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Forum: I have dementia

This forum is for people who have been diagnosed with dementia.

  1. Lightbulb Sticky Thread Sticky: The dementia guide: A resource for people dealing with a recent dementia diagnosis

    The dementia guide is an Alzheimer's Society publication for anyone who has recently been told they have dementia. This could be any type of dementia, such as Alzheimer’s disease, vascular dementia or mixed dementia. The guide will also be useful to close friends and family of someone with...

    Started by KatherineW‎, 03-04-2014 03:06 PM
    • Replies: 0
    • Views: 868
    03-04-2014, 03:06 PM
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  2. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,001
    01-08-2013, 04:10 PM
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  3. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our I have dementia forum. If you have a dementia diagnosis, you may find the following information useful: Booklets for people living with dementia Word puzzles and computer screen calendars (many thanks...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,405
    05-01-2012, 02:18 PM
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  1. Brave

    Can I just say I think anyone with Alzheimer's etc are really brave people I don't have this yet but I will as it runs through my family I only want to say how brave and strong you all are I have nothing but respect for each and everyone of you I wish you all the luck in the world keep frighting...

    Started by Kellie-Ann‎, 28-04-2014 01:57 AM
    • Replies: 11
    • Views: 511
    01-05-2014, 04:59 PM
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  2. Bad memories from the past

    My son's MIL has Alz and doesn't know it. It is driving them batty. But I tell them that I envy her! I have dementia and I know it all too well! I am not me-I don't know this person in my skin! My short term memory is worsening and of course the past is more vivid than some of today. My...

    Started by Jaffy‎, 19-04-2014 09:40 PM
    • Replies: 8
    • Views: 745
    20-04-2014, 12:12 PM
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  3. Theraphy

    When I need to focus .I bake anything. Sent from my GT-I8190N using Talking Point mobile app

    Started by Pookie‎, 06-04-2014 04:09 PM
    • Replies: 8
    • Views: 589
    19-04-2014, 03:29 PM
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  4. hello I am back again.

    I know I rarely visit this site now. I guess that's cause my Dad is worse now. and on reading other threads feeling sorry for those in same situation. Visited him today at the care home and he does not know who I am now or anyone, he can not speak or make conversations no more, he will just let out...

    Started by Ladywriter1968‎, 17-04-2014 10:46 PM
    care givers, care home, dementia, depression, family, father, husband, mother, relatives, wife
    • Replies: 1
    • Views: 443
    17-04-2014, 10:53 PM
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  5. Personal health budget/ continuing health.

    Hi Would like some help and advice please from the good people out there. We have been jointly funded by both and health for some time now. £25,000 from each per year. H took a turn for the worst with Tonic-clonic seizures. This means as from then we now need 2 people with H at all times. I...

    Started by helenemartin‎, 16-04-2014 08:47 AM
    • Replies: 0
    • Views: 369
    16-04-2014, 08:47 AM
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  6. Exciting new Talking Point feature launching in the New Year!

    In the New Year, we are going to be piloting an exciting new service for Talking Point: a chat room, which will be open at set times for ‘live chat’ sessions. What is a chat room? A chat room, also known as ‘live chat’, simply means an online conversation that happens immediately. In other...

    Started by KatherineW‎, 19-12-2013 03:40 PM
    • Replies: 7
    • Views: 1,427
    15-04-2014, 11:05 AM
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  7. Angry

    Today I had a visit from a mindless moran:o He asked Peter questions instead of me, "how was I.how was I coping." H**ls teeth I'm still sitting there. Annoying. I really am so cheesed of.:banghead: Sent from my GT-I8190N using Talking Point mobile app

    Started by Pookie‎, 14-04-2014 12:28 PM
    • Replies: 8
    • Views: 580
    14-04-2014, 01:39 PM
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  8. feeling better

    My time away in London seems to have helped! I had some helpful chats with people and feel the large black cloud that was above my head has shifted. I met up with some friends Ali & Jim who have "fallen in love";) and hold me responsible as they met on my facebook page (both in their 60's!)...

    Started by creativesarah‎, 11-04-2014 11:15 PM
    2 Pages
    1 2
    • Replies: 22
    • Views: 940
    14-04-2014, 01:02 AM
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  9. White matter disease

    Hi everyone got a very close friend whoms been diagnosed with whie matter disease I myself have not heard of this can anyone help with advice he has cognative impairment mmse test was in low 70s he also has slow movement muscle spasms and rigidity in limbs as well as mini electric shocks from head...

    Started by colcol‎, 12-04-2014 11:24 PM
    • Replies: 2
    • Views: 487
    13-04-2014, 10:06 AM
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  10. Our Granddaughter Fira 3rd Birthday 8 April 2013

    What a great party our granddaughter had and I survived and still fell on top of the world (Amen) Now here are some of the photos... now I am going to crash out in the armchair as this has been the culmination of 4 exhausting days for me with all the baking and decorating the cakes which had me...

    Started by Barry‎, 09-04-2014 01:16 AM
    • Replies: 13
    • Views: 833
    11-04-2014, 12:56 AM
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  11. Living with Dementia magazine April 2014

    Upside Down I thought the article written by the Hannah Radcliffe UPSIDE DOWN was very informative on the effects of Fronto-temporal-dementia on the person and those around them , it answers almost all the problems I myself endured for several years major dementia problems with very little...

    Started by Tony‎, 07-04-2014 09:55 AM
    • Replies: 4
    • Views: 626
    08-04-2014, 11:55 PM
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  12. Dementia ! Dont you Dare !!

    DON’T YOU DARE! I screamed!! DON`T YOU B*****Y DARE!!!! “”My voice was as high pitched as you can imagine, it cut through the nights blackness like a lightsaber as I stood there, shaking, looking around me, remembering bits of what I had just seen but trying to come to terms with the fact that...

    Started by Norrms‎, 07-04-2014 09:58 AM
    • Replies: 6
    • Views: 703
    07-04-2014, 05:02 PM
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  13. Huuuumph

    I have more or less decided to go to London for a couple of days so started packing. just went to get my Tablet out of my bureau and found the screen is cracked and when I turned it on it just showed a dead android Gutted:(:( I was planning to use it on the train and to check my emails...

    Started by creativesarah‎, 06-04-2014 05:19 PM
    • Replies: 7
    • Views: 569
    06-04-2014, 10:23 PM
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  14. Help re side effects of meds for Alzheimers....

    I have been put on EBIXA for Alzheimers on third week of increasing strength EBIXA last increase will start Thurs. Side effects are bad Nauseous, dizzy and generally feel dreadful especially when I stand up! Meds are only one I can have so its either them or nowt!! I know we are all different in...

    Started by Jeanie 73‎, 25-03-2014 11:59 AM
    • Replies: 8
    • Views: 787
    06-04-2014, 02:48 PM
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  15. What should we say??

    My dear Mum has become obsessed with seeing her own Mum, who died over 30 years ago. When Mum was in the earlier stages of dementia last year, we could actually tell her that her Mum was no longer with us, and she accepted this without getting upset. However, since her dementia has rapidly got...

    Started by Il Gufo‎, 05-04-2014 01:05 PM
    • Replies: 3
    • Views: 493
    05-04-2014, 05:19 PM
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  16. feeling flat

    Today I seem to be really struggling cant pin it onto one thing just lots of random things Mostly I guess I miss my family Struggle to keep on top of things they have said about me - leper springs to mind I don't want to feed those thoughts I am eating all the wrong things and wrong quantaties...

    Started by creativesarah‎, 15-03-2014 03:01 PM
    6 Pages
    1 2 3 4 5 ... 6
    • Replies: 85
    • Views: 3,417
    05-04-2014, 09:31 AM
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  17. Thumbs up “Fighting On”

    Just lately I feel as though I’ve been drifting even further away from the reality of life, it’s as though I’m falling deeper and for longer into the dementia abyss each day. Now when I wake up at 4m every morning I instantly feel lost and extremely bewildered and thoughts start to bombard my brain...

    Started by Barry‎, 13-03-2014 12:37 AM
    2 Pages
    1 2
    • Replies: 19
    • Views: 1,617
    02-04-2014, 11:52 PM
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  18. Thumbs up iam new

    Hello everyone my names Elliot.iam 53 years of age and have dementia I am very confused really as I thought I,d be a little young to have dementia. I would like to ask members what I can do stop myself ROM being nasty and abusive to my partner and also ask about poa had a more test recently and my...

    Started by elliot‎, 09-02-2014 10:51 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 1,633
    02-04-2014, 09:57 PM
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  19. Surprises

    It's my 68th birthday and my granddaughter painted me Rambo (rainbow ) for it.so I thought I share with friends on TP. To raise a smile.:D Sent from my GT-I8190N using Talking Point mobile app

    Started by Pookie‎, 23-03-2014 11:56 AM
    2 Pages
    1 2
    • Replies: 21
    • Views: 970
    02-04-2014, 12:56 PM
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  20. Things aren't always as they appear .....

    A member posted yesterday that I seem so aware of my condition And handle my problem so well. I have dementia And it presents itself differently in every single person that I have met with this condition. Most of the time, I AM very aware and because of that, it makes me sad and frustrated...

    Started by Irishgirl57‎, 04-02-2014 04:55 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,777
    31-03-2014, 11:40 PM
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  21. Doing it for dementia

    DOING IT FOR DEMENTIA !!! Last year i had the utmost honour of being asked to a world event regarding Dementia held by Home Instead Exeter and Alzheimer's Disease Alzheimer's Disease International, i have just come across this video i didn't even know existed LOLL, only a couple of minutes long...

    Started by Norrms‎, 31-03-2014 09:43 AM
    • Replies: 4
    • Views: 383
    31-03-2014, 02:12 PM
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  22. Finger talk

    I think its upside down. My latest poster so Peter can chat if ever my words diappear.:D:what: Sent from my GT-I8190N using Talking Point mobile app

    Started by Pookie‎, 24-03-2014 04:22 PM
    • Replies: 7
    • Views: 372
    24-03-2014, 06:52 PM
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  23. Malware something keeps happening when I come on TP

    Something keeps happening when I come onto TP tonight I keep getting things coming up ;:confused: is anyone else experiencing the same problems I am sure I have put this in the wrong section but I was stumped where to put it! Sarah:eek:

    Started by creativesarah‎, 21-03-2014 09:27 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 891
    22-03-2014, 11:14 AM
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  24. Lasting Power of Attorney

    Does anyone know where I can complete the application form online, please? Failing that, is there a phone number that I can call to complete over the phone? Thanks.

    Started by LynsCarer‎, 19-03-2014 09:37 PM
    • Replies: 2
    • Views: 458
    21-03-2014, 04:37 PM
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  25. “From a good day to a bad Night”

    Why do things have to turn sour as yesterday I was giving a great day but then last night Sumi said that it was about 11-30pm and despite the violent rainstorm plus the thunder and lightning I was sound asleep but she knew what was going to happen, as apparently just before I have nightmares my...

    Started by Barry‎, 17-03-2014 12:32 AM
    • Replies: 6
    • Views: 753
    17-03-2014, 10:46 PM
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