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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    2 Pages
    1 2
    young dementia
    • Replies: 26
    • Views: 7,107
    27-02-2013, 11:36 PM
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  2. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 2,336
    05-01-2012, 02:18 PM
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  1. blood tests

    Hi to all Just a general discussion point really, don't know what other people think on the topic............ The new blood tests that are (potentially) going to be used for early diagnosis of AD; good or bad? The reason I ask? Well, it the news reports it claims that by finding the...

    Started by MrsP‎, 03-11-2006 09:43 AM
    • Replies: 1
    • Views: 619
    03-11-2006, 01:11 PM
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  2. Dilemma's and decisions!

    Hi all, well I am back from my weeks holiday in Malta.......very nice.........but.. came home to messages from his care home. Basic update.l...........care home concerned about Lionel's mobility problems......Duty doc. at CH wants to reduce his AL medication, and his consultant has said "I need...

    Started by connie‎, 13-10-2006 10:51 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 2,071
    02-11-2006, 03:48 PM
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  3. Very strange evening!!!

    Family arrived for the weekend. (My dear Lionel is in respite0 sON ( ARRIVED ON HIS OWN) Mum, lovely to see you , how well you look. Wow, dining room looks lovely, candles etc. You look good! (0f course I look goood, Lionel is in respite) Rest of familyarrive.........."House seems...

    Started by connie‎, 21-10-2006 12:05 AM
    • Replies: 8
    • Views: 1,135
    27-10-2006, 10:50 PM
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  4. Talking Haven't been on for ages!!

    Hi to all. Yet again it's been months since I've managed to log on (too busy having a baby!!). My Dad is now just over 2 years since diagnosis and progressing slowly. He came to visit over the weekend which was lovely, but he has lost a lot of weight. I noticed a few changes (it's been a while...

    Started by MrsP‎, 24-10-2006 01:46 PM
    • Replies: 2
    • Views: 673
    25-10-2006, 11:50 AM
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  5. Thank you

    I have only just discovered this site over the weekend and have already logged on on numerous occasions. My mum has recently been diagnosed aged 61 and this has been the toughest few months of my and my family's life. I can not believe the amount of tears that have been shed and the amount of time...

    Started by Lillie‎, 23-10-2006 07:22 PM
    • Replies: 6
    • Views: 960
    24-10-2006, 07:05 PM
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  6. Mum's Getting Worse

    Hi The nurse was out seeing Mum last week, I wasn't there because I work. Dad has kept me informed. It seems Mum did really badly in the wee test, I was really down for the rest of the week (and continue to be). The nurse pointed to her (own) watch and asked Mum what it was, Mum then pointed...

    Started by mandyp‎, 04-10-2006 09:57 PM
    • Replies: 2
    • Views: 802
    21-10-2006, 03:16 PM
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  7. Cool bad day today

    Im having a really tough day today! Im having to look after my mum plus now my grandma has come down because she is really ill! (heart attack and a sickness bug) So i have 2 people to look after now! Really struggerling! I dont even have time to think if you know what i mean! hows everyone...

    Started by Lauren‎, 15-10-2006 05:24 PM
    • Replies: 6
    • Views: 1,185
    18-10-2006, 01:00 PM
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  8. Lionel is now 65

    Haven't posted much recently, as life is very fraught and I am very tired........... however we did have a lovely weekend as it was Lionels 65th birthday. I had promised him a party, and even though I had to have the paramedics out in the middle of the night, and he was"completely out of...

    Started by connie‎, 14-09-2006 10:39 PM
    • Replies: 11
    • Views: 1,919
    13-10-2006, 01:12 AM
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  9. Moved: Raising awareness

    Started by babita‎, 13-11-2007 10:18 AM
    • Replies: -
    • Views: -
    11-10-2006, 08:45 PM
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  10. Lightbulb hello all

    Hi everyone, i'm Bill from Coventry and am a young (56)sufferer of Alz,i would like to say a huge thankyou to all my friends at the Coventry branch who have made sure that i can use my perfectly fit body despite the memory problems. If there is anyone out there who would like to share a friendship...

    Started by tryme‎, 08-10-2006 06:44 PM
    • Replies: 1
    • Views: 765
    08-10-2006, 07:52 PM
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  11. Lionel in respite

    I took Lionel into a new care home (very nice) on Sunday, so that I can have 4 weeks rest. (He is self funding). For the first time ever he was upset, and did not want me to leave him there. He has always said that he would go into a home when the time came, and has never made a fuss at going...

    Started by connie‎, 03-10-2006 11:26 PM
    • Replies: 9
    • Views: 1,316
    05-10-2006, 09:25 PM
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  12. My Dad

    I'm 18 years old and my dad is in a home. He has had alzheimers for most of my teenage life and I can tell you, it has been very difficult in so many ways. Unfortunatly, since he has gone in a home, dealing with the emotional complexities that only other carers can understand, means I have...

    Started by Lucindifairy‎, 26-09-2006 11:36 PM
    • Replies: 9
    • Views: 1,377
    05-10-2006, 01:48 PM
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  13. walked out

    Today my husband who is(53) walked out of the house i had to rush to get my shoes on keys as i have a bad leg i couldnt run after him he was just going out of veiw at the top of the street. A neighbour had to help search for him we managed to find him at the main road. He was on the pavement but...

    Started by chip‎, 03-10-2006 06:27 PM
    • Replies: 7
    • Views: 1,097
    04-10-2006, 11:12 PM
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  14. My mum at 53

    hi everyone im a newbie & very upset after 18months of tests me&the family have just been told that my mum of just 53 has dementia i did think it was a memory problem but never thought it would be so serious! im 26 and i cant take it all in so upsetting and all the help i can see where we live...

    Started by natz‎, 27-09-2006 07:29 PM
    • Replies: 8
    • Views: 1,287
    02-10-2006, 12:07 PM
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  15. lights, stairs, hot water

    Today my husband has been going up the stairs every 5mins to the toilet switching on bedroom and toilet lights, running the hot water then coming back down the stairs everything left on . I lost count how many times today i had to go up and switch everything off. I have a problem with my leg and...

    Started by chip‎, 25-09-2006 10:59 PM
    • Replies: 6
    • Views: 1,079
    26-09-2006, 10:18 PM
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  16. Associated Problems

    Hi There, My mother (58) was diagnosed with Alzheimers two years ago, recently she has started to wet herself, sometimes at night, sometimes during the day. It seems to come and go but often occurs when she is in unfamilir surroundings (day trips etc). I am keen to try to find a way of...

    Started by Peter1‎, 19-09-2006 12:16 PM
    • Replies: 5
    • Views: 1,201
    26-09-2006, 09:02 AM
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  17. he wants to go home

    Can anyone tell me what to say to my husband when he gets his coat on at 10pm and wants to 'go home' and can't understand that he is home. He got so terribly upset last night and ended up with what I can only descirbe as a panic attack. He was very agitated and crying and couldn't breathe...

    Started by twink‎, 24-09-2006 08:35 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 2,338
    25-09-2006, 06:40 PM
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  18. What a day!

    :) I am typing this with a very sore arm. I managed to trap my arm in the taxi door this morning, trying to send Lionel off for a couple of hours to the day centre. Centre phoned just before sending him home to say he had a fall in the toilets. Not hurt apparently, but came home wearing a...

    Started by connie‎, 23-09-2006 11:00 PM
    • Replies: 8
    • Views: 1,312
    24-09-2006, 11:02 PM
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  19. The loss of my mother my story

    Iam knew to this site and i think it is realy helpful i lost my mother march the 6th this year. She was diagnosed with alzheimers 8 years at the age of 54 she was 62 when she passed away. Its just been awuful for the whole family for many years i think i did not want to believe she would die from...

    Started by nicetotalk‎, 22-09-2006 10:04 PM
    • Replies: 2
    • Views: 886
    22-09-2006, 11:01 PM
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  20. It's really tough

    My first note, only joined up this afternoon although I have subscribed to AS for a few months now. MY lovely wife Linda was officially dianosed with AD about Christmas 2005 she is just 55, I am 52 and our two devastated daughters are 24 and 20. It has taken about four years for the official...

    Started by James F‎, 03-08-2006 06:32 PM
    2 Pages
    1 2
    • Replies: 24
    • Views: 3,376
    22-09-2006, 09:39 PM
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  21. I wish I understood more

    Having read most of the facts sheets and delved into endless websites, I thought I was starting to understand the disease a little more and was congratulating myself on being able to intrepret gestures, looks and the occasional sentence which would be totally incomprehensible to anyone other than...

    Started by Grommit‎, 18-09-2006 12:49 PM
    • Replies: 4
    • Views: 996
    21-09-2006, 04:46 PM
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  22. Day Hospital

    Hope I've done this right, I haven't got a clue! Steve - hubby, 56 years old - has today gone for his first day at the day hospital. He'd only been gone for around an hour and the lady there rang me and said he is here and he is ok but he's very restless - he has been for about a week now,...

    Started by twink‎, 04-09-2006 12:47 PM
    • Replies: 13
    • Views: 1,668
    20-09-2006, 10:01 PM
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  23. hereditary?

    My mother is 59 and has alzheimers disease. She was diagnosed about three years ago now and it was a terrible shock to us all as no one else in our family as far as we know has suffered from it. However, we don't know mum's biological father. I always wonder about this. If someone has early onset...

    Started by katherine‎, 12-09-2006 08:47 PM
    • Replies: 13
    • Views: 2,057
    19-09-2006, 09:46 AM
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  24. grants Help

    I have to get a new central heating boiler. Done a few phone calls today only to be told that you have to be over 60years old to get a grant for a new one. You can also get a full system in if your 60 or over. My husband has got 7years yet till that age. Why are grants for 60years and over when its...

    Started by chip‎, 14-09-2006 08:51 PM
    • Replies: 1
    • Views: 850
    15-09-2006, 02:11 PM
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  25. Too young for dementia?

    Hi all x This is the second time of typing this as forgot to login!! I am 31 and afraid for my mental health. It started with my speech where I trip over my words or can't think of a word. Now my memory seems to be affected. It started concerning me a couple of months ago. On the...

    Started by foggy girl‎, 14-09-2006 02:53 PM
    • Replies: 1
    • Views: 862
    14-09-2006, 02:59 PM
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