My hubby recently diagnosed with frontal lobe dementia

[crystaly]

Hi my husband was 60 in november and has recently been diagnosed with frontal lobe dementia caused by vascular changes . Hes had ongoing problems for approx 4 years but has only just been diagnosed .
He has recently had adouble heart stent due to a blockage and seems to have deteriated since this .
He gets very agitated towards late afternoon and night time I am finding difficult to cope with at the moment .
Does anyone else care for someone with this type of dementia ?
Bit desperate at the moment due to lack of sleep and anxiety about the progression of this horrible illness

I would appreciate any advice comments please

xx chris

[lin1]

Hello Crystaly
Welcome to TP, Im sorry of your need to find us.
I have little knowledge of FLD , my mum had vascular dementia and Alzheimers.
I do know that a general anaesthetic can cause a downturn in dementia symptoms, sometimes these can improve over time

The agitation your husband has , sounds like sundowning to me,there was a time when I could set the clock by mums , though i suspect your husbands sundowning is quite bad ?
If you havent told ur husbands consultant or cpn (community psychiatric nurse ) you should do so asap dont wait for his next appointment , maybe his gp could help in the meantime (if your husband is violent phone them today )

I found with my mum their was little we could do to that would reassure mum during sundowning , there were a couple of occasions when we had to sedate mum .
Their is a thread on here that you may find helpful
Its called compassionate communication with the memory impaired , i found it helped me, though you'd need to be a saint to follow it all the time , my halo slipped many many times !
I will put the link to it later as im here on my mobile n it dont do links

I found TPers friendly very helpful and in a strange way reading others posts who were going thro bad times helped me a lot and hope you find the same

Ps I will also put the link to a long running thread of Sylvias ( grannie g )
A day in the life of , it is a loooong read but it helped me loads

[lin1]

Heres the one for compassionate communication
http://forum.alzheimers.org.uk/showt...emory-Impaired

Sylvias, A day in the life of
http://forum.alzheimers.org.uk/showt...-in-the-day-of.........................
I hope these help

[lin1]

Just bringing this back to the top

[Grannie G]

From what I`ve learned about FTD on Talking Point, the best thing you can do now is to ask for referral to a Speech and Language Therapist [SaLT ].

[crystaly]

Heres the one for compassionate communication
http://forum.alzheimers.org.uk/showt...emory-Impaired

Sylvias, A day in the life of
http://forum.alzheimers.org.uk/showt...-in-the-day-of.........................
I hope these help

Thank you lin I will have alook at those links
chris

[crystaly]

From what I`ve learned about FTD on Talking Point, the best thing you can do now is to ask for referral to a Speech and Language Therapist [SaLT ].

Hi my hubbys seen a speech language therapist at our local hospital about two years ago. They seem to think there wasn,t anything they could do for him ?
The position may well have changed though now hes been diagnosed I don' really know but will enquire when his cpn comes out again
thanks very much
chris

[crystaly]

Just bringing this back to the top

Thank you lin . I did read that article and it does make sense. The buts are difficult especially when youve been up all night . I finally got some sleep at 7am this morning then started again at 11.am
Im tired upset and struggling especially with the mood swings and aggressive outbursts How do you handle these ?
I find these episodes really difficult
xxx chris

[cornish]

My dad has front lope dementia, come 3pm he wants his tea and wants to go to bed, he is never violent, he has odd routines like watching the same dvd 3 times a dad 7 days a week but over eats alot and sleeps alot. Its still early days for us sadly.

[crystaly]

My dad has front lope dementia, come 3pm he wants his tea and wants to go to bed, he is never violent, he has odd routines like watching the same dvd 3 times a dad 7 days a week but over eats alot and sleeps alot. Its still early days for us sadly.

Hi cornish the repetetive watching of films and overeating my hubby does . He also has some compulsive aspects of behaviour now . My hubby wasnt aggressive until recently he gets very agitated especially late afternoon and night times . Ibve been told this is called sundowners and is quite common It is sad and difficult to deal with especially when your worn out

[Grannie G]

Chris, I just need to tell you my Thread `A life in the day.......` is about Alzheimer`s , and not FTD.

[crystaly]

Chris, I just need to tell you my Thread `A life in the day.......` is about Alzheimer`s , and not FTD.

thanks grannie im struggling abit finding my way round at the moment I havent managed to find your day as yet sorry
xx chris

[lin1]

Her'es the link for Sylvias A day in the life of. Just click on the link below and it will take you right to it
http://forum.alzheimers.org.uk/showt...-in-the-day-of

no it isnt todo with FTD, but I found reading sylvia's account , struggles and the way she copes and handled (still does) difficult situations real helpful.

you will soon find your way round here, just ask if you have any probs

[briana]

hi chris
I was reading your threads with interest, iwas where you are now 2yrs ago, my hubby was diagnosed with ftd, he had bad anxiety,confusion,agression, It takes time to get to know the signs and when to back off,, i know from experience its very hard to do sometimes. a total change of personality, i knew something was wrong but the gp said it was depression, after a few months and the confusion getting worse he had a crisis last may,,, it was terrible but thats when tests were done and it appears that the cat scan he had the previous nov (09) had showed significant brain atrophy! now he,s on all sorts of medication antipscyctic, mood stabilisers and sleeping tablets, its taking me a long time coming to terms with this illness,, he has another mri last nov which shows he,s suffered a mini stroke also,,, i dont sleep through the anxiety..and as you say the days are very long! c sleeps a lot and needs routine, he cant cope with change , we get a lot of support from the various medical people and a.s. and i do think that at last he seems to be stable, but thats the thing with this type of dementia things can turn in an instance. Im sure you will get a lot of support and information from tp, its a good place to turn to, if i can help you through in any way i will. bb xx

[Helen33]

Hello Chris,

I would like to say that I hope that Talking Point is as supportive and helpful to you as you travel this road as it was to me

My late husband, Alan, had FTD. When I was told I had never heard of it and had no experience of any kind of dementia. I learnt along the way. It is not the same as Alzheimers disease which is what I discovered more and more along the journey. I have taken the liberty of attaching a link to some of my threads here which may or may not contain some information which could help. I changed my user name along the way.
http://forum.alzheimers.org.uk/searc...085&pp=&page=2

http://forum.alzheimers.org.uk/searc...70&pp=&page=10

Love