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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 14,778
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,412
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,739
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,788
    05-01-2012, 02:18 PM
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  1. Alzhemers 2 weeks and starting to accept

    Two weeks ago I got my diagonis off alzhemers (silly me thought it was blond moments). I live on my own but still see my husband we spilt over 6 years ago. I think we still love each other but just cant live in the house. He has said he will care for me as my stages advance which I love him for. I...

    Started by lottie1955‎, 20-05-2014 07:22 PM
    • Replies: 8
    • Views: 627
    30-05-2014, 08:04 PM
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  2. Getting mum to agree to move in with us

    My Mum was diagnosed with Alzheimer's last autumn following about 4 years of tests/investigations after memory symptoms first presented. She is 63 at the moment. She is no longer able to drive and lives alone since my step father died of MND about 7 years ago. We have seen a steady decline in her...

    Started by nickc2312‎, 29-05-2014 07:31 PM
    • Replies: 1
    • Views: 337
    29-05-2014, 07:44 PM
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  3. Feeling lost

    My dad was diagnosed a year ago with dementia he is 53, im struggling to come to terms with what is going to happen and cant really understand what is going on. I find myself sitting and crying we have a very close family but somehow i cant seem to open up to them. My dads my world and my rock...

    Started by Natjohnson‎, 22-05-2014 08:53 AM
    • Replies: 11
    • Views: 651
    27-05-2014, 07:39 AM
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  4. Smile Bensons Disease

    Hi Everyone, This is my first time posting in the forum. I'm Emily (30) and My Mum (59) has recently been diagnosed with early onset dementia, the tests have shown that she has a form of dementia known as Bensons Disease - which I have read only 5% of people with dementia have. Due to the...

    Started by EmilyFB‎, 24-04-2014 10:05 PM
    benson's syndrome, early onset, guilt, pip, posterior cortical
    • Replies: 13
    • Views: 1,008
    27-05-2014, 07:31 AM
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  5. Unhappy Father With Dementia Has No Support

    Please, I apologize for my long rant. My father is in his mid-50's and has been diagnosed with dementia. He is able to recall things that happened decades ago but is very quick to forget things that have happened in the past few days, hours and minutes. He has always had a short temper but it...

    Started by Ambrosia‎, 10-04-2014 07:22 AM
    • Replies: 7
    • Views: 985
    23-05-2014, 01:20 PM
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  6. Forgetting diagnosis, should I remind him?

    My OH has early onset AD but he constantly forgets, or thinks he has got better, or that he is part of a giant experiment/conspiracy. Some of these ideas are harmful to his self esteem, so so far I have tried to be straight and honest, particularly since we still have lots more medical appointments...

    Started by Sarahdun‎, 20-05-2014 11:06 PM
    • Replies: 6
    • Views: 600
    22-05-2014, 08:44 AM
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  7. Noticing new things each day

    Hi all, Decided to start. New thread for when I have questions about my mum etc. we have just been given a diagnosis in the last 2 weeks after a years battle. My mum is 56 and has been diagnosed with early onset dementia. My mum is no longer the woman I used to know and I have came to terms...

    Started by NCD1986‎, 20-04-2014 10:53 PM
    • Replies: 3
    • Views: 573
    20-05-2014, 08:22 PM
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  8. Care Homes

    Hi there, I know we are not allowed to post names of homes, however if anyone had a recommendation for a good dementia home in Essex I would be so grateful if they could PM me. We have mum in one now for 7 weeks costing us over 1000 a week, whilst the home looks nice the care is not that great...

    Started by sunshine12‎, 20-05-2014 04:59 PM
    • Replies: 0
    • Views: 271
    20-05-2014, 04:59 PM
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  9. concerns about my mum aged 55

    Hi all, I am reaching out for as much information as possible. My mum has been signed off work since February, he work had noticed she was starting to forget things and lose things and not recognise her purse when she misplaced it. She works in a care home for elderly people so her colleagues...

    Started by NCD1986‎, 23-05-2013 11:44 AM
    • Replies: 9
    • Views: 1,696
    07-05-2014, 05:38 PM
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  10. 'Miss' dad

    My dad is 52 years old, diagnosed with early onset Alzheimer's.* Is a dementia champion, forcing himself to make people aware of this horrible disease.* I'm 16 years old and everything is odd to me, I 'miss' my dad, although he is still here.. Stopped building bikes Stopped driving Diagnosed...

    Started by 16Kate‎, 28-03-2014 11:18 PM
    2 Pages
    1 2
    • Replies: 19
    • Views: 1,371
    02-05-2014, 04:58 AM
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  11. Feeling alone

    Hello everyone, thank you for your answers to the previous message, I honestly didn't think I'd receive any! Currently I am revising for my gcses and I am struggling because I just want to be with my dad. My dad had been in a nursing home for about 3 months now and the last time I visited he didn't...

    Started by emmamarie‎, 30-04-2014 02:06 PM
    • Replies: 5
    • Views: 400
    30-04-2014, 08:12 PM
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  12. Driving Assessment

    Hi Folks My GP and Consultant disagree on if I should be driving or not. I have notified DVLA, and now wait for their machinery to move. The Consultant suggests I look for a driving assessment, but there is no no reason not to drive whilst waiting for one. The GP thinks I should not be...

    Started by john51‎, 29-04-2014 08:19 PM
    • Replies: 4
    • Views: 442
    29-04-2014, 11:51 PM
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  13. Felt stunned..and the Drs voice was all around

    On Tuesday this week I went to see the Doctor to receive the results of my tests. I knew that my memory wasn't working properly but it didn't help the stunned feeling I had when he said the words Vascular Dementia. I can still hear those words, although nothing he else he said went in. My...

    Started by john51‎, 26-04-2014 11:22 AM
    2 Pages
    1 2
    new diagnosis
    • Replies: 19
    • Views: 974
    29-04-2014, 10:14 PM
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  14. Diagnosis - How to deal?

    It's been a year since I posted in TP, although I have checked in from time to time and read threads. What a wonderful source of support. The last time I posted I was about to take my Mom (now 54) to see her GP to talk about her cognitive issues for the first time. She was living alone, and I...

    Started by daughter783‎, 24-02-2014 07:46 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 2,637
    28-04-2014, 10:23 PM
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  15. Sleeping Arrangements

    My husband is 53 and I am 49, he was diagnosed about 6 months ago with Picks Disease, I really hate to ask this question as I feel incredibly disloyal but how do other partners deal with sleeping arrangements? I'm getting very little sleep due to my husbands increased sexual needs and when I say...

    Started by johnsoj2‎, 27-12-2013 07:21 AM
    • Replies: 6
    • Views: 1,610
    21-04-2014, 02:45 PM
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  16. how do i keep my wife at home

    wife 54 and they want put her in a home how do I stop them

    Started by motorcross ride‎, 17-04-2014 04:54 PM
    • Replies: 3
    • Views: 566
    17-04-2014, 06:45 PM
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  17. Up date on Garry

    Hello TP as I haven't been on for a little while I thought I'd let you know how Garry's doing. He has now moved into a lovely nursing home. Thankfully we got the CHC funding so he was able to go to the place we had chosen. He has settled in very well. He still has his moments but the carer's cope...

    Started by Lovleemummy‎, 16-04-2014 01:28 PM
    • Replies: 3
    • Views: 406
    16-04-2014, 11:06 PM
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  18. iam new

    Hello there iam a 53 year old male been diagnosed with dementia my name is colin and iam finding really strange that I have dementia at my age. I had an assessment in October by my mental health team having been reffered to them by my go they did a mmse test at my house and I scored 27/30 and for...

    Started by colcol‎, 31-12-2013 09:26 PM
    • Replies: 14
    • Views: 1,797
    15-04-2014, 11:00 PM
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  19. help for carers

    I have a friend whose partner was diagnosed 10 years ago with early onset dementia. He cared for her for eight years b4 she went into full-time care as she can no longer communicate or do anyrhing for herself. He made the decision to move on with his life but has retreated into a shell because...

    Started by maxine_13‎, 07-04-2014 08:53 PM
    • Replies: 1
    • Views: 467
    07-04-2014, 10:23 PM
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  20. 'The Little Girl in the Radiator' Martin Slevin

    Have just finished this wonderful little book. It made me laugh it made me cry and more importantly it made me think again and again about living well with dementia. I only hope I can help my loved one to continue to do this. Thinking of you all on here and out there on this unbelievably...

    Started by mumbasi‎, 02-04-2014 11:49 AM
    • Replies: 7
    • Views: 697
    06-04-2014, 11:08 AM
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  21. Angry Hardworking Father Has Dementia

    My 57 year old father was recently diagnosed with vascular dementia. The past few years have been extremely difficult on my family, my mother had two major heart attacks at the age of 50-53 and my fathers younger sister died which resulted in him blaming himself. He is a strong man who can do...

    Started by Ambrosia‎, 04-04-2014 06:16 AM
    • Replies: 2
    • Views: 441
    04-04-2014, 04:18 PM
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  22. When is it time to move from Residential to Nursing care ?

    My husband is 65. diagnosed 6 years ago he went into residential care just two years ago. He is totally mute. Further scans have shown that he has had a number of small strokes and now cannot support himself to walk at all. It takes two members of staff to take him to the bathroom or move him...

    Started by Worried Milly‎, 30-01-2014 01:02 PM
    • Replies: 8
    • Views: 1,191
    31-03-2014, 10:30 PM
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  23. The best laid plans.....

    Today has been hectic. Over the weekend my husband received news that an uncle of his had passed away in Scotland - and the funeral is going to be this Wednesday. It's taken a lot of last minute planning but I think we are now ready to go! Unlike last March, when my husband made the...

    Started by LynneMcV‎, 24-03-2014 06:03 PM
    • Replies: 8
    • Views: 809
    30-03-2014, 10:02 PM
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  24. Facing ill health retirement meetings, what do i need to ask ?????

    I am 53' currently on long term sick leave , & it's becoming more and more obvious that I will not be able to return to work ( I am a community nursing sister ) , & I know in my heart I would no longer be safe to do the job I love so much :(. .......I have my first ' official ' meeting this week...

    Started by Dolly27‎, 09-01-2012 09:52 AM
    • Replies: 8
    • Views: 2,266
    22-03-2014, 01:57 PM
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  25. ESA Benefit

    Hi does anyone have any experience claiming ESA. I was put into the work related support group, I asked them to reconsider with help from MIND. I have now received a letter to say they are looking at the evidence again and will possibly phone me to ask more questions. I am worried they may phone me...

    Started by avril‎, 22-03-2014 09:43 AM
    • Replies: 2
    • Views: 515
    22-03-2014, 10:35 AM
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