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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 15,952
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,846
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,042
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 5,127
    05-01-2012, 02:18 PM
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  1. A fleeting moment.

    I have recently installed a fence and gate at the bottom of the drive to stop Jean escaping and wandering. Part of the daily routine is for me to take the dog out before I go to work. As I turned in the top of the drive I heard a knocking noise and the sound of wailing. Jean was stood holding...

    Started by Grommit‎, 05-11-2007 11:01 PM
    • Replies: 12
    • Views: 2,106
    07-11-2007, 09:15 PM
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  2. Is her pain psychological?

    Hello, my mother is 63 and has severe AD. I would say nearly every day she complains of excrutiating pains in her stomach/bowel area which sometimes even leaves her in tears. She has been seen by so many doctors and carers who all say that there is nothing wrong (in those areas). She did...

    Started by VIB35‎, 07-11-2007 11:20 AM
    • Replies: 5
    • Views: 1,540
    07-11-2007, 05:09 PM
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  3. i'm 33 & husband is 54 with vascular dementia

    this is my first visit to the forum and i'm tired so want to go to bed but wanted to post something seeing as i happened upon it and have just registered, and i hope there may be others in some kind of similar and fairly unique situation. i seek being able to discuss specific issues with...

    Started by stikwik‎, 31-10-2007 11:41 PM
    • Replies: 10
    • Views: 1,311
    05-11-2007, 02:37 PM
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  4. how long isa piece of cake

    no one can possibly care on there own,I now have a 2 caring companys giving my wife care from 10 am till 6 pm 7

    Started by icare2‎, 04-11-2007 12:45 AM
    • Replies: 0
    • Views: 727
    04-11-2007, 12:45 AM
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  5. Dementias Life Expectancy

    i am confused by this subject. part of my research into how to care for my hubby best now has made me wonder how long we have. i KNOW it will vary greatly from person to person, but it seems the most avoided piece of information in all factsheets and information all over the web! i'm sure there...

    Started by stikwik‎, 01-11-2007 11:49 PM
    • Replies: 7
    • Views: 8,178
    02-11-2007, 10:06 AM
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  6. NH decline

    I have been told (not by SW but by hospital) that all NH's have declined to take my husband. They also told me SW were trying to get his status changed to over 65's to get put into a Dementia Unit and getting the funding changed as well. I am not sure what that means as he is 54. Does anyone know...

    Started by chip‎, 01-11-2007 10:49 AM
    • Replies: 7
    • Views: 1,185
    01-11-2007, 08:52 PM
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  7. Magazine article 27/10

    A friend has sent me some pages from a magazine - probably a Sunday paper, but it does not identify itself. Article called "The Vanishing Man" which covers in some detail the situation of a man diagnosed at 43. Family are interviewed too. One of the best articles I've seen on the subject....

    Started by Brucie‎, 01-11-2007 12:43 PM
    • Replies: 2
    • Views: 685
    01-11-2007, 04:40 PM
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  8. Happier times

    I know a lot of times people post for advice and when they are feeling low, but i thought i would just tell you about my mum's birthday which was last friday (26th Oct). She's in a home locally and both my husband and i decided to take the afternoon off to go and see her. She is in the latter...

    Started by JMW‎, 29-10-2007 04:18 PM
    • Replies: 2
    • Views: 668
    30-10-2007, 06:20 AM
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  9. Pigging Awful day

    From the minute she got up, to the minute she went to bed, Jean has been in tears and repeating over and over again that she wants to go home. I told her gently (honestly) to go and she spent 20 minutes in the garden this morning in the pouring rain and howling wind, dressed in nighty, dressing...

    Started by Grommit‎, 28-10-2007 10:54 PM
    • Replies: 12
    • Views: 1,129
    29-10-2007, 11:11 PM
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  10. Pericyazine

    My wife's consultant has decided to prescribe Pericyazine for my wife because of her agitation and aggression. Does anyone have any experience of the use of this drug --its affects and side affects?

    Started by davidw‎, 21-10-2007 07:21 PM
    • Replies: 2
    • Views: 1,231
    29-10-2007, 07:32 PM
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  11. Help with homes for Dad

    Hi My dad was diagnosed with Alzheimer's last Friday after many months of tests and every doctor we asked saying it was not Alzheimer's as it would not come on so quick etc. Dad has been in hospital for 2 months now. It started with a urine infection then urine retention and gone from there he...

    Started by kaz‎, 24-10-2007 01:09 PM
    • Replies: 12
    • Views: 1,031
    29-10-2007, 05:06 PM
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  12. What a difference a year makes

    Today is exactly one year since Peter's diagnosis with FTD. At that time, his behaviour was considered increasingly strange and his concentration was severely reduced. Other than that, the diagnosis came out of the blue and wasn't quite believable. Earlier today I had a 6 month review with his...

    Started by Westie‎, 24-09-2007 02:46 PM
    3 Pages
    1 2 3
    • Replies: 39
    • Views: 4,805
    28-10-2007, 09:16 PM
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  13. Issues round the loo

    Hi all I've been away for about 5 weeks, traveling with Ron to see family and a bit of holidaying in Europe. In all, I am happy I did it but it really is stressful going out and about with someone who absolutely would be at a loss if we got separated. It is quite different when we're out and...

    Started by annesharlie‎, 28-10-2007 01:45 PM
    • Replies: 3
    • Views: 743
    28-10-2007, 06:01 PM
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  14. Question MRI scans

    Dear All Just to ask if any of your loved ones have had MRI scans that don't show anything definate? Denise

    Started by Deeessex‎, 26-10-2007 07:45 PM
    • Replies: 6
    • Views: 1,013
    27-10-2007, 04:47 PM
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  15. Unhappy Just despair

    My local Respite Help has just cancelled out of the blue, 1 & half hours before they are due to come. Why could they not cancel after they left on Tuesday. Respite feel they can no longer handle Susan. Gave me a mental health nurse nr. for assessment. Nr no good. I wont go into all the nrs. that I...

    Started by cris‎, 25-10-2007 12:03 PM
    • Replies: 8
    • Views: 1,156
    27-10-2007, 01:57 PM
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  16. Thumbs down Another Hospital Visit, Another Dr

    Hi All Just need to say my husband, daughter and I visited the hospital today for a follow up as he has now been on Aricept for 3 months. We knew we were going to see a different Dr as the previous one had left I'm sorry to say. The one we saw, my husband took an instant dislike to as he virtually...

    Started by Deeessex‎, 01-10-2007 03:20 PM
    • Replies: 8
    • Views: 1,054
    27-10-2007, 10:45 AM
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  17. Smile Anyone out there

    My husband has been diagnosed with Alzheimers at just 58 years old. He is responding to Aricept but he gets very worked up over the smallest thing. he used to be so loving and I find it very difficult at times. I find myself wondering what each day will bring. He is very interested in railway...

    Started by Emma Jo‎, 25-10-2007 11:09 PM
    • Replies: 8
    • Views: 1,044
    27-10-2007, 10:43 AM
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  18. Exclamation new observations in daves condition

    HI Again,hope you do not mind me getting in touch about Dave, over the past two weeks or so he has been showing some new signs of his VD at night he has been telling me that he feels odd and muddled then he starts wandering around and stops at a wall and and its like he is picking something out of...

    Started by dedicated doe‎, 23-10-2007 10:13 PM
    2 Pages
    1 2
    • Replies: 27
    • Views: 2,159
    27-10-2007, 07:59 AM
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  19. Dealing with Incontinence

    Okay, I had Mum as usual at the weekend. Dad went out to watch the football and have a couple of beers. Mum, my daughter and I went out shopping then came home. Mum went to the toilet, when she came out it was very apparent due to the smell that something was very much amiss. I panicked and...

    Started by mandyp‎, 22-10-2007 12:01 PM
    • Replies: 7
    • Views: 982
    25-10-2007, 09:55 PM
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  20. TP Announcement

    There are some significant changes coming to Talking Point in a couple of weeks - plus some necessary associated downtime. I will post this in all the main forums and close the announcements so they cannot be replied to. The one I post in Tea Room ...

    Started by Brucie‎, 25-10-2007 11:36 AM
    • Replies: 0
    • Views: 446
    25-10-2007, 11:36 AM
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  21. Unhappy Help

    The last couple of days have been bad for me, I feel like I'm gettin worse, and goin slightly out of control. It does worry me a bit as I am a Mum of three daughters and am finding it difficult to do normal day to day things. I'm afraid to say the wine came out @4.30 this arvo,I felt so anxious....

    Started by nickyd‎, 24-10-2007 09:29 PM
    • Replies: 5
    • Views: 788
    24-10-2007, 10:25 PM
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  22. Moved: Help

    The last couple of days have been bad for me, I feel like I'm gettin worse, and goin slightly out of control. It does worry me a bit as I am a Mum of three daughters and am finding it difficult to do normal day to day things. I'm afraid to say the wine came out @4.30 this arvo,I felt so anxious....

    Started by nickyd‎, 13-11-2007 10:18 AM
    • Replies: -
    • Views: -
    24-10-2007, 10:01 PM
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  23. dealing with parent with ad

    i am 39 years old and just over 2 years ago i found out my mother who is 63 has ad. ad runs in the family, my mothers father died from this and also my mothers sister died from this at the age of 41. when i first found out i thought we can deal with this, but as time has gone on trying to keep a...

    Started by alby100‎, 12-10-2007 12:46 PM
    • Replies: 5
    • Views: 1,094
    23-10-2007, 12:19 PM
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  24. Ilf Funding

    hi all, this is for younger people under 65,this has been a godsend to us,get in touch with your local Princes trust department,and they will give you all the info. that you need to apply for this.... all my best wishes.. here is web page with information ...

    Started by icare2‎, 19-10-2007 11:19 PM
    • Replies: 2
    • Views: 621
    22-10-2007, 05:48 PM
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  25. Advice needed please

    Well what a palaver Friday night was. Dad asked me to take mum shopping for some new clothes - she has put on an awful lot of weight and none of her clothes fit her anymore. My sister and I decided to do this together as we thought it would be easier. The first problem we encountered that we...

    Started by Kate P‎, 22-10-2007 10:12 AM
    • Replies: 1
    • Views: 546
    22-10-2007, 12:00 PM
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