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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 16,041
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 1,891
    24-02-2014, 05:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,070
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,160
    05-01-2012, 03:18 PM
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  1. my son was diagnosed with kosakoffs dementia at 43.

    Initially he was sectioned into care whilst assessments were made. He was place in an E.M.I. care home 15 months ago. While my son has been very happy and content for the main part. His condition has steadily deteriorated. He is very unstable one his feet. He is also pathetic and fixates. The most...

    Started by puzzledpat‎, 25-10-2014 03:00 AM
    • Replies: 10
    • Views: 386
    Today, 05:39 AM
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  2. DVLA response time

    I am waiting for DVLA to make a decision about my driving license. I informed them of my diagnosis and submitted the form. After 6 weeks they sent me a letter saying that due to the number of cases they are working on it would take at least another 12 weeks to make a decision. Does anybody...

    Started by john51‎, 27-10-2014 05:53 PM
    • Replies: 3
    • Views: 101
    27-10-2014, 06:11 PM
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  3. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    8 Pages
    1 2 3 4 5 ... 8
    • Replies: 113
    • Views: 27,210
    24-10-2014, 10:47 PM
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  4. Mum with Early-Onset (Moderate level) and I live abroad-Advise please

    Hi I am 29 years old professional living in London. My Mum (58) has early onset Alzheimer's for the past 3 - 4 years and is living in Ireland with my dad and older brother (33). My younger sister (24) is living abroad also teaching English. She is due home in March/April but will be looking to...

    Started by fenners505‎, 17-10-2014 07:12 AM
    living abroad, parent with early onset, when to move home
    • Replies: 8
    • Views: 461
    22-10-2014, 11:31 PM
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  5. Moved: cardiff get together

    hi all, Just been reading a few posts about a possible get together in Cardiff, I am still finding my way around the site so please bear with me lol,,,, I think the posts are in groups? if anyone would be interested in a meet up, although I have no experience of this I could look up some...

    Started by briana‎, 20-10-2014 08:00 AM
    • Replies: -
    • Views: -
    20-10-2014, 07:58 AM
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  6. My mum passed away

    My dear mum passed away on Thursday, aged 60, following her diagnosis at 50. I can't help beating myself up about not being with her more when she was in the care home and feel like the fact I have a young family myself was just an excuse I used and the fact that mum was over an hour away due to...

    Started by KezzieB‎, 18-10-2014 08:57 PM
    • Replies: 7
    • Views: 257
    19-10-2014, 06:29 AM
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  7. Finding soiled underwear hidden

    Hi, I'm sure there are many of you that have been in the situation that I'm finding myself in at the moment, and I'd really be grateful for any help or advice you could give me. My husband is suffering from Alzheimer's and was diagnosed a year ago at the age of 62, Just recently, I have...

    Started by JigJog‎, 15-10-2014 02:41 PM
    • Replies: 6
    • Views: 377
    19-10-2014, 01:05 AM
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  8. I'm new to this

    Hello I have never used a chat room but thought it might be worth giving it a try. I care for my husband who has Altzhiemers. I have been aware of symptoms for the last five years but he was not diagnosed until last November

    Started by Raz‎, 06-10-2014 05:40 PM
    • Replies: 3
    • Views: 327
    18-10-2014, 10:09 AM
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  9. Is their anybody on here who is around 20?

    Hellooo, I'm Laura and I am 19, Mum was diagnosed with alzhiemers last year at 49, I have had some lovely support over the last few months on joining it has been overwhelming. Every one has been a lot older than me & I was wondering if their is anyone out their a similar age to me to talk to as...

    Started by LauraKx‎, 08-03-2012 04:58 PM
    6 Pages
    1 2 3 4 5 ... 6
    • Replies: 87
    • Views: 26,171
    18-10-2014, 09:46 AM
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  10. My Dad was diagnosed with AD yesterday

    My 57 year old father was diagnosed yesterday. I am 25 living about an hour aways. Its been a pretty quick decline for him, so this last year as a whole has been a period of pretty rapid adjustment.. Even though we knew something was wrong, and we suspected AD, having the specialists confirm...

    Started by cdubs‎, 11-10-2014 01:27 AM
    • Replies: 9
    • Views: 467
    17-10-2014, 11:22 PM
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  11. tired of losing my mum :(

    My mum was diagnosed exactly three years ago today and I feel a bit of a wreck. I'm so tired of continually losing her, I just want her back :( she was diagnosed when she was 55 and I was only 19, I expected that by the age of 22 I'd be able to adjust and cope but it seems harder now than it did...

    Started by hopefulasever‎, 18-02-2014 04:02 PM
    • Replies: 7
    • Views: 1,210
    16-10-2014, 02:05 PM
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  12. Younger people in existing care home system needs changing!

    My husband, age 57, has just had a weeks respite in a local care home in West Sussex. Although he seemed quite happy, it really is not the right place for him to be with people so much older than he is and most of them far less mobile and some on their very last legs. It was so bad, I couldn't ask...

    Started by merlot‎, 08-09-2014 04:14 PM
    2 Pages
    1 2
    care home, respite, young dementia
    • Replies: 18
    • Views: 1,180
    15-10-2014, 06:50 PM
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  13. Question Peer support for children whose parent has dementia

    I am currently working with a couple and they have a daughter is 8. They are looking for support for their daughter so that she has someone she can talk to about how she is feeling. We are going to look into what school can provide and they have tried barnardos but that didnt seem to run...

    Started by clojh21‎, 21-08-2014 09:07 AM
    • Replies: 6
    • Views: 883
    15-10-2014, 03:35 PM
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  14. Not heard anything about Personal Independence Payment

    We applied for the Personal Independence Payment in April for my sister who is 59. It is now nearly October that is 6 months. Is anyone else experiencing this problem? I contacted them in June and they said they have received the papers but had a bit of a backlog!!!! I think 6 months is...

    Started by mumbasi‎, 28-09-2014 10:16 PM
    • Replies: 10
    • Views: 687
    15-10-2014, 02:55 PM
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  15. Cramp in legs - alot

    Hi My mum is 64 and is on galantamine and memantine, she is getting an awful lot of cramp in her legs, seems to be inner thigh. It has happened twice in the past 3 days that i know of. She cant stand, starts shaking, goes white as sheet etc, i got a right fright when i saw her. Has anyone...

    Started by mcflod‎, 29-09-2014 11:39 AM
    • Replies: 6
    • Views: 508
    14-10-2014, 02:50 PM
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  16. How to keep my wife's mind active while I'm at work

    I joined TP today. My wife had a confirmatory diagnosis of early-onset posterior cortical atrophy variant of AD earlier this year - she is 52. I am still working, though my employer is very understanding and lets me go home lunchtimes to check up on my wife, and I can stay there all afternoon (to...

    Started by Prospector‎, 30-09-2014 09:24 AM
    2 Pages
    1 2
    • Replies: 16
    • Views: 866
    13-10-2014, 02:00 PM
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  17. Do I still need LPA

    Went to bank Tuesday to transfer some money from my sisters savings to her current account so she could sign cheques to give me for recent holiday, visit to ballet etc. Last time we did this at the counter and as my sister too did not really know which account etc we were talking about I felt as if...

    Started by mumbasi‎, 11-10-2014 08:26 PM
    • Replies: 3
    • Views: 330
    12-10-2014, 10:52 AM
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  18. My husband has early on-set Alzheimer's and I'm new to this site

    Hi to all fellow sufferers My husband is 63 n I'm 45 we have a 6 month old baby girl I'm struggling to cope as I have no family support n find friends avoid us unfortunately my husband was my world n was a financial wizard I find my life lonely n have no idea what to expect or what resources r out...

    Started by Tracyfaria‎, 04-09-2014 11:14 AM
    • Replies: 12
    • Views: 1,058
    12-10-2014, 08:26 AM
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  19. Mild Cognitive Impairment.

    Hello everyone. I have recently been diagnosed with MCI and have just started memory tests to find out which areas are affected. I am in my fifties but have been complaining to doctors about my failing memory since I was in my thirties. I have severe emphysema and severe sleep apnoea and the...

    Started by Tangled‎, 11-10-2014 01:10 AM
    • Replies: 4
    • Views: 330
    11-10-2014, 07:28 AM
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  20. Swan Lake

    Tomorrow we are going to Manchester to see Swan Lake. My sister too has never been to a ballet and wanted to go to one so this is it. It is wonderful that we are having the chance to do all these lovely things. Another sister and a friend are coming too. girls together.

    Started by mumbasi‎, 08-10-2014 11:50 PM
    • Replies: 4
    • Views: 353
    10-10-2014, 11:06 PM
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  21. My husband has early on-set alzheimers and I'm new to this site

    Really haven't figured out how to maneuver around yet. Hello to everyone!

    Started by Missinghim‎, 22-06-2014 06:48 PM
    2 Pages
    1 2
    • Replies: 16
    • Views: 1,954
    08-10-2014, 07:42 PM
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  22. Horrible weekend thanks to npower

    Went to my sisters on Saturday to arrange car insurance. Amongst papers was unopened envelope from npower which I opened. The bill had been sent 5th September 2014 and was informing my sister that she owed them 1300 and were increasing her monthly payment from 64 to 321. OMG! I put it straight...

    Started by mumbasi‎, 07-10-2014 06:33 PM
    • Replies: 4
    • Views: 342
    07-10-2014, 11:13 PM
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  23. Should I pursue diagnosis at 45?

    Hello My father died of Early Onset Alzheimers (diagnosed at 60, died at 70). My mother now has Alzheimers (diagnosed at 70, now at end stage). I am concerned for myself having it. I have a dreadful memory and have got lost in places i shouldn't eg how to get out of service centre toilets,...

    Started by sarahjanet‎, 23-09-2014 09:29 PM
    • Replies: 9
    • Views: 697
    07-10-2014, 10:08 PM
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  24. My long rant has disappeared

    I have just typed a long rant about the horrendous weekend I have just had thanks to npower. It was a work of great literature and when I clicked the preview post box it disappeared and the message about the scams came up. I am distraught. How can I get it back? Help please.

    Started by mumbasi‎, 07-10-2014 06:21 PM
    • Replies: 5
    • Views: 303
    07-10-2014, 06:58 PM
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  25. liverpool and sefton

    I set up a support group for younger carers which meets monthly after ascertaining there was nothing local for those of us with problems of trying to work and care for younger people who need to be active but also need some support . If you are interested do get in touch.

    Started by kathleenr‎, 01-10-2014 01:25 PM
    • Replies: 0
    • Views: 234
    01-10-2014, 01:25 PM
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