living in hope

You and Brian do seem to come in for a lot of hassle from the old woman at his care home, Lorraine. She is obviously one of those whose "failures in judgment result in the magnification of his or her unpleasant personality traits." (Happened to read that yesterday under 'Dementia') She must have been a real ol' Wicked Witch of the West in her time. Love, Nan XXX

Hiya Lorraine, even though it sounds as Brian is farther down the line than me unfortunatly but i can relate to all you are saying. I have found latley that when i am watching telly every so often its like the people on screen seem to switch to a different language and i can`t understand a word of it for quite a while. If i go out of the room and come back in its like they have reverted back to English. You are so right, this illnes is so confusing for the sufferer and carer both. Sometimes Elaine apparently asks me something and minutes later says "Did you hear what i just said?" Of course i have no idea of what she`s talking about. Its like the brain just shuts down certain organs. So there is no need to worry about it too much as it seems to be a common thread in this illness, but i know what you mean about not upsetting Brian, i have lost count the times i have seen Elaine biting her lip !!LOL LOL have a great day, best wishes, Norrms and family xxxxxxxxxxxxxx

That`s what I hope to be able to wait for Lorraine, for when I have little choice for residential care like you . I think this winter Dhiren will stay indoors as this is what he did last winter. It was either too cold or too dark.
Love xx

Lorraine the first opportunity I get I will be off. I`m absolutely dying for a holiday.
So make sure you don`t waste yours feeling guilty.
Of course you would rather go with Brian as I would love to be able to have a holiday with Dhiren, but if it`s not to be we have to accept it and make do with second best.
Love xx

IT`s been very hard for you Lorraine because not only have you had to try to adjust to Brian being in a home, you have had all his mood changes and worries about his health.
I`m at the stage where I know I can`t do anything more than I`m doing. I have no control over this dementia and neither has Dhiren so there is no point in fighting it.
And the only way I can live with it is to try not to let it affect me . It`s a tall order but I have to survive and so do you Lorraine.
Love xx

I`m glad he`s back at the home Lorraine. Have they found out what has been wrong yet?
Glad your stress headache cleared. xx

It does sound more like an infection than a stroke Lorraine. As long as the antibiotics seem to be working. Fingers crossed. xx

It`s hard for the children Lorraine. My son can`t cope either, he is so sorry for his dad and also for me but really is unable to do very much apart from visit.
If Brian does corridor walk it will certainly tire him and the medication will try to ease his anxious state.
It`s so tough for you Lorraine. xx

Thank you, Lorraine. Brian seems to be hurting less at the moment, but he is being very careful all the time. Hope the support arrives soon. (Sounds a bit as though we are expecting the US cavalry to come riding over the horizon ...!)

Thank you Lorraine. It does help to hear from someone who has been in the same boat. You are absolutely right - housework is the least of our worries! They do say a tidy woman is a dull woman!! It has helped to write about this and get things in perspective. Thanks again. Take care. Izzy x