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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,177
    24-02-2014, 04:04 PM
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  2. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 31
    • Views: 14,238
    01-11-2013, 05:07 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,603
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,628
    05-01-2012, 02:18 PM
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  1. Missing Talking Point

    Hi Again, I have just returned after being without my internet for nearly two weeks, and I could not beleive how much damage that would do to my system. (I had withdrawal syptoms because I could not use my beloved Talking Point). We lost our internet and today after after two weeks, my wife...

    Started by KenC‎, 23-09-2007 11:29 PM
    • Replies: 13
    • Views: 1,318
    28-09-2007, 10:11 PM
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  2. Memory clinics

    Can I ask what these memory clinics are? Are they just for AZ? Mum has FTD and struggles to speak so I don't know whether it would help her anyway. I just feel like we have a diagnosis but no one is saying anything else - it's like they don't know what to do with us.

    Started by Kate P‎, 24-09-2007 01:22 PM
    • Replies: 3
    • Views: 735
    27-09-2007, 11:23 PM
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  3. I Prefer the ANGER

    Heartbreaking. I prefer it when Susan is angry and abusive. Not physically abusive. When she is angry I can turn-off. Swears at me, tells me how useless I am, tells me she is not doing that, does not want me looking at her, It goes over my head. It is the disease not Susan. When she sobs to me...

    Started by cris‎, 12-09-2007 09:50 AM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,782
    22-09-2007, 09:36 PM
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  4. Angry Aaarrrrgggghhhhhhh!!!!!

    Well mum's appointment with the consultant yesterday could not have gone worse. I don' think I've ever been so annoyed - then again I say that every time. At one point I felt that blood should have been coming out of my ears. Point 1. We get in there and she asks mum how she is and mum says...

    Started by Kate P‎, 14-09-2007 09:19 AM
    • Replies: 9
    • Views: 1,107
    21-09-2007, 11:14 PM
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  5. Strange Logic

    Had a weird moment with mum today. I took mum shopping and to feed the ducks at the park with little Milly in tow. When I dropped her off I decided to go in and see dad (he's taken a leave from work while he sorts out what he wants to do next) as mum had seemed a bit agitated and I just wanted...

    Started by Kate P‎, 20-09-2007 07:54 PM
    • Replies: 3
    • Views: 698
    21-09-2007, 01:59 PM
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  6. A diagnosis at last!!!!

    Finally, after four years of heartache we have a diagnosis for mum - FTD. Mum had an appointment at Walton yesterday - none of her files or brain scans had been sent over and they had no idea why she was there - not a good start. Unbelievably it's the first appointment I didn't attend - my...

    Started by Kate P‎, 19-09-2007 09:48 AM
    • Replies: 10
    • Views: 1,278
    19-09-2007, 10:30 PM
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  7. Light Relief

    One advantage of living in a small rural community is that you are likely to be known in a variety of situations. The head of our GP practice often sits in front of us in Church and we have talked over the years. When J. was diagnosed I talked to him about the best way of J. being supported by the...

    Started by Petrus‎, 19-09-2007 12:18 AM
    • Replies: 1
    • Views: 524
    19-09-2007, 06:50 AM
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  8. coming off aricept

    Hello there My mum has been on aricept for a few years now. Lately because a change in medication she has got a bit more aggresive. My brother has been reading info about the drugs and thinks that Aricept might be partly the problem as one of the listed side effects is that it can cause...

    Started by katherine‎, 05-09-2007 01:21 PM
    • Replies: 3
    • Views: 1,016
    18-09-2007, 08:18 PM
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  9. Post changes i have been informed about

    HI Again,because of my husbands condition i was advised to seek an enduring power of attorney to which i have now sorted, i was informed by our solicitor that it was a good time to do it because in October this year, the law regarding the EPA is changing and further assessments of the person...

    Started by dedicated doe‎, 17-09-2007 10:51 PM
    • Replies: 1
    • Views: 535
    17-09-2007, 10:58 PM
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  10. How very weird...

    I've just picked up on something from Jennifer's comment on one of the other threads (Birthday Present). My mum can barely speak - I believe she has FLD. She can on a good day say an occasional word such as yes or no (although she mixes up the meaning of them) but when we take her to church she...

    Started by Kate P‎, 12-09-2007 12:37 PM
    • Replies: 10
    • Views: 1,166
    17-09-2007, 10:35 PM
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  11. Smile hi is everybody ok

    ive bean to day care every mon wed thurs i thoight that i wouldnt like it but i tell you all its realy good . ive done things there that i havent done for 38 years it takes you back to school. ime one of the people in uk thats had dimensia from the age of 46 but life goes on for me. i was a bit...

    Started by happyray‎, 12-09-2007 07:05 PM
    • Replies: 4
    • Views: 791
    15-09-2007, 09:07 AM
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  12. How do i come to terms with this?

    Mum has recently been diagnosed with a dementia. She is going for urgent brain scan asap. I feel that i need to spend time with her, for the time being she knows who i am. Im finding it increasingly difficult as it breaks my heart to see her this way...i want to think of her the way i used to but...

    Started by Amanda_H‎, 16-07-2007 07:37 PM
    2 Pages
    1 2
    • Replies: 29
    • Views: 3,177
    13-09-2007, 08:53 PM
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  13. Have we had a break through...?

    God, I hope so!! Dad has finally made the appointment for mum to go to Walton to see the specialists (I think that's what they are - mum's consultant referred her). He's also asked me to look into how he invokes his POA, he's asked me to get the forms for all the benefits he can claim and is...

    Started by Kate P‎, 10-09-2007 03:07 PM
    • Replies: 10
    • Views: 976
    13-09-2007, 02:56 PM
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  14. alcohol dementia/korsakoffs

    i recently found out that my dad has this condition{after he broke his foot}when he was in hospital they did a brain scan,and was wondering if anyone had any advice for me,My dad is currently living with me having been told he cannot go back home,but was told it would only be for now,so im unsure...

    Started by sarzy‎, 30-07-2005 11:39 PM
    • Replies: 4
    • Views: 2,678
    13-09-2007, 11:37 AM
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  15. A Wry Tale

    I hope this tale prompts a smile of recognition - "I've experienced something similar". J's consultant has always remarked that her communication is better than would be expected based on the various cognition test scores. A close friend who is a retired Prof. of Linguistics has remarked how...

    Started by Petrus‎, 12-09-2007 04:13 PM
    • Replies: 3
    • Views: 569
    12-09-2007, 05:06 PM
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  16. some more advice needed...

    you were all so helpful a fw days ago when I posted about mum attcking a day care worker. The CPM visited today and the family and she agreed that mum should be admitted to our nearby mh hospital for observation for 3-4wks. my dad and bro have taken her to lunch then are taking her to Lytham...

    Started by maria682639‎, 11-09-2007 01:44 PM
    • Replies: 1
    • Views: 463
    11-09-2007, 03:45 PM
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  17. I'm coming to the UK - Questions

    Hello all I am bringing Ron over to the UK in order for us to have a visit with my family - my one sister lives in Brentwood, near London, and my other sister and mum will fly from South Africa to meet us there. It is important that they have a visit with him while he's still aware. Anyway,...

    Started by annesharlie‎, 09-09-2007 01:38 AM
    • Replies: 1
    • Views: 536
    10-09-2007, 03:33 PM
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  18. feeling very tired and lonely at times

    some days i feel as if the day will never end and just wish i could get a good nights sleep,when i want to have an early night my husband wants to stay up late and does not want to be alone,he does not like me to be out of sight for long i get lonely at times as it can be difficullt to have a...

    Started by dedicated doe‎, 25-08-2007 11:10 PM
    2 Pages
    1 2
    • Replies: 27
    • Views: 2,420
    10-09-2007, 02:37 PM
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  19. "Driving" me crazy...

    AAARRRRGGGHHHHHHHH!!!!:mad: Sorry just needed to get that out - better here than actually bellowing at home! Well the battle is still on going about mum driving. I think I'm just going to have to bite the bullet, ring the DVLA and if he falls out with me he does. I know they don't say who...

    Started by Kate P‎, 02-09-2007 11:19 AM
    • Replies: 14
    • Views: 2,255
    09-09-2007, 09:55 AM
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  20. sleeping tips

    I wondered if anyone has any suggestions on how to improve my Mum's sleep? There have been a number of nights when my dad or I have been up almost continually recently. She usually sleeps at first but then later in the night sleep gets disrupted eg last night I was up more than 7 times between...

    Started by HLon‎, 28-08-2007 09:41 PM
    • Replies: 3
    • Views: 724
    08-09-2007, 09:51 AM
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  21. Unhappy Why is it... & spooky

    Why is it so distressing, when to get a result tears have to be shed. Susan would not toilet, wash, or dress this morning. So as there is no point in arguing / reason or logic. I said ok and walked away. Downstairs had my breakfast back up to shower, shave, teeth. Susan is then crying, sorry, so...

    Started by cris‎, 05-09-2007 06:59 PM
    • Replies: 14
    • Views: 1,618
    08-09-2007, 09:34 AM
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  22. Sort of need to get this all off my chest

    My mum first started developing symptoms of Alzheimer's when she was in her late 40s and I was about 20. Unfortunately for my family, we are all too aware of what Alz does to people as my maternal grandmother died from it as well though she developed it a bit later in life. I really don't want to...

    Started by Cymbaline‎, 31-08-2007 12:23 AM
    • Replies: 12
    • Views: 1,168
    08-09-2007, 12:17 AM
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  23. Love

    I took mum out with the girls yeserday morning to feed the ducks (it's one of the few times I see mum laugh so it's become a regular trip out now). I was watching her feeding the ducks with the girls when I suddenly realised that I don't love her as my mum anymore - it feels more like how I love...

    Started by Kate P‎, 07-09-2007 10:45 AM
    • Replies: 13
    • Views: 1,118
    07-09-2007, 08:54 PM
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  24. So fast deterioration

    I was told today my husband has to now be fed and given liquids from a nurse. He now can't do this for himself. Three weeks ago this started he is as well very very confused can't follow any instructions 12 weeks ago he went shopping picking things and eating himself. I've been told rapid...

    Started by chip‎, 07-09-2007 11:55 AM
    • Replies: 4
    • Views: 1,485
    07-09-2007, 07:15 PM
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  25. Microman.

    Just a note on spatial awareness. I have noticed that when I am up stairs and Jean is downstairs, she tends to wander a lot from room to room and then gets quite agitated. To combat this I break off from what I am doing every 5 minutes or so, hang over the bannister ans shout "I'm up here...

    Started by Grommit‎, 05-09-2007 06:20 PM
    • Replies: 4
    • Views: 613
    05-09-2007, 11:35 PM
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