Hi, My husband is currently waiting for a diagnosis, we believe he has Parkinsons Disease. Our doctor has said it seems like a junior form of the disease that is very rare, but it is turning out to be really hard to get a definite diagnosis and find out if we can get him any medication. I am 28, and we have a 16 month old daughter, I am desperate to find out if there is any hope to slow down his degeneration. He is unable to work because of this, and I can not work either because I can't leave my little girl with him on his own as he "glazes over" sometimes.
He is himself a lot of the time, but has short term memory loss, and can't go out on his own as he gets easily lost. He also has a shake in his right arm that is progressivly getting worse; I just wondered if anybody had any little glints of light that they could share with me from their experience so I can try and get a better idea of what is out there for Parkinsons sufferers. It's now been nearly 7 months since his first doctors visit regarding this and I'm ready to kick some doc's bums!