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Forum: I have dementia

This forum is for people who have been diagnosed with dementia.

  1. Sticky Thread Sticky: Monthly chat for people with dementia and carers - communication

    Hello everyone :) Our Monthly chat for people with dementia and carers will be open from 12.30pm - 2pm today. Please note: this is one hour later than planned, due to technical issues. Today's topic is Communication Our chat room area is a place where you can have conversations with...

    Started by SerenaS‎, 19-01-2015 01:25 PM
    • Replies: 0
    • Views: 135
    19-01-2015, 01:25 PM
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  2. Lightbulb Sticky Thread Sticky: The dementia guide: A resource for people dealing with a recent dementia diagnosis

    The dementia guide is an Alzheimer's Society publication for anyone who has recently been told they have dementia. This could be any type of dementia, such as Alzheimer’s disease, vascular dementia or mixed dementia. The guide will also be useful to close friends and family of someone with...

    Started by KatherineW‎, 03-04-2014 03:06 PM
    • Replies: 0
    • Views: 2,611
    03-04-2014, 03:06 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 3,373
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our I have dementia forum. If you have a dementia diagnosis, you may find the following information useful: Booklets for people living with dementia Word puzzles and computer screen calendars (many thanks...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,819
    05-01-2012, 03:18 PM
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  1. The FEAR of the FUTURE

    The Fear of the Future ........... FACT !! From the moment you are diagnosed with dementia, your world changes, your life is never the same and a single, unique kind of fear enters your life, never to leave, that is the " Fear Of The Future " and all it entails. This is something that...

    Started by Norrms‎, 04-01-2015 05:40 PM
    • Replies: 7
    • Views: 547
    05-01-2015, 08:35 AM
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  2. “Harsh words 30 Dec 2014”

    I had an extremely emotional and verbally vocal moment last night and got very irritable with the family and even at one point got so annoyed that I refused to eat any dinner, so Sumi had to give mw a calming pill which quickly calmed me down and I ate my meal and then almost immediate went to...

    Started by Barry‎, 31-12-2014 02:41 AM
    • Replies: 5
    • Views: 841
    03-01-2015, 01:08 AM
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  3. Happy New Year

    Wish all on Talking Point A Very Happy New Year from Barry and Sumi in Indonesia

    Started by Barry‎, 02-01-2015 12:19 AM
    • Replies: 10
    • Views: 501
    03-01-2015, 12:43 AM
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  4. Just A Thought

    JUST A THOUGHT In my quieter moments I sit there, in my own little world and think about all around me. More importantly I try to remember things past, people’s faces; testing myself how far back I can remember. Sometimes Elaine will say “What are you smiling at? As unknowingly a huge smile...

    Started by Norrms‎, 25-10-2014 10:13 AM
    • Replies: 6
    • Views: 822
    30-12-2014, 09:09 PM
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  5. Dementia`s dreams

    Dementia`s dreams I dream every night, sometimes all night, sometimes just as i go to sleep and just before i wake up. No rhyme or reason, just the way it is. Sometimes they are just dreams, but unfortunately, most of the times they are night terrors, but the one thing that connects them all...

    Started by Norrms‎, 30-12-2014 05:18 PM
    • Replies: 0
    • Views: 294
    30-12-2014, 05:18 PM
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  6. BOXING DAY BLUES ?? Not really

    As we sat in our daughters house on Boxing day, surrounded by 14 grandchildren and as many adults i gazed around the room at most of my family who were gathered here. Elaine was in the kitchen with our Youngest daughter, hurriedly making sandwiches for hungry young mouths to feed whilst the rest of...

    Started by Norrms‎, 27-12-2014 12:02 PM
    • Replies: 8
    • Views: 599
    29-12-2014, 11:27 AM
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  7. Accepting but not giving in!

    Just an update re my Alzheimer's. The dreaded "Fog" seems to be caused or made worse by stress or worry.,but not possible to avoid altogether for anyone! I decided that maybe I could "Manage" the Alzheimer's to some extent, (yes I can hear the hollow laughs) but I will continue to try and who...

    Started by Jeanie 73‎, 21-12-2014 07:46 PM
    • Replies: 3
    • Views: 457
    26-12-2014, 11:39 PM
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  8. When we were young

    """ When we were young, we were our parents responsibility"""" """""" Now, they are ours """" Cc Norrms Mc Namara Merry Christmas to all xxxxxxxxxxxxxxxxxxxxxx

    Started by Norrms‎, 22-12-2014 11:15 AM
    • Replies: 0
    • Views: 262
    22-12-2014, 11:15 AM
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  9. At This Time Of year

    AT THIS TIME OF YEAR As Christmas approaches i would ask you all to remember this years Christmas message from the Purple Angel dementia awareness campaign " PLEASE REMEMBER THOSE WHO CAN`T" Living with this disease all year is, to say the least, an uphill struggle. But at this time of...

    Started by Norrms‎, 12-12-2014 06:33 PM
    • Replies: 4
    • Views: 477
    22-12-2014, 11:08 AM
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  10. New memory cafe

    Hiya all, just back from putting out posters asking for volunteers for new Purple Angel memory cafe opening next year Jan 10th. Have had some wonderful feedback from so many people, including health professionals saying they are so glad to hear it will be on a saturday when all else is closed . ...

    Started by Norrms‎, 01-12-2014 03:41 PM
    • Replies: 2
    • Views: 463
    22-12-2014, 10:31 AM
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  11. just diagnosed at 53

    Im just 53 and was diagnosed vascular dementia just 1 week ago, after 14 months of tests. The thing is I don't believe the doctors at the hospital that I have and also keep wondering if I heard them right! My partner was with me and he said that is what they said. They offered me a nurse for a...

    Started by seagull50‎, 18-12-2014 04:02 PM
    • Replies: 14
    • Views: 1,310
    21-12-2014, 04:05 PM
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  12. Moved: quite ironic I keep forgetting how to use this site oops!

    oh dear I keep forgetting how to post threads, it takes me ages to work it out each time, please tell me im not alone? You have to laugh at yourself sometimes I guess as it is quite ironic, still I feel stupid! I am newly diagnosed at 53, just 53. vascular dementia. I have a mentally and...

    Started by seagull50‎, 21-12-2014 11:37 AM
    • Replies: -
    • Views: -
    21-12-2014, 11:28 AM
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  13. genetic Apo E

    Hi during a test I found out I have the gene ApoE 3/4...where the 4 means I have a genetic risk for Alzheimer's disease (my mom and her mom had it) so i think I am headed that way too....anybode else here know that she /he has it and how you cope with it? thanx in advance !!!!

    Started by sabrinaf‎, 02-12-2014 01:38 AM
    • Replies: 2
    • Views: 506
    20-12-2014, 03:55 PM
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  14. well I won't win any cooking programmes!

    My cooking took a turn for the worse today too 1 I cut my thumb on a knife and couldnt stop it bleeding had to butterfly plaster it 2 I grated my knuckle 3 I put the onions on a low heat for half an hour and 2 hours later wondered what the burning smell was - they are now caramelised (burnt) 4...

    Started by creativesarah‎, 19-12-2014 01:44 AM
    • Replies: 3
    • Views: 425
    20-12-2014, 01:17 AM
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  15. Moved: arm pain and stiffness

    Im newly diagnosed vascular dementia before I received this diagnosis I have suffered for the past year with what the consultant told me was a frozen shoulder, but its gradually getting weaker and weaker and I cannot do much with it at all. This is so frustrating when you have to rely on others to...

    Started by seagull50‎, 21-12-2014 11:37 AM
    • Replies: -
    • Views: -
    19-12-2014, 11:48 PM
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  16. Mci

    I have been told that i have MCI and I need help from some one as I don't know what to do.... my poor wife has me forgetting things, getting angry over little things, but worst of all the other day I forgot to pick my grandson up from school and went home to the wrong house (haven't lived there for...

    Started by nevada1968‎, 12-12-2014 11:05 AM
    • Replies: 3
    • Views: 474
    16-12-2014, 08:28 PM
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  17. Great end to 2014

    In this weeks Local paper, What a way to finish 2014 http://www.torquayheraldexpress.co.uk/Purple-Angel-campaign-goes-global-Knoxville-USA/story-25701641-detail/story.html

    Started by Norrms‎, 15-12-2014 04:42 PM
    • Replies: 9
    • Views: 534
    16-12-2014, 09:12 AM
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  18. Happy Christmas and Chat room

    I just like to wish all my Talking Point friends a very Happy Christmas and to let you all know that I will be the guest in the Talking Point Chat room on Monday 15 December talking about (Christmas whilst living with Dementia) so if you free please join us at 12 o'clock – 1pm UK time ;)

    Started by Barry‎, 14-12-2014 01:44 AM
    • Replies: 3
    • Views: 422
    14-12-2014, 11:33 PM
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  19. Angry newly diagnosed

    just properly diagnosed today vascular dementia im just 53. Lots of tests getting here, but I just knew. Feeling strange, like calm I suppose after so long of wondering.... now I know. Would like chat to anyone, but especially younger people that have same. was offered support for a while of a...

    Started by seagull50‎, 13-12-2014 05:51 AM
    • Replies: 3
    • Views: 417
    13-12-2014, 11:35 AM
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  20. The descending of the "Fog"

    I wonder if anyone else with Alzheimers has this awful Fog that seems to descend, without warning. It slowly takes over my whole body and mind making me unable to think or do anything physically, I feel it starting but have no control of it, fighting against it or through it just makes it worse,...

    Started by Jeanie 73‎, 06-12-2014 01:13 PM
    • Replies: 6
    • Views: 754
    08-12-2014, 12:47 AM
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  21. Best Group in the World !!

    Hiya all, here is a pic of the wonderful Steering Group" of the TDAA (Torbay Dementia Action Alliance) "i am taking the pic". By now, you may have noticed something, there is a definite lack of men in this , in fact, i am the only one !! We also have BOB who is in the media and covers all our...

    Started by Norrms‎, 06-12-2014 06:14 PM
    • Replies: 6
    • Views: 642
    07-12-2014, 02:07 PM
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  22. No ironing - yipee!!!

    Today I went to the Doctor as I have got a urine infection and have hurt my shoulder and torn the rotor cuff She said 'No ironing!!!' So that was a good outcome!

    Started by creativesarah‎, 05-12-2014 01:05 PM
    • Replies: 13
    • Views: 746
    07-12-2014, 01:32 PM
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  23. Nintendo Wii for exercise?

    I have been thinking about how to get fitter especially in the winter months as I am nervous of walking in snow and ice as that was how I hit my head and brought on the stroke. (that and then the car breaking down and being stuck in the snow brought on an episode of TIA's ) Does anyone use a Wii...

    Started by creativesarah‎, 05-12-2014 03:44 PM
    • Replies: 7
    • Views: 483
    06-12-2014, 01:23 AM
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  24. Learnng

    Is there any evidence as to the effect of learning on Alzheimer's - positive, negative, or indifferent? My experience is quite recent; and memorising fairly simple poetry was a reasonably pleasant experience. But whether it is long-lasting and/or beneficial I do not know.

    Started by jackie-boy38‎, 03-12-2014 07:57 PM
    • Replies: 2
    • Views: 327
    03-12-2014, 08:45 PM
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  25. What a year !!

    WHAT A YEAR !! 12,014 MEMBERS NOW ON DEMENTIA AWARE PAGE !! https://www.facebook.com/groups/250325295027020/members/ Dear friends, to end what has been the most incredible year ever, we have just broken through the TWELVE THOUSAND MEMBERS mark on the facebook Dementia Aware page !! Please note...

    Started by Norrms‎, 01-12-2014 11:19 AM
    • Replies: 4
    • Views: 393
    01-12-2014, 11:57 AM
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