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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 14,744
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,403
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,733
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,779
    05-01-2012, 02:18 PM
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  1. Ilf Funding

    hi all, this is for younger people under 65,this has been a godsend to us,get in touch with your local Princes trust department,and they will give you all the info. that you need to apply for this.... all my best wishes.. here is web page with information ...

    Started by icare2‎, 19-10-2007 11:19 PM
    • Replies: 2
    • Views: 601
    22-10-2007, 05:48 PM
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  2. Advice needed please

    Well what a palaver Friday night was. Dad asked me to take mum shopping for some new clothes - she has put on an awful lot of weight and none of her clothes fit her anymore. My sister and I decided to do this together as we thought it would be easier. The first problem we encountered that we...

    Started by Kate P‎, 22-10-2007 10:12 AM
    • Replies: 1
    • Views: 526
    22-10-2007, 12:00 PM
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  3. Different problem.

    Jean is not incontinent by the strict definition of the word. She is able to find and use the toilet when necessary however, she does not clean herself afterwards. Sometime ago I introduced incontinence pads which have worked very well up to the present time but now she has started to remove...

    Started by Grommit‎, 16-10-2007 11:46 PM
    • Replies: 5
    • Views: 754
    19-10-2007, 11:14 PM
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  4. Unhappy It hurts

    Haven't posted before but this has been a difficult few weeks and today culminated in being told next time we made a particular trip he would go on the bus and he wouldn't have to put up with me - that hurt. Everything is done to help him and he still a year after diagnosis says he doesn't have AD...

    Started by sheena‎, 05-08-2007 10:47 PM
    3 Pages
    1 2 3
    • Replies: 42
    • Views: 3,928
    19-10-2007, 05:12 PM
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  5. Thumbs up my mum

    Hi my name is Lisa and i live in Brighton. My mum has recently been diagnosed with AD, at the age of 60,it has taken quite a few atempts for me to firstly contact this site but also to get to grips with this computer, thanks for small children! My Dad at this point in time seems to be in...

    Started by trufflet 65‎, 16-10-2007 05:15 PM
    • Replies: 5
    • Views: 784
    17-10-2007, 07:21 AM
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  6. Thumbs up my mum

    Hi my name is Lisa and i live in Brighton. My mum has recently been diagnosed with AD, at the age of 60,it has taken quite a few atempts for me to firstly contact this site but also to get to grips with this computer, thanks for small children! My Dad at this point in time seems to be in...

    Started by trufflet 65‎, 16-10-2007 04:59 PM
    • Replies: 0
    • Views: 473
    16-10-2007, 04:59 PM
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  7. Unhappy help! young person with Alzheimers

    hi, my wife is only 51 and was diagnosed in February with Alzheimers. However, i'm a bit confused as her memory seems ok but her co-ordination and mobility seems to be shot. She 'shuffles' when she walks and has very low blood pressure. could this be another type of illness? also, hard on my...

    Started by wimbledon7‎, 29-08-2007 12:50 AM
    2 Pages
    1 2
    • Replies: 16
    • Views: 2,784
    15-10-2007, 08:33 AM
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  8. vascular dementia

    hi, my wife o 51 years was recently diagnosed with AD but she does not have much memory loss. Her problems sem to be one of co-ordination; she has problems putting on her clothes the right way and she tends to 'shufle' her feet when she walks. Could this be Vascular Dementia? -thanks

    Started by wimbledon7‎, 27-05-2007 01:59 AM
    • Replies: 12
    • Views: 2,549
    15-10-2007, 06:41 AM
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  9. Health concerns

    As part of mum's FTD she has developed a real sweet tooth and is scoffing chocolates and sweets at an alarming rate. Other than the weight gain I'm slightly concerned about how this diet is affecting her health because to be honest her breath smells terrible. I've asked dad about whether she's...

    Started by Kate P‎, 10-10-2007 03:57 PM
    • Replies: 6
    • Views: 868
    12-10-2007, 09:44 AM
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  10. my mum has died

    hi just to let everyone know who has been so helpful to me over the last few month that my mum died peacefully in hospital this morning with her family by her side. the end was very sudden but calm. you may remember she had young onset dementia caused by CJD and she died four days short of her 60th...

    Started by candi‎, 22-09-2007 08:47 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 2,528
    09-10-2007, 01:50 PM
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  11. Can't visit

    Dear All It's been ages since I've posted; been trying (succesfully) to keep busy. Dad, now aged 54, went into a nursing home last month (3 years since he was diagnosed). Went through a whole range of emotions before convincing myself that it was a positive step. Unfortunately, I have found out...

    Started by MrsP‎, 05-10-2007 09:51 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,739
    09-10-2007, 01:37 PM
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  12. Advice, help, a hug, anything really...

    Just got back from a little holiday which was fabulous and a little escape from everything for a while. However, have got back to find mum considerably worse - I can't believe how much worse given that I was only away a week. Although mum hasn't been able to talk for a while now she would at...

    Started by Kate P‎, 08-10-2007 01:33 PM
    • Replies: 6
    • Views: 712
    08-10-2007, 11:22 PM
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  13. Question Will I Be A Better Person After This ?

    This morning for the first time ever my Susan said she wished she could kill herself. Usually it is I don't want to be here, or I wish I was with my mum & dad. I have this most mornings and during the day. But this morning it was "kill myself". How can someone have this recall when they cannot even...

    Started by cris‎, 27-09-2007 09:05 AM
    • Replies: 14
    • Views: 1,363
    04-10-2007, 03:07 PM
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  14. Lets talk about sex....

    This might bemuse a few readers and make others blush, but if you have read my past posts, you know I have no shame, and say 'bah! rubbish!' to dignity when it stands in the way of helping others. I'm just going to say that I think my Dad's illness has had a hugely negative affect on my sex...

    Started by jc141265‎, 04-10-2005 07:10 AM
    3 Pages
    1 2 3
    • Replies: 30
    • Views: 4,950
    03-10-2007, 11:06 PM
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  15. Entertainment Ideas

    My mum has AZ. She is now 64 and was diagnosed about 5 years ago. What I am trying to do at the moment are find activities that she can do on her own to a) boost her confidence that she can still do something on her own without help and b) allow Dad even half an hour to read the paper or surf the...

    Started by Dgirl‎, 01-10-2007 06:10 PM
    • Replies: 3
    • Views: 851
    01-10-2007, 10:39 PM
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  16. Missing Talking Point

    Hi Again, I have just returned after being without my internet for nearly two weeks, and I could not beleive how much damage that would do to my system. (I had withdrawal syptoms because I could not use my beloved Talking Point). We lost our internet and today after after two weeks, my wife...

    Started by KenC‎, 23-09-2007 11:29 PM
    • Replies: 13
    • Views: 1,335
    28-09-2007, 10:11 PM
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  17. Memory clinics

    Can I ask what these memory clinics are? Are they just for AZ? Mum has FTD and struggles to speak so I don't know whether it would help her anyway. I just feel like we have a diagnosis but no one is saying anything else - it's like they don't know what to do with us.

    Started by Kate P‎, 24-09-2007 01:22 PM
    • Replies: 3
    • Views: 745
    27-09-2007, 11:23 PM
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  18. I Prefer the ANGER

    Heartbreaking. I prefer it when Susan is angry and abusive. Not physically abusive. When she is angry I can turn-off. Swears at me, tells me how useless I am, tells me she is not doing that, does not want me looking at her, It goes over my head. It is the disease not Susan. When she sobs to me...

    Started by cris‎, 12-09-2007 09:50 AM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,804
    22-09-2007, 09:36 PM
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  19. Angry Aaarrrrgggghhhhhhh!!!!!

    Well mum's appointment with the consultant yesterday could not have gone worse. I don' think I've ever been so annoyed - then again I say that every time. At one point I felt that blood should have been coming out of my ears. Point 1. We get in there and she asks mum how she is and mum says...

    Started by Kate P‎, 14-09-2007 09:19 AM
    • Replies: 9
    • Views: 1,115
    21-09-2007, 11:14 PM
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  20. Strange Logic

    Had a weird moment with mum today. I took mum shopping and to feed the ducks at the park with little Milly in tow. When I dropped her off I decided to go in and see dad (he's taken a leave from work while he sorts out what he wants to do next) as mum had seemed a bit agitated and I just wanted...

    Started by Kate P‎, 20-09-2007 07:54 PM
    • Replies: 3
    • Views: 704
    21-09-2007, 01:59 PM
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  21. A diagnosis at last!!!!

    Finally, after four years of heartache we have a diagnosis for mum - FTD. Mum had an appointment at Walton yesterday - none of her files or brain scans had been sent over and they had no idea why she was there - not a good start. Unbelievably it's the first appointment I didn't attend - my...

    Started by Kate P‎, 19-09-2007 09:48 AM
    • Replies: 10
    • Views: 1,290
    19-09-2007, 10:30 PM
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  22. Light Relief

    One advantage of living in a small rural community is that you are likely to be known in a variety of situations. The head of our GP practice often sits in front of us in Church and we have talked over the years. When J. was diagnosed I talked to him about the best way of J. being supported by the...

    Started by Petrus‎, 19-09-2007 12:18 AM
    • Replies: 1
    • Views: 532
    19-09-2007, 06:50 AM
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  23. coming off aricept

    Hello there My mum has been on aricept for a few years now. Lately because a change in medication she has got a bit more aggresive. My brother has been reading info about the drugs and thinks that Aricept might be partly the problem as one of the listed side effects is that it can cause...

    Started by katherine‎, 05-09-2007 01:21 PM
    • Replies: 3
    • Views: 1,026
    18-09-2007, 08:18 PM
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  24. Post changes i have been informed about

    HI Again,because of my husbands condition i was advised to seek an enduring power of attorney to which i have now sorted, i was informed by our solicitor that it was a good time to do it because in October this year, the law regarding the EPA is changing and further assessments of the person...

    Started by dedicated doe‎, 17-09-2007 10:51 PM
    • Replies: 1
    • Views: 546
    17-09-2007, 10:58 PM
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  25. How very weird...

    I've just picked up on something from Jennifer's comment on one of the other threads (Birthday Present). My mum can barely speak - I believe she has FLD. She can on a good day say an occasional word such as yes or no (although she mixes up the meaning of them) but when we take her to church she...

    Started by Kate P‎, 12-09-2007 12:37 PM
    • Replies: 10
    • Views: 1,177
    17-09-2007, 10:35 PM
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