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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 17,882
    02-12-2014, 03:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 2,468
    24-02-2014, 05:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,520
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,669
    05-01-2012, 03:18 PM
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  1. How to keep my wife's mind active while I'm at work

    I joined TP today. My wife had a confirmatory diagnosis of early-onset posterior cortical atrophy variant of AD earlier this year - she is 52. I am still working, though my employer is very understanding and lets me go home lunchtimes to check up on my wife, and I can stay there all afternoon (to...

    Started by Prospector‎, 30-09-2014 09:24 AM
    2 Pages
    1 2
    • Replies: 16
    • Views: 1,413
    13-10-2014, 02:00 PM
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  2. My husband has early on-set Alzheimer's and I'm new to this site

    Hi to all fellow sufferers My husband is 63 n I'm 45 we have a 6 month old baby girl I'm struggling to cope as I have no family support n find friends avoid us unfortunately my husband was my world n was a financial wizard I find my life lonely n have no idea what to expect or what resources r out...

    Started by Tracyfaria‎, 04-09-2014 11:14 AM
    • Replies: 12
    • Views: 1,578
    12-10-2014, 08:26 AM
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  3. Swan Lake

    Tomorrow we are going to Manchester to see Swan Lake. My sister too has never been to a ballet and wanted to go to one so this is it. It is wonderful that we are having the chance to do all these lovely things. Another sister and a friend are coming too. girls together.

    Started by mumbasi‎, 08-10-2014 11:50 PM
    • Replies: 4
    • Views: 593
    10-10-2014, 11:06 PM
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  4. My husband has early on-set alzheimers and I'm new to this site

    Really haven't figured out how to maneuver around yet. Hello to everyone!

    Started by Missinghim‎, 22-06-2014 06:48 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 2,423
    08-10-2014, 07:42 PM
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  5. Horrible weekend thanks to npower

    Went to my sisters on Saturday to arrange car insurance. Amongst papers was unopened envelope from npower which I opened. The bill had been sent 5th September 2014 and was informing my sister that she owed them 1300 and were increasing her monthly payment from 64 to 321. OMG! I put it straight...

    Started by mumbasi‎, 07-10-2014 06:33 PM
    • Replies: 4
    • Views: 534
    07-10-2014, 11:13 PM
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  6. Should I pursue diagnosis at 45?

    Hello My father died of Early Onset Alzheimers (diagnosed at 60, died at 70). My mother now has Alzheimers (diagnosed at 70, now at end stage). I am concerned for myself having it. I have a dreadful memory and have got lost in places i shouldn't eg how to get out of service centre toilets,...

    Started by sarahjanet‎, 23-09-2014 09:29 PM
    • Replies: 9
    • Views: 980
    07-10-2014, 10:08 PM
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  7. My long rant has disappeared

    I have just typed a long rant about the horrendous weekend I have just had thanks to npower. It was a work of great literature and when I clicked the preview post box it disappeared and the message about the scams came up. I am distraught. How can I get it back? Help please.

    Started by mumbasi‎, 07-10-2014 06:21 PM
    • Replies: 5
    • Views: 449
    07-10-2014, 06:58 PM
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  8. liverpool and sefton

    I set up a support group for younger carers which meets monthly after ascertaining there was nothing local for those of us with problems of trying to work and care for younger people who need to be active but also need some support . If you are interested do get in touch.

    Started by kathleenr‎, 01-10-2014 01:25 PM
    • Replies: 0
    • Views: 336
    01-10-2014, 01:25 PM
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  9. Help with my wife's new medication Arisept

    My wife who is 61 has been diagnosed with Alzheimer's last week and has been prescribed Arisept 5 mg daily each morning since Wednesday . Since this day my wife has been having very bad episodes of confusion and of not recognising myself in the early part of the day she normally would have these...

    Started by Papa‎, 20-09-2014 04:50 PM
    • Replies: 9
    • Views: 834
    01-10-2014, 01:21 PM
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  10. Question PIP assessment, consultation appointment

    Hi, My husband has Frontolobe dementia, he is 61 years old. He was diagnosed last March. I had previously taken him to doctors 2years before with concerns about his mental health and behavior, the doctor said all was fine! Now with diagnosis I was unable to get power of attoney, but the reason for...

    Started by Beckam‎, 26-09-2014 08:24 PM
    • Replies: 3
    • Views: 509
    27-09-2014, 08:20 AM
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  11. What do I do now?

    Hi all, Firstly, I am so sorry you've come across this post because it must mean you are having to deal with this difficult time. I'm 22 years old and last week my 54 year old mum was diagnosed with Alzheimer's Disease after undergoing tests for the last 3 and a half years. We have known...

    Started by Ellapops‎, 23-09-2014 07:48 AM
    early onset alzheimer's, mum
    • Replies: 7
    • Views: 578
    23-09-2014, 02:12 PM
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  12. New member

    Hi I am new to this forum and sadly new to Alzheimer's Papa

    Started by Papa‎, 16-09-2014 02:24 PM
    • Replies: 2
    • Views: 435
    16-09-2014, 03:59 PM
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  13. Medication now being reduced

    Hi all my mums medication is now being reduced as the professionals involved don't think it is helping anymore. I didn't think this stage would come so quick mum has only been on articles 4 years:-( My dad has also been asked to think about respite as he so worn out as she refuses to go bed...

    Started by lucky‎, 07-09-2014 12:24 AM
    • Replies: 2
    • Views: 570
    08-09-2014, 10:50 PM
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  14. Speeding up

    My husband is 62 and was diagnosed with Alzheimers a few years ago. He usually walks very slowly and does everything in a very purposeful manner but in the last week he has started to walk really quickly at certain times of the day and jumps from one thing to another. He has also become more...

    Started by Bollywood‎, 28-08-2014 07:39 PM
    • Replies: 2
    • Views: 570
    08-09-2014, 07:41 PM
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  15. Convincing AD sufferer to accept respite

    How do you manage to convince your AD sufferer to accept respite care for a few hours a week when they have refused it? Any advice would be useful. My dad is primary carer for my mum who is 59 and early onset. She is at the point now where she thinks people in the telly are real, everything has...

    Started by Kate1983‎, 10-08-2014 03:36 PM
    experience, help and assistance, respite
    • Replies: 7
    • Views: 1,144
    08-09-2014, 07:50 AM
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  16. Husband is 61 he need activity during the day but not day centres

    I'm looking for things to do for my husband to do during the day, as he get very low. I was thinking of clubs of social clubs for his age group, but where do I look. I don't want day centres.

    Started by carolannrose‎, 08-11-2013 05:48 PM
    • Replies: 9
    • Views: 1,749
    07-09-2014, 04:23 PM
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  17. Surrey / SW London Area

    Hello all! I've been reading really helpful posts for a few months now and felt like joining in with discussions. Straight to the point... I was wondering whether anyone knew of any good groups or activities a young (55 year old) mum could participate in near Epsom/Banstead/Esher/Wimbledon?...

    Started by Kimberlumps‎, 30-08-2014 08:19 AM
    carer, early onset, hygiene
    • Replies: 6
    • Views: 644
    31-08-2014, 10:01 AM
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  18. Dementia unfriendly DVLA

    Last year, my hubby declared his dementia to the DVLA and was given a one year's limit on his licence which was due to be reviewed in May this year. The DVLA sent out the renewal stuff 90 days before the licence expired, which we quickly returned. We've heard nothing since then. So we were a bit...

    Started by bigsis‎, 28-08-2014 02:11 PM
    • Replies: 3
    • Views: 606
    30-08-2014, 02:24 PM
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  19. Talking to herself

    Hi my mum has been diagnosed now over 3 years but has deteriorated alot this last 3 months, more than iactaully realised Mum is talking to herself constantly now, shes looking at items say a chair and speaking to it like its my dog, she was looking at books on my table and started talking to them...

    Started by mcflod‎, 27-08-2014 02:09 PM
    • Replies: 3
    • Views: 513
    27-08-2014, 03:34 PM
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  20. Smile The Great North Run

    Hi everyone, I haven't posted for a while, but I look through most days. Hubby has now finished work but we are fighting that cause, its an up hill struggle but we will get there. I'm so proud of him he's doing The Great North run with our son as he would be unable to do it on his own and he has...

    Started by Brannybob‎, 24-08-2014 01:41 PM
    • Replies: 0
    • Views: 330
    24-08-2014, 01:41 PM
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  21. Any 16 year old carers on here ?

    Hello, my dad started with dementia when I was about 12 and this year we had to make the most difficult decision to put him in a nursing home. His violence had begun to escalate and he was very dependent on me and my mum. I feel very guilty that he is in a nursing home as I feel we should be caring...

    Started by emmamarie‎, 09-08-2014 12:14 PM
    • Replies: 2
    • Views: 581
    22-08-2014, 08:47 PM
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  22. Our family is being torn apart

    Hi My name is Claire (30) and my step-father Gareth (50) has familial early onset alzheimer's disease. He was diagnosed at 49 but showed symptoms for about a year before that. He has a large family background of this illness and his mother died of it also. He lives at home with my mum (46)...

    Started by cmcc‎, 22-08-2014 05:38 PM
    • Replies: 3
    • Views: 686
    22-08-2014, 07:47 PM
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  23. Struggling with family life (encouragement needed please)

    My hubby is 33 and has been diagnosed with vascular dementia. I am struggling to cope with the bitterness of dealing with his mood swings and complete lack of belief in what I have repeated back to him re his lack of patience with our children (one who is autistic) and inapprioprate behaviour when...

    Started by Warrior Mum‎, 02-08-2014 05:49 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 1,738
    21-08-2014, 08:46 PM
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  24. I am making the most of my sister.

    I really feel I want to give something back to this wonderful forum you have all helped me so much in coming to terms with my sisters diagnosis of fronto-temporal dementia. Of course I have still been following the forum because I still need to touch base with all the support that is given freely...

    Started by mumbasi‎, 21-08-2014 11:29 AM
    • Replies: 4
    • Views: 512
    21-08-2014, 05:45 PM
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  25. Question I have Alzheimers

    Hello all out there. I'm new to this so sorry if \I don't get things right. I have recently been diagnosed with Alzheimers and am still in full time work. Does this apply to anyone else out there? H:confused:Have you told your employers and how have they reacted?

    Started by Wendy7713‎, 18-08-2014 02:26 PM
    • Replies: 7
    • Views: 771
    20-08-2014, 12:45 PM
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