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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 19,628
    02-12-2014, 02:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 3,137
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 3,024
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 6,254
    05-01-2012, 02:18 PM
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  1. Angry Social services?!

    Hi there Not posted for a while but am always reading the great advice on here. Just really need to vent about social services. We've been waiting since January for an inititial assessment for mum so that she can be have one day at an Age Concern day centre which we will have to pay for. I...

    Started by keane‎, 16-04-2008 12:36 PM
    • Replies: 6
    • Views: 1,252
    20-04-2008, 03:07 PM
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  2. No rhyme or reason to this disease...

    You give them medicine that is supposed to slow the disease's progression but you can't tell if it works because you daren't take them off it but if you did you still wouldn't know because who's to say what speed their individual case of dementia is supposed to progress at? The doctors said...

    Started by jc141265‎, 19-04-2008 02:40 PM
    • Replies: 3
    • Views: 1,027
    20-04-2008, 12:29 AM
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  3. Poop......again!!

    Hi I feel as if all I'm ever talking about are 'toilet habits'!! Mum has a new trick which is highly unpleasant! Dad has discovered to his horror that Mum has been storing what she does in the toilet on the bottom shelf. It seems that she's been removing the 'no 2's' from the toilet and...

    Started by mandyp‎, 16-04-2008 11:28 AM
    • Replies: 7
    • Views: 1,183
    19-04-2008, 03:07 PM
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  4. hello

    hello everyone, i'm a new member, not sure what i'm doing at the moment, my partners mother has AD and i thought it would help us if we chatted to some other people in the same situation as us.

    Started by faye n jayne‎, 13-04-2008 08:55 PM
    • Replies: 2
    • Views: 812
    18-04-2008, 09:34 PM
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  5. Red face what a BIRTHDAY!!!!!!!

    HI Again,my dear Dave is 60 today i had plans to give him a lovely day spoil him rotten as usual,and what happens he ends up spending most of the day in a hospital ward,last evening his speech was alittle slurred,(thought it was being excited from having a small celebration at his day centre) but...

    Started by dedicated doe‎, 14-03-2008 07:13 PM
    • Replies: 2
    • Views: 748
    17-04-2008, 11:55 AM
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  6. agression be it verble

    bob has been on carbamhzepine 50 mg twice a day for about 4 days he is slightly more confused but agression is a lot better hope it lasts love bel x

    Started by bel‎, 14-04-2008 10:36 PM
    • Replies: 6
    • Views: 1,015
    16-04-2008, 11:15 PM
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  7. What does this mean?

    Hi We have just got results back from the SPECT brain test that dad had we have been told it showed, Depression, Early on set Dementia, amyotrophy complex. Any one have any dealing with amyotrophy complex and what it is as his docotors says he does not know what it is which is not very...

    Started by kaz‎, 14-04-2008 05:22 PM
    • Replies: 3
    • Views: 966
    14-04-2008, 08:03 PM
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  8. Children and Dementia

    I often read about the resilience of children. And while I do agree with this to an extent, I worry that it causes us to deminish the impact dementia has on children. Our oldest (10) is very empathic and a worrier and so feels all his daddy's suffering (55 with Alzheimers). It also takes him a...

    Started by jackie1‎, 09-02-2008 08:13 AM
    2 Pages
    1 2
    • Replies: 28
    • Views: 3,720
    13-04-2008, 10:59 PM
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  9. agression be it verble

    i have tried and tried for months now bob and i have talked about it often he cant help it i know and i feel guilty but he was very angry with me again tonight shouting instead of talking i got totaly confused did not know wether i comming or going put my hands on my ears to shut out the...

    Started by bel‎, 02-04-2008 10:50 PM
    • Replies: 13
    • Views: 2,174
    09-04-2008, 10:47 PM
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  10. nw member

    Hello I have just joined Talking Point. My mum is in the advanced stages of dementia but is only in her early sixties. When we think back over recent years we can now see signs of when it started but we didn't recognise it as dementia at the time. It is really only over the last 18 - 24 months...

    Started by ajn‎, 30-03-2008 06:37 PM
    • Replies: 7
    • Views: 1,471
    02-04-2008, 11:09 AM
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  11. reluctantly i feel i have to move to the next stage

    i have felt for a good while now i am getting to the end of my tether and with the increased agression bob is having every day i am really worried i am going to crack up then where will he be i am in a lot of pain re arthrtus waiting for scans and ops so my patience is a bit short i know he...

    Started by bel‎, 28-03-2008 10:59 PM
    • Replies: 3
    • Views: 835
    28-03-2008, 11:25 PM
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  12. Very short invitation

    Will the section of community which against stem cell research which is liable to lead to a cure for Alzheimers disease, please come and spend 48 hours with Jean. I am sure you will change your mind.

    Started by Grommit‎, 24-03-2008 11:12 PM
    • Replies: 7
    • Views: 1,311
    25-03-2008, 10:34 AM
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  13. Ebixa any views?

    My 59 yo wife's condition has steadily deteriorated lately and her MMSE score is now below 12 and with my support she has come off Aricept. Her consultant is now asking me to consider Ebixa by private prescription.I have searched the web but there is little positive clinical research that I can...

    Started by davidw‎, 02-03-2008 11:29 AM
    • Replies: 10
    • Views: 2,104
    24-03-2008, 05:23 AM
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  14. a good week

    like an idiot i thought may be things might be able to calm down bob has been so good but the last 2 days he has gone mad re angry etc we talked about it tonight he says he can feel it comming on his anger etc and he wants to stop it i feel bad as i said to him you cant help it ...

    Started by bel‎, 13-03-2008 11:05 PM
    • Replies: 8
    • Views: 1,583
    21-03-2008, 11:38 PM
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  15. Any Advice Please

    HI Again,just wondering if any one else has or is in the situation i am in now. As i have mentioned before on my last thread Dave was admitted to hospital because of speech problems,however as he already had a scan which showed he was having mini strokes...

    Started by dedicated doe‎, 21-03-2008 09:15 PM
    • Replies: 1
    • Views: 719
    21-03-2008, 09:22 PM
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  16. Conversation....hard going

    Hi Dad and I are finding conversation with Mum is like pulling teeth....very one sided. Has anyone else found general conversation a problem? Haven't seen anyone else mention it. As Mum is still 'early stages' I wasn't sure if this was common or not? We've always found (in the good old...

    Started by mandyp‎, 05-09-2005 10:45 AM
    2 Pages
    1 2
    • Replies: 19
    • Views: 5,760
    14-03-2008, 11:17 PM
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  17. Moved: Transforming Debt Into Wealth

    Started by Eryclecracymn‎, 14-03-2008 09:10 AM
    • Replies: -
    • Views: -
    14-03-2008, 09:02 AM
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  18. What are these test for?

    Hi Dad has Early on Set AD and the docotor has now said he is sending him for a Spec test dont know if that is spelt wright but i cant find anythings about it. He is also going for brain scans to test certain area if his brain. They had also notice he has a tremor in his hand. Am Wondering if...

    Started by kaz‎, 08-03-2008 12:20 PM
    • Replies: 3
    • Views: 1,453
    11-03-2008, 10:22 AM
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  19. Crossroads Young Carers

    are fabulous. They came home last night from the Easter Theme party as high as kites. They are picked up and brought home so I don't have to worry about leaving John. They are making new friends and having a ball. Jackie

    Started by jackie1‎, 06-03-2008 06:41 PM
    • Replies: 7
    • Views: 1,176
    09-03-2008, 01:29 AM
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  20. Difficult Choices

    Hi, my Dad has dementia at 48 this is a mjor problem, and is rapidly going down hill. So far today we have had teh crisis team out from social services and no looking at having him sectioned as he has become agressive and very possesive of my mum. Our lives revolve around his whims and moods, so...

    Started by becks1‎, 08-03-2008 02:20 PM
    • Replies: 3
    • Views: 779
    08-03-2008, 03:09 PM
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  21. agression

    since bob has been on aricept his aggresion is getting worse i am keeping a diary as told plus hylusiations nurse says it might be meication weekend went shopping some one pushed in bob went mad there was real anger in his eyes and a lot of verble from him i calmed him down next day sunday...

    Started by bel‎, 25-02-2008 11:01 PM
    • Replies: 10
    • Views: 1,399
    08-03-2008, 12:20 AM
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  22. Red face Dave is home

    HI Again,just a quick thread to let you know Dave came out of hospital on Tuesday,there was only a slight change on the scan he had and has been given further medication to help break up the blood clots,he is still sluring his speech but not as much as before,but as he hit the fresh air after five...

    Started by dedicated doe‎, 06-03-2008 11:02 PM
    • Replies: 3
    • Views: 933
    07-03-2008, 09:33 AM
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  23. Need to talk Dave in hospital

    HI Again,sorry but i need to talk,Dave was taken ill at the day centre today,the staff noticed his speech was quite slurred and he went more shakey than he usually is,anyway he was taken to hospital and has had the routine tests bloods xray etc and are now waiting for the brain scan which i hope...

    Started by dedicated doe‎, 27-02-2008 10:18 PM
    • Replies: 10
    • Views: 1,023
    02-03-2008, 03:18 PM
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  24. PICKS/Semantic Dementia

    My beloved husband of 40 years, Andy, has just been diagnosed with semantic dementia. He is 59 years old. For the last two years he has increasingly struggled with language, word finding and understanding. My mind is in a turmoil at the moment. Full of horrible thoughts. I miss him so much...

    Started by BarleyMow‎, 27-02-2008 04:31 PM
    • Replies: 6
    • Views: 1,248
    28-02-2008, 04:06 PM
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  25. Quick question.

    I am experiencing difficulties with carers at the moment. I keep getting messages at work to tell me that Jean is on the rampage and that they are fearful for their safety. So they pack in and leave the house. I just wondered if anyone had experience of a patient physically attacking a...

    Started by Grommit‎, 27-02-2008 09:12 PM
    • Replies: 5
    • Views: 917
    27-02-2008, 11:44 PM
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