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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 567
    24-02-2014, 04:04 PM
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  2. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 31
    • Views: 12,526
    01-11-2013, 05:07 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,229
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,165
    05-01-2012, 02:18 PM
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  1. Smile Bensons Disease

    Hi Everyone, This is my first time posting in the forum. I'm Emily (30) and My Mum (59) has recently been diagnosed with early onset dementia, the tests have shown that she has a form of dementia known as Bensons Disease - which I have read only 5% of people with dementia have. Due to the...

    Started by EmilyFB‎, Yesterday 10:05 PM
    benson's syndrome, early onset, guilt, pip
    • Replies: 4
    • Views: 79
    Yesterday, 11:03 PM
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  2. Toileting!

    Hi all just need some advice really. My mum was diagnosed with A early onset in 2010. Lately we have noticed a big dip in her understanding and personal hygiene. Feel awful talking about my mum like this but any ideas would be a great help. When mum goes the toilet she now doesn't understand to...

    Started by lucky‎, 28-03-2014 04:36 PM
    3 Pages
    1 2 3
    • Replies: 30
    • Views: 761
    Yesterday, 05:49 PM
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  3. 'Miss' dad

    My dad is 52 years old, diagnosed with early onset Alzheimer's.* Is a dementia champion, forcing himself to make people aware of this horrible disease.* I'm 16 years old and everything is odd to me, I 'miss' my dad, although he is still here.. Stopped building bikes Stopped driving Diagnosed...

    Started by 16Kate‎, 28-03-2014 11:18 PM
    2 Pages
    1 2
    • Replies: 18
    • Views: 684
    22-04-2014, 10:48 PM
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  4. Sleeping Arrangements

    My husband is 53 and I am 49, he was diagnosed about 6 months ago with Picks Disease, I really hate to ask this question as I feel incredibly disloyal but how do other partners deal with sleeping arrangements? I'm getting very little sleep due to my husbands increased sexual needs and when I say...

    Started by johnsoj2‎, 27-12-2013 07:21 AM
    • Replies: 6
    • Views: 1,197
    21-04-2014, 02:45 PM
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  5. Noticing new things each day

    Hi all, Decided to start. New thread for when I have questions about my mum etc. we have just been given a diagnosis in the last 2 weeks after a years battle. My mum is 56 and has been diagnosed with early onset dementia. My mum is no longer the woman I used to know and I have came to terms...

    Started by NCD1986‎, 20-04-2014 10:53 PM
    • Replies: 2
    • Views: 186
    21-04-2014, 10:32 AM
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  6. concerns about my mum aged 55

    Hi all, I am reaching out for as much information as possible. My mum has been signed off work since February, he work had noticed she was starting to forget things and lose things and not recognise her purse when she misplaced it. She works in a care home for elderly people so her colleagues...

    Started by NCD1986‎, 23-05-2013 11:44 AM
    • Replies: 8
    • Views: 1,040
    20-04-2014, 11:23 PM
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  7. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    7 Pages
    1 2 3 4 5 ... 7
    • Replies: 97
    • Views: 19,676
    17-04-2014, 08:42 PM
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  8. how do i keep my wife at home

    wife 54 and they want put her in a home how do I stop them

    Started by motorcross ride‎, 17-04-2014 04:54 PM
    • Replies: 3
    • Views: 269
    17-04-2014, 06:45 PM
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  9. Up date on Garry

    Hello TP as I haven't been on for a little while I thought I'd let you know how Garry's doing. He has now moved into a lovely nursing home. Thankfully we got the CHC funding so he was able to go to the place we had chosen. He has settled in very well. He still has his moments but the carer's cope...

    Started by Lovleemummy‎, 16-04-2014 01:28 PM
    • Replies: 3
    • Views: 202
    16-04-2014, 11:06 PM
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  10. iam new

    Hello there iam a 53 year old male been diagnosed with dementia my name is colin and iam finding really strange that I have dementia at my age. I had an assessment in October by my mental health team having been reffered to them by my go they did a mmse test at my house and I scored 27/30 and for...

    Started by colcol‎, 31-12-2013 09:26 PM
    • Replies: 14
    • Views: 1,270
    15-04-2014, 11:00 PM
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  11. Unhappy Father With Dementia Has No Support

    Please, I apologize for my long rant. My father is in his mid-50's and has been diagnosed with dementia. He is able to recall things that happened decades ago but is very quick to forget things that have happened in the past few days, hours and minutes. He has always had a short temper but it...

    Started by Ambrosia‎, 10-04-2014 07:22 AM
    • Replies: 6
    • Views: 447
    13-04-2014, 06:34 PM
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  12. A good news day today

    We went along for our second visit to the local drop in cafe run by the Alzheimer's Society today. My husband was whisked off to play cards and other activities with a nice group of people (he really enjoyed himself) and I was made to feel very much at home by the various group leaders and...

    Started by LynneMcV‎, 07-04-2014 11:41 PM
    • Replies: 3
    • Views: 270
    08-04-2014, 06:46 PM
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  13. help for carers

    I have a friend whose partner was diagnosed 10 years ago with early onset dementia. He cared for her for eight years b4 she went into full-time care as she can no longer communicate or do anyrhing for herself. He made the decision to move on with his life but has retreated into a shell because...

    Started by maxine_13‎, 07-04-2014 08:53 PM
    • Replies: 1
    • Views: 211
    07-04-2014, 10:23 PM
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  14. 'The Little Girl in the Radiator' Martin Slevin

    Have just finished this wonderful little book. It made me laugh it made me cry and more importantly it made me think again and again about living well with dementia. I only hope I can help my loved one to continue to do this. Thinking of you all on here and out there on this unbelievably...

    Started by mumbasi‎, 02-04-2014 11:49 AM
    • Replies: 7
    • Views: 371
    06-04-2014, 11:08 AM
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  15. Angry Hardworking Father Has Dementia

    My 57 year old father was recently diagnosed with vascular dementia. The past few years have been extremely difficult on my family, my mother had two major heart attacks at the age of 50-53 and my fathers younger sister died which resulted in him blaming himself. He is a strong man who can do...

    Started by Ambrosia‎, 04-04-2014 06:16 AM
    • Replies: 2
    • Views: 243
    04-04-2014, 04:18 PM
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  16. When is it time to move from Residential to Nursing care ?

    My husband is 65. diagnosed 6 years ago he went into residential care just two years ago. He is totally mute. Further scans have shown that he has had a number of small strokes and now cannot support himself to walk at all. It takes two members of staff to take him to the bathroom or move him...

    Started by Worried Milly‎, 30-01-2014 01:02 PM
    • Replies: 8
    • Views: 858
    31-03-2014, 10:30 PM
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  17. The best laid plans.....

    Today has been hectic. Over the weekend my husband received news that an uncle of his had passed away in Scotland - and the funeral is going to be this Wednesday. It's taken a lot of last minute planning but I think we are now ready to go! Unlike last March, when my husband made the...

    Started by LynneMcV‎, 24-03-2014 06:03 PM
    • Replies: 8
    • Views: 505
    30-03-2014, 10:02 PM
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  18. Facing ill health retirement meetings, what do i need to ask ?????

    I am 53' currently on long term sick leave , & it's becoming more and more obvious that I will not be able to return to work ( I am a community nursing sister ) , & I know in my heart I would no longer be safe to do the job I love so much :(. .......I have my first ' official ' meeting this week...

    Started by Dolly27‎, 09-01-2012 09:52 AM
    • Replies: 8
    • Views: 1,846
    22-03-2014, 01:57 PM
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  19. ESA Benefit

    Hi does anyone have any experience claiming ESA. I was put into the work related support group, I asked them to reconsider with help from MIND. I have now received a letter to say they are looking at the evidence again and will possibly phone me to ask more questions. I am worried they may phone me...

    Started by avril‎, 22-03-2014 09:43 AM
    • Replies: 2
    • Views: 289
    22-03-2014, 10:35 AM
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  20. Please help. Don't know which way to turn.

    Hi all My husband has Alzheimer's and is 'under' 65. He is having troubles at work and think sadly he will have to pack it up. Does anyone have the experience of the benefits he is entitled to. I would be grateful for a list as its hard to get a clear ideal of the whole situation from the...

    Started by Reds‎, 20-03-2014 07:09 AM
    • Replies: 7
    • Views: 506
    22-03-2014, 10:23 AM
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  21. 59yr old, what happens now?

    My friends 59yr old brother is in the process of being diagnosed. He has always been 'different' he has never married and lived with his mum until she passed away about 15yrs ago ( ex LA house which he is paying for) My friend only realized the extent of the problem a couple of months ago when...

    Started by Jess26‎, 20-03-2014 05:05 PM
    • Replies: 1
    • Views: 349
    20-03-2014, 05:17 PM
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  22. Why my Dad? How much more!!

    Hi, I've posted on here a couple of times about my Dad, who was diagnosed with Early Onset Dementia just over a year ago at just 59 years old, it's been a tough year coming to terms with his diagnosis and now we have had a new blow to deal with! Last Friday we were told he has a very rare tumour in...

    Started by Janey_B_‎, 08-12-2013 11:27 PM
    3 Pages
    1 2 3
    • Replies: 37
    • Views: 2,649
    14-03-2014, 09:32 AM
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  23. Does it ever end?

    So, I've never written about this before, but tonight I really feel the need to. My dad is 63 + death still evades him; it's not fair- my heart breaks for him every time I see him lying in that hospital bed, for it has been a long and slow process. Dad had his first stroke which saw the onset...

    Started by louie_clarkie‎, 23-02-2014 01:33 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,112
    12-03-2014, 02:24 PM
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  24. A visit to the local branch of the Alzheimer's Society today.

    I finally got around to visiting the local branch of the Alzheimer's Society with my husband today - and I'm glad I did. I had heard some time ago that the local branch runs a regular activity group for people with early onset dementia. I suppose, when I first heard about the group, we were at...

    Started by LynneMcV‎, 10-03-2014 11:02 PM
    • Replies: 1
    • Views: 372
    10-03-2014, 11:57 PM
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  25. New here and just looking for some help.

    Hello everyone, l guess I'm just seeking advice or reassurance. I'm 26, male, with sudden onset symptoms that are very similar to dementia. I don't have any history of it in my family but my fears are driving me crazy. It started about 2 months ago while playing poker at Mohegan sun. I went to...

    Started by Mjs72287‎, 05-03-2014 08:46 PM
    advice, scared, sudden onset, young
    • Replies: 10
    • Views: 827
    08-03-2014, 04:34 PM
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