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Your fear that he might come back a completely different person is absolutely top of my list too. I already feel I have lost so much of him to the dementia it is hard to risk anything that might...

I understand your feelings completely. It must be absolutely devastating. My husband once woke up in the night and started to become agitated. I held his hand, reassuring him and stroking his face...

This is so difficult for you. It must be so stressful as even if the phone does not ring to summon you then you are still stressing about whether it might ring so there is no relaxation.
It is...

Hello Barlow,

my husband is 72 and has PCA, a rare form of Alzheimers, which also seems to start younger. He had the first signs in 2003 and was finally diagnosed in Jan 2008. His current MMSE is...

We persuaded mum and dad who lived 250 miles away to move back closer to us at the start of mum's vascular dementia. As mum gradually deteriorated this proved a godsend as dad could not have managed...

Dear Nick and family,

This must be so difficult for you. Your dad was supposed to be in a safe place and you were let down. I am sure it would have been easier to say none of this will change...

My husband is 72 and has severe AD ( MMSE now less than 5). He is also registered blind. I care for my husband at home and he needs 24/7 care. As a result of his particular AD his sight has been...

Kassy,
I have no answers. One thing shines out though. Thin bullied broken or sad you are a good person which considering what you have had to bear is nothing short of a miracle.
with much love,...

I feel whoever wrote this play has first hand experience of dementia or did a great deal of research
Tre

I thought this play was quite thought provoking. An invisible ( the son) comes face to face with his mother's dementia. What I particularly liked about it was that it was honest in that there is no...

Hello Moomar,

I know how you feel. Being sleep deprived is very hard and saps your energy to cope. I am surprised you have been assessed as needing respite but denied Daycare.

You do not say...

Dear Kassy,

You have had such a hard time and do not deserve any of it. I do not know what to say to you except you are loved and valued by us on tp

love Tre

I am also in Herts same as Jeannette but respite care is organised for us via the social worker. I get to choose where my husband goes but as we are self-funding we do have to pay but we are charged...

We had a Dr from Charing Cross Hospital who rejoiced under the nickname of the dizzy doctor at our support group meeting a while back. He gave us a talk in which he said that dementia can affect the...

This was discussed on Radio 4 this morning. I think it might be useful for a dementia sufferer who lives with their carer but may wander when their back is turned. Some one I met who cares for his...

You are so right regarding counting your blessings. I met Rita at Singing for The Brain. She is 61. She has had early onset dementia for nine years. She has had a recent downturn and is in an...

You are being asked to achieve the impossible. When my husband who has dementia was in hospital I was allowed to be with him on the ward from 8.00am to 8.00pm. I can think of only one incident where...

Dear Lesley,
I am a second wife too. So far my husband has not mixed us up but it probably will happen eventually and illogically I know I will be upset by it.
It is very hard when you are sleep...

My dad,not with AD but aged 85 and hands totally crippled with rheumatoid arthritis so it was impossible for him to put in his own eye drops after cataract op, living on his own, recently widowed so...

This was recently in the press. If you look under Resouces- Raising awareness you will see a thread about Care Home Residents being abandoned in A & E. It seems it is common practise
Tre

We have a key safe on the kitchen door at the rear of the house. Although a burglar could go through the tall side access gate and around the back I prefer it there as it is not such an advert...

I too find this confusing. Our CPN who was part of the mental health team sorted out our access to day care originally but in Sepember 2012 our area ( Herts) separated health from social care. We...

Dear Ladr,

Have you come across the support groups at the Dementia Research Centre at UCL. Try emailing Jill, she is very helpful.

At the Dementia Research Centre they are involved in a number...

Dear Izzy,

I am just the same as you- I think better on paper too. Some of it is to do with getting my thoughts ordered in a logical way and also I find writing stuff down means I remember...

Dear Izzy,

Just to say even with MMSE less than 5 now we can still do carefully planned holidays although self catering or room only hotel is easier. Last weekend we had a two day break in West...