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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 17,081
    02-12-2014, 03:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 2,214
    24-02-2014, 05:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,326
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,447
    05-01-2012, 03:18 PM
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  1. Is this normal?

    hi, that's probably the wrong title, I don't know what normal is anymore. Hoping some one can help me,my husband (59) was diagnosed with early onset Alzheimer's in June of this year and is getting more confused weekly/daily .could there also be something else wrong? Every thing I have read about...

    Started by daisy33‎, Yesterday 05:58 PM
    • Replies: 8
    • Views: 194
    Today, 10:51 AM
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  2. Confused about ATOS

    Way back last May I filled in a Personal Independence Payment form / questionnaire for my husband. Yesterday (Friday, late in the day) we finally received a phone call from ATOS for a home visit. They wanted to come this Monday - but I had to turn them down as I work and really can't drop...

    Started by LynneMcV‎, 29-11-2014 07:32 PM
    • Replies: 11
    • Views: 576
    15-12-2014, 05:49 PM
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  3. OH recently diagnosed with Alzheimer's...now what?

    My husband of 30+ years was recently diagnosed with young-onset Alzheimer's at the age of 56 (I'm 52, and our daughter is 19). He has been unemployed since 2012 having been made redundant from his senior contracts manager role for a large construction firm. He does a little bit of tidying up work...

    Started by Gem62‎, 15-12-2014 09:25 AM
    • Replies: 4
    • Views: 154
    15-12-2014, 09:59 AM
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  4. Is their anybody on here who is around 20?

    Hellooo, I'm Laura and I am 19, Mum was diagnosed with alzhiemers last year at 49, I have had some lovely support over the last few months on joining it has been overwhelming. Every one has been a lot older than me & I was wondering if their is anyone out their a similar age to me to talk to as...

    Started by LauraKx‎, 08-03-2012 04:58 PM
    7 Pages
    1 2 3 4 5 ... 7
    • Replies: 92
    • Views: 28,262
    15-12-2014, 01:13 AM
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  5. My dad is a younger suffer for Alzheimers and i would like contact any younger carer

    Hi my name is Rebecca and Im 25 years old, I also have a brother called Jack who is 18 years of age, We live in Trowbridge, Wiltshire, my parents divorceed in 2006, but my mum is still and always will be there for dad. I have joined this site today as my father is in late stages of Alzheimer's...

    Started by Rebecca87‎, 21-05-2013 11:29 AM
    • Replies: 10
    • Views: 1,973
    14-12-2014, 03:13 AM
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  6. Hi. First time poster.

    Hello. I have just joined as I am hoping to find some advice on an unpleasant situation. A thousand apologies if I am posting out of turn, or in the wrong place. My Mother is 67 and has been suffering with the disease for years. It was early onset dementia, apparently. I am her only...

    Started by mrtle3‎, 10-12-2014 06:17 PM
    • Replies: 3
    • Views: 281
    10-12-2014, 07:41 PM
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  7. Confused about early onset dementia

    Hi I'm not sure if anybody will be able to help me but I don't know where else to look for advice. I've recently found out that my mum (55 years old) has been struggling with her memory and doing simple calculations such as working out the difference between two times, eg. how long between 8:30...

    Started by plunderbunny‎, 04-12-2014 09:30 PM
    early onset alzheimer's, family history, genetics
    • Replies: 8
    • Views: 773
    09-12-2014, 09:49 PM
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  8. DVLA response time

    I am waiting for DVLA to make a decision about my driving license. I informed them of my diagnosis and submitted the form. After 6 weeks they sent me a letter saying that due to the number of cases they are working on it would take at least another 12 weeks to make a decision. Does anybody...

    Started by john51‎, 27-10-2014 05:53 PM
    • Replies: 12
    • Views: 858
    08-12-2014, 06:25 PM
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  9. Vehicle Tax Reduction

    Hi, Just thought I'd mention this in case it's of use to anyone. My OH is early onset and has just had his driving license extended for another year. I have applied for a reduction on his car tax and it has all gone through without any problem. Hope it's of use to others. :) You can get a 50%...

    Started by JigJog‎, 06-12-2014 12:06 PM
    • Replies: 7
    • Views: 374
    07-12-2014, 05:46 PM
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  10. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    8 Pages
    1 2 3 4 5 ... 8
    • Replies: 116
    • Views: 29,392
    05-12-2014, 09:33 PM
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  11. Update and just shock at the speed

    Hi All - Hope you are all well. I've not been on for ages as life has been so busy but I feel myself needing your support - I appreciate that sounds incrediably selfish and I apologise. I dont expect anyone to remember me so I'll refresh a few memories; my mum is 55 and has Early Onset AZ...

    Started by XY123‎, 28-11-2014 05:24 PM
    • Replies: 3
    • Views: 386
    01-12-2014, 06:01 PM
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  12. grandma has dementia. need advice please

    Hi my grandma has not long been diagnosed with dementia, a couple of weeks ago my grandad pasted away (her husband), since then grandma has been living with my mum and dad. Both my parents work and i no longer live at home, and all the rest of her family live 200 miles away. My dad does alot of...

    Started by zoey‎, 23-11-2014 03:39 AM
    • Replies: 2
    • Views: 293
    23-11-2014, 04:51 PM
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  13. ATOS Assessment and Alzheimers

    Hello all, frustrated Newbie here. My husband, 54, was diagnosed with Alzheimer's Disease in August. The diagnosis came after more than a year's worth of tests and waiting. At the start of the investigations into his cognitive problems, he was offered a new job (having been made redundant in...

    Started by Magicmuffin‎, 05-11-2014 02:49 PM
    • Replies: 11
    • Views: 860
    20-11-2014, 10:33 PM
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  14. Thumbs down Harder than I thought

    Hello, I'm 25 and my mum has been recently diagnosed with dementia with lewey bodies she's 62, however the symptoms have been apparent for a while now. Although i have a lot of knowledge about this disease as I am a manager in residential homes for adults with learning disabilities, I am really...

    Started by GJBH‎, 19-11-2014 11:03 PM
    • Replies: 1
    • Views: 295
    20-11-2014, 09:32 AM
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  15. Mild Cognitive Impairment.

    Hello everyone. I have recently been diagnosed with MCI and have just started memory tests to find out which areas are affected. I am in my fifties but have been complaining to doctors about my failing memory since I was in my thirties. I have severe emphysema and severe sleep apnoea and the...

    Started by Tangled‎, 11-10-2014 01:10 AM
    • Replies: 6
    • Views: 861
    14-11-2014, 01:21 AM
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  16. tired of losing my mum :(

    My mum was diagnosed exactly three years ago today and I feel a bit of a wreck. I'm so tired of continually losing her, I just want her back :( she was diagnosed when she was 55 and I was only 19, I expected that by the age of 22 I'd be able to adjust and cope but it seems harder now than it did...

    Started by hopefulasever‎, 18-02-2014 04:02 PM
    • Replies: 11
    • Views: 1,863
    11-11-2014, 04:14 PM
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  17. things to do

    My husband is 64 and has been diagnosed with early onset for nearly five years. He has no hobbies now apart from tv and music.he cannot write so crosswords etc are out of the equation as with jigsaws.any ideas as to how to occupy him and stimulate an interest in something

    Started by freddieandamy‎, 26-03-2012 10:54 AM
    • Replies: 9
    • Views: 1,700
    10-11-2014, 06:23 PM
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  18. Big plus to enormous low

    I have recently started going into a local junior school as a volunteer to hear children read. It's brilliant. The teachers treat me as if I still know something about education and really seem to want to talk about my classroom experiences. Its great seeing the children gain confidence and want...

    Started by john51‎, 06-11-2014 05:21 PM
    • Replies: 8
    • Views: 513
    07-11-2014, 04:02 PM
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  19. my son was diagnosed with kosakoffs dementia at 43.

    Initially he was sectioned into care whilst assessments were made. He was place in an E.M.I. care home 15 months ago. While my son has been very happy and content for the main part. His condition has steadily deteriorated. He is very unstable one his feet. He is also pathetic and fixates. The most...

    Started by puzzledpat‎, 25-10-2014 03:00 AM
    • Replies: 14
    • Views: 1,034
    07-11-2014, 09:31 AM
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  20. Finding soiled underwear hidden

    Hi, I'm sure there are many of you that have been in the situation that I'm finding myself in at the moment, and I'd really be grateful for any help or advice you could give me. My husband is suffering from Alzheimer's and was diagnosed a year ago at the age of 62, Just recently, I have...

    Started by JigJog‎, 15-10-2014 02:41 PM
    • Replies: 12
    • Views: 1,035
    06-11-2014, 11:22 PM
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  21. How long have we got ?!

    Hello I am 66. My wife is 62. She has been experiencing mild cognitive impairment for about 4 years. Symptoms have included short term memory loss, occasional mild confusion when travelling, difficulties reading, some visio-spatial difficulties, and problems with finance etc. All fairly classic...

    Started by Nonstop‎, 04-11-2014 07:52 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,080
    05-11-2014, 11:37 AM
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  22. Do I still need LPA

    Went to bank Tuesday to transfer some money from my sisters savings to her current account so she could sign cheques to give me for recent holiday, visit to ballet etc. Last time we did this at the counter and as my sister too did not really know which account etc we were talking about I felt as if...

    Started by mumbasi‎, 11-10-2014 08:26 PM
    • Replies: 4
    • Views: 665
    31-10-2014, 09:21 PM
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  23. Mum with Early-Onset (Moderate level) and I live abroad-Advise please

    Hi I am 29 years old professional living in London. My Mum (58) has early onset Alzheimer's for the past 3 - 4 years and is living in Ireland with my dad and older brother (33). My younger sister (24) is living abroad also teaching English. She is due home in March/April but will be looking to...

    Started by fenners505‎, 17-10-2014 07:12 AM
    living abroad, parent with early onset, when to move home
    • Replies: 8
    • Views: 845
    22-10-2014, 11:31 PM
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  24. Moved: cardiff get together

    hi all, Just been reading a few posts about a possible get together in Cardiff, I am still finding my way around the site so please bear with me lol,,,, I think the posts are in groups? if anyone would be interested in a meet up, although I have no experience of this I could look up some...

    Started by briana‎, 20-10-2014 08:00 AM
    • Replies: -
    • Views: -
    20-10-2014, 07:58 AM
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  25. My mum passed away

    My dear mum passed away on Thursday, aged 60, following her diagnosis at 50. I can't help beating myself up about not being with her more when she was in the care home and feel like the fact I have a young family myself was just an excuse I used and the fact that mum was over an hour away due to...

    Started by KezzieB‎, 18-10-2014 08:57 PM
    • Replies: 7
    • Views: 569
    19-10-2014, 06:29 AM
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