Frontotemporal Dementia - Cancer of the Soul

[jc141265]

For those dealing with young onset dementia and/or frontotemporal dementia (as I have been for the past 12 years) you may find the following three page article hits home on how you feel and what its been like....

The story covers well how this disease affects a family.

Cancer of the soul' robbing family of wife and mother

[cov_girl]

Thank you so much for this article! (although its no longer on the site you posted I managed to find it through a search engine using the title)
The article helps me realise that i am not alone in my thinking on this disease. I am only a teenager and my grandmother has this form of dementia, along with another form, and it was a comfort to read that other 'youngsters' feel the same as I do.
Thank you so much.

[ZakK]

I would apprecaite hearing back from anyone who has been diagnosed with FTD and what are the tests to ensure proper diagnosis?
My mum has recently been diagnosed with FTD and I am bit sceptical if it really is FTD
The only tests that the docter did was a MRI scan that showed advanced frontoparietal and temporal cortical atrophy and this was followed by a lumbar puncture.
Are these the only tests a docter would do to diagnose this condition? I thought that is was not very easy and is often misdiagnosed.