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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 18,704
    02-12-2014, 03:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 05:04 PM
    • Replies: 0
    • Views: 2,771
    24-02-2014, 05:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 2,716
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 03:18 PM
    • Replies: 0
    • Views: 5,912
    05-01-2012, 03:18 PM
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  1. Pip medical assessment

    My mil has her pip and ESA assessment today. Apparently she went last year with my brother in law who said she scored zero and they told her to go to work. She has FTD and AD (diagnosed end of last year) together and has learnt to use her long term memory to have plausible conversations. She...

    Started by kingybell‎, Today 07:58 AM
    • Replies: 1
    • Views: 52
    Today, 09:49 AM
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  2. Nightmare of a day

    As days go, today was not a good one. It began with juggling umpteen things * Get son to train station * Get daughter to hospital for physiotherapy appt * Go home, make sure hubby is showered, dressed and has had something to eat before he heads off to his Monday group for people with early...

    Started by LynneMcV‎, 02-03-2015 07:56 PM
    • Replies: 6
    • Views: 347
    Today, 08:14 AM
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  3. need to talk

    morning all, I hope i'm posting this in the right forum. I'm 51 & diagnosed with an MCI (basically pre dementia) nearly 8 months ago, its progressing, I've had a really frustrating week & could really do with someone to talk to

    Started by vonvonvon‎, 01-03-2015 12:03 PM
    • Replies: 10
    • Views: 301
    Yesterday, 01:27 AM
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  4. Early pension release

    Hi all I am Phil (48 yrs old) and I care for my wife whom is 53 yrs old. My wife worked in the banking industry for most of her and post 2006 left HSBC to work for other banking Co. I am currently exploring how to get my wifes 20+ yrs of pension released early, now, and in full due to early...

    Started by PhilMaff‎, 23-01-2015 09:24 AM
    pension, pensions
    • Replies: 8
    • Views: 740
    02-03-2015, 11:30 AM
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  5. p i p confused?

    im a little confused with this p I p ,,,,, I applied on behalf of c. ( my hubby )already on dla but his condition has deteriated. (spelling?) I telephoned them in October to ask for a form the usual questions were asked about him.. and I waited for the forms,,,,,,, and waited ,,,,,,and...

    Started by briana‎, 03-01-2015 01:32 PM
    • Replies: 12
    • Views: 1,062
    01-03-2015, 09:04 PM
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  6. Frontotemporal Dementia - is anyone caring for someone who has this type of dementia?

    Hi Everyone, My mum has sadly been diagnosed with fronto-temporal dementia at 62 years old. She started showing signs of depression a few years ago, wanting to go to her room and sleep at variable times of the day. Since then, she has deteriorated rapidly, changing from a glamorous mother, who...

    Started by Rosiejones‎, 12-02-2015 12:39 PM
    fronto temporal dementia, fronto-temporal dementia, mum, mum has dementia, sadmness, young carer
    • Replies: 7
    • Views: 596
    01-03-2015, 05:00 PM
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  7. Alcohol induced dementia - help needed

    In desperate need of both insight and advice I am concerned that my mother may be showing signs of Korsakoff syndrome. As for her background, she has a history of alcohol abuse, including severe abuse stretching over 4/5 years. The alcoholism has now largely subsided, unfortunately not stopped...

    Started by concerned2015‎, 22-02-2015 08:46 PM
    alcohol induced, korsakoff dementia
    • Replies: 3
    • Views: 283
    25-02-2015, 04:53 PM
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  8. Conversation (or lack thereof)

    My mum has reached the stage where forming coherent sentences is increasingly difficult, and I'm finding it really hard to hold a conversation with her, particularly over the phone (as I live a good 2 hours away from my parents, but try to phone regularly). I don't live a particularly exciting...

    Started by queenquackers‎, 23-02-2015 12:14 PM
    • Replies: 10
    • Views: 352
    24-02-2015, 04:44 PM
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  9. Looking For Support in Greenwich Borough

    Hi All I am a Housing Officer who is assisting a resident and her husband, the wife is aged 49 and has early onset dementia. These residents are lovely and have approached me asking if I know of any support I can find them. The support they are interested in is for group/clubs for both of them...

    Started by BGreen‎, 02-02-2015 04:07 PM
    • Replies: 3
    • Views: 311
    17-02-2015, 05:37 PM
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  10. Arrow Advice needed for aggressive behaviour

    Hi, My Mum has early onset Alzheimers (she is only 59) and has recently developed some very aggressive behaviour - shouting, swearing, throwing things, purposely slamming doors and just generally trying to aggravate myself and my other family members. It mainly occurs at night which is obviously...

    Started by decembergirl12‎, 30-01-2015 10:31 PM
    • Replies: 10
    • Views: 583
    16-02-2015, 06:40 PM
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  11. Feeling blessed to have such a caring and determined husband

    So proud of my husband. It has been quite a bit of a week for him, especially as he has been battling a heavy cold which has led to him being quite confused and disorientated. The week started off quite miserably - in fact I was so down that I couldn't even put my thoughts down in writing at...

    Started by LynneMcV‎, 14-02-2015 04:07 PM
    • Replies: 8
    • Views: 343
    16-02-2015, 04:34 PM
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  12. Partner hiding faeces under mattress and under divan storage.

    My first time here and honestly destroyed at the rate of decline in my 55 year old partner. I had to be away for 16 days and had my partner cared for full time by a nurse/friend. The nurse informed that on one occasion my partner had left a faeces on the toilet cistern, and had lost the ability to...

    Started by thinwhiteduke‎, 02-02-2015 02:48 AM
    • Replies: 8
    • Views: 929
    16-02-2015, 10:40 AM
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  13. Is their anybody on here who is around 20?

    Hellooo, I'm Laura and I am 19, Mum was diagnosed with alzhiemers last year at 49, I have had some lovely support over the last few months on joining it has been overwhelming. Every one has been a lot older than me & I was wondering if their is anyone out their a similar age to me to talk to as...

    Started by LauraKx‎, 08-03-2012 04:58 PM
    7 Pages
    1 2 3 4 5 ... 7
    • Replies: 93
    • Views: 30,909
    13-02-2015, 04:55 PM
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  14. Husband 52 with dementia

    Hello This is my first time talking to anyone other than friends about this and I am still at the stage of not really wanting to admit that this is happening to us. If you don't mind I will give you some background and I am sorry if it is a bit of a ramble but will give you some idea where we...

    Started by Fenton12‎, 19-12-2014 08:44 PM
    • Replies: 9
    • Views: 1,214
    11-02-2015, 05:57 PM
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  15. mobility

    Has anyone tried to get a car under the mobility scheme when your partner is on the lowest mobility rating? Financially it would be so helpful on one income with increasing outgoings on day care? Advice please?

    Started by kathleenr‎, 10-02-2015 04:26 PM
    • Replies: 3
    • Views: 359
    10-02-2015, 07:57 PM
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  16. Smile Helpful mobile phone person

    My mobile phone is my lifeline. I use it to organise all sorts of things.I know how to do things on it. Its not too complicated, unlike my wife's phone and it gives me confidence to go out! The problem is that the battery isn't holding charge; it barely lasts half a day any more, but there is a...

    Started by john51‎, 08-02-2015 10:38 AM
    • Replies: 3
    • Views: 380
    08-02-2015, 06:35 PM
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  17. Care homes for younger people

    My husband is 62 and was diagnosed with Alzheimers about 3 years ago. He is still able bodied and mostly continent but can be aggressive and has great difficulty talking. He is on Anti-psychotics because of aggression. My problem is that two attempts at respite have failed in homes who don't...

    Started by Bollywood‎, 05-02-2015 07:15 PM
    • Replies: 4
    • Views: 510
    08-02-2015, 11:45 AM
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  18. Maybe headache the precursor of downturn

    On Friday night I sat down with my husband at the computer because he was keen to fill in his 'picks' for an online football game which he has been doing for years. He can't manage the keyboard too well these days - so I call up the webpage and we go through the matches one by one predicting...

    Started by LynneMcV‎, 11-01-2015 02:21 PM
    • Replies: 11
    • Views: 973
    05-02-2015, 01:02 PM
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  19. Moved: Ideas for a new service

    Started by kiwipipple‎, 01-02-2015 12:47 PM
    • Replies: -
    • Views: -
    02-02-2015, 05:57 PM
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  20. PCA. Posterior cortical apathy

    I have a ? Diogonoses from my neurologist I have been having test after test for the last five years I am 47 years old and I feel like no one understands me I am now being put on treatment for alzamas is there anyone else out there with the same sort of thing please

    Started by Jsav‎, 06-01-2015 11:33 PM
    • Replies: 6
    • Views: 721
    30-01-2015, 11:05 PM
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  21. My dad is a younger suffer for Alzheimers and i would like contact any younger carer

    Hi my name is Rebecca and Im 25 years old, I also have a brother called Jack who is 18 years of age, We live in Trowbridge, Wiltshire, my parents divorceed in 2006, but my mum is still and always will be there for dad. I have joined this site today as my father is in late stages of Alzheimer's...

    Started by Rebecca87‎, 21-05-2013 11:29 AM
    • Replies: 12
    • Views: 2,830
    30-01-2015, 04:42 PM
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  22. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    9 Pages
    1 2 3 4 5 ... 9
    • Replies: 124
    • Views: 33,500
    30-01-2015, 03:49 PM
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  23. Carer's allowance

    How does any carer cope living with just a carer's allowance? Reds

    Started by Reds‎, 24-01-2015 07:28 PM
    • Replies: 10
    • Views: 725
    27-01-2015, 12:08 AM
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  24. What Happens if single living alone

    Hi I was wondering what happens with people who live alone but get to a mid stage where they cant function well enough to shop and cook and do admin for themselves and they have no family suitable or willing to care for them at home?

    Started by angelicatoo‎, 24-12-2014 12:35 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,302
    20-01-2015, 03:35 PM
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  25. sundowning

    Hi can anyone tell me what sundowning means I get tired go to bed wake up for a long period of time then eventually fall back to sleep and have the most awful nightmares

    Started by lottie1955‎, 19-01-2015 08:33 PM
    • Replies: 1
    • Views: 370
    19-01-2015, 08:55 PM
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