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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 558
    24-02-2014, 04:04 PM
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  2. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 31
    • Views: 12,522
    01-11-2013, 05:07 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,227
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,163
    05-01-2012, 02:18 PM
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  1. Interaction with young children

    Hi everyone, My mum was diagnosed earlier this year with early onset. With the benefit of hindsight, she probably has been showing signs of the illness for at least 2 years, maybe longer. One of the ways that the illness is currently affecting her is in her willingness to interact and the...

    Started by Macca‎, 27-10-2005 10:45 AM
    2 Pages
    1 2
    • Replies: 24
    • Views: 2,758
    19-08-2007, 12:45 PM
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  2. We still have some fun

    Jenny ( diagnosed 3 years ago at age 56 with AD) and I have just laughed ourselves silly. We have just bought a gazebo and decided to erect it together for the first time.Kind neighbours offered to help but we declined because we were enjoying the challenge. It took about an hour but we had a great...

    Started by davidw‎, 17-08-2007 03:36 PM
    • Replies: 5
    • Views: 599
    19-08-2007, 12:36 AM
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  3. Angry Bad Day Sorry

    I think I am going to flip. I'm crying, I feel bad I just had a go at Susan for following me everywhere, standing behind me ALL the time, when I'm shaving, looking at me, not saying anything, Follows me humbly in the garden, upstairs, everywhere. I can cope with doing everything, but just having...

    Started by cris‎, 20-07-2007 12:28 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 1,448
    17-08-2007, 02:02 PM
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  4. Unhappy Help with the early stages

    After looking at TP many times, and losing my nerve at posting something , I have taken the plunge! I need advice. My mother was diagnosed with AZ a few months and the whole family are still reeling from the diagnosis. My father is also suffering with pre-existing anxiety and depression, and is...

    Started by Sara M‎, 16-08-2007 02:34 PM
    • Replies: 3
    • Views: 551
    16-08-2007, 11:45 PM
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  5. Is diagnosis always so difficult?

    Hi All I say this a bit tongue in cheek because of course I know it is always difficult and "only time will tell" as has been said a few times - I am also guilty of this! However I wonder if anyone has experienced the MEAMS test. My husband was tested by an OT and all the bits sensitive to...

    Started by Deeessex‎, 06-08-2007 01:39 PM
    • Replies: 10
    • Views: 984
    16-08-2007, 09:40 PM
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  6. Aricept

    I have read one or two posts recently where Aricept is mentioned - would be interested to hear if people feel there is a majority it helps or a minority. I am in the position that my husband has a prescription in his hand and could have it but won't take it (because he is well just now and...

    Started by sheena‎, 14-08-2007 10:38 AM
    2 Pages
    1 2
    • Replies: 21
    • Views: 2,052
    16-08-2007, 05:50 PM
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  7. Concerned about my memory/could it be dementia

    I came across this website while searching on google, basically i am a 34 year old male who is married with 2 kids, over the last few weeks i have been having problems and i am concerned that there could be something seriously wrong with me, i am worried that i may be losing my mind. My memory...

    Started by Hutchinson‎, 02-07-2007 04:58 PM
    2 Pages
    1 2
    • Replies: 27
    • Views: 3,265
    16-08-2007, 09:35 AM
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  8. Unhappy What a scare!!!

    Well what a scare I had yesterday. As usual on my day off work I look after my daughter and niece (both aged 2) and my mum. Yesterday I also had my 8 year old nephew and my mother in law. Foolishly perhaps we changed routine because I wanted to take the girls to a "beach" they had set up in...

    Started by Kate P‎, 08-08-2007 12:43 PM
    • Replies: 14
    • Views: 835
    15-08-2007, 01:45 PM
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  9. An introduction

    I am 42 years old and my wife is 52. She was finally diagnosed with early onset alzheimers in april of this year, after a year of tests. My guess is that she's probably been ill for about 4 years now. She is now on aricept and that initially at least had a massive effect on her ability to...

    Started by zebb37‎, 12-08-2007 11:46 AM
    • Replies: 8
    • Views: 662
    13-08-2007, 07:56 PM
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  10. Privileged & Humble

    I stopped and thought "my wife who does not know my name sometimes, does not know where a single room in the house is or how to hold a spoon, basically how to do anything. Here she is trusting me implicitly to feed her, dress her, wash her, and comfort her. How does her mind have the ability to...

    Started by cris‎, 08-08-2007 01:36 PM
    • Replies: 5
    • Views: 799
    09-08-2007, 01:00 PM
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  11. Moved: Documentary: Barbara & Malcolm

    Started by Big phil‎, 13-11-2007 10:18 AM
    • Replies: -
    • Views: -
    09-08-2007, 06:56 AM
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  12. Question Dad needs a break...

    Hi I am new to TP but so glad I have found this forum. Just read several threads and realised there are so many people out there in similar situations...helps me to feel a little less lost in the whole thing. My mum was diagnosed with early onset 6 years ago (aged 54). My Dad became a full...

    Started by lucy p‎, 29-07-2007 12:09 PM
    • Replies: 6
    • Views: 793
    08-08-2007, 07:08 PM
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  13. Red face Whistled at - I wish

    Was not sure where to post this. I was smiling :) so I nearly posted in tearoom, but it sad as well :( so I'll stick it here. I've just been whistled for :) No not that sort of whistle, cor he's tasty, nice bum type, but heh I need help and don't know your name. Yes Susan has woke up and...

    Started by cris‎, 08-08-2007 07:03 AM
    • Replies: 4
    • Views: 565
    08-08-2007, 08:56 AM
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  14. why ia i fealing like this

    ive bean married with my wife for 30 years. ive had alzhimers for 4 years. i cant believe that my wifes got cares stress. because of it she doesnt want me anymore. i dont realy now what to do i feal as if i wasnt hear anymore she would be better of. i dont like her being like she is she used to be...

    Started by happyray‎, 04-08-2007 08:39 PM
    • Replies: 4
    • Views: 705
    05-08-2007, 04:01 PM
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  15. goble de goof

    hubby has fld words are getting worse understanding i need to be a mind reader any help -please love bel x

    Started by bel‎, 28-07-2007 09:35 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 1,617
    04-08-2007, 12:03 PM
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  16. Unhappy Poor mam.

    Hi Everyone, I always seem to log on when I confront a problem with my mam, hope you don't mind me sharing it. My mam is in the later stages of AD, she was diagnosed at 60yrs young and is now 68. When I went to visit Sunday, she is in long term care in a Hospital, she looked dreadful, I knew...

    Started by Rosie‎, 31-07-2007 03:59 PM
    • Replies: 1
    • Views: 562
    31-07-2007, 04:10 PM
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  17. No doctors and no drugs

    I believe my dad (60) has been suffering from some form of dementia for approx. 2 years but he refuses to see a doctor and consequently we don't have a diagnosis. My Mum has been to the doctor several times requesting help but doesn't seem to be getting anywhere. They did call my dad in under the...

    Started by lucy i‎, 29-07-2007 08:32 PM
    • Replies: 3
    • Views: 601
    30-07-2007, 01:34 PM
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  18. Advice needed from all you experienced ones

    I know there is a wealth of knowledge here, from many all over the world who are further along this difficult journey than I am. I wondered if there is any practical advice for me at this stage - things you may recommend, or wish you'd done differently. My friend, Linda, who's husband died from...

    Started by annesharlie‎, 25-07-2007 02:18 AM
    • Replies: 6
    • Views: 889
    28-07-2007, 04:47 PM
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  19. Thumbs down Respite Help Change Of Funding ?

    Has any one else had a change to the respite help. Susan has the lady from respite twice a week for 2 hours each. They go out somewhere and I pay only for Susan, ie coffee, cake or whatever Susan wants to buy. Very soon this will change and I am asked to pay for Susan plus 10 towards costs....

    Started by cris‎, 26-07-2007 05:56 PM
    • Replies: 10
    • Views: 920
    27-07-2007, 07:05 PM
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  20. Tough decision to make?

    I am a newbe to this site and thought I'd tell my story to hopefully make the best decision. My dad was diagnosed with early onset alzheimers four years ago at the age of 63. My parents are both retired so mum takes care of dad. After living way from home for 7 years my wife and I moved back to...

    Started by kiwi8‎, 25-07-2007 10:46 AM
    • Replies: 7
    • Views: 819
    26-07-2007, 09:06 AM
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  21. Feeling the cold

    Has anyone else experienced that the one cared for is often very cold, or "feels" the cold. I know this summer will not go done as one of the better ones but Susan shivers nearly all the time, especially morning / evening. I have to put fan heaters on in the morning for washing and dressing and...

    Started by cris‎, 25-07-2007 05:33 AM
    • Replies: 5
    • Views: 768
    25-07-2007, 03:42 PM
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  22. So sad...

    Oh I hate myself for coming on here and whining but I'm going to anyway...:( This weekend I've just been so sad about my mum. I think for the last four years I've been running on adrenaline - trying to get the diagnosis, battling with dad to a large extent, mithering every doctor in sight to...

    Started by Kate P‎, 23-07-2007 10:20 AM
    • Replies: 5
    • Views: 699
    25-07-2007, 09:23 AM
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  23. Angry Peg Feeding???

    Hi, I have not posted on here for some time. My mum is now being fed by a peg tube which feeds her all the nutrients and medicines she needs. My sister and I felt pressured into this last year and feel we were not given enough information but the nursing home believed it was the right thing to...

    Started by Michelle-A‎, 16-07-2007 01:41 PM
    • Replies: 10
    • Views: 1,399
    23-07-2007, 10:03 PM
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  24. Holiday homes near family

    Hello, This is my first time on this forum as have just started looking for help on the web today. My husbands dad is 57 and has early onset alzheimers. His mum is getting really depressed about everything and how their life is changing and how all their plans are going to pot. They live at...

    Started by FamilyB‎, 18-07-2007 11:27 AM
    • Replies: 6
    • Views: 937
    22-07-2007, 12:49 AM
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  25. Where to get good financial advice?

    Hi My husband has recently been diagnosed with early onset dementia (57). We are trying to wade our way through our pensions etc. He has a couple of Occupational Pensions from past jobs and a couple of private pensions. He also recieves Incapacity benefit. We are looking to find out and learn from...

    Started by Deeessex‎, 16-07-2007 03:33 PM
    • Replies: 6
    • Views: 798
    20-07-2007, 10:18 PM
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