1. 11-11-2014
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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 16,580
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 2,069
    24-02-2014, 05:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,212
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,317
    05-01-2012, 03:18 PM
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  1. just heartbroken

    Hi I have not written on this forum some time ago but things since have been so difficult and overwhelming i have just 'got on with it'. Mum is 67 and was diagnosed with Alzheimer's with Frontal lobe damage 2.5 years ago. I appreciate this is for those under 65 however that's how it feels really...

    Started by mickeyblueeyes‎, 18-06-2014 12:22 PM
    • Replies: 11
    • Views: 1,434
    01-08-2014, 05:36 AM
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  2. New member. Mum is 62 and has been living with AD for at least 12 years

    A disease called Alzheimer’s Written in dedication to all the families living with Alzheimer’s and to my mum, dad and sister whom are riding this journey with me. Families living with Alzheimer’s seem to get isolated for it is like a death in a family, people do not know how to react or are...

    Started by LoriAustralia‎, 31-07-2014 08:02 AM
    • Replies: 0
    • Views: 453
    31-07-2014, 08:02 AM
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  3. Dad has Alzheimer's and my mum can not cope!

    Hi all, I would like to introduce my situation and any comments / help would be much appreciated. My dad was diagnosed with Alzheimer's about 4 years ago and he is now 58. I lived out of the country for 3 years recently and came back especially to spend time with my dad before he gets any...

    Started by Help1‎, 15-07-2014 11:09 AM
    • Replies: 7
    • Views: 805
    29-07-2014, 11:45 AM
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  4. Refuses to go to bed!

    Hi all haven't posted on here for a while but need some advice if possible. Just a quick update my mum was diagnosed 4and half years ago with early onset at age 59. There has been quite a dip in mums understanding and knowing people recently. However this past couple of weeks she is refusing to go...

    Started by lucky‎, 26-07-2014 10:04 PM
    • Replies: 4
    • Views: 612
    29-07-2014, 11:27 AM
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  5. I am 60 and grew up with Jimmy Hendrix and motown

    I feel I am on a mission, i have been trying to find groups i can attend for under 65s with dementia. none. They have tried very hard to persuade into going to a singing for the brain, when i asked what they sang it was all music from the years before and around the time i was born. The only...

    Started by avril‎, 26-07-2014 11:29 AM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,067
    29-07-2014, 11:03 AM
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  6. Mum has early onset dementia at 55

    Hi I've just joined. I'm currently 17 and my mum has early onset dementia. She has had it for about four years now and over the past year has got increasingly worse. To be honest I just feel like I'm crumbling inside and nothing that I can do to try and help myself makes me feel any better because...

    Started by Liv‎, 15-05-2014 11:22 PM
    2 Pages
    1 2
    • Replies: 18
    • Views: 2,180
    27-07-2014, 10:37 PM
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  7. Eileenelanor

    My husband was diagnosed with Early Onset Alzheimers when he was 67, gradually he has declined but not as we expected, it seems very slow deteriation but also very hard for me because he has this obsessive behaviour, and is very emotional gets angry and jealous of our Grandchildren or anyone that...

    Started by eileenelanor‎, 16-07-2014 10:54 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 976
    27-07-2014, 08:12 PM
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  8. Euthenasia, yet again, i thought we were over that!

    After silence on the subject for a year or so, mum's back at me again to do something about euthenasia for her. I went to visit for her 60th birthday for a few days with my children, and the moment my dad left the house she was talking about it again, inferring that I should help her to get some...

    Started by zeeeb‎, 25-07-2014 09:15 AM
    • Replies: 6
    • Views: 565
    26-07-2014, 12:24 AM
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  9. Buckinghamshire talking groups or cafes

    Hi, Does anybody know of any cafes or groups to go to in and around the Buckinghamshire area. Im based in Aylesbury. Thanks.

    Started by Tinkerbell123‎, 17-07-2014 01:02 PM
    • Replies: 4
    • Views: 400
    23-07-2014, 09:33 AM
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  10. Unhappy questions

    I am 52 and was diagnosed at 49 with young onset Alzheimer's. I was a plant engineer when diagnosed and haven't been employed since my diagnosis. I know I was in really bad shape when diagnosed, but, now one of my greatest battles is being in denial. I take aricept once daily and namenda twice...

    Started by Jim2374‎, 22-06-2014 05:30 PM
    • Replies: 8
    • Views: 1,024
    19-07-2014, 11:23 AM
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  11. National Hospital in London for neurology

    Hi Everyone! My mother in law who is 53 and been suffering with young dementia/ Alzheimers for the last year has been taken into a home in the last week! This is very sad and hard to deal with considering she is so young and so are we but she is so happy there - the happiest we have seen her...

    Started by Tinkerbell123‎, 17-07-2014 12:48 PM
    • Replies: 3
    • Views: 377
    17-07-2014, 09:57 PM
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  12. Relief

    I could have hugged a lady on the phone last Thursday I think it was. As a (now ex) teacher of 51 years old with vascular dementia I have been applying for Ill Health Retirement. Many thanks to all those on TP who gave me much valued advice about continuing at work. When they got all the...

    Started by john51‎, 13-07-2014 06:04 PM
    • Replies: 8
    • Views: 667
    13-07-2014, 07:56 PM
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  13. My boyfriend's dad has Alzheimer's

    Hi all, First of all, I found this amazing society yesterday, and it's amazing to see how supportive everyone is of each other, and I hope I can help contribute to the wonderful things the people on this site are doing. A few days ago my boyfriend (18) found out that his father may be...

    Started by andreamarie‎, 05-07-2014 12:08 PM
    alzheimer's, boyfriend, father, partner, support
    • Replies: 5
    • Views: 698
    13-07-2014, 04:19 PM
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  14. How to deal with negativity?

    Hi, I haven't posted for a while as Dad seems to have been keeping well, but tonight I feel really down! As well as being diagnosed with early onset two years ago at 59, at the end of last year he was also diagnosed with an extremely rare tumour, this was removed in January and things have been...

    Started by Janey_B_‎, 11-07-2014 10:56 PM
    • Replies: 2
    • Views: 623
    11-07-2014, 11:52 PM
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  15. Living on the Isle of Wight with dementia age 63

    Hi, just wondered if there were any younger people on the Isle of Wight with dementia who read this forum? My dad was diagnosed 6 months ago at age 63 and would love to hear from anyone else on the Isle of Wight of a similar age with this illness.

    Started by Han‎, 10-07-2014 09:59 PM
    • Replies: 1
    • Views: 555
    11-07-2014, 08:17 AM
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  16. so proud of my hubby.

    Hi everyone not posted for a while, but read postings most days. Bad day today hubbys job has been terminated due to ill health !!! He was doing really well, only washing up, he used to be a chef, but they say they have a business to run and they can't take the chance he may deteriorate, we have...

    Started by Brannybob‎, 16-06-2014 11:41 AM
    • Replies: 14
    • Views: 912
    04-07-2014, 11:41 AM
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  17. coughs and colds

    I have been diagonosed with alzheimers but if anyone in my family have a cough and cold I catch it is this normal because it seems like I get one after another is this common with someone with alzheimers :confused:

    Started by lottie1955‎, 30-06-2014 09:55 PM
    • Replies: 2
    • Views: 425
    30-06-2014, 10:46 PM
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  18. Introduction to me

    Hello everyone I just wanted to introduce myself in this group. My name is Michelle and I'm 25. My partner's dad is 55 and was diagnosed with Alzheimer's last month. We have had concerns for quite some time now so it wasn't a surprise to hear that it was actually dementia that was causing...

    Started by MLM‎, 17-06-2014 02:54 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 1,128
    23-06-2014, 12:18 PM
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  19. My mum has early onset dementia

    Hello, My mum just turned 60 and has suffered from early onset frontotemporal dementia for 5 years. I just turned 23. I joined this forum when I was 18 when mum was first diagnosed and found that it really helped. My mum has been in a full time high care residential home as it became too...

    Started by HollyEB1991‎, 19-06-2014 09:27 AM
    • Replies: 2
    • Views: 564
    19-06-2014, 08:16 PM
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  20. early onset

    my husband is 54 and just been diagnosed its still very raw and very emotional the biggest thing at the moment is being told its not advisable to drive as he has driven for over 30 years

    Started by jacie 2‎, 19-05-2014 04:10 PM
    • Replies: 9
    • Views: 1,040
    19-06-2014, 05:04 PM
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  21. Advice needed ( please)

    My husband (59) has been recently diagnosed with Alzheimers. His decline seems to be rapid. He seems to change a little bit more every day,week, month. Still shocked by the diagnosis although deep down i knew something was seriously wrong. Really need some advice on day to day life, finance and...

    Started by daisy33‎, 18-06-2014 02:33 PM
    • Replies: 2
    • Views: 554
    18-06-2014, 10:47 PM
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  22. Nurisng homes for Dementia and challenging behaviour in Hampshire/surrey

    I am looking for a nursing home for my husband who has challenging behaviour - the current nursing home are struggling to care for him and have said we have to look elsewhere. It's a very long story but we know most places won't entertain him due to his young age and behaviours. My husband's...

    Started by SnowLeopard17‎, 16-06-2014 07:41 PM
    • Replies: 1
    • Views: 533
    17-06-2014, 05:46 PM
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  23. Moved: Concerns regarding care home fees and property

    Started by rhys_ack‎, 16-06-2014 03:33 PM
    • Replies: -
    • Views: -
    16-06-2014, 03:49 PM
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  24. kids

    Controversial columnist Katie Hopkins strikes again - her target this time? The elderly. In her column for The Sun the writer insisted that they are 'annoying' and that assisted suicide is a preferable option. The 39-year old has now taken to Twitter to defend her controversial comments. ...

    Started by trigger‎, 10-06-2014 05:35 PM
    • Replies: 7
    • Views: 747
    10-06-2014, 10:04 PM
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  25. Juggling life.

    Hi all, Unfortunately, I know someone here is going through exactly what I am with my family. My 58 year old mum has been diagnosed with what her doctors believe is Posterior Cortical Atrophy. This diagnosis is new and we are waiting for more information about stages, progression,...

    Started by ReneeC‎, 07-06-2014 12:48 PM
    • Replies: 7
    • Views: 773
    08-06-2014, 04:23 PM
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