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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 15,201
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,589
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,846
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,902
    05-01-2012, 02:18 PM
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  1. A good news day today

    We went along for our second visit to the local drop in cafe run by the Alzheimer's Society today. My husband was whisked off to play cards and other activities with a nice group of people (he really enjoyed himself) and I was made to feel very much at home by the various group leaders and...

    Started by LynneMcV‎, 07-04-2014 11:41 PM
    • Replies: 6
    • Views: 891
    04-06-2014, 06:30 PM
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  2. Will I hold them all up?

    Before I got my diagnosis, I used to play the tuba. I was a member of a concert band. I haven't played since I had a stroke from which I have now recovered. Following on from that I had tests and finally got my diagnosis of vascular dementia. I have just spent the last 20 minutes playing my...

    Started by john51‎, 03-06-2014 05:19 PM
    • Replies: 11
    • Views: 685
    04-06-2014, 05:31 PM
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  3. Toileting!

    Hi all just need some advice really. My mum was diagnosed with A early onset in 2010. Lately we have noticed a big dip in her understanding and personal hygiene. Feel awful talking about my mum like this but any ideas would be a great help. When mum goes the toilet she now doesn't understand to...

    Started by lucky‎, 28-03-2014 04:36 PM
    3 Pages
    1 2 3
    • Replies: 33
    • Views: 2,202
    03-06-2014, 07:46 PM
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  4. Unbearable behaviour

    I have posted here a few times before, but not for some time. My wife has been diagnosed with Alzheimers now for about 15 months. She does attend a clinic on a regular basis and has been through the various drugs. Amongst other things she is currently on memantine (20Mg) and also Mirtazapine. ...

    Started by nipper‎, 08-02-2014 11:09 AM
    • Replies: 5
    • Views: 1,354
    03-06-2014, 07:01 PM
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  5. Recent diagnosis

    Last week we received the news that my dad has early onset dementia. He is 56, soon to be 57. At the moment he is ok, but struggles with simple tasks eg time, money, and lacks confidence in things like driving. I understand that dementia is different in every person but I'm just wondering if there...

    Started by cmcc92‎, 28-05-2014 01:39 AM
    • Replies: 10
    • Views: 634
    03-06-2014, 03:34 PM
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  6. Alzhemers 2 weeks and starting to accept

    Two weeks ago I got my diagonis off alzhemers (silly me thought it was blond moments). I live on my own but still see my husband we spilt over 6 years ago. I think we still love each other but just cant live in the house. He has said he will care for me as my stages advance which I love him for. I...

    Started by lottie1955‎, 20-05-2014 07:22 PM
    • Replies: 8
    • Views: 651
    30-05-2014, 08:04 PM
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  7. Getting mum to agree to move in with us

    My Mum was diagnosed with Alzheimer's last autumn following about 4 years of tests/investigations after memory symptoms first presented. She is 63 at the moment. She is no longer able to drive and lives alone since my step father died of MND about 7 years ago. We have seen a steady decline in her...

    Started by nickc2312‎, 29-05-2014 07:31 PM
    • Replies: 1
    • Views: 355
    29-05-2014, 07:44 PM
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  8. Feeling lost

    My dad was diagnosed a year ago with dementia he is 53, im struggling to come to terms with what is going to happen and cant really understand what is going on. I find myself sitting and crying we have a very close family but somehow i cant seem to open up to them. My dads my world and my rock...

    Started by Natjohnson‎, 22-05-2014 08:53 AM
    • Replies: 11
    • Views: 671
    27-05-2014, 07:39 AM
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  9. Smile Bensons Disease

    Hi Everyone, This is my first time posting in the forum. I'm Emily (30) and My Mum (59) has recently been diagnosed with early onset dementia, the tests have shown that she has a form of dementia known as Bensons Disease - which I have read only 5% of people with dementia have. Due to the...

    Started by EmilyFB‎, 24-04-2014 10:05 PM
    benson's syndrome, early onset, guilt, pip, posterior cortical
    • Replies: 13
    • Views: 1,054
    27-05-2014, 07:31 AM
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  10. Unhappy Father With Dementia Has No Support

    Please, I apologize for my long rant. My father is in his mid-50's and has been diagnosed with dementia. He is able to recall things that happened decades ago but is very quick to forget things that have happened in the past few days, hours and minutes. He has always had a short temper but it...

    Started by Ambrosia‎, 10-04-2014 07:22 AM
    • Replies: 7
    • Views: 1,026
    23-05-2014, 01:20 PM
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  11. Forgetting diagnosis, should I remind him?

    My OH has early onset AD but he constantly forgets, or thinks he has got better, or that he is part of a giant experiment/conspiracy. Some of these ideas are harmful to his self esteem, so so far I have tried to be straight and honest, particularly since we still have lots more medical appointments...

    Started by Sarahdun‎, 20-05-2014 11:06 PM
    • Replies: 6
    • Views: 626
    22-05-2014, 08:44 AM
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  12. Noticing new things each day

    Hi all, Decided to start. New thread for when I have questions about my mum etc. we have just been given a diagnosis in the last 2 weeks after a years battle. My mum is 56 and has been diagnosed with early onset dementia. My mum is no longer the woman I used to know and I have came to terms...

    Started by NCD1986‎, 20-04-2014 10:53 PM
    • Replies: 3
    • Views: 599
    20-05-2014, 08:22 PM
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  13. Care Homes

    Hi there, I know we are not allowed to post names of homes, however if anyone had a recommendation for a good dementia home in Essex I would be so grateful if they could PM me. We have mum in one now for 7 weeks costing us over 1000 a week, whilst the home looks nice the care is not that great...

    Started by sunshine12‎, 20-05-2014 04:59 PM
    • Replies: 0
    • Views: 285
    20-05-2014, 04:59 PM
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  14. concerns about my mum aged 55

    Hi all, I am reaching out for as much information as possible. My mum has been signed off work since February, he work had noticed she was starting to forget things and lose things and not recognise her purse when she misplaced it. She works in a care home for elderly people so her colleagues...

    Started by NCD1986‎, 23-05-2013 11:44 AM
    • Replies: 9
    • Views: 1,724
    07-05-2014, 05:38 PM
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  15. 'Miss' dad

    My dad is 52 years old, diagnosed with early onset Alzheimer's.* Is a dementia champion, forcing himself to make people aware of this horrible disease.* I'm 16 years old and everything is odd to me, I 'miss' my dad, although he is still here.. Stopped building bikes Stopped driving Diagnosed...

    Started by 16Kate‎, 28-03-2014 11:18 PM
    2 Pages
    1 2
    • Replies: 19
    • Views: 1,412
    02-05-2014, 04:58 AM
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  16. Feeling alone

    Hello everyone, thank you for your answers to the previous message, I honestly didn't think I'd receive any! Currently I am revising for my gcses and I am struggling because I just want to be with my dad. My dad had been in a nursing home for about 3 months now and the last time I visited he didn't...

    Started by emmamarie‎, 30-04-2014 02:06 PM
    • Replies: 5
    • Views: 425
    30-04-2014, 08:12 PM
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  17. Driving Assessment

    Hi Folks My GP and Consultant disagree on if I should be driving or not. I have notified DVLA, and now wait for their machinery to move. The Consultant suggests I look for a driving assessment, but there is no no reason not to drive whilst waiting for one. The GP thinks I should not be...

    Started by john51‎, 29-04-2014 08:19 PM
    • Replies: 4
    • Views: 466
    29-04-2014, 11:51 PM
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  18. Felt stunned..and the Drs voice was all around

    On Tuesday this week I went to see the Doctor to receive the results of my tests. I knew that my memory wasn't working properly but it didn't help the stunned feeling I had when he said the words Vascular Dementia. I can still hear those words, although nothing he else he said went in. My...

    Started by john51‎, 26-04-2014 11:22 AM
    2 Pages
    1 2
    new diagnosis
    • Replies: 19
    • Views: 1,011
    29-04-2014, 10:14 PM
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  19. Diagnosis - How to deal?

    It's been a year since I posted in TP, although I have checked in from time to time and read threads. What a wonderful source of support. The last time I posted I was about to take my Mom (now 54) to see her GP to talk about her cognitive issues for the first time. She was living alone, and I...

    Started by daughter783‎, 24-02-2014 07:46 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 2,682
    28-04-2014, 10:23 PM
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  20. Sleeping Arrangements

    My husband is 53 and I am 49, he was diagnosed about 6 months ago with Picks Disease, I really hate to ask this question as I feel incredibly disloyal but how do other partners deal with sleeping arrangements? I'm getting very little sleep due to my husbands increased sexual needs and when I say...

    Started by johnsoj2‎, 27-12-2013 07:21 AM
    • Replies: 6
    • Views: 1,633
    21-04-2014, 02:45 PM
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  21. how do i keep my wife at home

    wife 54 and they want put her in a home how do I stop them

    Started by motorcross ride‎, 17-04-2014 04:54 PM
    • Replies: 3
    • Views: 587
    17-04-2014, 06:45 PM
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  22. Up date on Garry

    Hello TP as I haven't been on for a little while I thought I'd let you know how Garry's doing. He has now moved into a lovely nursing home. Thankfully we got the CHC funding so he was able to go to the place we had chosen. He has settled in very well. He still has his moments but the carer's cope...

    Started by Lovleemummy‎, 16-04-2014 01:28 PM
    • Replies: 3
    • Views: 423
    16-04-2014, 11:06 PM
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  23. iam new

    Hello there iam a 53 year old male been diagnosed with dementia my name is colin and iam finding really strange that I have dementia at my age. I had an assessment in October by my mental health team having been reffered to them by my go they did a mmse test at my house and I scored 27/30 and for...

    Started by colcol‎, 31-12-2013 09:26 PM
    • Replies: 14
    • Views: 1,841
    15-04-2014, 11:00 PM
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  24. help for carers

    I have a friend whose partner was diagnosed 10 years ago with early onset dementia. He cared for her for eight years b4 she went into full-time care as she can no longer communicate or do anyrhing for herself. He made the decision to move on with his life but has retreated into a shell because...

    Started by maxine_13‎, 07-04-2014 08:53 PM
    • Replies: 1
    • Views: 478
    07-04-2014, 10:23 PM
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  25. 'The Little Girl in the Radiator' Martin Slevin

    Have just finished this wonderful little book. It made me laugh it made me cry and more importantly it made me think again and again about living well with dementia. I only hope I can help my loved one to continue to do this. Thinking of you all on here and out there on this unbelievably...

    Started by mumbasi‎, 02-04-2014 11:49 AM
    • Replies: 7
    • Views: 720
    06-04-2014, 11:08 AM
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