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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 15,935
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,836
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,036
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 5,121
    05-01-2012, 02:18 PM
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  1. Euthenasia, yet again, i thought we were over that!

    After silence on the subject for a year or so, mum's back at me again to do something about euthenasia for her. I went to visit for her 60th birthday for a few days with my children, and the moment my dad left the house she was talking about it again, inferring that I should help her to get some...

    Started by zeeeb‎, 25-07-2014 09:15 AM
    • Replies: 6
    • Views: 530
    26-07-2014, 12:24 AM
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  2. Buckinghamshire talking groups or cafes

    Hi, Does anybody know of any cafes or groups to go to in and around the Buckinghamshire area. Im based in Aylesbury. Thanks.

    Started by Tinkerbell123‎, 17-07-2014 01:02 PM
    • Replies: 4
    • Views: 378
    23-07-2014, 09:33 AM
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  3. Unhappy questions

    I am 52 and was diagnosed at 49 with young onset Alzheimer's. I was a plant engineer when diagnosed and haven't been employed since my diagnosis. I know I was in really bad shape when diagnosed, but, now one of my greatest battles is being in denial. I take aricept once daily and namenda twice...

    Started by Jim2374‎, 22-06-2014 05:30 PM
    • Replies: 8
    • Views: 968
    19-07-2014, 11:23 AM
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  4. National Hospital in London for neurology

    Hi Everyone! My mother in law who is 53 and been suffering with young dementia/ Alzheimers for the last year has been taken into a home in the last week! This is very sad and hard to deal with considering she is so young and so are we but she is so happy there - the happiest we have seen her...

    Started by Tinkerbell123‎, 17-07-2014 12:48 PM
    • Replies: 3
    • Views: 356
    17-07-2014, 09:57 PM
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  5. Relief

    I could have hugged a lady on the phone last Thursday I think it was. As a (now ex) teacher of 51 years old with vascular dementia I have been applying for Ill Health Retirement. Many thanks to all those on TP who gave me much valued advice about continuing at work. When they got all the...

    Started by john51‎, 13-07-2014 06:04 PM
    • Replies: 8
    • Views: 620
    13-07-2014, 07:56 PM
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  6. My boyfriend's dad has Alzheimer's

    Hi all, First of all, I found this amazing society yesterday, and it's amazing to see how supportive everyone is of each other, and I hope I can help contribute to the wonderful things the people on this site are doing. A few days ago my boyfriend (18) found out that his father may be...

    Started by andreamarie‎, 05-07-2014 12:08 PM
    alzheimer's, boyfriend, father, partner, support
    • Replies: 5
    • Views: 623
    13-07-2014, 04:19 PM
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  7. How to deal with negativity?

    Hi, I haven't posted for a while as Dad seems to have been keeping well, but tonight I feel really down! As well as being diagnosed with early onset two years ago at 59, at the end of last year he was also diagnosed with an extremely rare tumour, this was removed in January and things have been...

    Started by Janey_B_‎, 11-07-2014 10:56 PM
    • Replies: 2
    • Views: 575
    11-07-2014, 11:52 PM
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  8. Living on the Isle of Wight with dementia age 63

    Hi, just wondered if there were any younger people on the Isle of Wight with dementia who read this forum? My dad was diagnosed 6 months ago at age 63 and would love to hear from anyone else on the Isle of Wight of a similar age with this illness.

    Started by Han‎, 10-07-2014 09:59 PM
    • Replies: 1
    • Views: 531
    11-07-2014, 08:17 AM
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  9. so proud of my hubby.

    Hi everyone not posted for a while, but read postings most days. Bad day today hubbys job has been terminated due to ill health !!! He was doing really well, only washing up, he used to be a chef, but they say they have a business to run and they can't take the chance he may deteriorate, we have...

    Started by Brannybob‎, 16-06-2014 11:41 AM
    • Replies: 14
    • Views: 873
    04-07-2014, 11:41 AM
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  10. coughs and colds

    I have been diagonosed with alzheimers but if anyone in my family have a cough and cold I catch it is this normal because it seems like I get one after another is this common with someone with alzheimers :confused:

    Started by lottie1955‎, 30-06-2014 09:55 PM
    • Replies: 2
    • Views: 403
    30-06-2014, 10:46 PM
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  11. Introduction to me

    Hello everyone I just wanted to introduce myself in this group. My name is Michelle and I'm 25. My partner's dad is 55 and was diagnosed with Alzheimer's last month. We have had concerns for quite some time now so it wasn't a surprise to hear that it was actually dementia that was causing...

    Started by MLM‎, 17-06-2014 02:54 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 1,072
    23-06-2014, 12:18 PM
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  12. My mum has early onset dementia

    Hello, My mum just turned 60 and has suffered from early onset frontotemporal dementia for 5 years. I just turned 23. I joined this forum when I was 18 when mum was first diagnosed and found that it really helped. My mum has been in a full time high care residential home as it became too...

    Started by HollyEB1991‎, 19-06-2014 09:27 AM
    • Replies: 2
    • Views: 536
    19-06-2014, 08:16 PM
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  13. early onset

    my husband is 54 and just been diagnosed its still very raw and very emotional the biggest thing at the moment is being told its not advisable to drive as he has driven for over 30 years

    Started by jacie 2‎, 19-05-2014 04:10 PM
    • Replies: 9
    • Views: 992
    19-06-2014, 05:04 PM
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  14. Advice needed ( please)

    My husband (59) has been recently diagnosed with Alzheimers. His decline seems to be rapid. He seems to change a little bit more every day,week, month. Still shocked by the diagnosis although deep down i knew something was seriously wrong. Really need some advice on day to day life, finance and...

    Started by daisy33‎, 18-06-2014 02:33 PM
    • Replies: 2
    • Views: 527
    18-06-2014, 10:47 PM
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  15. Nurisng homes for Dementia and challenging behaviour in Hampshire/surrey

    I am looking for a nursing home for my husband who has challenging behaviour - the current nursing home are struggling to care for him and have said we have to look elsewhere. It's a very long story but we know most places won't entertain him due to his young age and behaviours. My husband's...

    Started by SnowLeopard17‎, 16-06-2014 07:41 PM
    • Replies: 1
    • Views: 506
    17-06-2014, 05:46 PM
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  16. Moved: Concerns regarding care home fees and property

    Started by rhys_ack‎, 16-06-2014 03:33 PM
    • Replies: -
    • Views: -
    16-06-2014, 03:49 PM
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  17. kids

    Controversial columnist Katie Hopkins strikes again - her target this time? The elderly. In her column for The Sun the writer insisted that they are 'annoying' and that assisted suicide is a preferable option. The 39-year old has now taken to Twitter to defend her controversial comments. ...

    Started by trigger‎, 10-06-2014 05:35 PM
    • Replies: 7
    • Views: 712
    10-06-2014, 10:04 PM
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  18. Juggling life.

    Hi all, Unfortunately, I know someone here is going through exactly what I am with my family. My 58 year old mum has been diagnosed with what her doctors believe is Posterior Cortical Atrophy. This diagnosis is new and we are waiting for more information about stages, progression,...

    Started by ReneeC‎, 07-06-2014 12:48 PM
    • Replies: 7
    • Views: 739
    08-06-2014, 04:23 PM
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  19. A good news day today

    We went along for our second visit to the local drop in cafe run by the Alzheimer's Society today. My husband was whisked off to play cards and other activities with a nice group of people (he really enjoyed himself) and I was made to feel very much at home by the various group leaders and...

    Started by LynneMcV‎, 07-04-2014 11:41 PM
    • Replies: 6
    • Views: 923
    04-06-2014, 06:30 PM
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  20. Will I hold them all up?

    Before I got my diagnosis, I used to play the tuba. I was a member of a concert band. I haven't played since I had a stroke from which I have now recovered. Following on from that I had tests and finally got my diagnosis of vascular dementia. I have just spent the last 20 minutes playing my...

    Started by john51‎, 03-06-2014 05:19 PM
    • Replies: 11
    • Views: 724
    04-06-2014, 05:31 PM
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  21. Toileting!

    Hi all just need some advice really. My mum was diagnosed with A early onset in 2010. Lately we have noticed a big dip in her understanding and personal hygiene. Feel awful talking about my mum like this but any ideas would be a great help. When mum goes the toilet she now doesn't understand to...

    Started by lucky‎, 28-03-2014 04:36 PM
    3 Pages
    1 2 3
    • Replies: 33
    • Views: 2,280
    03-06-2014, 07:46 PM
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  22. Unbearable behaviour

    I have posted here a few times before, but not for some time. My wife has been diagnosed with Alzheimers now for about 15 months. She does attend a clinic on a regular basis and has been through the various drugs. Amongst other things she is currently on memantine (20Mg) and also Mirtazapine. ...

    Started by nipper‎, 08-02-2014 11:09 AM
    • Replies: 5
    • Views: 1,392
    03-06-2014, 07:01 PM
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  23. Recent diagnosis

    Last week we received the news that my dad has early onset dementia. He is 56, soon to be 57. At the moment he is ok, but struggles with simple tasks eg time, money, and lacks confidence in things like driving. I understand that dementia is different in every person but I'm just wondering if there...

    Started by cmcc92‎, 28-05-2014 01:39 AM
    • Replies: 10
    • Views: 672
    03-06-2014, 03:34 PM
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  24. Alzhemers 2 weeks and starting to accept

    Two weeks ago I got my diagonis off alzhemers (silly me thought it was blond moments). I live on my own but still see my husband we spilt over 6 years ago. I think we still love each other but just cant live in the house. He has said he will care for me as my stages advance which I love him for. I...

    Started by lottie1955‎, 20-05-2014 07:22 PM
    • Replies: 8
    • Views: 704
    30-05-2014, 08:04 PM
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  25. Getting mum to agree to move in with us

    My Mum was diagnosed with Alzheimer's last autumn following about 4 years of tests/investigations after memory symptoms first presented. She is 63 at the moment. She is no longer able to drive and lives alone since my step father died of MND about 7 years ago. We have seen a steady decline in her...

    Started by nickc2312‎, 29-05-2014 07:31 PM
    • Replies: 1
    • Views: 375
    29-05-2014, 07:44 PM
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