Time for an update and a rant. My mum has vascular dementia and after a rapid deterioration following a TIA she was admitted into a NH on an emergency placement. She had a major stroke in August that left her with decreased mobility in her left leg. In hospital she was deemed to be unable to meet the criteria for rehab because she would not be able to undergo 45 mins sessions of Physio and be able to remember the exercises.
When she got back to the NH they referred her to the community physio team for advice and exercises. That was in September and we're still waiting.
I got very frustrated and with the advice and recommendation of the NH manager have engaged a private neuro-physio who is willing to work with dementia patients. It's not cheap (£80 a session) but mum had her first session yesterday and the physio was really pleased. Mum actually walked with a frame after 3 months of wheelchairs and the physio thinks that she will be able to regain mobility with her frame. She was very positive and will work with mum twice a week for the next month. Expensive yes- worth it - every penny ( I'm grateful I can afford it ).
My question is- why are Dementia sufferers discriminated against because they don't meet the criteria applied for physio patients. It's not fair that the only way we can get mum on her feet is by paying a lot of money for private treatment.
It's like Diane B's petition for dementia nurses in the NHS.
When is the government going to wake up? There are 750000 people with a diagnosis of dementia. What about the others who are not diagnosed?
My mother's GP was aware of her memory problems but mum wouldn't have any tests. When it got to the point where mum was having episodes of being admitted to hospital for breathing problems I spoke with her GP. She said that to give mum tests would be traumatic and did not see the point? So if she had not had the strokes and been diagnosed she would have been one of the silent majority who remain undiagnosed.
I don't know what the solution is but just wanted to share my thoughts and feelings. I cannot decsribe how much support I get from TP even if I don't post that often