Hello Christine and thank you for your wonderful words of encouragement. Yes i also have a wonderful family and every day is spcial , its just sometimes i sit and think about what is going to happen and the pain my family will have to go through. This is something i have now found a cause in ( homes for younger sufferers) and will pursue it to the best of my ablities,for as long as able, who knows, maybe one day things might change ? i am an eternal optomist and i always live in hope, many best wishes, Norrms and family