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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 531
    24-02-2014, 04:04 PM
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  2. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 31
    • Views: 12,479
    01-11-2013, 05:07 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,206
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,145
    05-01-2012, 02:18 PM
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  1. Dry Eyes

    Originally posted on Pookies thread -weeping I have only just seen this thread-weeping- and found it very interesting. For the last 3 years my sister aged 58, who has ftd, has been having problems with bright lights, they cause flashes to her eyes. She has been referred to eye department...

    Started by mumbasi‎, 20-01-2014 06:48 PM
    • Replies: 3
    • Views: 425
    20-01-2014, 07:07 PM
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  2. Advice on motivating people with Alzheimer's

    Hi - I am hoping someone out there might be able to help me and my family with some advice. My dad was diagnosed with Alzheimer's a couple of weeks ago aged 64, as you can imagine it came as a huge shock, but he has been told to keep mentally and physically active and cut down on drinking...

    Started by Barbie1‎, 16-01-2014 03:04 PM
    • Replies: 1
    • Views: 474
    16-01-2014, 06:34 PM
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  3. what a topsy turvy life we are living

    Strangest day yet. I do not even know where to start. I know you are all there to support. It ended ok I think. Any way there is no way she wants a dog now.

    Started by mumbasi‎, 15-01-2014 10:54 PM
    • Replies: 1
    • Views: 439
    16-01-2014, 08:21 AM
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  4. support dogs for people with dementia

    I read about the scheme introduced in Scotland that provides a support dog for people with dementia and I wondered if the scheme was being introduced in England. I ask because now my sister has finished work completely she is wanting to have a dog again, she has had one all her life except for the...

    Started by mumbasi‎, 12-01-2014 09:42 AM
    • Replies: 10
    • Views: 679
    15-01-2014, 10:08 AM
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  5. Exciting new Talking Point feature launching in the New Year!

    In the New Year, we are going to be piloting an exciting new service for Talking Point: a chat room, which will be open at set times for ‘live chat’ sessions. What is a chat room? A chat room, also known as ‘live chat’, simply means an online conversation that happens immediately. In other...

    Started by KatherineW‎, 19-12-2013 03:40 PM
    • Replies: 1
    • Views: 383
    14-01-2014, 02:34 PM
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  6. Question Not eating enough to survive

    My mum is 63 with AD that is advancing at a rate! She was taken into respite for 4 weeks as my dad was struggling to cope with her hallucinations, threats of suicide, violence, anger and upset. Since being in the CH she has become more lucid and seems to understand more than she has done for...

    Started by peppapug‎, 11-01-2014 06:12 PM
    • Replies: 1
    • Views: 537
    11-01-2014, 07:21 PM
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  7. my sister too

    My sister too So glad I have found this forum and having read through some of the posts I know I have come to the right place. My sister who is now 57 years young (I am 68) was diagnosed with mild cognitive impairment and some memory loss 2 years ago. She cancelled follow up as she felt...

    Started by mumbasi‎, 01-09-2013 12:05 PM
    2 Pages
    1 2
    • Replies: 18
    • Views: 1,913
    11-01-2014, 06:33 PM
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  8. New and trying to decide what to do with and for mum

    Hi all, I am 35 and my mother was recently diagnosed with early onset Alzheimer's, at the age of 58. Although the diagnosis is recent we think this has been going on for quite some time, it is just now that it is a problem and mum is struggling to live on her own, 200 miles from where I work. I...

    Started by LCH‎, 08-01-2014 02:34 PM
    • Replies: 1
    • Views: 499
    08-01-2014, 03:35 PM
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  9. How can we get more help?

    Hi, My father in law was diagnosed with fronto-temporal dementia 4 years ago, aged 60. My boyfriend and I moved in with him 2 years ago to assess his care needs and put what we needed to in place. We discovered that his current house was not at all suited to his needs and so sold that, bought a...

    Started by shoutingwhisper‎, 07-01-2014 06:39 PM
    • Replies: 5
    • Views: 497
    07-01-2014, 09:11 PM
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  10. Caregiver Affairs

    I'm new to the forums, but I felt I finally had to find an outlet for my current feelings, so I appreciate anyone who is willing to listen. My mom was diagnosed with early onset alzheimer's in her early 50s, about a year and a half ago. We think the symptoms began in her late 40s, and she is now...

    Started by careforlove‎, 06-01-2014 08:12 PM
    • Replies: 3
    • Views: 478
    07-01-2014, 05:26 AM
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  11. Holiday insurance

    I am hoping members here can help me please. We have always had free travel insurance through our bank, came as a perk with the type of account we have. However, it has not been used since hubby was diagnosed with early onset Alzheimers. On checking it does not provide him with cover now....

    Started by mad_geordie‎, 10-12-2013 12:28 PM
    • Replies: 7
    • Views: 654
    04-01-2014, 10:33 PM
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  12. Such a hard day!!!!

    The day didn't start well, at first hubby always knows when I'm trying hurry him along. We had to be at the doctors for 10am so he wouldn't get washed or dressed at first then at the doctors he wouldn't let the doctor examine him :eek: I was then taking him into his respite home for a week (which I...

    Started by Lovleemummy‎, 16-12-2013 08:30 PM
    • Replies: 9
    • Views: 986
    04-01-2014, 11:30 AM
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  13. New here and need some advice

    Hi I am new here, so I hope it is ok to just go ahead and post. My Mum has advanced dementia - she is now 62 and was diagnosed when she was 55. Until this year she lived with my step dad who was a wonderful and loving carer for her. This year he was diagnosed with cancer, which progressed very...

    Started by Megan76‎, 31-12-2013 09:32 AM
    • Replies: 4
    • Views: 382
    01-01-2014, 12:37 PM
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  14. Advice please...feeling low and guilty

    Hi All, I'm new to TP. Mum has early onset Alzheimer's. My sister is Mum's full time carer and I help out as much as I can (I work part time, and have young son and hubby to look after). Mum is declining and I want to help more by giving a monthly sleepover to Mum so Sis can have a proper rest....

    Started by Hope0504‎, 29-12-2013 11:32 AM
    • Replies: 8
    • Views: 542
    29-12-2013, 02:30 PM
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  15. rotonda

    Hi its my first time to talking point, but I am feeling very low. My husband was diagnosed with alzheimers 2011 he currently takes 10mg Aricept, but lately he is getting very angry and telling lies its getting harder to talk to him, people tell me he can,t help it and its not him but I,m finding I...

    Started by rotonda‎, 13-12-2013 04:47 PM
    • Replies: 7
    • Views: 758
    20-12-2013, 05:00 PM
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  16. Really struggling

    My husband was diagnosed with mixed dementia almost 2 years ago. Over the last few months things have got increasingly worse and I am finding everyday and night a challenge. At last the professionals are monitoring his decline and although he doesn't see it this is a support to me. I have already...

    Started by jerocl‎, 03-10-2013 09:19 PM
    • Replies: 13
    • Views: 1,130
    18-12-2013, 10:58 PM
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  17. Question early onset alzheimers activities

    My husband is 61 and was diagnosed with Alzheimers 6 years ago. He is physically very fit and active but is unable now to read or do very much. He finds difficulty speaking. He gets very bored watching TV. Does anyone have any ideas about activities he might be able to do at home? Something...

    Started by SheilaC‎, 09-02-2004 11:22 AM
    • Replies: 9
    • Views: 2,574
    17-12-2013, 06:25 PM
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  18. Middle age and Alzheimer’s.

    Middle age and Alzheimer’s. Hi I’m Phil and my wife Jo was diagnosed with early onset Alzheimer’s July of this year at the ripe old age of 52 Years old. This seems to explain why over the past four years she has been unable to carry out the functions of work and they had been getting...

    Started by phil Maffs‎, 27-11-2013 08:10 AM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,321
    14-12-2013, 09:50 PM
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  19. What happened to our life

    My husband is 45. Recently diagnosed with frontal lobe dementia . My daughter is 14. All our plans, this house is a stepping stone to the bigger house are gone. Now I struggle to pay my mortgage and bills. He's not the man I married , I love him unconditionally but watching him slipping away is...

    Started by lovely.trouble‎, 08-12-2013 09:01 PM
    • Replies: 3
    • Views: 661
    11-12-2013, 03:52 PM
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  20. Question Please tell us about your experience of using Talking Point

    Longer-standing Talking Point users will know that for the last few years, we have carried out a survey about the forum. It’s that time again. :) Our annual survey is a key way for us to keep track of how we’re doing. The more feedback we have from you about your experience of using Talking...

    Started by KatherineW‎, 30-10-2013 04:21 PM
    • Replies: 2
    • Views: 504
    10-12-2013, 04:16 PM
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  21. struggling on my year abroad away from my mum

    As part of my degree, I have to spend this year abroad and it's absolutely killing me. I spent two months in France last May-July which I got through coming back once, but only coming back once a month from Spain just isn't sufficient. I've already been back since September but flights aren't cheap...

    Started by hopefulasever‎, 12-11-2013 11:09 PM
    • Replies: 6
    • Views: 1,121
    09-12-2013, 08:38 PM
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  22. Dad With Picks Disease

    Hi all, I have never thought to post on here but seeing everyone's inspiring threads I thought I would share my story. I am 21 years old and my father is 48 and has a rare form of dementia...pretty far gone now and was diagnosed around five years ago. I still find it hard to deal with some...

    Started by EmmaThrace‎, 17-04-2013 01:14 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 2,781
    08-12-2013, 08:36 PM
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  23. Question Step mum has Alzheimers

    Hi All, My wonderful step mum has Alzheimers; which she has sadly had for several years now. My Dad is her carer but things are becoming increasingly difficult for him as she has started lashing out (Kicking, slapping and punching him). She does go to a day care centre twice a week and recently...

    Started by LianneA‎, 08-12-2013 11:34 AM
    • Replies: 2
    • Views: 426
    08-12-2013, 08:25 PM
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  24. Inheriting demenia

    Hello I am new to the forum. My late mother developed alzheimer's in her early 70's and my maternal grandmother also had alzheimers, but developed it in her early 80's. A neighbour, whose husband has dementia, said that if you are over 50, I am in my early 50s but showing no signs of dementia,...

    Started by Surrey24‎, 26-11-2013 07:25 PM
    • Replies: 4
    • Views: 827
    08-12-2013, 12:36 PM
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  25. FTD Advice Desperately Needed, Care Fund in place but carers cannot cope

    Dear TP Family Some of you may know me already and my story and battle with Social Services. My mum is 67 and has FTD. She was diagnosed with Dementia some two years ago in Nov 2011. Through my own efforts and much support from the FTD Support Group and I learnt about getting mum accurately...

    Started by sweetmole‎, 04-12-2013 08:43 PM
    • Replies: 7
    • Views: 735
    06-12-2013, 10:15 PM
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