susiesue

Hi Susie I can't seem to find where you live are you any where near the cotsworld i.e. stone in the World or there around I know a lovely care home who specialises in dementia.

sue dave is 54 and has always known that something is wrong and of course he is devastated, up untill diagnosis i will say i could of just walked out i had had enough up untill then he was deppressed and suffered severe anxiety, when we did get someone to finally do something and realize there was more too it our lives took on a new turn. i had to be strong for my children and dave and it was a bit of a relief to no he couldnt help it. it is really hard at timesand not sure how i will cope later on xx

Susie
I daren't go to any of these AZ coffee mornings I feel as if John will either do as your husband does or he will ask me why he is here and he hasn't got anything wrong with him!!!!
I' m not convinced about John having AZ either Sue he doesn't follow any pattern but they say no 2 people with dementia are the same don't they.
Ah well
LOve and hugs
Jin

Ah - thanks - yes I've taken leave of absence from my PhD - frankly can't see me getting back to it for years now - & I'm missing sleep just trying to stretch the day & having to keep a close eye on everything or it will just unravel - phrase I am most likely to say - it is like our lives and what we value are like sand tricking between fingers........xx, S

Hi Sue - I may be heading for carer's ass too - what sort of things tick the box for the assessment? - my husband appears to outside world to be independant but he is not - he may be more advanced in disease than yours - but others don't see a thing wrong....I'm thinking hygiene, nourishment, appearance, safety, security, finances....?

Hi Sue, I've missed you on TP tonight. Are you alright or did your day get worse? Love xx

Hi Sue, I'm sorry you are not well either. Have you been quarantined too? Have you noticed whether David is any more confused? If he does become more confused than usual in any way, it might be that he has the virus or whatever it is. Hope you get well soon. Take care and keep your feet up. Love Helen

Feeling better after your replies
Will drink a toast to you all
Love
Jin

Sue, he didn't say why. You could start with saying that you have reason to believe that David has FTD rather than Alzheimers and that this is causing you some concern especially as the needs are different and the worry over medication. If it were me, I would be wanting them to work with me in trying to get the best possible care and treatment for Alan and I would say that I was dependent on their help!! I will be thinking of you. x

Hi Sue, Alan's consultant was very emphatic that Alzheimers medication could be dangerous and most unhelpful. I would definitely get them to take him off it Sue if it was Alan. I'm just popping in quickly because I have had such a busy day (again). xx