Welcome to Talking Point - Alzheimer's Society's online discussion forum for anyone affected by dementia. It's a place to ask for advice, share information, join in discussions and feel supported.
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This forum is for people with dementia under the age of 65 and their carers, families and friends.
Thank you to KatherineW for making this post a 'sticky' :)
If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone.
Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm.
The transcript from the session can be viewed by clicking on the link below:
To clarify, this discussion was intended for people with dementia...
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Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators.
If you think you might like to be part of the...
If you have just joined Talking Point, a very warm welcome to you.
You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful:
Not posted for a while but am always reading the great advice on here.
Just really need to vent about social services. We've been waiting since January for an inititial assessment for mum so that she can be have one day at an Age Concern day centre which we will have to pay for. I...
You give them medicine that is supposed to slow the disease's progression but you can't tell if it works because you daren't take them off it but if you did you still wouldn't know because who's to say what speed their individual case of dementia is supposed to progress at?
The doctors said...
I feel as if all I'm ever talking about are 'toilet habits'!!
Mum has a new trick which is highly unpleasant!
Dad has discovered to his horror that Mum has been storing what she does in the toilet on the bottom shelf. It seems that she's been removing the 'no 2's' from the toilet and...
hello everyone, i'm a new member, not sure what i'm doing at the moment, my partners mother has AD and i thought it would help us if we chatted to some other people in the same situation as us.
HI Again,my dear Dave is 60 today i had plans to give him a lovely day spoil him rotten as usual,and what happens he ends up spending most of the day in a hospital ward,last evening his speech was alittle slurred,(thought it was being excited from having a small celebration at his day centre) but...
bob has been on carbamhzepine 50 mg twice a day for about 4 days
he is slightly more confused but agression is a lot better
hope it lasts
love bel x
We have just got results back from the SPECT brain test that dad had we have been told it showed, Depression, Early on set Dementia, amyotrophy complex.
Any one have any dealing with amyotrophy complex and what it is as his docotors says he does not know what it is which is not very...
I often read about the resilience of children. And while I do agree with this to an extent, I worry that it causes us to deminish the impact dementia has on children.
Our oldest (10) is very empathic and a worrier and so feels all his daddy's suffering (55 with Alzheimers). It also takes him a...
i have tried and tried for months now bob and i have talked about it often he cant help it i know and i feel guilty
but he was very angry with me again tonight shouting instead of talking
i got totaly confused did not know wether i comming or going
put my hands on my ears to shut out the...
I have just joined Talking Point.
My mum is in the advanced stages of dementia but is only in her early sixties. When we think back over recent years we can now see signs of when it started but we didn't recognise it as dementia at the time.
It is really only over the last 18 - 24 months...
i have felt for a good while now i am getting to the end of my tether
and with the increased agression bob is having every day i am really worried i am going to crack up
then where will he be i am in a lot of pain re arthrtus waiting for scans and ops so my patience is a bit short i know he...
Will the section of community which against stem cell research which is liable to lead to a cure for Alzheimers disease, please come and spend 48 hours with Jean.
I am sure you will change your mind.
My 59 yo wife's condition has steadily deteriorated lately and her MMSE score is now below 12 and with my support she has come off Aricept. Her consultant is now asking me to consider Ebixa by private prescription.I have searched the web but there is little positive clinical research that I can...
like an idiot i thought
may be things might be able to calm down
bob has been so good
but the last 2 days he has gone mad re angry etc
we talked about it tonight he says he can feel it comming on his anger etc and he wants to stop it
i feel bad as i said to him you cant help it ...
HI Again,just wondering if any one else has or is in the situation i am in now. As i have mentioned before on my last thread Dave was admitted to hospital because of speech problems,however as he already had a scan which showed he was having mini strokes...
Dad and I are finding conversation with Mum is like pulling teeth....very one sided. Has anyone else found general conversation a problem?
Haven't seen anyone else mention it. As Mum is still 'early stages' I wasn't sure if this was common or not?
We've always found (in the good old...
Dad has Early on Set AD and the docotor has now said he is sending him for a Spec test dont know if that is spelt wright but i cant find anythings about it. He is also going for brain scans to test certain area if his brain. They had also notice he has a tremor in his hand. Am Wondering if...
They came home last night from the Easter Theme party as high as kites. They are picked up and brought home so I don't have to worry about leaving John. They are making new friends and having a ball.
Hi, my Dad has dementia at 48 this is a mjor problem, and is rapidly going down hill. So far today we have had teh crisis team out from social services and no looking at having him sectioned as he has become agressive and very possesive of my mum. Our lives revolve around his whims and moods, so...
since bob has been on aricept
his aggresion is getting worse
i am keeping a diary as told plus hylusiations
nurse says it might be meication
weekend went shopping some one pushed in bob went mad there was real anger in his eyes and a lot of verble from him i calmed him down next day sunday...
HI Again,just a quick thread to let you know Dave came out of hospital on Tuesday,there was only a slight change on the scan he had and has been given further medication to help break up the blood clots,he is still sluring his speech but not as much as before,but as he hit the fresh air after five...
HI Again,sorry but i need to talk,Dave was taken ill at the day centre today,the staff noticed his speech was quite slurred and he went more shakey than he usually is,anyway he was taken to hospital and has had the routine tests bloods xray etc and are now waiting for the brain scan which i hope...
My beloved husband of 40 years, Andy, has just been diagnosed with semantic dementia. He is 59 years old. For the last two years he has increasingly struggled with language, word finding and understanding. My mind is in a turmoil at the moment. Full of horrible thoughts. I miss him so much...
I am experiencing difficulties with carers at the moment.
I keep getting messages at work to tell me that Jean is on the rampage and that they are fearful for their safety.
So they pack in and leave the house.
I just wondered if anyone had experience of a patient physically attacking a...
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