jeany123
Registered User

Originally Posted by jeany123

Morning everyone we had a bad night Allen agitated and upset which meant i was as well but I couldn't come on line, he finally settled about 2 and apart from being up at the toilet once is still asleep.

He is at the day centre today and kept making sure he would be coming home at tea time until I'm afraid to say I lost my temper which of course didn't help and most of the benefit of respite and being relaxed has gone ,

Jeany xx

Originally Posted by jeany123

Well just to update, my first day of freedom was supposed to be getting my nails done and my hair cut , but as usual things didn't go to plan,when they came to pick Allen up for day centre they didn't know he was staying and were surprised but took his bag and medication anyway and off they went with Allen protesting that he didn't want to stay there anyway so he would just stay at home, I phoned SW she was on holiday til next week, but they would get the SW in charge to phone ,I waited and waited

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Originally Posted by jeany123

Thank you we are back, it went well he is being allowed to stay there another 6 weeks to see how things go then another review as the staff have been told how to handle him and he has been a lot better these last 2 weeks so I feel a bit happier now and we will see how things go, I thought if they managed to handle his behaviour that it wouldn't escalate out of control as it seems to have been, We got the respite for February so feel a lot better now,
Thank you for all your good wishes i

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Originally Posted by jeany123

Half of the things you mention above are Love not Hate, you do them because you love your son and you love your mum and you love your family,
The guilt you feel is borne through love, You are doing your best under very difficult circumstances and I think you are very caring and very brave,
Don't feel guilty for asking for respite for your son the alternative is not worth thinking about if you were ill what would everyone do then,
You have been dealt a raw deal and I am so

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Originally Posted by jeany123

This morning I gave Allen the babywipe to clean his hands before i prick his finger to test his glucose level as I do every morning and night, he looked puzzled and said what do i do with this, I had to tell him what to do ,