Welcome to Talking Point - Alzheimer's Society's online forum.
Talking Point is an online support and discussion forum, for anyone affected by dementia. It's a place to ask for advice, share information, join in discussions and feel supported.
If you would like to join a discussion on the forum or start a new one, you will need to either register or log-in (you can log-in by clicking on the box at the top right of the main forum).
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Talking Point is kindly funded by Santander.
This forum is for people with dementia under the age of 65 and their carers, families and friends.
Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...
If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...
Hi to all Just a general discussion point really, don't know what other people think on the topic............ The new blood tests that are (potentially) going to be used for early diagnosis of AD; good or bad? The reason I ask? Well, it the news reports it claims that by finding the...
Hi all, well I am back from my weeks holiday in Malta.......very nice.........but.. came home to messages from his care home. Basic update.l...........care home concerned about Lionel's mobility problems......Duty doc. at CH wants to reduce his AL medication, and his consultant has said "I need...
Family arrived for the weekend. (My dear Lionel is in respite0 sON ( ARRIVED ON HIS OWN) Mum, lovely to see you , how well you look. Wow, dining room looks lovely, candles etc. You look good! (0f course I look goood, Lionel is in respite) Rest of familyarrive.........."House seems...
Hi to all. Yet again it's been months since I've managed to log on (too busy having a baby!!). My Dad is now just over 2 years since diagnosis and progressing slowly. He came to visit over the weekend which was lovely, but he has lost a lot of weight. I noticed a few changes (it's been a while...
I have only just discovered this site over the weekend and have already logged on on numerous occasions. My mum has recently been diagnosed aged 61 and this has been the toughest few months of my and my family's life. I can not believe the amount of tears that have been shed and the amount of time...
Hi The nurse was out seeing Mum last week, I wasn't there because I work. Dad has kept me informed. It seems Mum did really badly in the wee test, I was really down for the rest of the week (and continue to be). The nurse pointed to her (own) watch and asked Mum what it was, Mum then pointed...
Im having a really tough day today! Im having to look after my mum plus now my grandma has come down because she is really ill! (heart attack and a sickness bug) So i have 2 people to look after now! Really struggerling! I dont even have time to think if you know what i mean! hows everyone...
Haven't posted much recently, as life is very fraught and I am very tired........... however we did have a lovely weekend as it was Lionels 65th birthday. I had promised him a party, and even though I had to have the paramedics out in the middle of the night, and he was"completely out of...
Hi everyone, i'm Bill from Coventry and am a young (56)sufferer of Alz,i would like to say a huge thankyou to all my friends at the Coventry branch who have made sure that i can use my perfectly fit body despite the memory problems. If there is anyone out there who would like to share a friendship...
I took Lionel into a new care home (very nice) on Sunday, so that I can have 4 weeks rest. (He is self funding). For the first time ever he was upset, and did not want me to leave him there. He has always said that he would go into a home when the time came, and has never made a fuss at going...
I'm 18 years old and my dad is in a home. He has had alzheimers for most of my teenage life and I can tell you, it has been very difficult in so many ways. Unfortunatly, since he has gone in a home, dealing with the emotional complexities that only other carers can understand, means I have...
Today my husband who is(53) walked out of the house i had to rush to get my shoes on keys as i have a bad leg i couldnt run after him he was just going out of veiw at the top of the street. A neighbour had to help search for him we managed to find him at the main road. He was on the pavement but...
hi everyone im a newbie & very upset after 18months of tests me&the family have just been told that my mum of just 53 has dementia i did think it was a memory problem but never thought it would be so serious! im 26 and i cant take it all in so upsetting and all the help i can see where we live...
Today my husband has been going up the stairs every 5mins to the toilet switching on bedroom and toilet lights, running the hot water then coming back down the stairs everything left on . I lost count how many times today i had to go up and switch everything off. I have a problem with my leg and...
Hi There, My mother (58) was diagnosed with Alzheimers two years ago, recently she has started to wet herself, sometimes at night, sometimes during the day. It seems to come and go but often occurs when she is in unfamilir surroundings (day trips etc). I am keen to try to find a way of...
Can anyone tell me what to say to my husband when he gets his coat on at 10pm and wants to 'go home' and can't understand that he is home. He got so terribly upset last night and ended up with what I can only descirbe as a panic attack. He was very agitated and crying and couldn't breathe...
:) I am typing this with a very sore arm. I managed to trap my arm in the taxi door this morning, trying to send Lionel off for a couple of hours to the day centre. Centre phoned just before sending him home to say he had a fall in the toilets. Not hurt apparently, but came home wearing a...
Iam knew to this site and i think it is realy helpful i lost my mother march the 6th this year. She was diagnosed with alzheimers 8 years at the age of 54 she was 62 when she passed away. Its just been awuful for the whole family for many years i think i did not want to believe she would die from...
My first note, only joined up this afternoon although I have subscribed to AS for a few months now. MY lovely wife Linda was officially dianosed with AD about Christmas 2005 she is just 55, I am 52 and our two devastated daughters are 24 and 20. It has taken about four years for the official...
Having read most of the facts sheets and delved into endless websites, I thought I was starting to understand the disease a little more and was congratulating myself on being able to intrepret gestures, looks and the occasional sentence which would be totally incomprehensible to anyone other than...
Hope I've done this right, I haven't got a clue! Steve - hubby, 56 years old - has today gone for his first day at the day hospital. He'd only been gone for around an hour and the lady there rang me and said he is here and he is ok but he's very restless - he has been for about a week now,...
My mother is 59 and has alzheimers disease. She was diagnosed about three years ago now and it was a terrible shock to us all as no one else in our family as far as we know has suffered from it. However, we don't know mum's biological father. I always wonder about this. If someone has early onset...
I have to get a new central heating boiler. Done a few phone calls today only to be told that you have to be over 60years old to get a grant for a new one. You can also get a full system in if your 60 or over. My husband has got 7years yet till that age. Why are grants for 60years and over when its...
Hi all x This is the second time of typing this as forgot to login!! I am 31 and afraid for my mental health. It started with my speech where I trip over my words or can't think of a word. Now my memory seems to be affected. It started concerning me a couple of months ago. On the...
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