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Forum: I have dementia

This forum is for people who have been diagnosed with dementia.

  1. Lightbulb Sticky Thread Sticky: The dementia guide: A resource for people dealing with a recent dementia diagnosis

    The dementia guide is an Alzheimer's Society publication for anyone who has recently been told they have dementia. This could be any type of dementia, such as Alzheimer’s disease, vascular dementia or mixed dementia. The guide will also be useful to close friends and family of someone with...

    Started by KatherineW‎, 03-04-2014 03:06 PM
    • Replies: 0
    • Views: 874
    03-04-2014, 03:06 PM
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  2. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,007
    01-08-2013, 04:10 PM
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  3. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our I have dementia forum. If you have a dementia diagnosis, you may find the following information useful: Booklets for people living with dementia Word puzzles and computer screen calendars (many thanks...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,411
    05-01-2012, 02:18 PM
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  1. Can anyone help please internet question

    Not sure what I am allowed to post re internet providers but mine is the big red one - now it seems I cannot access my email unless I accept all oggle eyed t & Cs which make no sense to me. I don't want to do this, how difficult is it to change providers and emails? I'd be grateful for any advice....

    Started by Sue J‎, 16-06-2014 03:15 PM
    2 Pages
    1 2
    • Replies: 23
    • Views: 707
    18-06-2014, 08:02 AM
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  2. Exclamation Monthly chat for people with dementia, Tuesday 17th June from 12-1pm

    Just a reminder that we’ll be running our monthly live chat session for people with dementia, from 12 - 1pm tomorrow. Members who have dementia are very welcome to pop in, take a look and say hello. Finding the chat room is easy: just click on the Chat room link on the blue bar at the top...

    Started by KatherineW‎, 16-06-2014 03:27 PM
    • Replies: 2
    • Views: 329
    17-06-2014, 11:46 AM
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  3. Another step in my Dementia, but which way ??xxxxxxxxxx

    Another Step, But, Which Way ? A few days ago i was started on Clonazepam. My night terrors had become so unbearable and my “Angel ” Elaine was absolutely drained. They had become SO bad, i actually asked my CPN to come and see me as i had to tell someone what was happening as they were so...

    Started by Norrms‎, 30-05-2014 10:05 AM
    • Replies: 10
    • Views: 1,380
    15-06-2014, 07:44 PM
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  4. How time flies

    Iv not been on for a while been rather busy planning my future as my family call wills funeral plans etc etc this I know sounds a bit morbid but Iv had great fun deciding what music reading etc and even the colours of my funeral no black. I can now get on with living I intend to do it in the best...

    Started by lottie1955‎, 14-06-2014 08:38 PM
    • Replies: 5
    • Views: 435
    15-06-2014, 07:30 PM
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  5. Widening bubbles?

    I sometimes feel that I live in my own world.(bubble) So I thought a slow walk to M store everyday may tell my brain its safe to do that. Today was the first time on my own for months (acrophobia) so now I have to do this.The other ailments were nearly winning whilst I fought the lurgy. So now...

    Started by Pookie‎, 05-06-2014 03:22 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 691
    07-06-2014, 02:40 PM
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  6. Sufferers what would make a difference for you?

    As yet I remain undiagnosed but have had symptoms for 4 years now. I'm not daft, although others might say that's a matter of opinion:D I know something is very wrong and my life has changed irrevocably. I try and come to terms with it but as other sufferers know it is an ongoing struggle. I have...

    Started by Sue J‎, 12-10-2013 04:06 PM
    3 Pages
    1 2 3
    • Replies: 37
    • Views: 3,906
    06-06-2014, 10:53 AM
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  7. feeling nervous

    I am giving my first dementia friends talk on Friday to some ladies in a nearby village. I cant remember some of what was shared with me. Tonight I am going to do a runthrough talking to myself!;)

    Started by creativesarah‎, 04-06-2014 07:59 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 648
    06-06-2014, 09:29 AM
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  8. me and dementia

    Hya everyone i have been told i have dementia last july .Things are very hard to manage everyday .My children dont seem to want to go there again as my mum had it and my gran .The troble is i find things get me down so easy and cant shift it i wish i knew how to boast my life i dont know many...

    Started by mosy04‎, 09-05-2014 07:55 PM
    • Replies: 6
    • Views: 743
    04-06-2014, 10:09 PM
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  9. Alone

    hi, im gemma and i have vascular dimentia and im only 47 x

    Started by gemma66‎, 30-05-2014 08:54 PM
    • Replies: 6
    • Views: 541
    03-06-2014, 06:49 AM
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  10. walking problems I have had walking difficulties for 4 years .

    I have arthritis and have had a hip operation and perhaps because of that I did not recognise that my difficulties were dementia related. Has anyone else suffered from this kind of problem?

    Started by joscarj1‎, 28-05-2014 02:21 PM
    • Replies: 2
    • Views: 385
    29-05-2014, 01:21 AM
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  11. Outings

    Recently I have been taken on a couple of outings or I have made my way to somewhere and enjoyed it despite being worried about getting lost. I wanted to share about these as they have been so encouraging and even if I cant remember exactly where I have been or when, I still retain the emotion...

    Started by creativesarah‎, 16-04-2014 09:04 PM
    2 Pages
    1 2
    • Replies: 24
    • Views: 1,135
    27-05-2014, 08:34 PM
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  12. Bank holiday

    Having a go at mosaic. Its the view from the hall window at my craft club .I roamed these moors as a teenager so as well as a shoe box /coffee table it's a lovely memory. Memory's are made in so many ways. What next can I do to keep the lurgy at bay? Sent from my GT-I8190N using Talking Point...

    Started by Pookie‎, 26-05-2014 05:36 PM
    • Replies: 2
    • Views: 325
    26-05-2014, 05:50 PM
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  13. Starting a clinical trial.

    Hi, for anyone interested I had said that I would provide an update of my experiences while taking part in a clinical study of a drug that is being studied for Alzheimer's disease. First, some background:- My name is Wendy ( pixie is the cats name, but Wendy's already taken), I'm 53 and was...

    Started by Pixie...‎, 23-05-2014 03:51 PM
    • Replies: 5
    • Views: 529
    23-05-2014, 05:36 PM
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  14. Moved: Any advice help much appreciated

    Started by Lowlo‎, 23-05-2014 03:27 PM
    • Replies: -
    • Views: -
    23-05-2014, 03:57 PM
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  15. Exclamation Dementia Awareness Week: special chat session for people with dementia on 20th May

    Dementia Awareness Week 2014 starts this coming Sunday, 18th May. This year, Dementia Awareness Week is all about opening up – especially if you have concerns about yours, or someone else’s, memory. On Talking Point, we’re going to be marking Dementia Awareness Week 2014 in our chat room. On...

    Started by KatherineW‎, 13-05-2014 03:19 PM
    • Replies: 2
    • Views: 407
    22-05-2014, 11:45 AM
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  16. Glaucoma

    Just got back from the opticians last time he said I had Macular degeneration and a cataract This time he said he thinks I have got the beginnings of Glaucoma. Feel a bit shell shocked it does run in the family my Dads father went blind with it and my Dad had it too. I know these things are...

    Started by creativesarah‎, 15-05-2014 05:12 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 848
    21-05-2014, 05:10 PM
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  17. Read of the reality when I’m Sundowning

    “How Sundowning affects me” Some time ago on Talking Point I was asked the following question and I quote: (Barry could you explain how you feel whilst Sundowning, does anything trigger it or does it just happen like clockwork?) Well as there are now so many ‘New Members’ I thought it...

    Started by Barry‎, 18-02-2013 12:21 AM
    4 Pages
    1 2 3 4
    • Replies: 47
    • Views: 8,384
    17-05-2014, 01:58 AM
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  18. What happens next

    As I have recently been diagonosed can any one tell me what to expect to happen next. This may sound like a silly question but I have no idea what to expect :confused: Sent from my GT-S5830i using Talking Point mobile app

    Started by lottie1955‎, 14-05-2014 09:46 PM
    • Replies: 5
    • Views: 481
    15-05-2014, 08:26 PM
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  19. “Shifting Tide”

    Of late and despite all my efforts to fight against it I’ve been having tremendous difficulty and especially at the end of day when by 3-4pm I start feeling extremely lethargic and utterly exhausted some of which I think might be due to the excessive heat and humidity that we are having at the...

    Started by Barry‎, 10-05-2014 08:53 AM
    • Replies: 9
    • Views: 577
    15-05-2014, 12:32 AM
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  20. Seven years and "Pushing It"

    Seven years And Pushing It?? Well my friends, as you can see by the title of this blog in a month or so I will be approaching 7 years since I was diagnosed with this awful disease of Dementia. As you know I am a realistic person and I know a cure will not come in my lifetime now. But I do...

    Started by Norrms‎, 24-04-2014 09:53 AM
    2 Pages
    1 2
    • Replies: 19
    • Views: 1,393
    14-05-2014, 08:17 AM
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  21. Yawning

    It is an hour to the official sunset?and I am yawning like a hippopotamus. Question. Is it just tiredness or sundowning. As I stop after a while. It is annoying me never mind Peter. Sent from my GT-I8190N using Talking Point mobile app

    Started by Pookie‎, 13-05-2014 08:01 PM
    • Replies: 2
    • Views: 332
    14-05-2014, 08:09 AM
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  22. lottie1955

    I was diagonosed with alzehimers just over a week ago it has taken 2 years to get this far. Ifeel angry scared and not receiving any support I am only 59 and in the past have cared for people in later stages but dont know what to expect now help please

    Started by lottie1955‎, 09-05-2014 08:13 AM
    • Replies: 12
    • Views: 574
    13-05-2014, 08:41 AM
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  23. Such a shame

    Hiya guys, just back from the South devon CCG`s HUGE meeting in the main events room at Newton Abbot Racecourse and was aimed at all care/dementia providers and volunteers as we as most importantly those with dementia and their carers and the object of the meeting was to sit with the commissioners...

    Started by Norrms‎, 12-05-2014 02:34 PM
    • Replies: 5
    • Views: 591
    12-05-2014, 11:39 PM
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  24. Interview on Radio

    LIVE ON BBC RADIO DEVON !! Tomorrow afternoon, Tuesday 13th May i will be live on BBC Radio Devon between 2pm and about 2.40pm talking about the Global Purple Angel Dementia Awareness campaign and of course i am hoping they will play the Purple Angel song on there as well, its available online...

    Started by Norrms‎, 12-05-2014 05:04 PM
    • Replies: 0
    • Views: 314
    12-05-2014, 05:04 PM
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  25. Is anyone going to the dementia show?

    just wondered if anyone is going to the dementia show in London?

    Started by creativesarah‎, 09-05-2014 01:56 PM
    • Replies: 5
    • Views: 573
    12-05-2014, 11:02 AM
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