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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    2 Pages
    1 2
    young dementia
    • Replies: 26
    • Views: 7,545
    27-02-2013, 11:36 PM
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  2. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 2,484
    05-01-2012, 02:18 PM
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  1. I Feel so alone and always get punished for my Ilness

    At age 28 I started noticing So many things changing and my ability to do everday things progressively get worse in my self and personal life. After my break up, I was willing but was unable to keep or persue another relationship. I Felt so alone so I deciced to go to my gp regarding my current...

    Started by matts‎, 17-06-2013 10:40 PM
    • Replies: 7
    • Views: 174
    Today, 09:52 AM
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  2. new to here

    Hi my mum was diagnosed with early onset the age of 53 after lots of problems doctor visits etc looking back she has showed signs for years, she had her own flat that ahe had carers come in three times a day but then it became clear she couldnt stay there she wandered off and had quite a long stay...

    Started by reenie‎, 09-05-2013 09:11 PM
    • Replies: 9
    • Views: 529
    Today, 03:06 AM
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  3. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    5 Pages
    1 2 3 4 5
    • Replies: 63
    • Views: 9,370
    Yesterday, 12:17 AM
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  4. In desperate need of advice!!

    Hi, This is the first forum post I have ever written so please accept my apologies if this is a little bit long and rambling as I am not really sure what to write or ask but I am not sure where else to turn either. I guess I am asking for advice. I suppose I should start at the beginning. Growing...

    Started by scooby-doo‎, 12-06-2013 12:42 AM
    • Replies: 6
    • Views: 347
    17-06-2013, 04:45 PM
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  5. Dad With Picks Disease

    Hi all, I have never thought to post on here but seeing everyone's inspiring threads I thought I would share my story. I am 21 years old and my father is 48 and has a rare form of dementia...pretty far gone now and was diagnosed around five years ago. I still find it hard to deal with some...

    Started by EmmaThrace‎, 17-04-2013 01:14 PM
    • Replies: 8
    • Views: 669
    17-06-2013, 10:52 AM
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  6. How helpful is a PET scan?

    My husband went for a review at the Memory Clinic today. Yet another new doctor saw him - but at least he seemed to be up-to-date on my husband's medical notes and was very pleasant. There was a general chat during which both my husband and I agreed there had been no major changes in my...

    Started by LynneMcV‎, 10-06-2013 11:26 PM
    • Replies: 9
    • Views: 722
    12-06-2013, 04:42 PM
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  7. Smile First Timer...

    Hello everyone, Not really sure where to start, but I'm looking for a bit of advice as I feel as though I am going round in circles and getting nowhere! My Husband is 46, I am 37 and our Son is 4. My Husband has always, since I've known him, been a bit forgetful. But over the past 3 years it...

    Started by Kelzo‎, 10-06-2013 10:44 AM
    • Replies: 10
    • Views: 323
    10-06-2013, 05:25 PM
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  8. wife wanting to go home

    My wife who is under 65 has been diagnosed with alzheimers and is on rivastigmine patches. She has started packing bags of clothes and other bits that she wants to take home, we are of course at home. Whenever I say anything or try to put things back she gets cross with me and says we are not at...

    Started by nipper‎, 07-06-2013 07:19 AM
    • Replies: 9
    • Views: 432
    09-06-2013, 03:02 PM
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  9. meeting in london tomorrow

    hello everybody, i am knew to the forum unfortunately ;0(, just wondering if anybody going to the meeting off the familial alzheimers tomorrow. i feel so alone and have welcomed finding the talking point website. sorry i waffle a bit but am very nervous:( would be nice to get to know people in the...

    Started by ritap66‎, 08-02-2013 01:28 PM
    4 Pages
    1 2 3 4
    • Replies: 46
    • Views: 1,886
    07-06-2013, 09:19 PM
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  10. mum didn't recognise me :(

    I'm currently on a term abroad in France but came back for the weekend after a month away to see my mum, on the first visit she didn't recognise me when I was right infront of her saying "hi mum", and had to be told by one of the carers at her home that I was her daughter.. I visit her yesterday...

    Started by hopefulasever‎, 05-06-2013 09:14 AM
    • Replies: 4
    • Views: 229
    05-06-2013, 03:27 PM
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  11. I just don't know what to do!

    My husband has early Alzheimer's. This morning we went for a walk which is meant to be quality time, exercise and relaxation. I try not to walk near a playground etc as he approaches strangers and likes to make people laugh etc but not always avoidable. We had to walk near one this morning...

    Started by Reds‎, 02-06-2013 12:39 PM
    • Replies: 8
    • Views: 425
    03-06-2013, 08:49 PM
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  12. looking for a little help/advice about my mam

    Hi, This is my first time i have ever wrote on a forum, and im not 100% sure of what to say, but im wondering if there is anyone out there who can help me shed a little light and give me some advice on how to deal with my current situation. My mam is going through a bad time at the moment and...

    Started by Rachel1707‎, 01-06-2013 10:53 PM
    • Replies: 3
    • Views: 300
    02-06-2013, 07:24 PM
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  13. My dad is a younger suffer for Alzheimers and i would like contact any younger carer

    Hi my name is Rebecca and Im 25 years old, I also have a brother called Jack who is 18 years of age, We live in Trowbridge, Wiltshire, my parents divorceed in 2006, but my mum is still and always will be there for dad. I have joined this site today as my father is in late stages of Alzheimer's...

    Started by Rebecca87‎, 21-05-2013 11:29 AM
    • Replies: 5
    • Views: 512
    02-06-2013, 08:25 AM
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  14. I'm 24, my mother was diagnosed with Pick's 5 years ago. It never stops getting worse

    When I was 19 my mother was diagnosed with Pick's disease (also known as afrontotemporal dementia, or FTD) at 56 years old. It is my father and i iCalifornia, all of our family live out of state. It has been hard the last 5 years...the different stages of depression and grief, while always trying...

    Started by Strangr‎, 17-05-2013 05:15 AM
    dementia, early onset, ftd, pick disease
    • Replies: 8
    • Views: 610
    02-06-2013, 07:35 AM
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  15. Family Support?

    Can't understand when my husband has Alzheimer's that I don't at least get a text or a phone call just asking how he is from a family member! Would help to ease the day, just to know someone is wondering how he is and how we are coping. I know they do care and they do have their own...

    Started by Reds‎, 27-05-2013 08:14 PM
    • Replies: 4
    • Views: 351
    01-06-2013, 10:53 AM
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  16. Holiday with my parents

    I've booked a holiday to Majorca with my parents this year and although my Mum has alzheimers and Dad has bipola, what do people think? The only thing I am really afraid of is Mum getting through the airport and the flight. She seemed ok when we booked the holiday back in October last year but I...

    Started by mj10867‎, 13-03-2013 10:13 PM
    • Replies: 2
    • Views: 416
    30-05-2013, 09:43 AM
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  17. Funeral today ..

    Our beloved brother/brother in law/uncle/ Robs funeral is today, another wonderful person lost to the most cruellest of diseases at the young age of 58. Please hope that a cure will be found soon. Thank you for your support over the last 2 years, I have not been the most prolific of posters...

    Started by nimbus11‎, 28-05-2013 12:04 PM
    • Replies: 3
    • Views: 342
    28-05-2013, 06:28 PM
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  18. Just beginning this journey

    My husband was recently diagnosed with FTD (58 yrs old). Looking back, he has probably been suffering from symptoms for a couple years. So far, he's able to function, but is quite withdrawn. He says it's hard to keep up with conversations. His first symptom was having trouble with his vision. ...

    Started by jules123‎, 15-05-2013 02:13 AM
    • Replies: 4
    • Views: 567
    27-05-2013, 09:02 PM
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  19. EMI Residential care for husband 55 years.

    My husband was fineally diagnosed with Frontal Temporal Disease/dementia and Alzheimers back in Marts this year. I asked for an application to be made for CHC funding hoping he can go straight into nursing care as I see no need for having to move again later with a prognosis of three years max. He...

    Started by Somerset1963‎, 27-05-2013 06:29 AM
    • Replies: 5
    • Views: 386
    27-05-2013, 08:34 PM
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  20. concerns about my mum aged 55

    Hi all, I am reaching out for as much information as possible. My mum has been signed off work since February, he work had noticed she was starting to forget things and lose things and not recognise her purse when she misplaced it. She works in a care home for elderly people so her colleagues...

    Started by natasha_duke86‎, 23-05-2013 11:44 AM
    • Replies: 4
    • Views: 550
    26-05-2013, 09:37 PM
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  21. Advice

    This is my first post, so hello everyone. My dad was diagnosed with early onset Alzheimer's two years ago at the age of 64. Now at 66, my dad is older than his grandfather, uncles and dad ever were – so for our family, Alzheimers’ is unchartered territory. For the past year he has been on a...

    Started by MyFathersChild‎, 23-05-2013 02:59 PM
    • Replies: 2
    • Views: 338
    23-05-2013, 09:47 PM
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  22. Type 3 Diabetes

    Last night I found a link that mentioned Type 3 Diabetes. My husband takes medication for Diabetes and Cholesterol. I will be asking his doctor if this is linked to his Dementia. Has anyone else heard of Type 3 Diabetes?

    Started by NanLorac‎, 17-03-2013 09:46 AM
    2 Pages
    1 2
    • Replies: 21
    • Views: 1,431
    22-05-2013, 09:15 PM
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  23. Family

    Hello I only joined this forum last week I wish I had found it a long time ago I lost my mom 3 months ago to dementia she was 59 she had battled the disease for 9 years the obsticles I came across on the way because of her age was unbelievable I even had people ask me if I was sure she had...

    Started by Mw122‎, 19-05-2013 09:18 PM
    • Replies: 6
    • Views: 454
    21-05-2013, 07:55 PM
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  24. I'm 25 an my Dad has just been diagnosed

    Dear all, My Dad was diagnosed two weeks ago; he's 61. Both my Mum and I have noticed a decline over the past two years, but despite this I'm still in absolute denial and feel inconsolable. Each time I think about what it means for my Dad to have 'Alzheimer's' I can't stop crying and I feel...

    Started by caff‎, 10-04-2013 02:18 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,631
    21-05-2013, 11:25 AM
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  25. Confused

    My sister have dementia she was diagnosis when she was 54 she is 60 until about a month ago she had been living in a assisted living facility I decided to bring her home and have a cousin take care of her but, since she's been home her health is rapidly declining she is in hospice now have been...

    Started by Noanwsers‎, 21-05-2013 07:16 AM
    • Replies: 0
    • Views: 219
    21-05-2013, 07:16 AM
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