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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,176
    24-02-2014, 04:04 PM
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  2. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 31
    • Views: 14,232
    01-11-2013, 05:07 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,602
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,627
    05-01-2012, 02:18 PM
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  1. iam new

    Hello there iam a 53 year old male been diagnosed with dementia my name is colin and iam finding really strange that I have dementia at my age. I had an assessment in October by my mental health team having been reffered to them by my go they did a mmse test at my house and I scored 27/30 and for...

    Started by colcol‎, 31-12-2013 09:26 PM
    • Replies: 14
    • Views: 1,739
    15-04-2014, 11:00 PM
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  2. help for carers

    I have a friend whose partner was diagnosed 10 years ago with early onset dementia. He cared for her for eight years b4 she went into full-time care as she can no longer communicate or do anyrhing for herself. He made the decision to move on with his life but has retreated into a shell because...

    Started by maxine_13‎, 07-04-2014 08:53 PM
    • Replies: 1
    • Views: 454
    07-04-2014, 10:23 PM
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  3. 'The Little Girl in the Radiator' Martin Slevin

    Have just finished this wonderful little book. It made me laugh it made me cry and more importantly it made me think again and again about living well with dementia. I only hope I can help my loved one to continue to do this. Thinking of you all on here and out there on this unbelievably...

    Started by mumbasi‎, 02-04-2014 11:49 AM
    • Replies: 7
    • Views: 668
    06-04-2014, 11:08 AM
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  4. Angry Hardworking Father Has Dementia

    My 57 year old father was recently diagnosed with vascular dementia. The past few years have been extremely difficult on my family, my mother had two major heart attacks at the age of 50-53 and my fathers younger sister died which resulted in him blaming himself. He is a strong man who can do...

    Started by Ambrosia‎, 04-04-2014 06:16 AM
    • Replies: 2
    • Views: 429
    04-04-2014, 04:18 PM
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  5. When is it time to move from Residential to Nursing care ?

    My husband is 65. diagnosed 6 years ago he went into residential care just two years ago. He is totally mute. Further scans have shown that he has had a number of small strokes and now cannot support himself to walk at all. It takes two members of staff to take him to the bathroom or move him...

    Started by Worried Milly‎, 30-01-2014 01:02 PM
    • Replies: 8
    • Views: 1,151
    31-03-2014, 10:30 PM
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  6. The best laid plans.....

    Today has been hectic. Over the weekend my husband received news that an uncle of his had passed away in Scotland - and the funeral is going to be this Wednesday. It's taken a lot of last minute planning but I think we are now ready to go! Unlike last March, when my husband made the...

    Started by LynneMcV‎, 24-03-2014 06:03 PM
    • Replies: 8
    • Views: 775
    30-03-2014, 10:02 PM
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  7. Facing ill health retirement meetings, what do i need to ask ?????

    I am 53' currently on long term sick leave , & it's becoming more and more obvious that I will not be able to return to work ( I am a community nursing sister ) , & I know in my heart I would no longer be safe to do the job I love so much :(. .......I have my first ' official ' meeting this week...

    Started by Dolly27‎, 09-01-2012 09:52 AM
    • Replies: 8
    • Views: 2,199
    22-03-2014, 01:57 PM
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  8. ESA Benefit

    Hi does anyone have any experience claiming ESA. I was put into the work related support group, I asked them to reconsider with help from MIND. I have now received a letter to say they are looking at the evidence again and will possibly phone me to ask more questions. I am worried they may phone me...

    Started by avril‎, 22-03-2014 09:43 AM
    • Replies: 2
    • Views: 493
    22-03-2014, 10:35 AM
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  9. Please help. Don't know which way to turn.

    Hi all My husband has Alzheimer's and is 'under' 65. He is having troubles at work and think sadly he will have to pack it up. Does anyone have the experience of the benefits he is entitled to. I would be grateful for a list as its hard to get a clear ideal of the whole situation from the...

    Started by Reds‎, 20-03-2014 07:09 AM
    • Replies: 7
    • Views: 727
    22-03-2014, 10:23 AM
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  10. 59yr old, what happens now?

    My friends 59yr old brother is in the process of being diagnosed. He has always been 'different' he has never married and lived with his mum until she passed away about 15yrs ago ( ex LA house which he is paying for) My friend only realized the extent of the problem a couple of months ago when...

    Started by Jess26‎, 20-03-2014 05:05 PM
    • Replies: 1
    • Views: 487
    20-03-2014, 05:17 PM
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  11. Why my Dad? How much more!!

    Hi, I've posted on here a couple of times about my Dad, who was diagnosed with Early Onset Dementia just over a year ago at just 59 years old, it's been a tough year coming to terms with his diagnosis and now we have had a new blow to deal with! Last Friday we were told he has a very rare tumour in...

    Started by Janey_B_‎, 08-12-2013 11:27 PM
    3 Pages
    1 2 3
    • Replies: 37
    • Views: 3,155
    14-03-2014, 09:32 AM
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  12. Does it ever end?

    So, I've never written about this before, but tonight I really feel the need to. My dad is 63 + death still evades him; it's not fair- my heart breaks for him every time I see him lying in that hospital bed, for it has been a long and slow process. Dad had his first stroke which saw the onset...

    Started by louie_clarkie‎, 23-02-2014 01:33 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,457
    12-03-2014, 02:24 PM
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  13. A visit to the local branch of the Alzheimer's Society today.

    I finally got around to visiting the local branch of the Alzheimer's Society with my husband today - and I'm glad I did. I had heard some time ago that the local branch runs a regular activity group for people with early onset dementia. I suppose, when I first heard about the group, we were at...

    Started by LynneMcV‎, 10-03-2014 11:02 PM
    • Replies: 1
    • Views: 460
    10-03-2014, 11:57 PM
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  14. New here and just looking for some help.

    Hello everyone, l guess I'm just seeking advice or reassurance. I'm 26, male, with sudden onset symptoms that are very similar to dementia. I don't have any history of it in my family but my fears are driving me crazy. It started about 2 months ago while playing poker at Mohegan sun. I went to...

    Started by Mjs72287‎, 05-03-2014 08:46 PM
    advice, scared, sudden onset, young
    • Replies: 10
    • Views: 1,111
    08-03-2014, 04:34 PM
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  15. Am I giving in to easily.

    So many questions ??? Things have come to ahead so quickly. My hubby is becoming more regularly aggressive, I am quite small next to my husband. When he becomes agitated I become quite scared. He sometimes (not all the time) refuses to let me change him/wash him/wets the bed at night then won't...

    Started by Lovleemummy‎, 24-01-2014 08:39 AM
    4 Pages
    1 2 3 4
    • Replies: 45
    • Views: 3,640
    07-03-2014, 10:47 PM
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  16. I have alzheirmes and my husband is in hospital

    I am having a bad two weeks, last wee esa have put me in the work related group, then my husband was taken ill and sent to hospital. I have been through all emotions from been scared, guilt, sad, you name it I have had it. Now they tell me he can come home tomorrow. although its good to have him...

    Started by avril‎, 06-03-2014 06:06 PM
    • Replies: 12
    • Views: 1,071
    07-03-2014, 08:52 AM
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  17. How to deal with different alzheimers situations

    Hi Iam a carer for my wife who has alzheimers l have no support from family or friends l learn how to deal with different situations as they happen but now and a gain l need to talk to someone for advice. I don,t know what to say to my wife when she says \ when am l going home \ where is my...

    Started by ASPIRE‎, 09-01-2014 01:04 PM
    • Replies: 13
    • Views: 1,478
    05-03-2014, 12:51 PM
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  18. Smile I have no one to talk to about my Early Onset

    I am 50 and have no one to talk to. I live in Alabama where folks believe you should fend for yourself and do not offer any help with this disease. I will never try to tell another soul around here my condition. They seem to think Alzheimer does not exist or deserve any help. There are no support...

    Started by fossilsol‎, 28-02-2014 02:53 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,152
    03-03-2014, 10:14 AM
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  19. Question Small Vessel Disease

    Hello: I am Pearl11 and I was diagnosed with small vessel disease a couple of years ago ar age 62. We moved right after I saw my doctor one time. He told me what was discovered by MRI and told me to take am aspirin every day to help keep blood flowing. I read about the disease and when I went to...

    Started by Pearl11‎, 29-12-2013 07:01 AM
    age, headaches, small vessel disease
    • Replies: 7
    • Views: 856
    02-03-2014, 11:37 PM
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  20. Early Onset - What would benefit you?

    Hi, I'm just wondering if I can pick your brains and get some ideas for a moment please. My husband is recently diagnosed at 62 and is still fit and active. We would like to meet others in our area in a similar position. I have been to the local Memory Cafe but although a great group, it...

    Started by JigJog‎, 20-12-2013 11:01 AM
    2 Pages
    1 2
    • Replies: 15
    • Views: 2,152
    01-03-2014, 11:13 PM
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  21. 54, mother of two grown daughters, married 27 yrs, early onset dementia

    (Thank you, Grannie G) Diagnosed 5 Dec 2013 I can't even remember my own age, anymore, without resorting to using a calculator after looking at my iPad calendar. I view three different colors and, as hard as I try, I can't remember them - never mind in order - even when looking at them. My...

    Started by Chaiah‎, 26-02-2014 08:35 AM
    2 Pages
    1 2
    • Replies: 20
    • Views: 1,310
    28-02-2014, 02:29 PM
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  22. Suggestions to help with communication

    I've noticed that there are issues between caregivers/providers and those with dementia, and perhaps Alzheimer's. It seems that often the person diagnosed with dementia begins to lose communication/language skills - as have I. It can be extremely frustrating. Sometimes dealing with accepting the...

    Started by Chaiah‎, 27-02-2014 06:31 PM
    • Replies: 3
    • Views: 444
    27-02-2014, 07:26 PM
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  23. 42yr old female diagnosed 3 days ago

    Hello My name is Jacqueline, I have just turned 42 years old and I was told on Friday (21st Feb) that I have Vascular Dementia and I just wanted to come and introduce myself to you all as I think I may become a regular visitor (and possibly poster) now that I have a confirmed diagnosis. I really...

    Started by YoungTimer‎, 24-02-2014 10:55 PM
    • Replies: 10
    • Views: 1,148
    26-02-2014, 12:03 PM
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  24. tired of losing my mum :(

    My mum was diagnosed exactly three years ago today and I feel a bit of a wreck. I'm so tired of continually losing her, I just want her back :( she was diagnosed when she was 55 and I was only 19, I expected that by the age of 22 I'd be able to adjust and cope but it seems harder now than it did...

    Started by hopefulasever‎, 18-02-2014 03:02 PM
    • Replies: 3
    • Views: 610
    24-02-2014, 08:32 PM
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  25. Trying to understand Korsakoff Dementia

    Hi everyone, I've joined this forum to try and connect with anyone who is dealing with a Korsakoff Dementia patient. This is a non-degenerative dementia that affects the person's short-term memory, along with lack of insight that there is a problem at all. This combination of deficiencies is very...

    Started by Ukiba‎, 22-08-2010 11:45 PM
    2 Pages
    1 2
    korsakoff dementia
    • Replies: 16
    • Views: 7,036
    15-02-2014, 10:49 PM
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