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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 19,669
    02-12-2014, 02:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 3,155
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 3,034
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 6,273
    05-01-2012, 02:18 PM
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  1. Carer's allowance

    How does any carer cope living with just a carer's allowance? Reds

    Started by Reds‎, 24-01-2015 06:28 PM
    • Replies: 10
    • Views: 865
    26-01-2015, 11:08 PM
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  2. What Happens if single living alone

    Hi I was wondering what happens with people who live alone but get to a mid stage where they cant function well enough to shop and cook and do admin for themselves and they have no family suitable or willing to care for them at home?

    Started by angelicatoo‎, 24-12-2014 11:35 AM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,499
    20-01-2015, 02:35 PM
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  3. sundowning

    Hi can anyone tell me what sundowning means I get tired go to bed wake up for a long period of time then eventually fall back to sleep and have the most awful nightmares

    Started by lottie1955‎, 19-01-2015 07:33 PM
    • Replies: 1
    • Views: 453
    19-01-2015, 07:55 PM
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  4. Newly diagnosed with Vascular dementia caused by TIA's

    Hi everyone I had an MRI scan and got the results on Wednesday, the specialist pointed out white patches on my scan and said it was vascular dementia caused by TIA's After my first TIA I began to notice my memory failing I would ask my husband a question then ask the same question again...

    Started by minky93‎, 16-01-2015 11:20 AM
    • Replies: 4
    • Views: 762
    18-01-2015, 09:50 PM
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  5. DVLA response time

    I am waiting for DVLA to make a decision about my driving license. I informed them of my diagnosis and submitted the form. After 6 weeks they sent me a letter saying that due to the number of cases they are working on it would take at least another 12 weeks to make a decision. Does anybody...

    Started by john51‎, 27-10-2014 04:53 PM
    2 Pages
    1 2
    • Replies: 29
    • Views: 2,906
    11-01-2015, 02:29 PM
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  6. Confused about ATOS

    Way back last May I filled in a Personal Independence Payment form / questionnaire for my husband. Yesterday (Friday, late in the day) we finally received a phone call from ATOS for a home visit. They wanted to come this Monday - but I had to turn them down as I work and really can't drop...

    Started by LynneMcV‎, 29-11-2014 06:32 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 2,200
    11-01-2015, 02:27 PM
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  7. Talking First time

    Hi this is the first time ive plucked up the courage to say anything. I live with young onset dementia. My husband is my full time carer. Im not sure if talking point is going to be helpful or not . But i want to give it a go.

    Started by watsonmaz‎, 09-01-2015 09:15 PM
    • Replies: 3
    • Views: 602
    09-01-2015, 10:42 PM
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  8. Patronizing Proffessionals

    Hi I had my 56th birthday a couple of weeks ago. This week I saw the results of a brain MRI I had back in the summer. There were cloudy spots and it said atrophy not normal for someone my age. The neurologist made a joke that some people are just born with smaller brains {!!!!!} ...

    Started by angelicatoo‎, 20-12-2014 11:44 PM
    • Replies: 3
    • Views: 809
    09-01-2015, 07:43 PM
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  9. I'm 24, my mother was diagnosed with Pick's 5 years ago. It never stops getting worse

    When I was 19 my mother was diagnosed with Pick's disease (also known as afrontotemporal dementia, or FTD) at 56 years old. It is my father and i iCalifornia, all of our family live out of state. It has been hard the last 5 years...the different stages of depression and grief, while always trying...

    Started by Strangr‎, 17-05-2013 05:15 AM
    dementia, early onset, ftd, pick disease
    • Replies: 10
    • Views: 2,750
    06-01-2015, 11:23 AM
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  10. pampas

    Hi this is my first day on this wonderful furum , my husband was diagnosed with vascular dementia approx 4yrs ago he was 54 and i was 49 . Looking back i pushed it under the carpet its only now am starting to prepare myself for the future by joining this furum today i can honestly say i have made a...

    Started by pampas‎, 03-01-2015 03:53 PM
    • Replies: 6
    • Views: 640
    03-01-2015, 07:38 PM
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  11. Inappropriate Behaviour

    Hi, My OH is 63 and was diagnosed 18 months ago with Early Onset Alzheimer's. My concerns are that his behaviour is at times becoming more and more inappropriate. It began just with reacting inappropriately to the news on TV and to other people when they announced bad news. Now it has...

    Started by JigJog‎, 01-01-2015 02:24 PM
    • Replies: 7
    • Views: 967
    02-01-2015, 04:06 PM
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  12. Young carer for my dad with early onset

    It has been a while since I have posted on TP, but recently have felt the need to vent about my situation regarding my dad. I have come back here to post my story and hope that people going through similar situations will realize that they are not alone. Basically I have summarized the journey of...

    Started by l.barbara‎, 21-12-2014 04:49 AM
    • Replies: 1
    • Views: 516
    21-12-2014, 08:27 AM
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  13. Young Dementia UK

    I've just come across this and it looks like a useful site. I noticed that my blog was getting some traffic from there and was happy to see that it had been listed along with quite a few others that I shall try and have a look at - after Christmas! Lots of other resources as well: ...

    Started by stanleypj‎, 20-12-2014 10:54 PM
    • Replies: 0
    • Views: 399
    20-12-2014, 10:54 PM
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  14. CST - Cognitive Stimulation Therapy

    My 56 year old brother has been diagnosed with Korsakoff's syndrome (alcoholic dementia). I've been searching for types of therapy available and came across CST (Cognitive Stimulation Therapy). There is some evidence that this is effective in the treatment of mild forms of dementia (accepted by...

    Started by Kevinm100‎, 19-12-2014 03:28 PM
    cognitive stimulation, korsakoff dementia
    • Replies: 3
    • Views: 467
    20-12-2014, 08:12 AM
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  15. Hospital discharged as "medically fit" despite having dementia

    Just a general concern about the hospital definition of "medically fit" for patients with dementia. My brother was discharged with this assessment despite the fact that he has (and had been diagnosed with) dementia. I appreciate the hospital wanted to free the bed but feel the NHS should not have...

    Started by Kevinm100‎, 19-12-2014 03:52 PM
    hospital discharge, medically fit
    • Replies: 2
    • Views: 554
    19-12-2014, 07:37 PM
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  16. OH recently diagnosed with Alzheimer's...now what?

    My husband of 30+ years was recently diagnosed with young-onset Alzheimer's at the age of 56 (I'm 52, and our daughter is 19). He has been unemployed since 2012 having been made redundant from his senior contracts manager role for a large construction firm. He does a little bit of tidying up work...

    Started by Gem62‎, 15-12-2014 08:25 AM
    • Replies: 4
    • Views: 527
    15-12-2014, 08:59 AM
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  17. Hi. First time poster.

    Hello. I have just joined as I am hoping to find some advice on an unpleasant situation. A thousand apologies if I am posting out of turn, or in the wrong place. My Mother is 67 and has been suffering with the disease for years. It was early onset dementia, apparently. I am her only...

    Started by mrtle3‎, 10-12-2014 05:17 PM
    • Replies: 3
    • Views: 589
    10-12-2014, 06:41 PM
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  18. Confused about early onset dementia

    Hi I'm not sure if anybody will be able to help me but I don't know where else to look for advice. I've recently found out that my mum (55 years old) has been struggling with her memory and doing simple calculations such as working out the difference between two times, eg. how long between 8:30...

    Started by plunderbunny‎, 04-12-2014 08:30 PM
    early onset alzheimer's, family history, genetics
    • Replies: 8
    • Views: 1,446
    09-12-2014, 08:49 PM
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  19. Vehicle Tax Reduction

    Hi, Just thought I'd mention this in case it's of use to anyone. My OH is early onset and has just had his driving license extended for another year. I have applied for a reduction on his car tax and it has all gone through without any problem. Hope it's of use to others. :) You can get a 50%...

    Started by JigJog‎, 06-12-2014 11:06 AM
    • Replies: 7
    • Views: 829
    07-12-2014, 04:46 PM
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  20. Update and just shock at the speed

    Hi All - Hope you are all well. I've not been on for ages as life has been so busy but I feel myself needing your support - I appreciate that sounds incrediably selfish and I apologise. I dont expect anyone to remember me so I'll refresh a few memories; my mum is 55 and has Early Onset AZ...

    Started by XY123‎, 28-11-2014 04:24 PM
    • Replies: 3
    • Views: 709
    01-12-2014, 05:01 PM
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  21. grandma has dementia. need advice please

    Hi my grandma has not long been diagnosed with dementia, a couple of weeks ago my grandad pasted away (her husband), since then grandma has been living with my mum and dad. Both my parents work and i no longer live at home, and all the rest of her family live 200 miles away. My dad does alot of...

    Started by zoey‎, 23-11-2014 02:39 AM
    • Replies: 2
    • Views: 592
    23-11-2014, 03:51 PM
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  22. ATOS Assessment and Alzheimers

    Hello all, frustrated Newbie here. My husband, 54, was diagnosed with Alzheimer's Disease in August. The diagnosis came after more than a year's worth of tests and waiting. At the start of the investigations into his cognitive problems, he was offered a new job (having been made redundant in...

    Started by Magicmuffin‎, 05-11-2014 01:49 PM
    • Replies: 11
    • Views: 1,470
    20-11-2014, 09:33 PM
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  23. Thumbs down Harder than I thought

    Hello, I'm 25 and my mum has been recently diagnosed with dementia with lewey bodies she's 62, however the symptoms have been apparent for a while now. Although i have a lot of knowledge about this disease as I am a manager in residential homes for adults with learning disabilities, I am really...

    Started by GJBH‎, 19-11-2014 10:03 PM
    • Replies: 1
    • Views: 515
    20-11-2014, 08:32 AM
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  24. Mild Cognitive Impairment.

    Hello everyone. I have recently been diagnosed with MCI and have just started memory tests to find out which areas are affected. I am in my fifties but have been complaining to doctors about my failing memory since I was in my thirties. I have severe emphysema and severe sleep apnoea and the...

    Started by Tangled‎, 11-10-2014 01:10 AM
    • Replies: 6
    • Views: 1,189
    14-11-2014, 12:21 AM
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  25. tired of losing my mum :(

    My mum was diagnosed exactly three years ago today and I feel a bit of a wreck. I'm so tired of continually losing her, I just want her back :( she was diagnosed when she was 55 and I was only 19, I expected that by the age of 22 I'd be able to adjust and cope but it seems harder now than it did...

    Started by hopefulasever‎, 18-02-2014 03:02 PM
    • Replies: 11
    • Views: 2,253
    11-11-2014, 03:14 PM
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