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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 17,987
    02-12-2014, 03:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 2,502
    24-02-2014, 05:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,542
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,695
    05-01-2012, 03:18 PM
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  1. Other people with the genetic form in their family

    hi everyone, just a quick note - my mum has the genetic form of alzheimers and i would really appreciate hearing from anyone out there that is in the same boat. i'm only 23, have no partner for support and am struggling to decide whether i am brave enough to go for a genetic test so it would be...

    Started by Suzanna‎, 06-12-2007 01:47 AM
    2 Pages
    1 2
    • Replies: 19
    • Views: 2,379
    04-02-2008, 10:50 PM
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  2. Question How do you know when an AD sufferer needs full time care?

    Hi, this is my first time here. My Dad has been diagnosed with AD for the past 2 years. He is 62. He is single and only has my two brothers and I to help him. He currently lives independently in a flat but a part time warden is in the building every weekday morning. He can no longer drive and...

    Started by sammybear‎, 03-02-2008 09:16 PM
    • Replies: 4
    • Views: 817
    04-02-2008, 10:08 PM
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  3. Reduction in Aricept, is this normal?

    Hi Dad had a visit at home from both the nurse and doctor today. It seems that people open up more when in the comfort of their own home, I have my doubts on this one since he spent most of the day clearing up for them coming (only to find at the last minute little bits of white stuff...

    Started by mandyp‎, 01-02-2008 11:24 PM
    • Replies: 7
    • Views: 1,116
    04-02-2008, 07:13 PM
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  4. How do you know when it is time for a care home?

    Hi - I'm not sure if anyone out there can help but there must be others in this situation. My dear mother is 64 and has AD. She is still at home but we have carers in from 8am till 9pm every day (apart from the odd hour or so). My father is at breaking point in terms of caring for my mother...

    Started by VIB35‎, 21-01-2008 06:19 PM
    • Replies: 9
    • Views: 1,138
    04-02-2008, 06:37 PM
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  5. Incapacity benefit

    What next are we going to be hit with.They are going to try and get people of this and back to work on job seeker allowance. Last year my husband got a letter from the job centre to go for an interview to get him back to work. These people are not qualified to say who can work and who can't.I was...

    Started by chip‎, 07-01-2008 06:38 PM
    • Replies: 3
    • Views: 822
    03-02-2008, 03:15 PM
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  6. Help with Dad

    Hi My dad has early on set Alzheimer’s he is 58, we has had other problems - urine infections and retention which eventually let to him being admitted to hospital back in October. He lost about 3 stone in a very short period of time and stopped eating and drinking. We had thought dad had...

    Started by kaz‎, 31-01-2008 05:26 PM
    • Replies: 1
    • Views: 684
    31-01-2008, 07:45 PM
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  7. Win for disability rights woman - rights for carers

    A British woman has won the initial stages of a landmark legal case at the European Court of Justice which could give new rights to millions of carers. http://news.bbc.co.uk/1/hi/england/london/7219097.stm

    Started by CraigC‎, 31-01-2008 01:53 PM
    • Replies: 0
    • Views: 607
    31-01-2008, 01:53 PM
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  8. Early On-set Dementia.

    Hi living in the Kent area, especially Thanet, I am aware from Government statistics that there are at least 40 people living in this area with Early On-Set Dementia. What I would like to know is, if you are a young person with Dementia, organic or functional, what support you recieve, and what...

    Started by Blueandy‎, 26-01-2008 05:45 PM
    • Replies: 3
    • Views: 1,425
    27-01-2008, 12:10 PM
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  9. Question Fresh Suggestions Please

    HI Again,hope you dont mind me being here once more,Dave has been having a few bad days feeling anxious confused and irritable with himself,all he is doing is watching the same old film over and over again (really tiresome for me sorry to say ) I tried to talk to him about doing something else to...

    Started by dedicated doe‎, 20-01-2008 12:00 AM
    • Replies: 8
    • Views: 1,216
    26-01-2008, 06:59 PM
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  10. London and its fears

    On a recent visit to London where we were working on a committee at the Alzheimers Society, we stayed over one night so that we could return to the office the following day to attend to some other business, and we were also meeting our daughter who lives in Farborough. On that night we went for a...

    Started by KenC‎, 22-01-2008 11:35 AM
    • Replies: 9
    • Views: 1,272
    23-01-2008, 02:43 PM
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  11. Moved: Advice On Right Care Home

    Hello I am a nurse in mental healtha and I would appreciate any help someone could give me. I work with a gentleman who is 51 years and has been diagnosed with early onset dementia (alzheimers). The team are pushing for him to go into a care home with people at later stages than him and of 30-40...

    Started by RMNSW‎, 08-01-2008 11:50 PM
    • Replies: -
    • Views: -
    08-01-2008, 11:35 PM
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  12. Advice needed on Care Home Funding

    I know this topic has been aired many times, but wonder if anyone has any specific experience regarding social services funding for someone who is under 65, has dependant children and is still in receipt of a salary – albeit a vastly reduced one. I am still trying to find a suitable home for...

    Started by Westie‎, 20-12-2007 08:03 AM
    2 Pages
    1 2
    • Replies: 16
    • Views: 3,527
    08-01-2008, 11:17 PM
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  13. Moved: Have you used an Alzheimers Cafe?

    Started by Blueandy‎, 05-01-2008 04:26 PM
    • Replies: -
    • Views: -
    05-01-2008, 03:56 PM
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  14. I can't stop thinking about it being hereditary

    Hi, You are going to think I am barking mad, BUT, since watching GMTV this morning and Fiona Phillips going on about her mum dying being a younger person with Alzheimers and dying at a young age and then going for tests to show what she is at risk of....I can't stop thinking about it. My...

    Started by DianeG‎, 08-11-2007 11:32 AM
    2 Pages
    1 2
    • Replies: 21
    • Views: 3,158
    05-01-2008, 12:32 PM
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  15. Unhappy Please i need to talk

    HI to everyone i am sorry to have a moan but i really need to get out how i feel at the moment,christmas has been very quiet but emotional but at least i had 20 minutes of the old Dave back on christmas day,he enjoyed opening his pressies and having a laugh with the two youngest then just as...

    Started by dedicated doe‎, 30-12-2007 12:08 AM
    • Replies: 10
    • Views: 1,638
    02-01-2008, 05:41 PM
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  16. Direct Payments

    In pursuance of my case to received these so that i can have someone to look after Jean whilst I am at work, I have, today, received a letter from Doncaster council, via my MP that says inter alia:- "Direct Payments are currently not available to people lacking capacity, as defined by the Mental...

    Started by Grommit‎, 01-12-2007 05:49 PM
    • Replies: 12
    • Views: 1,965
    24-12-2007, 10:57 PM
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  17. I'm new and don't know what to say

    Hello, I'm new here, but I wish I wasn't. My mum was diagnosed yesterday with Alzheimers Dementia. She is 49. I have known there is something wrong for about 4 years now, but only in this last year have really pushed for help as it has become very difficult. She is no longer allowed to drive,...

    Started by amy2512‎, 12-12-2007 11:15 AM
    2 Pages
    1 2
    • Replies: 18
    • Views: 2,329
    13-12-2007, 10:51 PM
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  18. It can get anyone

    http://news.bbc.co.uk/2/hi/uk_news/7141458.stm :(

    Started by jc141265‎, 13-12-2007 12:39 PM
    • Replies: 1
    • Views: 793
    13-12-2007, 12:43 PM
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  19. Smile Diagnosed

    Hi new to this, Its midnight and 10 hours ago my husband was diagnosed with Picks disease. The consultant said that we had been lucky to have been refered so quickly to a specialist. He has been working with the team at Cambridge with Dr John Hodges on early onset. I would loved to know his...

    Started by smiles‎, 06-12-2007 02:09 AM
    • Replies: 5
    • Views: 989
    12-12-2007, 08:21 PM
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  20. Smile Smiling despite all

    Hi, It been a really difficult week, Friday david's parents arrived for a brief visit after I had to tell them wednesday that David had been diagnosed with Picks. Luckily it was to see our daughter in her nativity play, ice broken by the show they behaved beautifully, not even commenting when I...

    Started by smiles‎, 11-12-2007 11:10 PM
    • Replies: 4
    • Views: 926
    12-12-2007, 01:46 PM
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  21. feeling a bit abandoned

    My brother and I have organised that my mum is cared for at home. We get direct payments from the social sevices and have found some lovely carers. I moved from London a couple of years ago to be near mum, I live locally with my husband and two small kids. At the moment my brother is away working....

    Started by katherine‎, 23-11-2007 10:03 PM
    2 Pages
    1 2
    • Replies: 19
    • Views: 3,228
    07-12-2007, 11:14 PM
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  22. One man's story (from daughter's perspective)

    I grew up thinking my Dad was the smartest man in the world, he was a chess champion, a boy from a poor Irish family who made it to the big time, married the town beauty queen from a rich family, got selected to learn computer programming because of his genius IQ score, then went on to become CEO...

    Started by jc141265‎, 05-12-2007 10:33 AM
    • Replies: 8
    • Views: 1,102
    07-12-2007, 09:03 PM
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  23. Critical Illness Insurance claims

    Hi everyone, new user so apologies if I am posting in the wrong place. My brother has just being diagnosed with early onset Altzheimers and I am helping him sort his money; etc. out. He has critical illness cover as part of his endowment and we have got the claim form from Prudential. ...

    Started by PaulBear‎, 30-11-2007 04:46 PM
    • Replies: 6
    • Views: 2,129
    30-11-2007, 07:18 PM
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  24. So Much Pain

    Hello all, Have spent the last couple of hours going through the threads & reading reply's, every one hits a nerve or tear duct. So many questions & so much pain in peoples lives, I feel for each & every one of you. People ask how long is a piece of string?, The only answer can be, no string is...

    Started by spoiler‎, 24-11-2007 04:53 PM
    • Replies: 12
    • Views: 1,518
    25-11-2007, 09:18 AM
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  25. Voucher System

    Had some difficult times over the last few weeks culminating in having to get Police assistance to find Jean who had wndered off, dressed but in carpet slippers. They managed to locate her in someone's house about a mile and a half away. She was in a very distressed condition as well as being...

    Started by Grommit‎, 08-10-2007 06:29 PM
    4 Pages
    1 2 3 4
    • Replies: 53
    • Views: 4,828
    24-11-2007, 11:23 PM
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