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Forum: I have dementia

This forum is for people who have been diagnosed with dementia.

  1. Lightbulb Sticky Thread Sticky: The dementia guide: A resource for people dealing with a recent dementia diagnosis

    The dementia guide is an Alzheimer's Society publication for anyone who has recently been told they have dementia. This could be any type of dementia, such as Alzheimer’s disease, vascular dementia or mixed dementia. The guide will also be useful to close friends and family of someone with...

    Started by KatherineW‎, 03-04-2014 03:06 PM
    • Replies: 0
    • Views: 1,101
    03-04-2014, 03:06 PM
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  2. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,162
    01-08-2013, 04:10 PM
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  3. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our I have dementia forum. If you have a dementia diagnosis, you may find the following information useful: Booklets for people living with dementia Word puzzles and computer screen calendars (many thanks...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,585
    05-01-2012, 02:18 PM
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  1. Just wanted to say

    Just wanted to say thank you so much to the people posting on this site. You are giving me insight to how my mother's brain could now be working. Helping me give my mother a quality of life and a purpose. Thank you so much for posting your experiences.

    Started by Tin‎, 13-07-2014 08:58 AM
    • Replies: 1
    • Views: 291
    13-07-2014, 09:07 AM
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  2. Chat session “Barry’s Baking Tips”

    Hi Folks Just wanted to let you know that after a request I will be a guest on the (Talking Point Chat) on Tuesday 1st July, 12 – 1pm, so if you have any questions about baking or want some ideas then please drop into the chat session and join in the chat Look forward to talking to you all ...

    Started by Barry‎, 25-06-2014 12:21 AM
    2 Pages
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    • Replies: 27
    • Views: 1,080
    12-07-2014, 12:42 AM
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  3. My first dementia friends talk

    I am so grateful for all the support I have received from so many people. The talk started with a healthy lunch and it was an opportunity to get to know people a bit. (the lunch was fab!) We had lunch in the garden and decided to stay out there for the talk as it was so warm and sunny. It went...

    Started by creativesarah‎, 06-06-2014 06:00 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 1,732
    08-07-2014, 11:48 AM
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  4. cooking

    Today I am home alone and rather enjoying it! J&H have gone to wales for a couple of days and Celia's mother has had a fall so she shot off to her last night Normally I find cooking tricky but today I am quite enjoying it I am cooking macaroni cheese and garlic bread but best of all I...

    Started by creativesarah‎, 03-07-2014 11:58 AM
    2 Pages
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    • Replies: 18
    • Views: 762
    05-07-2014, 11:55 PM
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  5. Sometimes, just sometimes

    SOMETIMES HAVING dementia doesn't seem that bad, please share xxxxxxxxxxxxxx I was up in my home town of Bolton last week and was asked by Bolton dementia group and ASDA superstore to attend a photo session where they had arranged for many cyclists to do a sponsored cycle ride for the Purple...

    Started by Norrms‎, 04-07-2014 09:09 AM
    • Replies: 0
    • Views: 353
    04-07-2014, 09:09 AM
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  6. Acknowledge

    Today I've had to acknowledge that my cooking is dwindling. I burnt Peter s tea again. Frustrating, this awful disease seems to take your pleasures ie cooking. employment etc away first. Although I still make an incredible casserole and stew.The lurgy can leave my baking alone too. Sent from...

    Started by Pookie‎, 03-07-2014 05:28 PM
    • Replies: 10
    • Views: 495
    04-07-2014, 12:41 AM
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  7. As Time Goes by...My dementia...why i do what i do

    As Time Goes By…….DEMENTIA, Why i do what i do Whilst on holiday, sat on the beach, i looked around me and saw nothing but pleasure and hope. There were children playing in the sand and the seagulls were making sure we knew they were there with their all familiar call!!. Every so often you...

    Started by Norrms‎, 16-06-2014 04:50 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,024
    03-07-2014, 03:23 PM
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  8. Baking tips group updated

    After my chat session yesterday on Baking tips which I enjoyed immensely I have uploaded some recipes and photos into the Baking group about the products we were talking about, I must try a do this more often and be more proactive! Barry ;) http://forum.alzheimers.org.uk/group.php?groupid=21

    Started by Barry‎, 02-07-2014 02:12 AM
    • Replies: 9
    • Views: 451
    02-07-2014, 11:57 PM
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  9. finally a diagnosis

    Hi everyone,its been a while since i posted on here.the last time i posted i had not been able to get a diagnosis from my doctor or consultant after 2 years of tests .well i applied for esa last month and put on the forms the name of my consultant and doctor for them to contact,yesterday the dss...

    Started by muriel67‎, 26-06-2014 01:23 PM
    • Replies: 6
    • Views: 440
    26-06-2014, 10:48 PM
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  10. A good hare day!

    Back home after my "jolly" took hundreds of photos and a couple of video clips This one of the hare swimming isn't brilliant quality cos it all happened so fast that i didn't have time to change the settings on the camera but I thought you would enjoy it!:) http://youtu.be/W0gu8iUIOfY He loved...

    Started by creativesarah‎, 22-06-2014 04:05 PM
    2 Pages
    1 2
    • Replies: 19
    • Views: 804
    23-06-2014, 10:33 PM
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  11. Exclamation Chat session on keeping active in the TP chat room, 2-3pm on Monday 23rd June

    Just to let you know that from 2-3pm this afternoon we'll be running a dementia support session on keeping active, in the Talking Point chat room. If you'd like to share experience and tips with other members on how you stay mentally and physically active - or ask a question on this topic,...

    Started by KatherineW‎, 23-06-2014 08:45 AM
    • Replies: 0
    • Views: 269
    23-06-2014, 08:45 AM
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  12. Off on a jolly!

    Today I am going to stay with a friend in Dorset i always get nervous travelling but I have done it before so hopefully it will be OK forgot to ask for assisted travel on the train. I am looking forward to seeing the sea (and my friend Jan!) Camera batteries are all charged up! Sandwiches...

    Started by creativesarah‎, 18-06-2014 07:44 AM
    2 Pages
    1 2
    • Replies: 25
    • Views: 976
    21-06-2014, 11:46 PM
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  13. “Some Sundowning Tips to ease the anxiety”

    "Sundowning" is a state of increased agitation, activity and negative behaviors, which can happen late in the day through the evening hours. It used to be thought that Sundowning was caused by the lowering light and shorter days. However, research now indicates that being overly tired may have more...

    Started by Barry‎, 15-05-2014 01:11 AM
    2 Pages
    1 2
    • Replies: 20
    • Views: 4,141
    20-06-2014, 12:03 AM
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  14. Can anyone help please internet question

    Not sure what I am allowed to post re internet providers but mine is the big red one - now it seems I cannot access my email unless I accept all oggle eyed t & Cs which make no sense to me. I don't want to do this, how difficult is it to change providers and emails? I'd be grateful for any advice....

    Started by Sue J‎, 16-06-2014 03:15 PM
    2 Pages
    1 2
    • Replies: 23
    • Views: 768
    18-06-2014, 08:02 AM
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  15. Exclamation Monthly chat for people with dementia, Tuesday 17th June from 12-1pm

    Just a reminder that we’ll be running our monthly live chat session for people with dementia, from 12 - 1pm tomorrow. Members who have dementia are very welcome to pop in, take a look and say hello. Finding the chat room is easy: just click on the Chat room link on the blue bar at the top...

    Started by KatherineW‎, 16-06-2014 03:27 PM
    • Replies: 2
    • Views: 381
    17-06-2014, 11:46 AM
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  16. Another step in my Dementia, but which way ??xxxxxxxxxx

    Another Step, But, Which Way ? A few days ago i was started on Clonazepam. My night terrors had become so unbearable and my “Angel ” Elaine was absolutely drained. They had become SO bad, i actually asked my CPN to come and see me as i had to tell someone what was happening as they were so...

    Started by Norrms‎, 30-05-2014 10:05 AM
    • Replies: 10
    • Views: 1,479
    15-06-2014, 07:44 PM
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  17. How time flies

    Iv not been on for a while been rather busy planning my future as my family call wills funeral plans etc etc this I know sounds a bit morbid but Iv had great fun deciding what music reading etc and even the colours of my funeral no black. I can now get on with living I intend to do it in the best...

    Started by lottie1955‎, 14-06-2014 08:38 PM
    • Replies: 5
    • Views: 463
    15-06-2014, 07:30 PM
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  18. Widening bubbles?

    I sometimes feel that I live in my own world.(bubble) So I thought a slow walk to M store everyday may tell my brain its safe to do that. Today was the first time on my own for months (acrophobia) so now I have to do this.The other ailments were nearly winning whilst I fought the lurgy. So now...

    Started by Pookie‎, 05-06-2014 03:22 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 744
    07-06-2014, 02:40 PM
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  19. Sufferers what would make a difference for you?

    As yet I remain undiagnosed but have had symptoms for 4 years now. I'm not daft, although others might say that's a matter of opinion:D I know something is very wrong and my life has changed irrevocably. I try and come to terms with it but as other sufferers know it is an ongoing struggle. I have...

    Started by Sue J‎, 12-10-2013 04:06 PM
    3 Pages
    1 2 3
    • Replies: 37
    • Views: 4,063
    06-06-2014, 10:53 AM
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  20. feeling nervous

    I am giving my first dementia friends talk on Friday to some ladies in a nearby village. I cant remember some of what was shared with me. Tonight I am going to do a runthrough talking to myself!;)

    Started by creativesarah‎, 04-06-2014 07:59 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 700
    06-06-2014, 09:29 AM
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  21. me and dementia

    Hya everyone i have been told i have dementia last july .Things are very hard to manage everyday .My children dont seem to want to go there again as my mum had it and my gran .The troble is i find things get me down so easy and cant shift it i wish i knew how to boast my life i dont know many...

    Started by mosy04‎, 09-05-2014 07:55 PM
    • Replies: 6
    • Views: 798
    04-06-2014, 10:09 PM
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  22. Alone

    hi, im gemma and i have vascular dimentia and im only 47 x

    Started by gemma66‎, 30-05-2014 08:54 PM
    • Replies: 6
    • Views: 585
    03-06-2014, 06:49 AM
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  23. walking problems I have had walking difficulties for 4 years .

    I have arthritis and have had a hip operation and perhaps because of that I did not recognise that my difficulties were dementia related. Has anyone else suffered from this kind of problem?

    Started by joscarj1‎, 28-05-2014 02:21 PM
    • Replies: 2
    • Views: 416
    29-05-2014, 01:21 AM
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  24. Bank holiday

    Having a go at mosaic. Its the view from the hall window at my craft club .I roamed these moors as a teenager so as well as a shoe box /coffee table it's a lovely memory. Memory's are made in so many ways. What next can I do to keep the lurgy at bay? Sent from my GT-I8190N using Talking Point...

    Started by Pookie‎, 26-05-2014 05:36 PM
    • Replies: 2
    • Views: 357
    26-05-2014, 05:50 PM
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  25. Starting a clinical trial.

    Hi, for anyone interested I had said that I would provide an update of my experiences while taking part in a clinical study of a drug that is being studied for Alzheimer's disease. First, some background:- My name is Wendy ( pixie is the cats name, but Wendy's already taken), I'm 53 and was...

    Started by Pixie...‎, 23-05-2014 03:51 PM
    • Replies: 5
    • Views: 599
    23-05-2014, 05:36 PM
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