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Forum: I have dementia

This forum is for people who have been diagnosed with dementia.

  1. Lightbulb Sticky Thread Sticky: The dementia guide: A resource for people dealing with a recent dementia diagnosis

    The dementia guide is an Alzheimer's Society publication for anyone who has recently been told they have dementia. This could be any type of dementia, such as Alzheimer’s disease, vascular dementia or mixed dementia. The guide will also be useful to close friends and family of someone with...

    Started by KatherineW‎, 03-04-2014 03:06 PM
    • Replies: 0
    • Views: 1,228
    03-04-2014, 03:06 PM
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  2. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,243
    01-08-2013, 04:10 PM
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  3. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our I have dementia forum. If you have a dementia diagnosis, you may find the following information useful: Booklets for people living with dementia Word puzzles and computer screen calendars (many thanks...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,675
    05-01-2012, 02:18 PM
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  1. hosting chat session on Monday

    I feel very humbled to have been asked to host Mondays chat session Do feel free to ask me any questions can't promise to have all the answers but it would be good to see some of you there

    Started by creativesarah‎, 07-08-2014 11:53 PM
    • Replies: 14
    • Views: 565
    13-08-2014, 12:05 AM
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  2. “I’m exasperated in so many ways”

    Maybe I’m just having an Off day” as: “I’m exasperated in so many ways” I’m feed-up having to be dependent on other people to do things for me, like drive and take us out shopping... I’m disturbed by the constant horrific nightmares night after night, I’m maddened at the constant...

    Started by Barry‎, 10-08-2014 01:23 AM
    2 Pages
    1 2
    • Replies: 16
    • Views: 733
    11-08-2014, 10:29 PM
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  3. 3 reasons to be thankful

    I felt it was time to resurrect an old topic Couldn't find the original thread so started a new one I have been feeling so down and depressed and grumpy for the last couple of weeks so I felt it was no good just "cursing the darkness - I need to start lighting candles" so here are my 3...

    Started by creativesarah‎, 01-04-2014 11:20 PM
    7 Pages
    1 2 3 4 5 ... 7
    • Replies: 90
    • Views: 5,778
    11-08-2014, 08:29 PM
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  4. Lightbulb Monthly chat for people with dementia with TP's CreativeSarah, Mon 11 August, 12-1pm

    Hi everyone, On Monday 11 August we'll be running our monthly chat session for people with dementia and carers. The title of Monday's session is 'Don't curse the darkness - light a candle' and our guest in the chat room will be Talking Point member creativesarah. Sarah will be sharing her...

    Started by KatherineW‎, 07-08-2014 03:34 PM
    • Replies: 1
    • Views: 321
    11-08-2014, 11:16 AM
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  5. Memory blanket

    Nearly finished only needs it's badges. Each square is a family member favourite colour and then I sew patches denoting their hobby/life etc.and my ancestors too by way of a badge eg train&tracks . Steel workers. I now have my family "around"me.? Sent from my GT-I8190N using Talking Point...

    Started by Pookie‎, 07-08-2014 04:32 PM
    • Replies: 8
    • Views: 317
    07-08-2014, 09:49 PM
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  6. Awareness in Children

    Hiya all, this is my latest interview for the wonderful Irene Mackays wornderful organisation The Forgetful Elephant Hope you like it xxxxxxxxxxxxxxx Irene Mackay's Fourth Elliegrams Newsletter August 2014 Raising Children's Awareness of Dementia with lewy bodies Aware

    Started by Norrms‎, 06-08-2014 09:00 AM
    • Replies: 0
    • Views: 204
    06-08-2014, 09:00 AM
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  7. Memory loss

    It seems that I have lost yesterday. I have been told what I did but for the life of me,I can't remember. Sent from my GT-I8190N using Talking Point mobile app

    Started by Pookie‎, 04-08-2014 08:09 PM
    • Replies: 8
    • Views: 350
    06-08-2014, 08:01 AM
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  8. Outings

    Recently I have been taken on a couple of outings or I have made my way to somewhere and enjoyed it despite being worried about getting lost. I wanted to share about these as they have been so encouraging and even if I cant remember exactly where I have been or when, I still retain the emotion...

    Started by creativesarah‎, 16-04-2014 09:04 PM
    3 Pages
    1 2 3
    • Replies: 30
    • Views: 1,591
    04-08-2014, 01:04 PM
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  9. new doctor

    Sorry I have been off the radar for a bit I have been struggling with a few things Today I went for a medication review with a new Doctor as my lovely, understanding, compassionate and patient doctor has left as she felt frustrated that she wasn't allowed to be the doctor she wanted to be. ...

    Started by creativesarah‎, 28-07-2014 10:29 PM
    • Replies: 14
    • Views: 552
    01-08-2014, 09:36 PM
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  10. Great evening out

    Had a lovely evening out last night as Our Son-In-Law took us all out for dinner, it’s been an extremely long time since Sumi and I have been out like that in-fact since my diagnosis which is now over (Nine and half years ago) as normally by 6pm I am lost to the world and have little understanding...

    Started by Barry‎, 31-07-2014 01:23 AM
    • Replies: 7
    • Views: 330
    31-07-2014, 08:13 PM
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  11. Hospitals


    Started by Tony‎, 30-07-2014 10:11 AM
    2 Pages
    1 2
    • Replies: 18
    • Views: 635
    31-07-2014, 06:20 PM
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  12. dla

    hi everyone not been on for awhile just need some advice I have received a form from disability living allowance I have managed to do my personal details then my head just goes is there anywhere I can go to get help thanks in advance Sent from my GT-S5830i using Talking Point mobile app

    Started by lottie1955‎, 30-07-2014 08:30 PM
    • Replies: 6
    • Views: 277
    30-07-2014, 10:28 PM
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  13. Is the society becoming a closed shop ??

    Well, the day has come when the Alzheimer's society will shortly announce their 64 Dementia friendly communities up and down the uk and as they only aimed for 20 in the beginning they have to be applauded and i will say on record so much good luck to all those who made this possible WITHIN those...

    Started by Norrms‎, 28-07-2014 04:04 PM
    • Replies: 9
    • Views: 713
    29-07-2014, 11:02 PM
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  14. Iam confused

    Hi everyone iam new to tp find my self very confused having been told by my nuero I have dementia due to my mmse test score which was 24/30 and 68/100 plus results of my MRI results this I can accept but now having seen a second nuero also have multiple white matter lesions subcortical vascular...

    Started by Col60‎, 06-07-2014 01:58 PM
    • Replies: 11
    • Views: 987
    29-07-2014, 02:09 PM
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  15. Frightened

    I have recently been diagnosed with dementia and am feeling frightened and lonely, does this feeling go away at some point?

    Started by gillyhoney‎, 26-07-2014 09:34 AM
    • Replies: 7
    • Views: 460
    26-07-2014, 11:31 PM
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  16. Bad nights

    I have to admit that my nighttimes’ and problems are getting worse and by that I don’t just mean the (Nightmares and Hallucinations) as what was just an occasional accident with (motion incontinence) has now become a tightly occurrence and without me even knowing it’s happened until I wake up in...

    Started by Barry‎, 17-07-2014 11:17 PM
    • Replies: 6
    • Views: 466
    19-07-2014, 11:55 PM
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  17. Dementia Diaries on radio Devon

    Good morning , hope you are all ok after last nights storm? Here is a link to anybody who wants to follow my Dementia diaries on BBC Radio Devon (I think it may only work in uk? Sorry ) There are two or three on their now and the rest will be aired every Monday morning around 9.45am for the next...

    Started by Norrms‎, 19-07-2014 09:12 AM
    • Replies: 4
    • Views: 224
    19-07-2014, 03:32 PM
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  18. 2nd Dementia friends talk - an interesting question!

    just got in from giving my 2nd talk 18 new Dementia Friends signed up and wearing there badges! One lady asked at the end, "if someone's long term memory takes them back to their childhood would this account for some people being agitated and distressed as they had a troubled childhood, and...

    Started by creativesarah‎, 09-07-2014 06:22 PM
    • Replies: 7
    • Views: 499
    18-07-2014, 06:58 PM
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  19. Loneliness

    I am I think getting lonely without Peter. Today he's gone to Blackpool with the Carers. I 've done my chores to keep busy. As always I'm looking forward to him coming home. But this last few trips they have been on. After quite a few hours I lonely and get agitated. I can't tell him to stay...

    Started by Pookie‎, 13-06-2014 03:28 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 2,398
    14-07-2014, 04:45 PM
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  20. Just wanted to say

    Just wanted to say thank you so much to the people posting on this site. You are giving me insight to how my mother's brain could now be working. Helping me give my mother a quality of life and a purpose. Thank you so much for posting your experiences.

    Started by Tin‎, 13-07-2014 08:58 AM
    • Replies: 1
    • Views: 304
    13-07-2014, 09:07 AM
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  21. Chat session “Barry’s Baking Tips”

    Hi Folks Just wanted to let you know that after a request I will be a guest on the (Talking Point Chat) on Tuesday 1st July, 12 – 1pm, so if you have any questions about baking or want some ideas then please drop into the chat session and join in the chat Look forward to talking to you all ...

    Started by Barry‎, 25-06-2014 12:21 AM
    2 Pages
    1 2
    • Replies: 27
    • Views: 1,120
    12-07-2014, 12:42 AM
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  22. My first dementia friends talk

    I am so grateful for all the support I have received from so many people. The talk started with a healthy lunch and it was an opportunity to get to know people a bit. (the lunch was fab!) We had lunch in the garden and decided to stay out there for the talk as it was so warm and sunny. It went...

    Started by creativesarah‎, 06-06-2014 06:00 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 1,784
    08-07-2014, 11:48 AM
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  23. cooking

    Today I am home alone and rather enjoying it! J&H have gone to wales for a couple of days and Celia's mother has had a fall so she shot off to her last night Normally I find cooking tricky but today I am quite enjoying it I am cooking macaroni cheese and garlic bread but best of all I...

    Started by creativesarah‎, 03-07-2014 11:58 AM
    2 Pages
    1 2
    • Replies: 18
    • Views: 790
    05-07-2014, 11:55 PM
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  24. Sometimes, just sometimes

    SOMETIMES HAVING dementia doesn't seem that bad, please share xxxxxxxxxxxxxx I was up in my home town of Bolton last week and was asked by Bolton dementia group and ASDA superstore to attend a photo session where they had arranged for many cyclists to do a sponsored cycle ride for the Purple...

    Started by Norrms‎, 04-07-2014 09:09 AM
    • Replies: 0
    • Views: 367
    04-07-2014, 09:09 AM
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  25. Acknowledge

    Today I've had to acknowledge that my cooking is dwindling. I burnt Peter s tea again. Frustrating, this awful disease seems to take your pleasures ie cooking. employment etc away first. Although I still make an incredible casserole and stew.The lurgy can leave my baking alone too. Sent from...

    Started by Pookie‎, 03-07-2014 05:28 PM
    • Replies: 10
    • Views: 516
    04-07-2014, 12:41 AM
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