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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
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    young dementia
    • Replies: 34
    • Views: 18,666
    02-12-2014, 03:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 2,756
    24-02-2014, 05:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,708
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,898
    05-01-2012, 03:18 PM
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  1. No Help At All

    after being despertae months ago i asked for help not like me to kick up a fuss i only mentioned it to consultant he said it was not fair how we were treated he would put in a complaint since then no social worker no support worker nothing visiting phscoogist is great she comes...

    Started by bel‎, 22-02-2008 12:14 AM
    • Replies: 10
    • Views: 1,335
    23-02-2008, 07:11 PM
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  2. Question Today I am angry

    Today I am angry. Not sure exactly at what but feeling angry nevertheless.I want to shout scream yell at the world.Why are there so many forms to fill in, difficulties to encounter and I am just tired! I know I am not alone in these feelings but your natural response to pthers is "We are OK"...

    Started by Deeessex‎, 21-02-2008 01:13 PM
    2 Pages
    1 2
    • Replies: 26
    • Views: 2,380
    22-02-2008, 09:55 PM
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  3. Peter's move to a Nursing Home

    Peter finally moved from the assessment unit to an EMI nursing home last week. I haven’t posted about it before now as I really didn’t know how I felt about it and certainly couldn’t put it into words. His transfer was a total shambles. The SW arranged the move with the hospital, but then...

    Started by Westie‎, 11-02-2008 09:25 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,823
    22-02-2008, 03:18 PM
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  4. Letter to Jean.

    Dearest Jean, Why am I writing this when your ability to read, speak or understand language has entirely gone? The answer is I need to write it because I am alone and can say what I need to say in a considered manner without regarding any feedback from immediate listeners who I may bore...

    Started by Grommit‎, 17-02-2008 01:09 PM
    2 Pages
    1 2
    • Replies: 25
    • Views: 2,385
    22-02-2008, 12:55 PM
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  5. Moved: Today I am angry

    Started by Deeessex‎, 21-02-2008 02:21 PM
    • Replies: -
    • Views: -
    21-02-2008, 01:18 PM
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  6. There are changes, physically as well, of course

    I'm still keeping my diary of visits to see Jan. Yesterday's reads: The older residents don't seem to have the same thing happen - or perhaps, since I never knew them before, I just accept them as they are. It is a continual challenge to me to be able to accept Jan as she now is. :( Gone...

    Started by Brucie‎, 25-09-2007 07:59 AM
    • Replies: 9
    • Views: 1,645
    21-02-2008, 12:58 AM
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  7. Unhappy I dont want my dad to go into a care home

    Hi, I am new to this, been on the internet which seems like forever and came across this forum. I am so shocked on how many people have parents with AD as young as my dad. Basically to cut a long story short my dad has AD he is only 64 and has been diagnosed since 2002. I am his only...

    Started by hope1972‎, 06-02-2008 10:43 PM
    • Replies: 7
    • Views: 2,787
    17-02-2008, 02:41 PM
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  8. Should I be helping my mam with the words....

    I am new to TP but very glad i found the site i have been reading through the last 3 weeks and its been a great help.I am going through the same scenario. My mam was diagnoised with alzheimers almost 3 weeks ago now... i'm finding it very hard to come to terms with i keep crying then getting very...

    Started by Davina‎, 09-02-2008 09:01 PM
    • Replies: 7
    • Views: 1,079
    14-02-2008, 06:12 PM
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  9. Question cleanliness

    Its been a while since i have posted anything on here - but these last few weeks reading other people's threads has been a real help. My mum was first diagnosed 3 years ago and for a period of time she did seem to be doing really well, she's been on aricept since diagnosis and has been coping...

    Started by cart01‎, 13-02-2008 01:05 PM
    • Replies: 2
    • Views: 868
    13-02-2008, 01:55 PM
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  10. Hi Amy

    I am new to TP but very glad i found the site i have been reading through the last 3 weeks and its been a great help.I am going through the same scenario. My mam was diagnoised with alzheimers almost 3 weeks ago now... i'm finding it very hard to come to terms with i keep crying then getting very...

    Started by Davina‎, 09-02-2008 08:49 PM
    • Replies: 1
    • Views: 585
    10-02-2008, 02:47 PM
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  11. from the main AS site - My childhood sweetheart

    as a 48 year old single parent, with a parent with dementia, this is not a situation I have ever been in (thankfully). I did feel incredibly moved when reading it though. I think so many people think of dementia as an old person's disease, which is tragic enough, but to develop this while you are...

    Started by noelphobic‎, 05-02-2008 07:25 PM
    • Replies: 0
    • Views: 602
    05-02-2008, 07:25 PM
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  12. Other people with the genetic form in their family

    hi everyone, just a quick note - my mum has the genetic form of alzheimers and i would really appreciate hearing from anyone out there that is in the same boat. i'm only 23, have no partner for support and am struggling to decide whether i am brave enough to go for a genetic test so it would be...

    Started by Suzanna‎, 06-12-2007 01:47 AM
    2 Pages
    1 2
    • Replies: 19
    • Views: 2,403
    04-02-2008, 10:50 PM
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  13. Question How do you know when an AD sufferer needs full time care?

    Hi, this is my first time here. My Dad has been diagnosed with AD for the past 2 years. He is 62. He is single and only has my two brothers and I to help him. He currently lives independently in a flat but a part time warden is in the building every weekday morning. He can no longer drive and...

    Started by sammybear‎, 03-02-2008 09:16 PM
    • Replies: 4
    • Views: 823
    04-02-2008, 10:08 PM
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  14. Reduction in Aricept, is this normal?

    Hi Dad had a visit at home from both the nurse and doctor today. It seems that people open up more when in the comfort of their own home, I have my doubts on this one since he spent most of the day clearing up for them coming (only to find at the last minute little bits of white stuff...

    Started by mandyp‎, 01-02-2008 11:24 PM
    • Replies: 7
    • Views: 1,133
    04-02-2008, 07:13 PM
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  15. How do you know when it is time for a care home?

    Hi - I'm not sure if anyone out there can help but there must be others in this situation. My dear mother is 64 and has AD. She is still at home but we have carers in from 8am till 9pm every day (apart from the odd hour or so). My father is at breaking point in terms of caring for my mother...

    Started by VIB35‎, 21-01-2008 06:19 PM
    • Replies: 9
    • Views: 1,139
    04-02-2008, 06:37 PM
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  16. Incapacity benefit

    What next are we going to be hit with.They are going to try and get people of this and back to work on job seeker allowance. Last year my husband got a letter from the job centre to go for an interview to get him back to work. These people are not qualified to say who can work and who can't.I was...

    Started by chip‎, 07-01-2008 06:38 PM
    • Replies: 3
    • Views: 827
    03-02-2008, 03:15 PM
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  17. Help with Dad

    Hi My dad has early on set Alzheimer’s he is 58, we has had other problems - urine infections and retention which eventually let to him being admitted to hospital back in October. He lost about 3 stone in a very short period of time and stopped eating and drinking. We had thought dad had...

    Started by kaz‎, 31-01-2008 05:26 PM
    • Replies: 1
    • Views: 689
    31-01-2008, 07:45 PM
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  18. Win for disability rights woman - rights for carers

    A British woman has won the initial stages of a landmark legal case at the European Court of Justice which could give new rights to millions of carers. http://news.bbc.co.uk/1/hi/england/london/7219097.stm

    Started by CraigC‎, 31-01-2008 01:53 PM
    • Replies: 0
    • Views: 612
    31-01-2008, 01:53 PM
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  19. Early On-set Dementia.

    Hi living in the Kent area, especially Thanet, I am aware from Government statistics that there are at least 40 people living in this area with Early On-Set Dementia. What I would like to know is, if you are a young person with Dementia, organic or functional, what support you recieve, and what...

    Started by Blueandy‎, 26-01-2008 05:45 PM
    • Replies: 3
    • Views: 1,451
    27-01-2008, 12:10 PM
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  20. Question Fresh Suggestions Please

    HI Again,hope you dont mind me being here once more,Dave has been having a few bad days feeling anxious confused and irritable with himself,all he is doing is watching the same old film over and over again (really tiresome for me sorry to say ) I tried to talk to him about doing something else to...

    Started by dedicated doe‎, 20-01-2008 12:00 AM
    • Replies: 8
    • Views: 1,217
    26-01-2008, 06:59 PM
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  21. London and its fears

    On a recent visit to London where we were working on a committee at the Alzheimers Society, we stayed over one night so that we could return to the office the following day to attend to some other business, and we were also meeting our daughter who lives in Farborough. On that night we went for a...

    Started by KenC‎, 22-01-2008 11:35 AM
    • Replies: 9
    • Views: 1,273
    23-01-2008, 02:43 PM
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  22. Moved: Advice On Right Care Home

    Hello I am a nurse in mental healtha and I would appreciate any help someone could give me. I work with a gentleman who is 51 years and has been diagnosed with early onset dementia (alzheimers). The team are pushing for him to go into a care home with people at later stages than him and of 30-40...

    Started by RMNSW‎, 08-01-2008 11:50 PM
    • Replies: -
    • Views: -
    08-01-2008, 11:35 PM
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  23. Advice needed on Care Home Funding

    I know this topic has been aired many times, but wonder if anyone has any specific experience regarding social services funding for someone who is under 65, has dependant children and is still in receipt of a salary – albeit a vastly reduced one. I am still trying to find a suitable home for...

    Started by Westie‎, 20-12-2007 08:03 AM
    2 Pages
    1 2
    • Replies: 16
    • Views: 3,558
    08-01-2008, 11:17 PM
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  24. Moved: Have you used an Alzheimers Cafe?

    Started by Blueandy‎, 05-01-2008 04:26 PM
    • Replies: -
    • Views: -
    05-01-2008, 03:56 PM
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  25. I can't stop thinking about it being hereditary

    Hi, You are going to think I am barking mad, BUT, since watching GMTV this morning and Fiona Phillips going on about her mum dying being a younger person with Alzheimers and dying at a young age and then going for tests to show what she is at risk of....I can't stop thinking about it. My...

    Started by DianeG‎, 08-11-2007 11:32 AM
    2 Pages
    1 2
    • Replies: 21
    • Views: 3,196
    05-01-2008, 12:32 PM
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