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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 17,081
    02-12-2014, 03:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 2,214
    24-02-2014, 05:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,326
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,447
    05-01-2012, 03:18 PM
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  1. feeling a bit abandoned

    My brother and I have organised that my mum is cared for at home. We get direct payments from the social sevices and have found some lovely carers. I moved from London a couple of years ago to be near mum, I live locally with my husband and two small kids. At the moment my brother is away working....

    Started by katherine‎, 23-11-2007 10:03 PM
    2 Pages
    1 2
    • Replies: 19
    • Views: 3,223
    07-12-2007, 11:14 PM
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  2. One man's story (from daughter's perspective)

    I grew up thinking my Dad was the smartest man in the world, he was a chess champion, a boy from a poor Irish family who made it to the big time, married the town beauty queen from a rich family, got selected to learn computer programming because of his genius IQ score, then went on to become CEO...

    Started by jc141265‎, 05-12-2007 10:33 AM
    • Replies: 8
    • Views: 1,100
    07-12-2007, 09:03 PM
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  3. Critical Illness Insurance claims

    Hi everyone, new user so apologies if I am posting in the wrong place. My brother has just being diagnosed with early onset Altzheimers and I am helping him sort his money; etc. out. He has critical illness cover as part of his endowment and we have got the claim form from Prudential. ...

    Started by PaulBear‎, 30-11-2007 04:46 PM
    • Replies: 6
    • Views: 2,125
    30-11-2007, 07:18 PM
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  4. So Much Pain

    Hello all, Have spent the last couple of hours going through the threads & reading reply's, every one hits a nerve or tear duct. So many questions & so much pain in peoples lives, I feel for each & every one of you. People ask how long is a piece of string?, The only answer can be, no string is...

    Started by spoiler‎, 24-11-2007 04:53 PM
    • Replies: 12
    • Views: 1,514
    25-11-2007, 09:18 AM
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  5. Voucher System

    Had some difficult times over the last few weeks culminating in having to get Police assistance to find Jean who had wndered off, dressed but in carpet slippers. They managed to locate her in someone's house about a mile and a half away. She was in a very distressed condition as well as being...

    Started by Grommit‎, 08-10-2007 06:29 PM
    4 Pages
    1 2 3 4
    • Replies: 53
    • Views: 4,800
    24-11-2007, 11:23 PM
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  6. Unhappy Losing my beautiful Mum

    Well, where do I begin! 6 weeks ago tonight, my beautiful Mum passed away after 10 years of suffering from vascular dementia(horrific)she was only 68. I feel robbed, i'm only 37, I still cant accept that I cant see or hear her. Mum made it to the end stage, unable to walk, feed,doubly...

    Started by nickyd‎, 20-10-2007 09:57 PM
    2 Pages
    1 2
    • Replies: 19
    • Views: 2,807
    24-11-2007, 04:33 PM
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  7. Question Unable to talk to people about what's going on

    I am after some advice really as all this stuff has been rolling around in my head for months and I am really struggling with the fact that I haven't been able to talk to anyone about it all. To explain... I have always found it impossible to talk about this kind of personal stuff (unfortunately I...

    Started by bleep‎, 23-11-2007 12:35 AM
    • Replies: 5
    • Views: 2,561
    23-11-2007, 08:37 PM
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  8. What are our rights?

    Hi We need help, my dad was diagnosed with Alzheimer's about a months ago he is 58 , the other week a psychiatrist cam to see him spent about 15 minutes with him and decided she could not say for certain as could be AD or a something else. She later decided could be a pseudodementia and wanted to...

    Started by kaz‎, 22-11-2007 07:56 PM
    • Replies: 3
    • Views: 960
    23-11-2007, 02:54 AM
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  9. Smile where do i go from here

    This is the first time i have been on one of these sights i am finding things really tough at the moment. My mother who is 67 is changing before my eyes she thinks she fine and sees no change in her self Her partner left because he could not cope any longer. so she has come to live with me and...

    Started by dawn grant‎, 21-11-2007 11:30 PM
    • Replies: 3
    • Views: 944
    22-11-2007, 12:34 AM
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  10. everybody happy

    hello everyone:) i hope that you are all happy today. just remember it will be xmas next month. i hope you all have a good xmas .

    Started by happyray‎, 08-11-2007 09:17 PM
    • Replies: 6
    • Views: 1,005
    20-11-2007, 12:07 AM
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  11. Ideas for Xmas gifts for younger ladies with AD

    Hi, Can anyone offer any advice on what I can get my mum for Xmas? She has early AD but on the decline, she is 55, no real hobbies, no real passion for clothes, music, books etc anymore but I want to get her something that is relevant for her at this stage. I know it sounds like a silly thread to...

    Started by DianeG‎, 29-10-2007 10:31 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 2,593
    19-11-2007, 11:25 AM
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  12. Welcome new users!

    If you have just joined Talking Point, a warm welcome to you from all the forum members. Are you wondering what to do next? You have probably read some of the content of the forum already and a good place to start is to introduce yourself to the other members. If you included some details...

    Started by Brucie‎, 19-11-2007 08:06 AM
    • Replies: 0
    • Views: 6,376
    19-11-2007, 08:06 AM
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  13. Guilt ridden being the only child

    Hi there I am new to this so not sure what to expect really but here goes!!. Have been reading all other posts and feel it is time for me now too. I am 34, I have an only daughter of 14 and my husband works away in Merchant Navy. We have just found out after 2 years that my young mum of 58 has...

    Started by tmitch‎, 02-11-2007 10:40 PM
    • Replies: 12
    • Views: 1,279
    12-11-2007, 09:24 PM
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  14. Help

    Hi My dad was diagnosed with AD a few weeks back at the age of 58 by the neurologist, he has been in hospital for over 2 months now going on 3 and has had numerous blood test, scans etc. He has lost about 2 1/2 stone in that time and is now weight under 9 stone and looks like he had been in a...

    Started by kaz‎, 08-11-2007 04:59 PM
    • Replies: 4
    • Views: 933
    09-11-2007, 12:25 AM
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  15. A fleeting moment.

    I have recently installed a fence and gate at the bottom of the drive to stop Jean escaping and wandering. Part of the daily routine is for me to take the dog out before I go to work. As I turned in the top of the drive I heard a knocking noise and the sound of wailing. Jean was stood holding...

    Started by Grommit‎, 06-11-2007 12:01 AM
    • Replies: 12
    • Views: 2,135
    07-11-2007, 10:15 PM
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  16. Is her pain psychological?

    Hello, my mother is 63 and has severe AD. I would say nearly every day she complains of excrutiating pains in her stomach/bowel area which sometimes even leaves her in tears. She has been seen by so many doctors and carers who all say that there is nothing wrong (in those areas). She did...

    Started by VIB35‎, 07-11-2007 12:20 PM
    • Replies: 5
    • Views: 1,575
    07-11-2007, 06:09 PM
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  17. i'm 33 & husband is 54 with vascular dementia

    this is my first visit to the forum and i'm tired so want to go to bed but wanted to post something seeing as i happened upon it and have just registered, and i hope there may be others in some kind of similar and fairly unique situation. i seek being able to discuss specific issues with...

    Started by stikwik‎, 01-11-2007 12:41 AM
    • Replies: 10
    • Views: 1,339
    05-11-2007, 03:37 PM
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  18. how long isa piece of cake

    no one can possibly care on there own,I now have a 2 caring companys giving my wife care from 10 am till 6 pm 7

    Started by icare2‎, 04-11-2007 01:45 AM
    • Replies: 0
    • Views: 743
    04-11-2007, 01:45 AM
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  19. Dementias Life Expectancy

    i am confused by this subject. part of my research into how to care for my hubby best now has made me wonder how long we have. i KNOW it will vary greatly from person to person, but it seems the most avoided piece of information in all factsheets and information all over the web! i'm sure there...

    Started by stikwik‎, 02-11-2007 12:49 AM
    • Replies: 7
    • Views: 8,270
    02-11-2007, 11:06 AM
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  20. NH decline

    I have been told (not by SW but by hospital) that all NH's have declined to take my husband. They also told me SW were trying to get his status changed to over 65's to get put into a Dementia Unit and getting the funding changed as well. I am not sure what that means as he is 54. Does anyone know...

    Started by chip‎, 01-11-2007 11:49 AM
    • Replies: 7
    • Views: 1,201
    01-11-2007, 09:52 PM
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  21. Magazine article 27/10

    A friend has sent me some pages from a magazine - probably a Sunday paper, but it does not identify itself. Article called "The Vanishing Man" which covers in some detail the situation of a man diagnosed at 43. Family are interviewed too. One of the best articles I've seen on the subject....

    Started by Brucie‎, 01-11-2007 01:43 PM
    • Replies: 2
    • Views: 695
    01-11-2007, 05:40 PM
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  22. Happier times

    I know a lot of times people post for advice and when they are feeling low, but i thought i would just tell you about my mum's birthday which was last friday (26th Oct). She's in a home locally and both my husband and i decided to take the afternoon off to go and see her. She is in the latter...

    Started by JMW‎, 29-10-2007 05:18 PM
    • Replies: 2
    • Views: 677
    30-10-2007, 07:20 AM
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  23. Pigging Awful day

    From the minute she got up, to the minute she went to bed, Jean has been in tears and repeating over and over again that she wants to go home. I told her gently (honestly) to go and she spent 20 minutes in the garden this morning in the pouring rain and howling wind, dressed in nighty, dressing...

    Started by Grommit‎, 28-10-2007 11:54 PM
    • Replies: 12
    • Views: 1,144
    30-10-2007, 12:11 AM
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  24. Pericyazine

    My wife's consultant has decided to prescribe Pericyazine for my wife because of her agitation and aggression. Does anyone have any experience of the use of this drug --its affects and side affects?

    Started by davidw‎, 21-10-2007 07:21 PM
    • Replies: 2
    • Views: 1,291
    29-10-2007, 08:32 PM
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  25. Help with homes for Dad

    Hi My dad was diagnosed with Alzheimer's last Friday after many months of tests and every doctor we asked saying it was not Alzheimer's as it would not come on so quick etc. Dad has been in hospital for 2 months now. It started with a urine infection then urine retention and gone from there he...

    Started by kaz‎, 24-10-2007 01:09 PM
    • Replies: 12
    • Views: 1,036
    29-10-2007, 06:06 PM
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