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Forum: I have dementia

This forum is for people who have been diagnosed with dementia.

  1. Sticky Thread Sticky: Monthly chat for people with dementia and carers - communication

    Hello everyone :) Our Monthly chat for people with dementia and carers will be open from 12.30pm - 2pm today. Please note: this is one hour later than planned, due to technical issues. Today's topic is Communication Our chat room area is a place where you can have conversations with...

    Started by SerenaS‎, 19-01-2015 12:25 PM
    • Replies: 0
    • Views: 587
    19-01-2015, 12:25 PM
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  2. Lightbulb Sticky Thread Sticky: The dementia guide: A resource for people dealing with a recent dementia diagnosis

    The dementia guide is an Alzheimer's Society publication for anyone who has recently been told they have dementia. This could be any type of dementia, such as Alzheimer’s disease, vascular dementia or mixed dementia. The guide will also be useful to close friends and family of someone with...

    Started by KatherineW‎, 03-04-2014 03:06 PM
    • Replies: 0
    • Views: 3,047
    03-04-2014, 03:06 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 3,744
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our I have dementia forum. If you have a dementia diagnosis, you may find the following information useful: Booklets for people living with dementia Word puzzles and computer screen calendars (many thanks...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 6,203
    05-01-2012, 02:18 PM
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  1. When we were young

    """ When we were young, we were our parents responsibility"""" """""" Now, they are ours """" Cc Norrms Mc Namara Merry Christmas to all xxxxxxxxxxxxxxxxxxxxxx

    Started by Norrms‎, 22-12-2014 10:15 AM
    • Replies: 0
    • Views: 308
    22-12-2014, 10:15 AM
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  2. At This Time Of year

    AT THIS TIME OF YEAR As Christmas approaches i would ask you all to remember this years Christmas message from the Purple Angel dementia awareness campaign " PLEASE REMEMBER THOSE WHO CAN`T" Living with this disease all year is, to say the least, an uphill struggle. But at this time of...

    Started by Norrms‎, 12-12-2014 05:33 PM
    • Replies: 4
    • Views: 550
    22-12-2014, 10:08 AM
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  3. New memory cafe

    Hiya all, just back from putting out posters asking for volunteers for new Purple Angel memory cafe opening next year Jan 10th. Have had some wonderful feedback from so many people, including health professionals saying they are so glad to hear it will be on a saturday when all else is closed . ...

    Started by Norrms‎, 01-12-2014 02:41 PM
    • Replies: 2
    • Views: 529
    22-12-2014, 09:31 AM
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  4. just diagnosed at 53

    Im just 53 and was diagnosed vascular dementia just 1 week ago, after 14 months of tests. The thing is I don't believe the doctors at the hospital that I have and also keep wondering if I heard them right! My partner was with me and he said that is what they said. They offered me a nurse for a...

    Started by seagull50‎, 18-12-2014 03:02 PM
    • Replies: 14
    • Views: 1,558
    21-12-2014, 03:05 PM
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  5. Moved: quite ironic I keep forgetting how to use this site oops!

    oh dear I keep forgetting how to post threads, it takes me ages to work it out each time, please tell me im not alone? You have to laugh at yourself sometimes I guess as it is quite ironic, still I feel stupid! I am newly diagnosed at 53, just 53. vascular dementia. I have a mentally and...

    Started by seagull50‎, 21-12-2014 10:37 AM
    • Replies: -
    • Views: -
    21-12-2014, 10:28 AM
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  6. genetic Apo E

    Hi during a test I found out I have the gene ApoE 3/4...where the 4 means I have a genetic risk for Alzheimer's disease (my mom and her mom had it) so i think I am headed that way too....anybode else here know that she /he has it and how you cope with it? thanx in advance !!!!

    Started by sabrinaf‎, 02-12-2014 12:38 AM
    • Replies: 2
    • Views: 559
    20-12-2014, 02:55 PM
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  7. well I won't win any cooking programmes!

    My cooking took a turn for the worse today too 1 I cut my thumb on a knife and couldnt stop it bleeding had to butterfly plaster it 2 I grated my knuckle 3 I put the onions on a low heat for half an hour and 2 hours later wondered what the burning smell was - they are now caramelised (burnt) 4...

    Started by creativesarah‎, 19-12-2014 12:44 AM
    • Replies: 3
    • Views: 477
    20-12-2014, 12:17 AM
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  8. Moved: arm pain and stiffness

    Im newly diagnosed vascular dementia before I received this diagnosis I have suffered for the past year with what the consultant told me was a frozen shoulder, but its gradually getting weaker and weaker and I cannot do much with it at all. This is so frustrating when you have to rely on others to...

    Started by seagull50‎, 21-12-2014 10:37 AM
    • Replies: -
    • Views: -
    19-12-2014, 10:48 PM
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  9. Mci

    I have been told that i have MCI and I need help from some one as I don't know what to do.... my poor wife has me forgetting things, getting angry over little things, but worst of all the other day I forgot to pick my grandson up from school and went home to the wrong house (haven't lived there for...

    Started by nevada1968‎, 12-12-2014 10:05 AM
    • Replies: 3
    • Views: 530
    16-12-2014, 07:28 PM
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  10. Great end to 2014

    In this weeks Local paper, What a way to finish 2014 http://www.torquayheraldexpress.co.uk/Purple-Angel-campaign-goes-global-Knoxville-USA/story-25701641-detail/story.html

    Started by Norrms‎, 15-12-2014 03:42 PM
    • Replies: 9
    • Views: 604
    16-12-2014, 08:12 AM
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  11. Happy Christmas and Chat room

    I just like to wish all my Talking Point friends a very Happy Christmas and to let you all know that I will be the guest in the Talking Point Chat room on Monday 15 December talking about (Christmas whilst living with Dementia) so if you free please join us at 12 o'clock – 1pm UK time ;)

    Started by Barry‎, 14-12-2014 12:44 AM
    • Replies: 3
    • Views: 504
    14-12-2014, 10:33 PM
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  12. The descending of the "Fog"

    I wonder if anyone else with Alzheimers has this awful Fog that seems to descend, without warning. It slowly takes over my whole body and mind making me unable to think or do anything physically, I feel it starting but have no control of it, fighting against it or through it just makes it worse,...

    Started by Jeanie 73‎, 06-12-2014 12:13 PM
    • Replies: 6
    • Views: 870
    07-12-2014, 11:47 PM
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  13. Best Group in the World !!

    Hiya all, here is a pic of the wonderful Steering Group" of the TDAA (Torbay Dementia Action Alliance) "i am taking the pic". By now, you may have noticed something, there is a definite lack of men in this , in fact, i am the only one !! We also have BOB who is in the media and covers all our...

    Started by Norrms‎, 06-12-2014 05:14 PM
    • Replies: 6
    • Views: 717
    07-12-2014, 01:07 PM
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  14. No ironing - yipee!!!

    Today I went to the Doctor as I have got a urine infection and have hurt my shoulder and torn the rotor cuff She said 'No ironing!!!' So that was a good outcome!

    Started by creativesarah‎, 05-12-2014 12:05 PM
    • Replies: 13
    • Views: 877
    07-12-2014, 12:32 PM
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  15. Learnng

    Is there any evidence as to the effect of learning on Alzheimer's - positive, negative, or indifferent? My experience is quite recent; and memorising fairly simple poetry was a reasonably pleasant experience. But whether it is long-lasting and/or beneficial I do not know.

    Started by jackie-boy38‎, 03-12-2014 06:57 PM
    • Replies: 2
    • Views: 369
    03-12-2014, 07:45 PM
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  16. What a year !!

    WHAT A YEAR !! 12,014 MEMBERS NOW ON DEMENTIA AWARE PAGE !! https://www.facebook.com/groups/250325295027020/members/ Dear friends, to end what has been the most incredible year ever, we have just broken through the TWELVE THOUSAND MEMBERS mark on the facebook Dementia Aware page !! Please note...

    Started by Norrms‎, 01-12-2014 10:19 AM
    • Replies: 4
    • Views: 448
    01-12-2014, 10:57 AM
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  17. Starting a clinical trial.

    Hi, for anyone interested I had said that I would provide an update of my experiences while taking part in a clinical study of a drug that is being studied for Alzheimer's disease. First, some background:- My name is Wendy ( pixie is the cats name, but Wendy's already taken), I'm 53 and was...

    Started by Pixie...‎, 23-05-2014 03:51 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,829
    29-11-2014, 11:21 PM
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  18. Christmas reminiscence box

    I had this idea after going on the chat room a couple of days ago Perhaps a reminiscence box with things to do with past christmases would help some people The sort of things I would put in it would be a brazil nut, and old sock (clean!!!:) an satsuma or whatever you had in a stocking at...

    Started by creativesarah‎, 27-11-2014 02:29 PM
    • Replies: 6
    • Views: 663
    28-11-2014, 11:19 PM
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  19. Winters Shadow

    WINTERS SHADOW As we walk slowly into deepest winter with the nights drawing in and the darkness of a winters night encompassing all i often think about how Winter cast its shadow of darkness over everybody and how similar that is when dementia shows its hand to families across the world. I...

    Started by Norrms‎, 23-11-2014 01:45 PM
    • Replies: 0
    • Views: 384
    23-11-2014, 01:45 PM
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  20. Gardening helps with Dementia - Really?

    OK I know this is likely to be me getting irritated but this morning I see an article that states that gardening can help with combating or preventing Dementia, Alzheimers et al. Well that's handy. My wife was my deputy (I Know) Head Gardener for 10 years. Did it help? The article also...

    Started by gardenerb‎, 13-11-2014 08:33 AM
    2 Pages
    1 2
    • Replies: 18
    • Views: 1,333
    23-11-2014, 11:42 AM
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  21. Colored Cutlery

    Hi, i must admit there are not many things that get to me emotionally, but this did. A few weeks ago i was asked to help Young Dementia UK with a blog about how colors can affect people with dementia, not only walls, carpets ect, but also plates and drinking vessels. After posting it on line also,...

    Started by Norrms‎, 21-11-2014 09:55 AM
    • Replies: 5
    • Views: 545
    21-11-2014, 03:40 PM
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  22. Smile I have vascular dementia

    Happy birthday to you Sara hope you had a great day and hope the sun came out for you

    Started by black night‎, 18-10-2014 08:18 PM
    2 Pages
    1 2
    • Replies: 27
    • Views: 2,195
    21-11-2014, 04:03 AM
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  23. Alzheimer’s / Dementia and Christmas nostalgia

    It’s only the beginning of November yet a yearning and Christmas nostalgia has already got a grip on me and I know this sounds stupid but it makes me feel so very isolated. I love Christmas and miss all the excitement and hype that comes with this time of year, but most of all I miss my family...

    Started by Barry‎, 03-11-2014 11:14 PM
    • Replies: 6
    • Views: 964
    20-11-2014, 11:20 PM
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  24. Christmas when Living with Dementia

    Thinking about our spouse who might have Alzheimer’s or any other type of Dementia during the build up to Christmas time and all the Christmas festivities https://www.youtube.com/watch?v=e_dhcLDEUu0&list=UUKVm--NDZUmyfEkKzMwJ8qw

    Started by Barry‎, 19-11-2014 01:05 AM
    • Replies: 0
    • Views: 475
    19-11-2014, 01:05 AM
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  25. Every Chemist In Cornwall

    1st Purple Angel A BIRTHDAY PRESENT !!!! A MUST SHARE !! I have been saving this one for today my friends, i can now announce that after having a meeting with the Chief Officer Cornwall & Isles of Scilly Local Pharmaceutical Committee A few weeks ago which was attended by not only...

    Started by Norrms‎, 16-11-2014 11:54 AM
    • Replies: 3
    • Views: 509
    16-11-2014, 02:43 PM
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