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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 15,075
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,548
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,822
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,873
    05-01-2012, 02:18 PM
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  1. New member

    Hi I am new to this forum and sadly new to Alzheimer's Papa

    Started by Papa‎, Yesterday 02:24 PM
    • Replies: 2
    • Views: 105
    Yesterday, 03:59 PM
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  2. Younger people in existing care home system needs changing!

    My husband, age 57, has just had a weeks respite in a local care home in West Sussex. Although he seemed quite happy, it really is not the right place for him to be with people so much older than he is and most of them far less mobile and some on their very last legs. It was so bad, I couldn't ask...

    Started by merlot‎, 08-09-2014 04:14 PM
    2 Pages
    1 2
    care home, respite, young dementia
    • Replies: 16
    • Views: 538
    15-09-2014, 05:31 PM
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  3. Medication now being reduced

    Hi all my mums medication is now being reduced as the professionals involved don't think it is helping anymore. I didn't think this stage would come so quick mum has only been on articles 4 years:-( My dad has also been asked to think about respite as he so worn out as she refuses to go bed...

    Started by lucky‎, 07-09-2014 12:24 AM
    • Replies: 2
    • Views: 240
    08-09-2014, 10:50 PM
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  4. Is their anybody on here who is around 20?

    Hellooo, I'm Laura and I am 19, Mum was diagnosed with alzhiemers last year at 49, I have had some lovely support over the last few months on joining it has been overwhelming. Every one has been a lot older than me & I was wondering if their is anyone out their a similar age to me to talk to as...

    Started by LauraKx‎, 08-03-2012 03:58 PM
    6 Pages
    1 2 3 4 5 ... 6
    • Replies: 86
    • Views: 24,198
    08-09-2014, 07:53 PM
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  5. Speeding up

    My husband is 62 and was diagnosed with Alzheimers a few years ago. He usually walks very slowly and does everything in a very purposeful manner but in the last week he has started to walk really quickly at certain times of the day and jumps from one thing to another. He has also become more...

    Started by Bollywood‎, 28-08-2014 07:39 PM
    • Replies: 2
    • Views: 257
    08-09-2014, 07:41 PM
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  6. My husband has early on-set Alzheimer's and I'm new to this site

    Hi to all fellow sufferers My husband is 63 n I'm 45 we have a 6 month old baby girl I'm struggling to cope as I have no family support n find friends avoid us unfortunately my husband was my world n was a financial wizard I find my life lonely n have no idea what to expect or what resources r out...

    Started by Tracyfaria‎, 04-09-2014 11:14 AM
    • Replies: 8
    • Views: 459
    08-09-2014, 09:10 AM
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  7. Convincing AD sufferer to accept respite

    How do you manage to convince your AD sufferer to accept respite care for a few hours a week when they have refused it? Any advice would be useful. My dad is primary carer for my mum who is 59 and early onset. She is at the point now where she thinks people in the telly are real, everything has...

    Started by Kate1983‎, 10-08-2014 03:36 PM
    experience, help and assistance, respite
    • Replies: 7
    • Views: 515
    08-09-2014, 07:50 AM
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  8. Husband is 61 he need activity during the day but not day centres

    I'm looking for things to do for my husband to do during the day, as he get very low. I was thinking of clubs of social clubs for his age group, but where do I look. I don't want day centres.

    Started by carolannrose‎, 08-11-2013 04:48 PM
    • Replies: 9
    • Views: 1,289
    07-09-2014, 04:23 PM
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  9. My husband has early on-set alzheimers and I'm new to this site

    Really haven't figured out how to maneuver around yet. Hello to everyone!

    Started by Missinghim‎, 22-06-2014 06:48 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,347
    07-09-2014, 07:54 AM
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  10. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    8 Pages
    1 2 3 4 5 ... 8
    • Replies: 111
    • Views: 25,258
    31-08-2014, 08:15 PM
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  11. Surrey / SW London Area

    Hello all! I've been reading really helpful posts for a few months now and felt like joining in with discussions. Straight to the point... I was wondering whether anyone knew of any good groups or activities a young (55 year old) mum could participate in near Epsom/Banstead/Esher/Wimbledon?...

    Started by Kimberlumps‎, 30-08-2014 08:19 AM
    carer, early onset, hygiene
    • Replies: 6
    • Views: 305
    31-08-2014, 10:01 AM
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  12. Dementia unfriendly DVLA

    Last year, my hubby declared his dementia to the DVLA and was given a one year's limit on his licence which was due to be reviewed in May this year. The DVLA sent out the renewal stuff 90 days before the licence expired, which we quickly returned. We've heard nothing since then. So we were a bit...

    Started by bigsis‎, 28-08-2014 02:11 PM
    • Replies: 3
    • Views: 338
    30-08-2014, 02:24 PM
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  13. Talking to herself

    Hi my mum has been diagnosed now over 3 years but has deteriorated alot this last 3 months, more than iactaully realised Mum is talking to herself constantly now, shes looking at items say a chair and speaking to it like its my dog, she was looking at books on my table and started talking to them...

    Started by mcflod‎, 27-08-2014 02:09 PM
    • Replies: 3
    • Views: 229
    27-08-2014, 03:34 PM
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  14. Question Peer support for children whose parent has dementia

    I am currently working with a couple and they have a daughter is 8. They are looking for support for their daughter so that she has someone she can talk to about how she is feeling. We are going to look into what school can provide and they have tried barnardos but that didnt seem to run...

    Started by clojh21‎, 21-08-2014 09:07 AM
    • Replies: 4
    • Views: 533
    27-08-2014, 10:34 AM
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  15. tired of losing my mum :(

    My mum was diagnosed exactly three years ago today and I feel a bit of a wreck. I'm so tired of continually losing her, I just want her back :( she was diagnosed when she was 55 and I was only 19, I expected that by the age of 22 I'd be able to adjust and cope but it seems harder now than it did...

    Started by hopefulasever‎, 18-02-2014 03:02 PM
    • Replies: 5
    • Views: 912
    24-08-2014, 04:41 PM
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  16. Smile The Great North Run

    Hi everyone, I haven't posted for a while, but I look through most days. Hubby has now finished work but we are fighting that cause, its an up hill struggle but we will get there. I'm so proud of him he's doing The Great North run with our son as he would be unable to do it on his own and he has...

    Started by Brannybob‎, 24-08-2014 01:41 PM
    • Replies: 0
    • Views: 150
    24-08-2014, 01:41 PM
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  17. Any 16 year old carers on here ?

    Hello, my dad started with dementia when I was about 12 and this year we had to make the most difficult decision to put him in a nursing home. His violence had begun to escalate and he was very dependent on me and my mum. I feel very guilty that he is in a nursing home as I feel we should be caring...

    Started by emmamarie‎, 09-08-2014 12:14 PM
    • Replies: 2
    • Views: 370
    22-08-2014, 08:47 PM
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  18. Our family is being torn apart

    Hi My name is Claire (30) and my step-father Gareth (50) has familial early onset alzheimer's disease. He was diagnosed at 49 but showed symptoms for about a year before that. He has a large family background of this illness and his mother died of it also. He lives at home with my mum (46)...

    Started by cmcc‎, 22-08-2014 05:38 PM
    • Replies: 3
    • Views: 398
    22-08-2014, 07:47 PM
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  19. Struggling with family life (encouragement needed please)

    My hubby is 33 and has been diagnosed with vascular dementia. I am struggling to cope with the bitterness of dealing with his mood swings and complete lack of belief in what I have repeated back to him re his lack of patience with our children (one who is autistic) and inapprioprate behaviour when...

    Started by Warrior Mum‎, 02-08-2014 05:49 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 1,271
    21-08-2014, 08:46 PM
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  20. I am making the most of my sister.

    I really feel I want to give something back to this wonderful forum you have all helped me so much in coming to terms with my sisters diagnosis of fronto-temporal dementia. Of course I have still been following the forum because I still need to touch base with all the support that is given freely...

    Started by mumbasi‎, 21-08-2014 11:29 AM
    • Replies: 4
    • Views: 332
    21-08-2014, 05:45 PM
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  21. Question I have Alzheimers

    Hello all out there. I'm new to this so sorry if \I don't get things right. I have recently been diagnosed with Alzheimers and am still in full time work. Does this apply to anyone else out there? H:confused:Have you told your employers and how have they reacted?

    Started by Wendy7713‎, 18-08-2014 02:26 PM
    • Replies: 7
    • Views: 465
    20-08-2014, 12:45 PM
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  22. Please help Have you been in a similar situation

    I am going to my parents tomorrow. I go up and stay overnight every Wednesday. My mum has usually not had a shower and in the same clothes. Her hair is done but its not clean. I worry that she is not showering enough. Last time I was up there I convinced her to get into the shower but she could not...

    Started by LoriAustralia‎, 11-08-2014 11:46 PM
    • Replies: 8
    • Views: 683
    20-08-2014, 08:47 AM
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  23. I'm baaaaack! :)

    I thought I'd added the forum icon to my iPad, but either I didn't or somehow deleted it. Missed you folks. It's been a rough past few months but am smiling. No use fretting about what I can't even remember. :p I'm going to see a neurologist who specializes in Complex Migraines and stroke...

    Started by Chaiah‎, 16-08-2014 02:21 AM
    • Replies: 3
    • Views: 378
    16-08-2014, 09:48 AM
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  24. Unhappy information

    Is there a age that people under 65 donot go into a old peoples home when thay cannot be cared for no more at home is it legal fror under 65years:confused:

    Started by ten tiny finger‎, 07-08-2014 08:54 PM
    • Replies: 7
    • Views: 414
    08-08-2014, 07:07 AM
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  25. just heartbroken

    Hi I have not written on this forum some time ago but things since have been so difficult and overwhelming i have just 'got on with it'. Mum is 67 and was diagnosed with Alzheimer's with Frontal lobe damage 2.5 years ago. I appreciate this is for those under 65 however that's how it feels really...

    Started by mickeyblueeyes‎, 18-06-2014 12:22 PM
    • Replies: 11
    • Views: 1,260
    01-08-2014, 05:36 AM
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