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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 20,245
    02-12-2014, 02:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 3,328
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 3,180
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 6,429
    05-01-2012, 02:18 PM
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  1. Quick progression

    Hi I haven't posted for a while but have been reading the other posts. Is anyone out there dealing with a husband in their 40's. David seems to be progressing very fast. A year ago he was still working and travelling with his job overseas. Now he has very few independant thoughts and no...

    Started by smiles‎, 08-05-2008 05:07 AM
    • Replies: 8
    • Views: 1,725
    20-05-2008, 09:06 PM
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  2. Anybody heard of Seroquel for AD?

    Anybody heard of or have someone with AD prescribed a very low dosage of Seroquel and if so does it help with the anxiety and fear?

    Started by Dgirl‎, 13-05-2008 03:52 PM
    • Replies: 4
    • Views: 1,000
    14-05-2008, 08:52 PM
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  3. Unhappy Guilty but not ashamed

    HI,Have not been on for a while but would like to express how i am feeling at the moment. Dave is slowly getting more confused by the day and his speech is still affected from the recent mini strokes,but i am having some mixed feelings over his appearance,he will rarely have a shower and haircut...

    Started by dedicated doe‎, 06-05-2008 10:28 PM
    • Replies: 10
    • Views: 1,410
    11-05-2008, 09:38 AM
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  4. Angry new member.

    My husband who is in a secure nursing home suffering from A.D. is still very aggressive and threatening to patients and staff. He went into this home nearly a year ago through this behaviour as he also suffers from hallucinations. The staff are good and assure me that this is all to do with...

    Started by lindisfarne‎, 01-05-2008 08:23 PM
    • Replies: 13
    • Views: 1,714
    09-05-2008, 09:19 AM
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  5. new member

    hello I am new here, have found it interesting reading all the other messages. My mum is in her mid-sixties and has been suffering with Alzheimer's for around 5 years (although diagnosed less than 2 years ago). She has declined very rapidly and although Dad is still looking after her at home she...

    Started by KCMS‎, 02-05-2008 12:41 PM
    • Replies: 3
    • Views: 784
    02-05-2008, 08:36 PM
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  6. 2 years on

    MARCH 6TH 2006 i lost my dear mum at the age of 62 to alzhimers iam still comeing on here i read so many post and my heart goes out to you all. to me it does not feel that long ago iam sure others on here feel that to. The pain the heartach it just goes on i get great comfort on here to able to...

    Started by nicetotalk‎, 30-04-2008 10:19 PM
    • Replies: 4
    • Views: 1,162
    02-05-2008, 07:51 PM
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  7. Verbal Aggression

    Hi All Hubbie having a particularly bad day today with angry words directed to me all day about one thing or another - even sitting in the wrong chair at dinner time. Its been really miserable. I adopt my usual non confrontational approach and do not argue with him however he reduced me to tears...

    Started by Deeessex‎, 26-04-2008 09:46 PM
    • Replies: 13
    • Views: 2,449
    02-05-2008, 05:17 PM
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  8. big day tommorrow bob is being accesed

    on making a sandwhich and cup of soup he will probably manage ok but if she had been with us today or most days she would see he is not capable most of the time we had to have a new boiler fitted today bob was great a lot more relaxed since back on tabs but totaly confused she wont see this...

    Started by bel‎, 29-04-2008 11:29 PM
    • Replies: 8
    • Views: 1,191
    01-05-2008, 01:35 PM
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  9. Driving!!!!

    Hi All Was having a lovely day thought we had made progress as hubbie finally agreed to notifying DVLA of his condition purchased a smart electric bike at the weekend so he can still go to the local shops however arrived home to a barrage of accusation - "It was you who wanted this - we didn't...

    Started by Deeessex‎, 27-03-2008 07:49 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 3,730
    26-04-2008, 09:34 PM
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  10. different days

    How do you cope with every day different? Yesterday he looked awful, couldnt walk, slept,fell head falling to his knees. Today looks a lot better, wandering about with a staff member for the wobbly times. They say he is having a really good day but tomorrow could be a lot different or the same....

    Started by chip‎, 26-04-2008 11:44 AM
    • Replies: 2
    • Views: 868
    26-04-2008, 03:01 PM
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  11. Thanks for all the support

    After posting a reply to debbie13 on the forum I have read all the lovely replies, they made me cry! I have had a better day today, although I feel very fragile and am still obviously crying at all sorts of things that wouldn't normally bother me. My one concern is that everything seems to have...

    Started by Megan‎, 24-04-2008 07:41 PM
    • Replies: 3
    • Views: 750
    24-04-2008, 08:34 PM
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  12. Taking mum a wee holiday

    I have not posted for a wee while - life just taking over really. Since my last post my mum and dad have now moved into sheltered housing and we have gone through lots to try to get mum settled in a new environment. It has been far from easy but she is happy althugh it is getting harder to see it....

    Started by DianeG‎, 24-02-2008 08:59 PM
    • Replies: 14
    • Views: 1,986
    24-04-2008, 03:52 PM
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  13. Diagnosed with AD then what??

    Hi, I have posted quite a few times before now but after reading some recent posts I want to ask you all a question.... How on earth do you know when someone moves to the next stage? I mean medically....My mum was diagnosed at the start of last year with AD (she was 56), she has moved area...

    Started by DianeG‎, 17-04-2008 12:58 PM
    • Replies: 12
    • Views: 1,708
    22-04-2008, 02:37 PM
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  14. Carers Allowance

    Learnt someting today which I'm rather cross over. I was told that I couldn't claim CA as I earned too much in my part-time job. I have now been told that if I increase my pension contribution by twice the amount between what I earn and what is allowed, I will then be able to claim. As half of your...

    Started by jackie1‎, 17-01-2008 08:39 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 3,937
    21-04-2008, 12:12 PM
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  15. Angry Social services?!

    Hi there Not posted for a while but am always reading the great advice on here. Just really need to vent about social services. We've been waiting since January for an inititial assessment for mum so that she can be have one day at an Age Concern day centre which we will have to pay for. I...

    Started by keane‎, 16-04-2008 12:36 PM
    • Replies: 6
    • Views: 1,267
    20-04-2008, 03:07 PM
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  16. No rhyme or reason to this disease...

    You give them medicine that is supposed to slow the disease's progression but you can't tell if it works because you daren't take them off it but if you did you still wouldn't know because who's to say what speed their individual case of dementia is supposed to progress at? The doctors said...

    Started by jc141265‎, 19-04-2008 02:40 PM
    • Replies: 3
    • Views: 1,049
    20-04-2008, 12:29 AM
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  17. Poop......again!!

    Hi I feel as if all I'm ever talking about are 'toilet habits'!! Mum has a new trick which is highly unpleasant! Dad has discovered to his horror that Mum has been storing what she does in the toilet on the bottom shelf. It seems that she's been removing the 'no 2's' from the toilet and...

    Started by mandyp‎, 16-04-2008 11:28 AM
    • Replies: 7
    • Views: 1,193
    19-04-2008, 03:07 PM
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  18. hello

    hello everyone, i'm a new member, not sure what i'm doing at the moment, my partners mother has AD and i thought it would help us if we chatted to some other people in the same situation as us.

    Started by faye n jayne‎, 13-04-2008 08:55 PM
    • Replies: 2
    • Views: 823
    18-04-2008, 09:34 PM
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  19. Red face what a BIRTHDAY!!!!!!!

    HI Again,my dear Dave is 60 today i had plans to give him a lovely day spoil him rotten as usual,and what happens he ends up spending most of the day in a hospital ward,last evening his speech was alittle slurred,(thought it was being excited from having a small celebration at his day centre) but...

    Started by dedicated doe‎, 14-03-2008 07:13 PM
    • Replies: 2
    • Views: 754
    17-04-2008, 11:55 AM
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  20. agression be it verble

    bob has been on carbamhzepine 50 mg twice a day for about 4 days he is slightly more confused but agression is a lot better hope it lasts love bel x

    Started by bel‎, 14-04-2008 10:36 PM
    • Replies: 6
    • Views: 1,026
    16-04-2008, 11:15 PM
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  21. What does this mean?

    Hi We have just got results back from the SPECT brain test that dad had we have been told it showed, Depression, Early on set Dementia, amyotrophy complex. Any one have any dealing with amyotrophy complex and what it is as his docotors says he does not know what it is which is not very...

    Started by kaz‎, 14-04-2008 05:22 PM
    • Replies: 3
    • Views: 987
    14-04-2008, 08:03 PM
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  22. Children and Dementia

    I often read about the resilience of children. And while I do agree with this to an extent, I worry that it causes us to deminish the impact dementia has on children. Our oldest (10) is very empathic and a worrier and so feels all his daddy's suffering (55 with Alzheimers). It also takes him a...

    Started by jackie1‎, 09-02-2008 08:13 AM
    2 Pages
    1 2
    • Replies: 28
    • Views: 3,783
    13-04-2008, 10:59 PM
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  23. agression be it verble

    i have tried and tried for months now bob and i have talked about it often he cant help it i know and i feel guilty but he was very angry with me again tonight shouting instead of talking i got totaly confused did not know wether i comming or going put my hands on my ears to shut out the...

    Started by bel‎, 02-04-2008 10:50 PM
    • Replies: 13
    • Views: 2,201
    09-04-2008, 10:47 PM
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  24. nw member

    Hello I have just joined Talking Point. My mum is in the advanced stages of dementia but is only in her early sixties. When we think back over recent years we can now see signs of when it started but we didn't recognise it as dementia at the time. It is really only over the last 18 - 24 months...

    Started by ajn‎, 30-03-2008 06:37 PM
    • Replies: 7
    • Views: 1,481
    02-04-2008, 11:09 AM
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  25. reluctantly i feel i have to move to the next stage

    i have felt for a good while now i am getting to the end of my tether and with the increased agression bob is having every day i am really worried i am going to crack up then where will he be i am in a lot of pain re arthrtus waiting for scans and ops so my patience is a bit short i know he...

    Started by bel‎, 28-03-2008 10:59 PM
    • Replies: 3
    • Views: 842
    28-03-2008, 11:25 PM
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