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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 15,357
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,647
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,883
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,948
    05-01-2012, 02:18 PM
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  1. Issues round the loo

    Hi all I've been away for about 5 weeks, traveling with Ron to see family and a bit of holidaying in Europe. In all, I am happy I did it but it really is stressful going out and about with someone who absolutely would be at a loss if we got separated. It is quite different when we're out and...

    Started by annesharlie‎, 28-10-2007 01:45 PM
    • Replies: 3
    • Views: 731
    28-10-2007, 06:01 PM
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  2. Question MRI scans

    Dear All Just to ask if any of your loved ones have had MRI scans that don't show anything definate? Denise

    Started by Deeessex‎, 26-10-2007 07:45 PM
    • Replies: 6
    • Views: 980
    27-10-2007, 04:47 PM
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  3. Unhappy Just despair

    My local Respite Help has just cancelled out of the blue, 1 & half hours before they are due to come. Why could they not cancel after they left on Tuesday. Respite feel they can no longer handle Susan. Gave me a mental health nurse nr. for assessment. Nr no good. I wont go into all the nrs. that I...

    Started by cris‎, 25-10-2007 12:03 PM
    • Replies: 8
    • Views: 1,146
    27-10-2007, 01:57 PM
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  4. Thumbs down Another Hospital Visit, Another Dr

    Hi All Just need to say my husband, daughter and I visited the hospital today for a follow up as he has now been on Aricept for 3 months. We knew we were going to see a different Dr as the previous one had left I'm sorry to say. The one we saw, my husband took an instant dislike to as he virtually...

    Started by Deeessex‎, 01-10-2007 03:20 PM
    • Replies: 8
    • Views: 1,044
    27-10-2007, 10:45 AM
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  5. Smile Anyone out there

    My husband has been diagnosed with Alzheimers at just 58 years old. He is responding to Aricept but he gets very worked up over the smallest thing. he used to be so loving and I find it very difficult at times. I find myself wondering what each day will bring. He is very interested in railway...

    Started by Emma Jo‎, 25-10-2007 11:09 PM
    • Replies: 8
    • Views: 1,022
    27-10-2007, 10:43 AM
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  6. Exclamation new observations in daves condition

    HI Again,hope you do not mind me getting in touch about Dave, over the past two weeks or so he has been showing some new signs of his VD at night he has been telling me that he feels odd and muddled then he starts wandering around and stops at a wall and and its like he is picking something out of...

    Started by dedicated doe‎, 23-10-2007 10:13 PM
    2 Pages
    1 2
    • Replies: 27
    • Views: 2,143
    27-10-2007, 07:59 AM
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  7. Dealing with Incontinence

    Okay, I had Mum as usual at the weekend. Dad went out to watch the football and have a couple of beers. Mum, my daughter and I went out shopping then came home. Mum went to the toilet, when she came out it was very apparent due to the smell that something was very much amiss. I panicked and...

    Started by mandyp‎, 22-10-2007 12:01 PM
    • Replies: 7
    • Views: 967
    25-10-2007, 09:55 PM
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  8. TP Announcement

    There are some significant changes coming to Talking Point in a couple of weeks - plus some necessary associated downtime. I will post this in all the main forums and close the announcements so they cannot be replied to. The one I post in Tea Room ...

    Started by Brucie‎, 25-10-2007 11:36 AM
    • Replies: 0
    • Views: 438
    25-10-2007, 11:36 AM
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  9. Unhappy Help

    The last couple of days have been bad for me, I feel like I'm gettin worse, and goin slightly out of control. It does worry me a bit as I am a Mum of three daughters and am finding it difficult to do normal day to day things. I'm afraid to say the wine came out @4.30 this arvo,I felt so anxious....

    Started by nickyd‎, 24-10-2007 09:29 PM
    • Replies: 5
    • Views: 778
    24-10-2007, 10:25 PM
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  10. Moved: Help

    The last couple of days have been bad for me, I feel like I'm gettin worse, and goin slightly out of control. It does worry me a bit as I am a Mum of three daughters and am finding it difficult to do normal day to day things. I'm afraid to say the wine came out @4.30 this arvo,I felt so anxious....

    Started by nickyd‎, 13-11-2007 10:18 AM
    • Replies: -
    • Views: -
    24-10-2007, 10:01 PM
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  11. dealing with parent with ad

    i am 39 years old and just over 2 years ago i found out my mother who is 63 has ad. ad runs in the family, my mothers father died from this and also my mothers sister died from this at the age of 41. when i first found out i thought we can deal with this, but as time has gone on trying to keep a...

    Started by alby100‎, 12-10-2007 12:46 PM
    • Replies: 5
    • Views: 1,086
    23-10-2007, 12:19 PM
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  12. Ilf Funding

    hi all, this is for younger people under 65,this has been a godsend to us,get in touch with your local Princes trust department,and they will give you all the info. that you need to apply for this.... all my best wishes.. here is web page with information ...

    Started by icare2‎, 19-10-2007 11:19 PM
    • Replies: 2
    • Views: 609
    22-10-2007, 05:48 PM
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  13. Advice needed please

    Well what a palaver Friday night was. Dad asked me to take mum shopping for some new clothes - she has put on an awful lot of weight and none of her clothes fit her anymore. My sister and I decided to do this together as we thought it would be easier. The first problem we encountered that we...

    Started by Kate P‎, 22-10-2007 10:12 AM
    • Replies: 1
    • Views: 536
    22-10-2007, 12:00 PM
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  14. Different problem.

    Jean is not incontinent by the strict definition of the word. She is able to find and use the toilet when necessary however, she does not clean herself afterwards. Sometime ago I introduced incontinence pads which have worked very well up to the present time but now she has started to remove...

    Started by Grommit‎, 16-10-2007 11:46 PM
    • Replies: 5
    • Views: 764
    19-10-2007, 11:14 PM
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  15. Unhappy It hurts

    Haven't posted before but this has been a difficult few weeks and today culminated in being told next time we made a particular trip he would go on the bus and he wouldn't have to put up with me - that hurt. Everything is done to help him and he still a year after diagnosis says he doesn't have AD...

    Started by sheena‎, 05-08-2007 10:47 PM
    3 Pages
    1 2 3
    • Replies: 42
    • Views: 4,003
    19-10-2007, 05:12 PM
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  16. Thumbs up my mum

    Hi my name is Lisa and i live in Brighton. My mum has recently been diagnosed with AD, at the age of 60,it has taken quite a few atempts for me to firstly contact this site but also to get to grips with this computer, thanks for small children! My Dad at this point in time seems to be in...

    Started by trufflet 65‎, 16-10-2007 05:15 PM
    • Replies: 5
    • Views: 796
    17-10-2007, 07:21 AM
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  17. Thumbs up my mum

    Hi my name is Lisa and i live in Brighton. My mum has recently been diagnosed with AD, at the age of 60,it has taken quite a few atempts for me to firstly contact this site but also to get to grips with this computer, thanks for small children! My Dad at this point in time seems to be in...

    Started by trufflet 65‎, 16-10-2007 04:59 PM
    • Replies: 0
    • Views: 477
    16-10-2007, 04:59 PM
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  18. Unhappy help! young person with Alzheimers

    hi, my wife is only 51 and was diagnosed in February with Alzheimers. However, i'm a bit confused as her memory seems ok but her co-ordination and mobility seems to be shot. She 'shuffles' when she walks and has very low blood pressure. could this be another type of illness? also, hard on my...

    Started by wimbledon7‎, 29-08-2007 12:50 AM
    2 Pages
    1 2
    • Replies: 16
    • Views: 2,823
    15-10-2007, 08:33 AM
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  19. vascular dementia

    hi, my wife o 51 years was recently diagnosed with AD but she does not have much memory loss. Her problems sem to be one of co-ordination; she has problems putting on her clothes the right way and she tends to 'shufle' her feet when she walks. Could this be Vascular Dementia? -thanks

    Started by wimbledon7‎, 27-05-2007 01:59 AM
    • Replies: 12
    • Views: 2,591
    15-10-2007, 06:41 AM
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  20. Health concerns

    As part of mum's FTD she has developed a real sweet tooth and is scoffing chocolates and sweets at an alarming rate. Other than the weight gain I'm slightly concerned about how this diet is affecting her health because to be honest her breath smells terrible. I've asked dad about whether she's...

    Started by Kate P‎, 10-10-2007 03:57 PM
    • Replies: 6
    • Views: 888
    12-10-2007, 09:44 AM
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  21. my mum has died

    hi just to let everyone know who has been so helpful to me over the last few month that my mum died peacefully in hospital this morning with her family by her side. the end was very sudden but calm. you may remember she had young onset dementia caused by CJD and she died four days short of her 60th...

    Started by candi‎, 22-09-2007 08:47 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 2,578
    09-10-2007, 01:50 PM
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  22. Can't visit

    Dear All It's been ages since I've posted; been trying (succesfully) to keep busy. Dad, now aged 54, went into a nursing home last month (3 years since he was diagnosed). Went through a whole range of emotions before convincing myself that it was a positive step. Unfortunately, I have found out...

    Started by MrsP‎, 05-10-2007 09:51 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,767
    09-10-2007, 01:37 PM
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  23. Advice, help, a hug, anything really...

    Just got back from a little holiday which was fabulous and a little escape from everything for a while. However, have got back to find mum considerably worse - I can't believe how much worse given that I was only away a week. Although mum hasn't been able to talk for a while now she would at...

    Started by Kate P‎, 08-10-2007 01:33 PM
    • Replies: 6
    • Views: 723
    08-10-2007, 11:22 PM
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  24. Question Will I Be A Better Person After This ?

    This morning for the first time ever my Susan said she wished she could kill herself. Usually it is I don't want to be here, or I wish I was with my mum & dad. I have this most mornings and during the day. But this morning it was "kill myself". How can someone have this recall when they cannot even...

    Started by cris‎, 27-09-2007 09:05 AM
    • Replies: 14
    • Views: 1,383
    04-10-2007, 03:07 PM
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  25. Lets talk about sex....

    This might bemuse a few readers and make others blush, but if you have read my past posts, you know I have no shame, and say 'bah! rubbish!' to dignity when it stands in the way of helping others. I'm just going to say that I think my Dad's illness has had a hugely negative affect on my sex...

    Started by jc141265‎, 04-10-2005 07:10 AM
    3 Pages
    1 2 3
    • Replies: 30
    • Views: 4,995
    03-10-2007, 11:06 PM
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