good that we went as it was to do some family research etc and my mum really enjoyed it I think. But it was a real shock. I didn't realise how much worse she had got in the last few months, it seems to be very quick.
Mum is 58 and has PCA (visual dementia).. me and my sister are in our 20s. I am sure other young people on here relate to this but it just seems so cruel and unfair that we are losing our mum to this at such a young age. I was really broken-hearted seeing her struggle so much this weekend with really basic stuff like getting dressed etc. She just looks so vulnerable. It's awful. I just got back last night and cried for hours!!
Just need to hear that other people are going through this too. I have a big support network of friends etc but it feels like no one understands what this is like, and even the people I love the most say really unhelpful things! I feel a bit alone with it at the moment.