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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 20,166
    02-12-2014, 02:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 3,308
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 3,162
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 6,411
    05-01-2012, 02:18 PM
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  1. Arrow Advice needed for aggressive behaviour

    Hi, My Mum has early onset Alzheimers (she is only 59) and has recently developed some very aggressive behaviour - shouting, swearing, throwing things, purposely slamming doors and just generally trying to aggravate myself and my other family members. It mainly occurs at night which is obviously...

    Started by decembergirl12‎, 30-01-2015 09:31 PM
    • Replies: 10
    • Views: 912
    16-02-2015, 05:40 PM
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  2. Feeling blessed to have such a caring and determined husband

    So proud of my husband. It has been quite a bit of a week for him, especially as he has been battling a heavy cold which has led to him being quite confused and disorientated. The week started off quite miserably - in fact I was so down that I couldn't even put my thoughts down in writing at...

    Started by LynneMcV‎, 14-02-2015 03:07 PM
    • Replies: 8
    • Views: 672
    16-02-2015, 03:34 PM
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  3. Partner hiding faeces under mattress and under divan storage.

    My first time here and honestly destroyed at the rate of decline in my 55 year old partner. I had to be away for 16 days and had my partner cared for full time by a nurse/friend. The nurse informed that on one occasion my partner had left a faeces on the toilet cistern, and had lost the ability to...

    Started by thinwhiteduke‎, 02-02-2015 01:48 AM
    • Replies: 8
    • Views: 1,385
    16-02-2015, 09:40 AM
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  4. Husband 52 with dementia

    Hello This is my first time talking to anyone other than friends about this and I am still at the stage of not really wanting to admit that this is happening to us. If you don't mind I will give you some background and I am sorry if it is a bit of a ramble but will give you some idea where we...

    Started by Fenton12‎, 19-12-2014 07:44 PM
    • Replies: 9
    • Views: 1,612
    11-02-2015, 04:57 PM
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  5. mobility

    Has anyone tried to get a car under the mobility scheme when your partner is on the lowest mobility rating? Financially it would be so helpful on one income with increasing outgoings on day care? Advice please?

    Started by kathleenr‎, 10-02-2015 03:26 PM
    • Replies: 3
    • Views: 544
    10-02-2015, 06:57 PM
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  6. Smile Helpful mobile phone person

    My mobile phone is my lifeline. I use it to organise all sorts of things.I know how to do things on it. Its not too complicated, unlike my wife's phone and it gives me confidence to go out! The problem is that the battery isn't holding charge; it barely lasts half a day any more, but there is a...

    Started by john51‎, 08-02-2015 09:38 AM
    • Replies: 3
    • Views: 556
    08-02-2015, 05:35 PM
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  7. Care homes for younger people

    My husband is 62 and was diagnosed with Alzheimers about 3 years ago. He is still able bodied and mostly continent but can be aggressive and has great difficulty talking. He is on Anti-psychotics because of aggression. My problem is that two attempts at respite have failed in homes who don't...

    Started by Bollywood‎, 05-02-2015 06:15 PM
    • Replies: 4
    • Views: 759
    08-02-2015, 10:45 AM
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  8. Maybe headache the precursor of downturn

    On Friday night I sat down with my husband at the computer because he was keen to fill in his 'picks' for an online football game which he has been doing for years. He can't manage the keyboard too well these days - so I call up the webpage and we go through the matches one by one predicting...

    Started by LynneMcV‎, 11-01-2015 01:21 PM
    • Replies: 11
    • Views: 1,257
    05-02-2015, 12:02 PM
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  9. Moved: Ideas for a new service

    Started by kiwipipple‎, 01-02-2015 11:47 AM
    • Replies: -
    • Views: -
    02-02-2015, 04:57 PM
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  10. PCA. Posterior cortical apathy

    I have a ? Diogonoses from my neurologist I have been having test after test for the last five years I am 47 years old and I feel like no one understands me I am now being put on treatment for alzamas is there anyone else out there with the same sort of thing please

    Started by Jsav‎, 06-01-2015 10:33 PM
    • Replies: 6
    • Views: 905
    30-01-2015, 10:05 PM
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  11. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    9 Pages
    1 2 3 4 5 ... 9
    • Replies: 124
    • Views: 34,543
    30-01-2015, 02:49 PM
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  12. Carer's allowance

    How does any carer cope living with just a carer's allowance? Reds

    Started by Reds‎, 24-01-2015 06:28 PM
    • Replies: 10
    • Views: 914
    26-01-2015, 11:08 PM
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  13. What Happens if single living alone

    Hi I was wondering what happens with people who live alone but get to a mid stage where they cant function well enough to shop and cook and do admin for themselves and they have no family suitable or willing to care for them at home?

    Started by angelicatoo‎, 24-12-2014 11:35 AM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,559
    20-01-2015, 02:35 PM
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  14. sundowning

    Hi can anyone tell me what sundowning means I get tired go to bed wake up for a long period of time then eventually fall back to sleep and have the most awful nightmares

    Started by lottie1955‎, 19-01-2015 07:33 PM
    • Replies: 1
    • Views: 476
    19-01-2015, 07:55 PM
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  15. Newly diagnosed with Vascular dementia caused by TIA's

    Hi everyone I had an MRI scan and got the results on Wednesday, the specialist pointed out white patches on my scan and said it was vascular dementia caused by TIA's After my first TIA I began to notice my memory failing I would ask my husband a question then ask the same question again...

    Started by minky93‎, 16-01-2015 11:20 AM
    • Replies: 4
    • Views: 816
    18-01-2015, 09:50 PM
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  16. DVLA response time

    I am waiting for DVLA to make a decision about my driving license. I informed them of my diagnosis and submitted the form. After 6 weeks they sent me a letter saying that due to the number of cases they are working on it would take at least another 12 weeks to make a decision. Does anybody...

    Started by john51‎, 27-10-2014 04:53 PM
    2 Pages
    1 2
    • Replies: 29
    • Views: 3,043
    11-01-2015, 02:29 PM
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  17. Confused about ATOS

    Way back last May I filled in a Personal Independence Payment form / questionnaire for my husband. Yesterday (Friday, late in the day) we finally received a phone call from ATOS for a home visit. They wanted to come this Monday - but I had to turn them down as I work and really can't drop...

    Started by LynneMcV‎, 29-11-2014 06:32 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 2,266
    11-01-2015, 02:27 PM
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  18. Talking First time

    Hi this is the first time ive plucked up the courage to say anything. I live with young onset dementia. My husband is my full time carer. Im not sure if talking point is going to be helpful or not . But i want to give it a go.

    Started by watsonmaz‎, 09-01-2015 09:15 PM
    • Replies: 3
    • Views: 615
    09-01-2015, 10:42 PM
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  19. Patronizing Proffessionals

    Hi I had my 56th birthday a couple of weeks ago. This week I saw the results of a brain MRI I had back in the summer. There were cloudy spots and it said atrophy not normal for someone my age. The neurologist made a joke that some people are just born with smaller brains {!!!!!} ...

    Started by angelicatoo‎, 20-12-2014 11:44 PM
    • Replies: 3
    • Views: 840
    09-01-2015, 07:43 PM
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  20. I'm 24, my mother was diagnosed with Pick's 5 years ago. It never stops getting worse

    When I was 19 my mother was diagnosed with Pick's disease (also known as afrontotemporal dementia, or FTD) at 56 years old. It is my father and i iCalifornia, all of our family live out of state. It has been hard the last 5 years...the different stages of depression and grief, while always trying...

    Started by Strangr‎, 17-05-2013 05:15 AM
    dementia, early onset, ftd, pick disease
    • Replies: 10
    • Views: 2,796
    06-01-2015, 11:23 AM
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  21. pampas

    Hi this is my first day on this wonderful furum , my husband was diagnosed with vascular dementia approx 4yrs ago he was 54 and i was 49 . Looking back i pushed it under the carpet its only now am starting to prepare myself for the future by joining this furum today i can honestly say i have made a...

    Started by pampas‎, 03-01-2015 03:53 PM
    • Replies: 6
    • Views: 658
    03-01-2015, 07:38 PM
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  22. Inappropriate Behaviour

    Hi, My OH is 63 and was diagnosed 18 months ago with Early Onset Alzheimer's. My concerns are that his behaviour is at times becoming more and more inappropriate. It began just with reacting inappropriately to the news on TV and to other people when they announced bad news. Now it has...

    Started by JigJog‎, 01-01-2015 02:24 PM
    • Replies: 7
    • Views: 1,006
    02-01-2015, 04:06 PM
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  23. Young carer for my dad with early onset

    It has been a while since I have posted on TP, but recently have felt the need to vent about my situation regarding my dad. I have come back here to post my story and hope that people going through similar situations will realize that they are not alone. Basically I have summarized the journey of...

    Started by l.barbara‎, 21-12-2014 04:49 AM
    • Replies: 1
    • Views: 546
    21-12-2014, 08:27 AM
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  24. Young Dementia UK

    I've just come across this and it looks like a useful site. I noticed that my blog was getting some traffic from there and was happy to see that it had been listed along with quite a few others that I shall try and have a look at - after Christmas! Lots of other resources as well: ...

    Started by stanleypj‎, 20-12-2014 10:54 PM
    • Replies: 0
    • Views: 423
    20-12-2014, 10:54 PM
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  25. CST - Cognitive Stimulation Therapy

    My 56 year old brother has been diagnosed with Korsakoff's syndrome (alcoholic dementia). I've been searching for types of therapy available and came across CST (Cognitive Stimulation Therapy). There is some evidence that this is effective in the treatment of mild forms of dementia (accepted by...

    Started by Kevinm100‎, 19-12-2014 03:28 PM
    cognitive stimulation, korsakoff dementia
    • Replies: 3
    • Views: 490
    20-12-2014, 08:12 AM
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