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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 17,163
    02-12-2014, 03:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 2,235
    24-02-2014, 05:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,344
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,464
    05-01-2012, 03:18 PM
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  1. Speeding up

    My husband is 62 and was diagnosed with Alzheimers a few years ago. He usually walks very slowly and does everything in a very purposeful manner but in the last week he has started to walk really quickly at certain times of the day and jumps from one thing to another. He has also become more...

    Started by Bollywood‎, 28-08-2014 07:39 PM
    • Replies: 2
    • Views: 534
    08-09-2014, 07:41 PM
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  2. Convincing AD sufferer to accept respite

    How do you manage to convince your AD sufferer to accept respite care for a few hours a week when they have refused it? Any advice would be useful. My dad is primary carer for my mum who is 59 and early onset. She is at the point now where she thinks people in the telly are real, everything has...

    Started by Kate1983‎, 10-08-2014 03:36 PM
    experience, help and assistance, respite
    • Replies: 7
    • Views: 1,066
    08-09-2014, 07:50 AM
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  3. Husband is 61 he need activity during the day but not day centres

    I'm looking for things to do for my husband to do during the day, as he get very low. I was thinking of clubs of social clubs for his age group, but where do I look. I don't want day centres.

    Started by carolannrose‎, 08-11-2013 05:48 PM
    • Replies: 9
    • Views: 1,702
    07-09-2014, 04:23 PM
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  4. Surrey / SW London Area

    Hello all! I've been reading really helpful posts for a few months now and felt like joining in with discussions. Straight to the point... I was wondering whether anyone knew of any good groups or activities a young (55 year old) mum could participate in near Epsom/Banstead/Esher/Wimbledon?...

    Started by Kimberlumps‎, 30-08-2014 08:19 AM
    carer, early onset, hygiene
    • Replies: 6
    • Views: 598
    31-08-2014, 10:01 AM
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  5. Dementia unfriendly DVLA

    Last year, my hubby declared his dementia to the DVLA and was given a one year's limit on his licence which was due to be reviewed in May this year. The DVLA sent out the renewal stuff 90 days before the licence expired, which we quickly returned. We've heard nothing since then. So we were a bit...

    Started by bigsis‎, 28-08-2014 02:11 PM
    • Replies: 3
    • Views: 579
    30-08-2014, 02:24 PM
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  6. Talking to herself

    Hi my mum has been diagnosed now over 3 years but has deteriorated alot this last 3 months, more than iactaully realised Mum is talking to herself constantly now, shes looking at items say a chair and speaking to it like its my dog, she was looking at books on my table and started talking to them...

    Started by mcflod‎, 27-08-2014 02:09 PM
    • Replies: 3
    • Views: 475
    27-08-2014, 03:34 PM
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  7. Smile The Great North Run

    Hi everyone, I haven't posted for a while, but I look through most days. Hubby has now finished work but we are fighting that cause, its an up hill struggle but we will get there. I'm so proud of him he's doing The Great North run with our son as he would be unable to do it on his own and he has...

    Started by Brannybob‎, 24-08-2014 01:41 PM
    • Replies: 0
    • Views: 300
    24-08-2014, 01:41 PM
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  8. Any 16 year old carers on here ?

    Hello, my dad started with dementia when I was about 12 and this year we had to make the most difficult decision to put him in a nursing home. His violence had begun to escalate and he was very dependent on me and my mum. I feel very guilty that he is in a nursing home as I feel we should be caring...

    Started by emmamarie‎, 09-08-2014 12:14 PM
    • Replies: 2
    • Views: 555
    22-08-2014, 08:47 PM
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  9. Our family is being torn apart

    Hi My name is Claire (30) and my step-father Gareth (50) has familial early onset alzheimer's disease. He was diagnosed at 49 but showed symptoms for about a year before that. He has a large family background of this illness and his mother died of it also. He lives at home with my mum (46)...

    Started by cmcc‎, 22-08-2014 05:38 PM
    • Replies: 3
    • Views: 602
    22-08-2014, 07:47 PM
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  10. Struggling with family life (encouragement needed please)

    My hubby is 33 and has been diagnosed with vascular dementia. I am struggling to cope with the bitterness of dealing with his mood swings and complete lack of belief in what I have repeated back to him re his lack of patience with our children (one who is autistic) and inapprioprate behaviour when...

    Started by Warrior Mum‎, 02-08-2014 05:49 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 1,660
    21-08-2014, 08:46 PM
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  11. I am making the most of my sister.

    I really feel I want to give something back to this wonderful forum you have all helped me so much in coming to terms with my sisters diagnosis of fronto-temporal dementia. Of course I have still been following the forum because I still need to touch base with all the support that is given freely...

    Started by mumbasi‎, 21-08-2014 11:29 AM
    • Replies: 4
    • Views: 483
    21-08-2014, 05:45 PM
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  12. Question I have Alzheimers

    Hello all out there. I'm new to this so sorry if \I don't get things right. I have recently been diagnosed with Alzheimers and am still in full time work. Does this apply to anyone else out there? H:confused:Have you told your employers and how have they reacted?

    Started by Wendy7713‎, 18-08-2014 02:26 PM
    • Replies: 7
    • Views: 724
    20-08-2014, 12:45 PM
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  13. Please help Have you been in a similar situation

    I am going to my parents tomorrow. I go up and stay overnight every Wednesday. My mum has usually not had a shower and in the same clothes. Her hair is done but its not clean. I worry that she is not showering enough. Last time I was up there I convinced her to get into the shower but she could not...

    Started by LoriAustralia‎, 11-08-2014 11:46 PM
    • Replies: 8
    • Views: 919
    20-08-2014, 08:47 AM
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  14. I'm baaaaack! :)

    I thought I'd added the forum icon to my iPad, but either I didn't or somehow deleted it. Missed you folks. It's been a rough past few months but am smiling. No use fretting about what I can't even remember. :p I'm going to see a neurologist who specializes in Complex Migraines and stroke...

    Started by Chaiah‎, 16-08-2014 02:21 AM
    • Replies: 3
    • Views: 527
    16-08-2014, 09:48 AM
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  15. Unhappy information

    Is there a age that people under 65 donot go into a old peoples home when thay cannot be cared for no more at home is it legal fror under 65years:confused:

    Started by ten tiny finger‎, 07-08-2014 08:54 PM
    • Replies: 7
    • Views: 575
    08-08-2014, 07:07 AM
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  16. just heartbroken

    Hi I have not written on this forum some time ago but things since have been so difficult and overwhelming i have just 'got on with it'. Mum is 67 and was diagnosed with Alzheimer's with Frontal lobe damage 2.5 years ago. I appreciate this is for those under 65 however that's how it feels really...

    Started by mickeyblueeyes‎, 18-06-2014 12:22 PM
    • Replies: 11
    • Views: 1,488
    01-08-2014, 05:36 AM
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  17. New member. Mum is 62 and has been living with AD for at least 12 years

    A disease called Alzheimer’s Written in dedication to all the families living with Alzheimer’s and to my mum, dad and sister whom are riding this journey with me. Families living with Alzheimer’s seem to get isolated for it is like a death in a family, people do not know how to react or are...

    Started by LoriAustralia‎, 31-07-2014 08:02 AM
    • Replies: 0
    • Views: 469
    31-07-2014, 08:02 AM
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  18. Dad has Alzheimer's and my mum can not cope!

    Hi all, I would like to introduce my situation and any comments / help would be much appreciated. My dad was diagnosed with Alzheimer's about 4 years ago and he is now 58. I lived out of the country for 3 years recently and came back especially to spend time with my dad before he gets any...

    Started by Help1‎, 15-07-2014 11:09 AM
    • Replies: 7
    • Views: 852
    29-07-2014, 11:45 AM
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  19. Refuses to go to bed!

    Hi all haven't posted on here for a while but need some advice if possible. Just a quick update my mum was diagnosed 4and half years ago with early onset at age 59. There has been quite a dip in mums understanding and knowing people recently. However this past couple of weeks she is refusing to go...

    Started by lucky‎, 26-07-2014 10:04 PM
    • Replies: 4
    • Views: 638
    29-07-2014, 11:27 AM
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  20. I am 60 and grew up with Jimmy Hendrix and motown

    I feel I am on a mission, i have been trying to find groups i can attend for under 65s with dementia. none. They have tried very hard to persuade into going to a singing for the brain, when i asked what they sang it was all music from the years before and around the time i was born. The only...

    Started by avril‎, 26-07-2014 11:29 AM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,131
    29-07-2014, 11:03 AM
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  21. Mum has early onset dementia at 55

    Hi I've just joined. I'm currently 17 and my mum has early onset dementia. She has had it for about four years now and over the past year has got increasingly worse. To be honest I just feel like I'm crumbling inside and nothing that I can do to try and help myself makes me feel any better because...

    Started by Liv‎, 15-05-2014 11:22 PM
    2 Pages
    1 2
    • Replies: 18
    • Views: 2,277
    27-07-2014, 10:37 PM
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  22. Eileenelanor

    My husband was diagnosed with Early Onset Alzheimers when he was 67, gradually he has declined but not as we expected, it seems very slow deteriation but also very hard for me because he has this obsessive behaviour, and is very emotional gets angry and jealous of our Grandchildren or anyone that...

    Started by eileenelanor‎, 16-07-2014 10:54 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,029
    27-07-2014, 08:12 PM
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  23. Euthenasia, yet again, i thought we were over that!

    After silence on the subject for a year or so, mum's back at me again to do something about euthenasia for her. I went to visit for her 60th birthday for a few days with my children, and the moment my dad left the house she was talking about it again, inferring that I should help her to get some...

    Started by zeeeb‎, 25-07-2014 09:15 AM
    • Replies: 6
    • Views: 594
    26-07-2014, 12:24 AM
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  24. Buckinghamshire talking groups or cafes

    Hi, Does anybody know of any cafes or groups to go to in and around the Buckinghamshire area. Im based in Aylesbury. Thanks.

    Started by Tinkerbell123‎, 17-07-2014 01:02 PM
    • Replies: 4
    • Views: 421
    23-07-2014, 09:33 AM
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  25. Unhappy questions

    I am 52 and was diagnosed at 49 with young onset Alzheimer's. I was a plant engineer when diagnosed and haven't been employed since my diagnosis. I know I was in really bad shape when diagnosed, but, now one of my greatest battles is being in denial. I take aricept once daily and namenda twice...

    Started by Jim2374‎, 22-06-2014 05:30 PM
    • Replies: 8
    • Views: 1,060
    19-07-2014, 11:23 AM
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