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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 20,186
    02-12-2014, 02:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 3,315
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 3,169
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 6,419
    05-01-2012, 02:18 PM
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  1. Recently been diagnose with Early Onset Alzheimer's

    About 4 weeks ago at the age of 54, I was diagnosed with Early Onset Alzheimer's after two years of assessments and every possible brain scan there is. I'm very grateful that I have a young consultant who wanted to explore every avenue open to me and sent me to see a specialist in London where I...

    Started by JacquieS‎, 19-05-2015 09:10 AM
    2 Pages
    1 2
    • Replies: 15
    • Views: 563
    Yesterday, 01:56 AM
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  2. Fad

    hi there, is there anyone out there that has FAD who suffers with tingly legs or extreme cold/bad circulation?

    Started by Holistic chick‎, 21-05-2015 09:14 PM
    • Replies: 1
    • Views: 133
    21-05-2015, 10:07 PM
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  3. john

    hi i am 54 with alzeimers and me and my wife would like to no other people who r going throuth the same thing and my be understand it more

    Started by johnhf‎, 21-05-2015 05:05 PM
    • Replies: 5
    • Views: 209
    21-05-2015, 07:37 PM
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  4. The past coming back to haunt the family

    I have posted lots of things on here and find I'm using it as therapy for my thoughts. My mil whilst still very healthy she is rapidly 'losing it' mind wise. Her Alzheimer's means her short term memory is shot to pieces but this aside she functions pretty well as long as she stays at home. The...

    Started by kingybell‎, 17-05-2015 09:16 AM
    2 Pages
    1 2
    • Replies: 27
    • Views: 1,031
    18-05-2015, 03:26 PM
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  5. Question Will I have to give up work?

    Really concerned, I work part-time and today is one of my longer days, got home and hubby said he had been knocking on the neighbours doors to ask them for a cup of tea and a biscuit!! He was diagnosed with Frontotemperal Lobe dementia in February but since his diagnosis he's behaviour seems to be...

    Started by doobedoo‎, 12-05-2015 06:00 PM
    2 Pages
    1 2
    • Replies: 22
    • Views: 999
    17-05-2015, 04:29 PM
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  6. Difficult Conversations

    Hi there, this is my first time writing on talking point but I am feeling really upset and didn't know who to ask for some support. So here goes.... My mum has early onset Alzheimer's and throughout the past few years we have had to have many difficult conversations as a family but it never seems...

    Started by Shellyangel‎, 07-05-2015 09:04 PM
    • Replies: 6
    • Views: 622
    16-05-2015, 07:51 PM
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  7. All out of ideas

    Morning. I have a friend who is 58 and has been in a CH for 18 months. At first she thrived but her Alzheimers has deteriorated rapidly. She has been sectioned twice due to violent behaviour ( so out of character for her). The current issue is that since early December she has been singing a carol...

    Started by RosiePop‎, 21-03-2015 11:16 AM
    • Replies: 10
    • Views: 794
    16-05-2015, 05:11 PM
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  8. Decline?

    I wonder if this is part of the decline I was warned about? On the weekend I was taken into hospital with sudden left side weakness. This is mostly gone and the doctor says there is no new brain damage. He says it was a stroke mimic (whatever that is). Since this I cannot see well on the left...

    Started by john51‎, 14-05-2015 12:17 PM
    • Replies: 2
    • Views: 228
    14-05-2015, 05:09 PM
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  9. I'm 14 and need someone hopefully a similar age to talk to.

    My Dad has early onset frontotemporal dementia which seems to be progressing rather quickly. If anyone is a similar age to me I would like it if we could talk and support each other?

    Started by SophieAnn‎, 21-04-2015 04:37 PM
    2 Pages
    1 2
    • Replies: 21
    • Views: 1,153
    10-05-2015, 09:13 PM
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  10. Diagnosis

    My husband who is 52 has been suffering from some form of dementia for the last two years but we have had no concrete diagnosis even following MRI, CT, Lumber and all blood tests. He had a SPECT scan about 4 weeks ago and tomorrow is the day for the follow up. I am feeling very scared as part of...

    Started by Fenton12‎, 10-05-2015 07:24 PM
    • Replies: 2
    • Views: 252
    10-05-2015, 08:12 PM
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  11. Progressed this week

    my Dad took a turn for the worst this week, he's 57 with AD. Up to this point the decline has been noticeable, but the progression has been subtle. Starting last weekend, he became very unstable, and is no so much more confused, and will only get out of bed to eat and use the rest room. ...

    Started by cdubs‎, 15-03-2015 03:23 AM
    • Replies: 4
    • Views: 743
    07-05-2015, 09:10 PM
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  12. long term care for 63 year old with FLD in / around bedfordshire

    Hi, Does anyone know of a good, secure care environment for a 63 year old man with Frontal Lobe Dementia in/ around bedfordshire? thank you

    Started by Skea‎, 06-05-2015 02:53 PM
    • Replies: 0
    • Views: 262
    06-05-2015, 02:53 PM
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  13. I'm in my 20's and my mum has dementia

    Hi everyone, I'm new to all of this. I didn't even know this site existed until I finally had the guts to google "young people who have a parent with dementia". I'm finding everything hard and I just feel like I have a hundred people around who can support me, but no one understands what it's like...

    Started by Lyla_W‎, 12-03-2015 08:26 PM
    3 Pages
    1 2 3
    • Replies: 35
    • Views: 2,337
    06-05-2015, 07:04 AM
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  14. My mum, alcohol and my dad needs some support!

    My mum was diagnosed with early onset Altzeimers 2 years ago and just recently she has started to drink more and my dad is concerned. The last few nights he has found cups full of neat whiskey near my mum and she has obviously been drinking before he gets home from work. He has now removed all...

    Started by Elmo‎, 30-04-2015 08:48 PM
    • Replies: 4
    • Views: 421
    06-05-2015, 12:16 AM
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  15. Feeling alone

    Hi My mum suffers with vascular dementia and at the moment I am finding it difficult to come to terms with. I have recently moved away from living close to my parents due to circumstances not related to the dementia and I am finding it difficult to deal with my mums problems. I am 22 and she is 47...

    Started by Kilgara‎, 08-03-2015 06:47 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 1,200
    05-05-2015, 08:34 PM
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  16. Frontotemporal Dementia - is anyone caring for someone who has this type of dementia?

    Hi Everyone, My mum has sadly been diagnosed with fronto-temporal dementia at 62 years old. She started showing signs of depression a few years ago, wanting to go to her room and sleep at variable times of the day. Since then, she has deteriorated rapidly, changing from a glamorous mother, who...

    Started by Rosiejones‎, 12-02-2015 11:39 AM
    fronto temporal dementia, fronto-temporal dementia, mum, mum has dementia, sadmness, young carer
    • Replies: 12
    • Views: 1,627
    04-05-2015, 09:13 PM
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  17. UTI in progress!

    Going through a difficult few days at the moment while my husband battles through his first UTI. I am so grateful for this forum because it was here that I found out about UTIs a couple of years ago - and so I was aware of what would happen and what to look out for. Having said that it is still...

    Started by LynneMcV‎, 22-04-2015 10:53 PM
    • Replies: 13
    • Views: 690
    03-05-2015, 10:42 AM
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  18. Scared of the future, aged 27

    My father (68) was diagnosed with having vascular dementia after suffering a stroke (we presume in his sleep, or when my mother was at work) early last year, and for about 12 months things were manageable. Work days reduced, conversation minimalised, day trips shorter and easier, limititations...

    Started by indigo_87‎, 02-05-2015 04:11 PM
    vascular dementia
    • Replies: 3
    • Views: 346
    02-05-2015, 05:27 PM
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  19. End stage falls

    Hi, Just wondering if anyone on here has any experience with end stage Alzheimer's? Everything I've read online only relates to elderly people and my mum is 59 so I've not got a clue how it could progress - I found out she's at the end stage on Easter Sunday and her nursing home called me a few...

    Started by hopefulasever‎, 23-04-2015 03:13 PM
    • Replies: 4
    • Views: 463
    01-05-2015, 12:31 AM
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  20. Need help!

    Because I'm 14 I'm finding it hard to understand FTD and what it actually does, I know some things about it but would like to know more about my Dads illness, can anyone help? Sent from my iPad using Talking Point

    Started by SophieAnn‎, 28-04-2015 10:36 AM
    • Replies: 2
    • Views: 277
    28-04-2015, 06:52 PM
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  21. Is their anybody on here who is around 20?

    Hellooo, I'm Laura and I am 19, Mum was diagnosed with alzhiemers last year at 49, I have had some lovely support over the last few months on joining it has been overwhelming. Every one has been a lot older than me & I was wondering if their is anyone out their a similar age to me to talk to as...

    Started by LauraKx‎, 08-03-2012 03:58 PM
    7 Pages
    1 2 3 4 5 ... 7
    • Replies: 95
    • Views: 32,941
    27-04-2015, 09:32 PM
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  22. Esa

    Morning all Hope you're all enjoying the lovely sunshine I have here ATM I'm wondering if anyone has experience of ESA & can give me any guidelines that you may of figured out :) Von

    Started by vonvonvon‎, 12-04-2015 10:50 AM
    2 Pages
    1 2
    • Replies: 23
    • Views: 1,050
    23-04-2015, 04:58 PM
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  23. Genetic testing

    I would like to know people's thoughts on genetic testing. My OH diagnosed with early onset Alzheimer's last year at age 59 we have two teen daughters. Has anyone else of similar ages gone ahead and had the test done? What/if any info did you give your children? Many sides to this including...

    Started by Rubylou‎, 20-04-2015 08:23 PM
    • Replies: 9
    • Views: 493
    23-04-2015, 05:57 AM
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  24. Buses

    I thought today was a good day. I decided to take a book back to the school I last worked at. I know which bus to catch, and it stops very close to the school entrance. When I got to my local bus stop I found out that the routes changed last week! A helpful driver told me how to get to...

    Started by john51‎, 20-04-2015 11:49 AM
    • Replies: 5
    • Views: 406
    20-04-2015, 04:14 PM
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  25. Am I just supposed to let my mum live like this?

    My mum is 65, has FTD and lives in a care home. She regularly fluctuates between telling me that she hates it and wants to come home to not knowing who I am and being unable to communicate with me. I had a meeting with her consultant and social worker today who seemingly couldn't care less...

    Started by Beaky144‎, 14-04-2015 11:54 AM
    • Replies: 13
    • Views: 804
    15-04-2015, 08:44 PM
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