Having found this forum and reading the stories of the struggles relating to Alzheimer/Dementia sufferers and their families I would like to add my personal experience with my Mum.
She developed the Disease about three years ago and ever since that time I and Hugh James have been battling with our Local Primary Care Trust to recognise their responsibilities for contributing to the overwhelming cost of care.
As far as im concerned this condition is a ,Health need' and NOT a 'Social need' as im repeatedly told.
This is a Terminal illness with no improvement ever likely and day and after day I watch her decline and withdraw to the point of taking breaths and aware of little else.
How as a Caring Nation how we ever got to this stage Im at a loss to comprehend and its about time we stood up and had our voices heard instead of being fobbed off with Eligibility Criterias !!
Too much money is wasted in the NSH as a whole and I see it everyday.
These people as did my parents paid a great deal in their working lifetimes to make sure they were cared for in an appropriate manner , but it now left to their families to put the bill for Care for the Elderly and Weak.
Does anyone else feel the same and is it time we rallied and shouted Enough!!!!