My mother has been taking Aricept for 5 years now since her AD diagnosis. Her MMSE score was recently zero. However, she is probably better than that score would indicate - always friendly, well-behaved, non-aggressive, physically sprightly, able to have a simple conversation.
Her consultant has kept her on Aricept for a while since her MMSE score dipped below 10, writing that 'she is doing well overall and so I don't want to risk changing things' or words to that effect. But now the consultant wants to stop the Aricept, as (a) she says she doesn't think it is having much effect now and (b) she says there is a budget issue in continuing to prescribe it... Presumably the consultant is under pressure to conform to the NICE guidelines, where score below 10 means stop the Aricept.
I am worried about the Aricept being stopped.
The section under Treatments on the Society's web site says
"If someone stops taking their prescribed drug, their condition will deteriorate over a period of about four to six weeks, until their symptoms are no better than in someone who has never taken the drug."
... which is worrying.
I asked the consultant whether I should get the Aricept privately, but she said there would not be much benefit in it (but I suppose it would be hard for the consultant to say otherwise).
The consultant says that Mum might benefit from Ebixa in the near future.
Any advice appreciated. Should I challenge the decision, or obtain a private prescription, or get her on Ebixa?