Forum: Younger people with dementia and their carers

Dear all, My Dad was diagnosed two weeks ago; he's 61. Both my Mum and I have noticed a decline over the past two years, but despite this I'm still in absolute denial and feel inconsolable. Each time I think about what it means for my Dad to have 'Alzheimer's' I can't stop crying and I feel...

Hello I only joined this forum last week I wish I had found it a long time ago I lost my mom 3 months ago to dementia she was 59 she had battled the disease for 9 years the obsticles I came across on the way because of her age was unbelievable I even had people ask me if I was sure she had...

When I was 19 my mother was diagnosed with Pick's disease (also known as afrontotemporal dementia, or FTD) at 56 years old. It is my father and i iCalifornia, all of our family live out of state. It has been hard the last 5 years...the different stages of depression and grief, while always trying...

Hi my mum was diagnosed with early onset the age of 53 after lots of problems doctor visits etc looking back she has showed signs for years, she had her own flat that ahe had carers come in three times a day but then it became clear she couldnt stay there she wandered off and had quite a long stay...

My husband was recently diagnosed with FTD (58 yrs old). Looking back, he has probably been suffering from symptoms for a couple years. So far, he's able to function, but is quite withdrawn. He says it's hard to keep up with conversations. His first symptom was having trouble with his vision. ...

Hi, I need to have contact with others who partner someone with young onset alzheimers disease, my husband is 60 I am 54 and still working. Thank you, Mousie

Hello. Wondering if anyone has any advice on my situation. My mother was diaognosed With dementia about 2 years ago and over the past year her weight has been a constant struggle. She never wants to eaT and all she wants to do is sleep and I'm lost And I don't know what to do. Please help

Not Sure What to say. My father passed away 3 1/2 years ago and now trying to care for my mother who was diagnosed over 10 years ago. I have to have her in a long term care facility but stuggle to visit due to her lack of response to me over the last couple years. I feel terrible but need to be...

I find this disease so strange, sad and yet strangely fascinating (if that is the right word). Once she had admitted that she felt 13 it explained so many things!! Especially her new craze of going to bed at 8pm!

So long story short, my Mum got diagnosed with early onset Alzheimers 5 years ago, when I was 16. I am now 21, and she is 61. She rapidly declined and now is at the severe stage where she's more like a child than an adult. Throughout my life I have had to make sacrifices. I wanted to do a...

Hi everyone, I was never good at using the computer before but now I am even worse. I have tried a few times to get on to sites but have not done well at all. I am 58 and was diagnosed with alzheimers 2 years ago. I understand that I am unique that I have a really good CPN and support worker who I...

I think hubby is starting to exhibit another stage of this illness - but only in a small way. He seems to be getting a bit possessive over things. When I have done the shopping he seems to get mildy worried that other people in the family will eat things before he gets a chance (I don't think...

I separated from my husband three years ago. It has been clear for some time that something has not been quite right with him. His eldest son (my stepson) disclosed on Sunday to my son that their Dad has Alzheimer's - I believe he was diagnosed around 18 months ago. My problem is that my daughter...

My mum's now in a nursing home and the past few times I've visited her (since easter) she's been very subdued, today was worse than usual - I barely got anything out of her, I'd try talking to her and get nothing back, my dad had to keep prompting her to talk to me. I then discovered she's been...

My mother has been suffering from Alzheimers for quite a few years now and is cared for 24 hours a day by my amazingly patient and caring father who looks after her completely on his own. The rest of the family (including myself) live quite a distance away. She continues to deteriorate and he...

I am sorry for the following post, I just really do not know what to do or who to talk to and can not stop crying. I feel so sad right now. My mum is 64 and has got posterior cortal atrophy, she has had it for about 10 years but the last few years there has been a rapid decline. She is now in a...

My hubby diagnosed 2 and a half years ago, hasn't seen a specialist since 2011. This is because he refuses to go. Like he refused to go doctors when we first suspected something was wrong and like he refuses to do anything else if he doesn't like it. I know not to take it personally I am just...

Its been along time since i posted about dave, its very difficult but i feel the need to share with you how things are at the moment as i no you are all in the same situation. since my last post dave has detereated at a very fast rate, he is mostly kept in bed now as he is so rigid he can no longer...

My wife and I have been together for 9 years, I'm 48 and she is 51. Throughout our life together my wife has suffered from alcolholism. As spouses of alcoholics will know, nothing you say will convince them to stop. Finally the alcohol got the better of her about 2 months ago. She lost her...

Hi to everyone out there. My husband is profoundly deaf and uses British Sign Language(BSL). I am hearing but can also sign. Hubby was diagnosed with vascular dementia following a CT scan Aug '12. We are coping pretty well at present although tensions can arise in the household as my elderly father...

Hi all, I have never thought to post on here but seeing everyone's inspiring threads I thought I would share my story. I am 21 years old and my father is 48 and has a rare form of dementia...pretty far gone now and was diagnosed around five years ago. I still find it hard to deal with some...