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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 19,161
    02-12-2014, 02:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 2,963
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,862
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 6,092
    05-01-2012, 02:18 PM
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  1. Hospital discharged as "medically fit" despite having dementia

    Just a general concern about the hospital definition of "medically fit" for patients with dementia. My brother was discharged with this assessment despite the fact that he has (and had been diagnosed with) dementia. I appreciate the hospital wanted to free the bed but feel the NHS should not have...

    Started by Kevinm100‎, 19-12-2014 03:52 PM
    hospital discharge, medically fit
    • Replies: 2
    • Views: 504
    19-12-2014, 07:37 PM
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  2. OH recently diagnosed with Alzheimer's...now what?

    My husband of 30+ years was recently diagnosed with young-onset Alzheimer's at the age of 56 (I'm 52, and our daughter is 19). He has been unemployed since 2012 having been made redundant from his senior contracts manager role for a large construction firm. He does a little bit of tidying up work...

    Started by Gem62‎, 15-12-2014 08:25 AM
    • Replies: 4
    • Views: 509
    15-12-2014, 08:59 AM
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  3. Hi. First time poster.

    Hello. I have just joined as I am hoping to find some advice on an unpleasant situation. A thousand apologies if I am posting out of turn, or in the wrong place. My Mother is 67 and has been suffering with the disease for years. It was early onset dementia, apparently. I am her only...

    Started by mrtle3‎, 10-12-2014 05:17 PM
    • Replies: 3
    • Views: 572
    10-12-2014, 06:41 PM
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  4. Confused about early onset dementia

    Hi I'm not sure if anybody will be able to help me but I don't know where else to look for advice. I've recently found out that my mum (55 years old) has been struggling with her memory and doing simple calculations such as working out the difference between two times, eg. how long between 8:30...

    Started by plunderbunny‎, 04-12-2014 08:30 PM
    early onset alzheimer's, family history, genetics
    • Replies: 8
    • Views: 1,386
    09-12-2014, 08:49 PM
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  5. Vehicle Tax Reduction

    Hi, Just thought I'd mention this in case it's of use to anyone. My OH is early onset and has just had his driving license extended for another year. I have applied for a reduction on his car tax and it has all gone through without any problem. Hope it's of use to others. :) You can get a 50%...

    Started by JigJog‎, 06-12-2014 11:06 AM
    • Replies: 7
    • Views: 775
    07-12-2014, 04:46 PM
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  6. Update and just shock at the speed

    Hi All - Hope you are all well. I've not been on for ages as life has been so busy but I feel myself needing your support - I appreciate that sounds incrediably selfish and I apologise. I dont expect anyone to remember me so I'll refresh a few memories; my mum is 55 and has Early Onset AZ...

    Started by XY123‎, 28-11-2014 04:24 PM
    • Replies: 3
    • Views: 681
    01-12-2014, 05:01 PM
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  7. grandma has dementia. need advice please

    Hi my grandma has not long been diagnosed with dementia, a couple of weeks ago my grandad pasted away (her husband), since then grandma has been living with my mum and dad. Both my parents work and i no longer live at home, and all the rest of her family live 200 miles away. My dad does alot of...

    Started by zoey‎, 23-11-2014 02:39 AM
    • Replies: 2
    • Views: 565
    23-11-2014, 03:51 PM
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  8. ATOS Assessment and Alzheimers

    Hello all, frustrated Newbie here. My husband, 54, was diagnosed with Alzheimer's Disease in August. The diagnosis came after more than a year's worth of tests and waiting. At the start of the investigations into his cognitive problems, he was offered a new job (having been made redundant in...

    Started by Magicmuffin‎, 05-11-2014 01:49 PM
    • Replies: 11
    • Views: 1,413
    20-11-2014, 09:33 PM
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  9. Thumbs down Harder than I thought

    Hello, I'm 25 and my mum has been recently diagnosed with dementia with lewey bodies she's 62, however the symptoms have been apparent for a while now. Although i have a lot of knowledge about this disease as I am a manager in residential homes for adults with learning disabilities, I am really...

    Started by GJBH‎, 19-11-2014 10:03 PM
    • Replies: 1
    • Views: 490
    20-11-2014, 08:32 AM
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  10. Mild Cognitive Impairment.

    Hello everyone. I have recently been diagnosed with MCI and have just started memory tests to find out which areas are affected. I am in my fifties but have been complaining to doctors about my failing memory since I was in my thirties. I have severe emphysema and severe sleep apnoea and the...

    Started by Tangled‎, 11-10-2014 01:10 AM
    • Replies: 6
    • Views: 1,150
    14-11-2014, 12:21 AM
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  11. tired of losing my mum :(

    My mum was diagnosed exactly three years ago today and I feel a bit of a wreck. I'm so tired of continually losing her, I just want her back :( she was diagnosed when she was 55 and I was only 19, I expected that by the age of 22 I'd be able to adjust and cope but it seems harder now than it did...

    Started by hopefulasever‎, 18-02-2014 03:02 PM
    • Replies: 11
    • Views: 2,210
    11-11-2014, 03:14 PM
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  12. things to do

    My husband is 64 and has been diagnosed with early onset for nearly five years. He has no hobbies now apart from tv and music.he cannot write so crosswords etc are out of the equation as with jigsaws.any ideas as to how to occupy him and stimulate an interest in something

    Started by freddieandamy‎, 26-03-2012 10:54 AM
    • Replies: 9
    • Views: 2,001
    10-11-2014, 05:23 PM
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  13. Big plus to enormous low

    I have recently started going into a local junior school as a volunteer to hear children read. It's brilliant. The teachers treat me as if I still know something about education and really seem to want to talk about my classroom experiences. Its great seeing the children gain confidence and want...

    Started by john51‎, 06-11-2014 04:21 PM
    • Replies: 8
    • Views: 723
    07-11-2014, 03:02 PM
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  14. my son was diagnosed with kosakoffs dementia at 43.

    Initially he was sectioned into care whilst assessments were made. He was place in an E.M.I. care home 15 months ago. While my son has been very happy and content for the main part. His condition has steadily deteriorated. He is very unstable one his feet. He is also pathetic and fixates. The most...

    Started by puzzledpat‎, 25-10-2014 03:00 AM
    • Replies: 14
    • Views: 1,399
    07-11-2014, 08:31 AM
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  15. Finding soiled underwear hidden

    Hi, I'm sure there are many of you that have been in the situation that I'm finding myself in at the moment, and I'd really be grateful for any help or advice you could give me. My husband is suffering from Alzheimer's and was diagnosed a year ago at the age of 62, Just recently, I have...

    Started by JigJog‎, 15-10-2014 02:41 PM
    • Replies: 12
    • Views: 1,453
    06-11-2014, 10:22 PM
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  16. How long have we got ?!

    Hello I am 66. My wife is 62. She has been experiencing mild cognitive impairment for about 4 years. Symptoms have included short term memory loss, occasional mild confusion when travelling, difficulties reading, some visio-spatial difficulties, and problems with finance etc. All fairly classic...

    Started by Nonstop‎, 04-11-2014 06:52 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,523
    05-11-2014, 10:37 AM
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  17. Do I still need LPA

    Went to bank Tuesday to transfer some money from my sisters savings to her current account so she could sign cheques to give me for recent holiday, visit to ballet etc. Last time we did this at the counter and as my sister too did not really know which account etc we were talking about I felt as if...

    Started by mumbasi‎, 11-10-2014 08:26 PM
    • Replies: 4
    • Views: 806
    31-10-2014, 08:21 PM
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  18. Mum with Early-Onset (Moderate level) and I live abroad-Advise please

    Hi I am 29 years old professional living in London. My Mum (58) has early onset Alzheimer's for the past 3 - 4 years and is living in Ireland with my dad and older brother (33). My younger sister (24) is living abroad also teaching English. She is due home in March/April but will be looking to...

    Started by fenners505‎, 17-10-2014 07:12 AM
    living abroad, parent with early onset, when to move home
    • Replies: 8
    • Views: 1,033
    22-10-2014, 11:31 PM
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  19. Moved: cardiff get together

    hi all, Just been reading a few posts about a possible get together in Cardiff, I am still finding my way around the site so please bear with me lol,,,, I think the posts are in groups? if anyone would be interested in a meet up, although I have no experience of this I could look up some...

    Started by briana‎, 20-10-2014 08:00 AM
    • Replies: -
    • Views: -
    20-10-2014, 07:58 AM
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  20. My mum passed away

    My dear mum passed away on Thursday, aged 60, following her diagnosis at 50. I can't help beating myself up about not being with her more when she was in the care home and feel like the fact I have a young family myself was just an excuse I used and the fact that mum was over an hour away due to...

    Started by KezzieB‎, 18-10-2014 08:57 PM
    • Replies: 7
    • Views: 751
    19-10-2014, 06:29 AM
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  21. I'm new to this

    Hello I have never used a chat room but thought it might be worth giving it a try. I care for my husband who has Altzhiemers. I have been aware of symptoms for the last five years but he was not diagnosed until last November

    Started by Raz‎, 06-10-2014 05:40 PM
    • Replies: 3
    • Views: 694
    18-10-2014, 10:09 AM
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  22. My Dad was diagnosed with AD yesterday

    My 57 year old father was diagnosed yesterday. I am 25 living about an hour aways. Its been a pretty quick decline for him, so this last year as a whole has been a period of pretty rapid adjustment.. Even though we knew something was wrong, and we suspected AD, having the specialists confirm...

    Started by cdubs‎, 11-10-2014 01:27 AM
    • Replies: 9
    • Views: 999
    17-10-2014, 11:22 PM
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  23. Younger people in existing care home system needs changing!

    My husband, age 57, has just had a weeks respite in a local care home in West Sussex. Although he seemed quite happy, it really is not the right place for him to be with people so much older than he is and most of them far less mobile and some on their very last legs. It was so bad, I couldn't ask...

    Started by merlot‎, 08-09-2014 04:14 PM
    2 Pages
    1 2
    care home, respite, young dementia
    • Replies: 18
    • Views: 2,025
    15-10-2014, 06:50 PM
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  24. Question Peer support for children whose parent has dementia

    I am currently working with a couple and they have a daughter is 8. They are looking for support for their daughter so that she has someone she can talk to about how she is feeling. We are going to look into what school can provide and they have tried barnardos but that didnt seem to run...

    Started by clojh21‎, 21-08-2014 09:07 AM
    • Replies: 6
    • Views: 1,424
    15-10-2014, 03:35 PM
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  25. Not heard anything about Personal Independence Payment

    We applied for the Personal Independence Payment in April for my sister who is 59. It is now nearly October that is 6 months. Is anyone else experiencing this problem? I contacted them in June and they said they have received the papers but had a bit of a backlog!!!! I think 6 months is...

    Started by mumbasi‎, 28-09-2014 10:16 PM
    • Replies: 10
    • Views: 1,345
    15-10-2014, 02:55 PM
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