+ Post New Thread
Page 1 of 78 1 2 3 11 51 ... LastLast
Threads 1 to 25 of 1933

Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 17,928
    02-12-2014, 03:41 AM
    Go to latest post
  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 2,490
    24-02-2014, 05:04 PM
    Go to latest post
  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,531
    01-08-2013, 04:10 PM
    Go to latest post
  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,682
    05-01-2012, 03:18 PM
    Go to latest post
  1. Arrow Advice needed for aggressive behaviour

    Hi, My Mum has early onset Alzheimers (she is only 59) and has recently developed some very aggressive behaviour - shouting, swearing, throwing things, purposely slamming doors and just generally trying to aggravate myself and my other family members. It mainly occurs at night which is obviously...

    Started by decembergirl12‎, Yesterday 10:31 PM
    • Replies: 2
    • Views: 110
    Yesterday, 11:07 PM
    Go to latest post
  2. PCA. Posterior cortical apathy

    I have a ? Diogonoses from my neurologist I have been having test after test for the last five years I am 47 years old and I feel like no one understands me I am now being put on treatment for alzamas is there anyone else out there with the same sort of thing please

    Started by Jsav‎, 06-01-2015 11:33 PM
    • Replies: 6
    • Views: 445
    Yesterday, 11:05 PM
    Go to latest post
  3. My dad is a younger suffer for Alzheimers and i would like contact any younger carer

    Hi my name is Rebecca and Im 25 years old, I also have a brother called Jack who is 18 years of age, We live in Trowbridge, Wiltshire, my parents divorceed in 2006, but my mum is still and always will be there for dad. I have joined this site today as my father is in late stages of Alzheimer's...

    Started by Rebecca87‎, 21-05-2013 11:29 AM
    • Replies: 12
    • Views: 2,439
    Yesterday, 04:42 PM
    Go to latest post
  4. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    9 Pages
    1 2 3 4 5 ... 9
    • Replies: 124
    • Views: 31,786
    Yesterday, 03:49 PM
    Go to latest post
  5. Husband 52 with dementia

    Hello This is my first time talking to anyone other than friends about this and I am still at the stage of not really wanting to admit that this is happening to us. If you don't mind I will give you some background and I am sorry if it is a bit of a ramble but will give you some idea where we...

    Started by Fenton12‎, 19-12-2014 08:44 PM
    • Replies: 5
    • Views: 516
    Yesterday, 12:52 PM
    Go to latest post
  6. Carer's allowance

    How does any carer cope living with just a carer's allowance? Reds

    Started by Reds‎, 24-01-2015 07:28 PM
    • Replies: 10
    • Views: 435
    27-01-2015, 12:08 AM
    Go to latest post
  7. Early pension release

    Hi all I am Phil (48 yrs old) and I care for my wife whom is 53 yrs old. My wife worked in the banking industry for most of her and post 2006 left HSBC to work for other banking Co. I am currently exploring how to get my wifes 20+ yrs of pension released early, now, and in full due to early...

    Started by PhilMaff‎, 23-01-2015 09:24 AM
    pension, pensions
    • Replies: 5
    • Views: 278
    23-01-2015, 12:39 PM
    Go to latest post
  8. What Happens if single living alone

    Hi I was wondering what happens with people who live alone but get to a mid stage where they cant function well enough to shop and cook and do admin for themselves and they have no family suitable or willing to care for them at home?

    Started by angelicatoo‎, 24-12-2014 12:35 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 900
    20-01-2015, 03:35 PM
    Go to latest post
  9. sundowning

    Hi can anyone tell me what sundowning means I get tired go to bed wake up for a long period of time then eventually fall back to sleep and have the most awful nightmares

    Started by lottie1955‎, 19-01-2015 08:33 PM
    • Replies: 1
    • Views: 184
    19-01-2015, 08:55 PM
    Go to latest post
  10. Newly diagnosed with Vascular dementia caused by TIA's

    Hi everyone I had an MRI scan and got the results on Wednesday, the specialist pointed out white patches on my scan and said it was vascular dementia caused by TIA's After my first TIA I began to notice my memory failing I would ask my husband a question then ask the same question again...

    Started by minky93‎, 16-01-2015 12:20 PM
    • Replies: 4
    • Views: 307
    18-01-2015, 10:50 PM
    Go to latest post
  11. Maybe headache the precursor of downturn

    On Friday night I sat down with my husband at the computer because he was keen to fill in his 'picks' for an online football game which he has been doing for years. He can't manage the keyboard too well these days - so I call up the webpage and we go through the matches one by one predicting...

    Started by LynneMcV‎, 11-01-2015 02:21 PM
    • Replies: 9
    • Views: 509
    18-01-2015, 05:54 PM
    Go to latest post
  12. Single mum seeking advice/support for teen sons whose dad has early onset Alzheimer's

    Hello - Thank you for reading this. My sons are aged 18/16 and their father (my ex husband), 59, is diagnosed with probable early onset Alzheimer's. He lives in the US. I would really appreciate any advice in how to support them through his decline, please. The 18 year old has deferred his start...

    Started by Londonmum‎, 09-01-2015 10:23 PM
    • Replies: 2
    • Views: 402
    11-01-2015, 10:01 PM
    Go to latest post
  13. DVLA response time

    I am waiting for DVLA to make a decision about my driving license. I informed them of my diagnosis and submitted the form. After 6 weeks they sent me a letter saying that due to the number of cases they are working on it would take at least another 12 weeks to make a decision. Does anybody...

    Started by john51‎, 27-10-2014 05:53 PM
    2 Pages
    1 2
    • Replies: 29
    • Views: 1,907
    11-01-2015, 03:29 PM
    Go to latest post
  14. Confused about ATOS

    Way back last May I filled in a Personal Independence Payment form / questionnaire for my husband. Yesterday (Friday, late in the day) we finally received a phone call from ATOS for a home visit. They wanted to come this Monday - but I had to turn them down as I work and really can't drop...

    Started by LynneMcV‎, 29-11-2014 07:32 PM
    2 Pages
    1 2
    • Replies: 20
    • Views: 1,550
    11-01-2015, 03:27 PM
    Go to latest post
  15. Talking First time

    Hi this is the first time ive plucked up the courage to say anything. I live with young onset dementia. My husband is my full time carer. Im not sure if talking point is going to be helpful or not . But i want to give it a go.

    Started by watsonmaz‎, 09-01-2015 10:15 PM
    • Replies: 3
    • Views: 324
    09-01-2015, 11:42 PM
    Go to latest post
  16. Patronizing Proffessionals

    Hi I had my 56th birthday a couple of weeks ago. This week I saw the results of a brain MRI I had back in the summer. There were cloudy spots and it said atrophy not normal for someone my age. The neurologist made a joke that some people are just born with smaller brains {!!!!!} ...

    Started by angelicatoo‎, 21-12-2014 12:44 AM
    • Replies: 3
    • Views: 545
    09-01-2015, 08:43 PM
    Go to latest post
  17. p i p confused?

    im a little confused with this p I p ,,,,, I applied on behalf of c. ( my hubby )already on dla but his condition has deteriated. (spelling?) I telephoned them in October to ask for a form the usual questions were asked about him.. and I waited for the forms,,,,,,, and waited ,,,,,,and...

    Started by briana‎, 03-01-2015 01:32 PM
    • Replies: 4
    • Views: 486
    08-01-2015, 10:24 PM
    Go to latest post
  18. I'm 24, my mother was diagnosed with Pick's 5 years ago. It never stops getting worse

    When I was 19 my mother was diagnosed with Pick's disease (also known as afrontotemporal dementia, or FTD) at 56 years old. It is my father and i iCalifornia, all of our family live out of state. It has been hard the last 5 years...the different stages of depression and grief, while always trying...

    Started by Strangr‎, 17-05-2013 05:15 AM
    dementia, early onset, ftd, pick disease
    • Replies: 10
    • Views: 2,317
    06-01-2015, 12:23 PM
    Go to latest post
  19. pampas

    Hi this is my first day on this wonderful furum , my husband was diagnosed with vascular dementia approx 4yrs ago he was 54 and i was 49 . Looking back i pushed it under the carpet its only now am starting to prepare myself for the future by joining this furum today i can honestly say i have made a...

    Started by pampas‎, 03-01-2015 04:53 PM
    • Replies: 6
    • Views: 400
    03-01-2015, 08:38 PM
    Go to latest post
  20. Inappropriate Behaviour

    Hi, My OH is 63 and was diagnosed 18 months ago with Early Onset Alzheimer's. My concerns are that his behaviour is at times becoming more and more inappropriate. It began just with reacting inappropriately to the news on TV and to other people when they announced bad news. Now it has...

    Started by JigJog‎, 01-01-2015 03:24 PM
    • Replies: 7
    • Views: 710
    02-01-2015, 05:06 PM
    Go to latest post
  21. Is this normal?

    hi, that's probably the wrong title, I don't know what normal is anymore. Hoping some one can help me,my husband (59) was diagnosed with early onset Alzheimer's in June of this year and is getting more confused weekly/daily .could there also be something else wrong? Every thing I have read about...

    Started by daisy33‎, 18-12-2014 05:58 PM
    • Replies: 9
    • Views: 643
    26-12-2014, 06:05 AM
    Go to latest post
  22. Young carer for my dad with early onset

    It has been a while since I have posted on TP, but recently have felt the need to vent about my situation regarding my dad. I have come back here to post my story and hope that people going through similar situations will realize that they are not alone. Basically I have summarized the journey of...

    Started by l.barbara‎, 21-12-2014 05:49 AM
    • Replies: 1
    • Views: 366
    21-12-2014, 09:27 AM
    Go to latest post
  23. Young Dementia UK

    I've just come across this and it looks like a useful site. I noticed that my blog was getting some traffic from there and was happy to see that it had been listed along with quite a few others that I shall try and have a look at - after Christmas! Lots of other resources as well: ...

    Started by stanleypj‎, 20-12-2014 11:54 PM
    • Replies: 0
    • Views: 291
    20-12-2014, 11:54 PM
    Go to latest post
  24. CST - Cognitive Stimulation Therapy

    My 56 year old brother has been diagnosed with Korsakoff's syndrome (alcoholic dementia). I've been searching for types of therapy available and came across CST (Cognitive Stimulation Therapy). There is some evidence that this is effective in the treatment of mild forms of dementia (accepted by...

    Started by Kevinm100‎, 19-12-2014 04:28 PM
    cognitive stimulation, korsakoff dementia
    • Replies: 3
    • Views: 341
    20-12-2014, 09:12 AM
    Go to latest post
  25. Hospital discharged as "medically fit" despite having dementia

    Just a general concern about the hospital definition of "medically fit" for patients with dementia. My brother was discharged with this assessment despite the fact that he has (and had been diagnosed with) dementia. I appreciate the hospital wanted to free the bed but feel the NHS should not have...

    Started by Kevinm100‎, 19-12-2014 04:52 PM
    hospital discharge, medically fit
    • Replies: 2
    • Views: 394
    19-12-2014, 08:37 PM
    Go to latest post


Forum Information and Options

Thread Display Options

Use this control to limit the display of threads to those newer than the specified time frame.

Allows you to choose the data by which the thread list will be sorted.

Order threads in...

Note: when sorting by date, 'descending order' will show the newest results first.

Icon Legend

Contains unread posts
Contains unread posts
Contains no unread posts
Contains no unread posts
More than 15 replies or 150 views
Hot thread with unread posts
More than 15 replies or 150 views
Hot thread with no unread posts
Closed Thread
Thread is closed
Thread Contains a Message Written By You
You have posted in this thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts