Bedtime????

[Bristolbelle]

Today I popped in to see my Mum at 3.30pm then had to nip up the shops, when I came back I popped in to see her again, and all her lights were off. When I checked she was sound asleep in bed, nightie on etc etc. So I woke her and explained it was only 5pm. As I still had to cook tea I suggested I put a film on for her whcih I did. After tea I went to check again and she had gone to bed again! So I woke her again to explain it was only 6.30pm and still too early for bed, so she had a bit of a nag at me because she didn't know what they were doing with the nights lately, and they seemed to be all over the place.
I honestly think she would be better off going to the day centre a bit more as being out keeps her occupied and gives her "time clues" I do try and pop in on her a lot but I have the rest of the family too. I also find she is nolonger able to initiate anything like asking for a film or music to be put on, and she will just sit doing literally nothing unless I suggest something. It seems now she is only really able to initiate things like dressing and undressing (sometimes two or three times a day if she gets time confused), using the loo etc, and getting simple snacks, But now things are all out of kilter with time breakfast can be eaten twice a day or whatever. I just figure as she is still happy and reasonably safe I let her more or less carry on. I am worrying she might try to go out at the wrong time soon though. There is NO way I will take keys out of locks as I have a fear of being trapped in a burning building, but I might put a bolt up high out of her reach. If anyone has any time mamnagement ideas I would be grateful.

[myheadisinaspin]

hi just to let you know my mum also goes to bed really early sometimes as early as 4pm and especially now its dark. i used to do the same wake her up and make her stay up etc.but now i work around her, if shes tired let her sleep. my mum could sleep for england, not waking til sometimes 10 in the morning,one consolation is i know where she is and is safe when in bed.i have over the last few months realised with the disease mum has become very tired and any extra stimulation just makes her more and more tired hence more confusion.

[susiesue]

As soon as my husband sits down in front of the TV at maybe 5 pm he falls asleep. He then sleeps in front of the TV for the whole evening until he goes to bed at 10.30 ish.

He then spends the rest of the nights getting up every two hours for a pee or getting dressed at the crack of dawn, ready for the day

I don't know what the answer is - I have tried everything to keep him awake during the evening but to no avail. I too think it is boredom but as there is not much left he can do it is very difficult to keep him occupied.

He goes to Day Care four days a week now, but these finish each day at 3 ish, just in time for him to fall asleep in the afternoon

[NewKid]

My Mum's always been a restless type, not one to sit still and concentrate on a hobby but always up and about helping with something or someone. Then along comes AZ - still can't concentrate.. tho forever looking for something to do.. sleeps a lot at times that would not have been her norm..perhaps because nothing better to do.. and then misses CH activities.. they won't force her to get up... Life seems so limited, such a shame. It's very hard to accept isn't it.