Thank you to KatherineW for making this post a 'sticky'
If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone.
Over the weekend I will try to bring together some links to information that may be helpfull (please post any suggestions on the thread and I can move them onto this first post).
If you are new, do jump in and post on here, if you don't feel comfortable posting just yet, feel free to send me a personal message (click on my name on the left and click on 'personal message').
None of us are experts, but I hope that with this thread we can support each other and share information with each other.
The rest of the forums on here are fabulous so do make sure that you have a look around and post wherever you feel is most appropriate, a lot of the issues that come with having a form of dementia or caring for someone with dementia, apply no matter what age it strikes so all of the other forums are really helpful too.
Below is my original post about having a specific thread about Familial Alzheimer's Disease:-
I really enjoyed attending the Familial Alzheimer's Disease support group meeting in London yesterday and it was lovely to meet others dealing with not only the affects of having a loved one with Early Onset AD but the Familial aspect.
One of the things talked about was the fact that there must be people who are affected by FAD that don't know about the support group, the reaserch and trials etc.
We are a minority in as much as that FAD accounts for less than 1% of the total sufferers of AD. Having just spent ages going through threads on here it seems that there are a few members dealing with FAD but as I know from my own experience sometimes people go weeks/months without visiting this site, I thought it might be helpful to have a 'sticky' at the top so that people could immediately find info about FAD and find other members who have experience of FAD. It would also make it easier to share information about things that we can do to raise awareness, campaign etc.
Might this be possible? The younger people area is brilliant for anyone affected by Early Onset AD and the main forum is also brilliant but the Familial aspect of FAD brings with it a whole bunch of other issues and it would be nice to have a place that people could find easily either to post themselves or just to read others experiences and find out what support is available.