Hi Im new to this, and my 76 yr old mum is being tested for CJD. She first became unwell in Dec 11 when she was found with a blood clot in her heart but since then she has been on what I call "fast track dementia" In three months she has gone from a fit healthy, full of life independent mum to a small, frail, old lady that cant do any thing for herself except get a glass or spoon to her mouth. She in doubly incontinent, can be aggresive, and can just about get around with help. I had to pound on doctors doors to get her refered back to heart consultant and he couldnt believe the difference in just a short time. We went for a MRI scan and have an EEG in mid May (if we can move her by then). The tests are looking for CJD due to the incrediable pace her dementia has proceeded. If anybody has come across anything like this before please post me as I dont really know how much time we have if reports of this desease are right.
Sadly mum passed away on 4th May after a rapid decline and a brain haemorage. All the scans/tests came back normal and so "there was nothing wrong with her"..... at least after cornering the consultant he admitted he had been testing (or ruling everything else out) for CJD. We (my brother and I) insisted on a autopsy of the brain and spinal cord to confirm our beliefs. It takes 4 - 6 months for results. We buried mum last week and she is now next to her mum and dad, and sister, brother in law, in a little church yard, just where she wanted to be. After a lovely day and excellent service I now feel quite at peace in a funny sort of way.