Apparently I’d had an extremely bad night sleep as Sumi said she had to wake me up four times from bad nightmares with me screaming out and my arms and legs thrashing out, but no sooner had Sumi woken me up and I drifted of to sleep again and back into what seemed like the same nightmare, although I don’t remember much about the nightmares except that they had all been extremely vivid, horrendous and concerning my own death, so not a pleasant experience. Thus when I did finally wake up at six o’clock in the morning I was feeling like a bear with a sore head.
I sat at the computer trying to type but my step-granddaughter, step-nieces, and friends were all making so much noise that I could not concentrate or think about what I was doing. Now don’t get me wrong as I love children especially my step-granddaughter and step-niece and children will at times make noise and cry especially young babies ‘BUT’ now being some eight years into my illness I find that the crying causes me acute agitation and sends my head in a spin of anxiety as I’m continuously on edge that the children will fall and hurt themselves when they are playing and I start to tremble like a jelly ‘inside my body’, my chest starts pounding and my breathing becomes a gasp and quiet oftener I end up clutching my head for some peace and quiet… when the noise and crying becomes to much for me I have to shut myself in the bedroom but then the problem is that all bedrooms in our house or I should say bungalow lead into the lounge / dinning room, so there’s no escape!
Also out here in Indonesia all the family live in one house which some people might say is nice to have the children around you all the time but in our household there is Sumi, myself, my step-daughter, son-in-law, my step-granddaughter and Sumi’s mother who also has senile dementia, and attached to our house is Sumi’s brother, sister-in-law and two young children who live most of the time in our house thus at times the noise from children can be extremely harsh and even more so when the neighbours young children arrive at our house to play… Sumi does her best to keep them all as quiet as possible but children will be children and quiet often tears will flow or jovial shouting and screaming ensues… I try my hardest to be patient and understanding and join in and play with them but as my illness is progressing so is my tolerance dwindling and I hate to say this but now I can’t have the children around me for more than ten–fifteen minutes at a time after which I feel totally fraught and drained out day in and day out!
As much as I love children a piece of advice from me would be to say (Don’t let the grandchildren or any other children over fatigue a person with dementia)