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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 14,603
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,317
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,688
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,719
    05-01-2012, 02:18 PM
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  1. Question I have Alzheimers

    Hello all out there. I'm new to this so sorry if \I don't get things right. I have recently been diagnosed with Alzheimers and am still in full time work. Does this apply to anyone else out there? H:confused:Have you told your employers and how have they reacted?

    Started by Wendy7713‎, 18-08-2014 02:26 PM
    • Replies: 6
    • Views: 183
    Today, 09:43 AM
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  2. Please help Have you been in a similar situation

    I am going to my parents tomorrow. I go up and stay overnight every Wednesday. My mum has usually not had a shower and in the same clothes. Her hair is done but its not clean. I worry that she is not showering enough. Last time I was up there I convinced her to get into the shower but she could not...

    Started by LoriAustralia‎, 11-08-2014 11:46 PM
    • Replies: 8
    • Views: 414
    Today, 08:47 AM
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  3. tired of losing my mum :(

    My mum was diagnosed exactly three years ago today and I feel a bit of a wreck. I'm so tired of continually losing her, I just want her back :( she was diagnosed when she was 55 and I was only 19, I expected that by the age of 22 I'd be able to adjust and cope but it seems harder now than it did...

    Started by hopefulasever‎, 18-02-2014 03:02 PM
    • Replies: 4
    • Views: 685
    18-08-2014, 11:57 PM
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  4. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    8 Pages
    1 2 3 4 5 ... 8
    • Replies: 106
    • Views: 24,027
    16-08-2014, 05:34 PM
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  5. I'm baaaaack! :)

    I thought I'd added the forum icon to my iPad, but either I didn't or somehow deleted it. Missed you folks. It's been a rough past few months but am smiling. No use fretting about what I can't even remember. :p I'm going to see a neurologist who specializes in Complex Migraines and stroke...

    Started by Chaiah‎, 16-08-2014 02:21 AM
    • Replies: 3
    • Views: 191
    16-08-2014, 09:48 AM
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  6. Convincing AD sufferer to accept respite

    How do you manage to convince your AD sufferer to accept respite care for a few hours a week when they have refused it? Any advice would be useful. My dad is primary carer for my mum who is 59 and early onset. She is at the point now where she thinks people in the telly are real, everything has...

    Started by Kate1983‎, 10-08-2014 03:36 PM
    experience, help and assistance, respite
    • Replies: 5
    • Views: 251
    16-08-2014, 03:19 AM
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  7. Struggling with family life (encouragement needed please)

    My hubby is 33 and has been diagnosed with vascular dementia. I am struggling to cope with the bitterness of dealing with his mood swings and complete lack of belief in what I have repeated back to him re his lack of patience with our children (one who is autistic) and inapprioprate behaviour when...

    Started by Warrior Mum‎, 02-08-2014 05:49 PM
    2 Pages
    1 2
    • Replies: 17
    • Views: 715
    12-08-2014, 11:21 PM
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  8. Any 16 year old carers on here ?

    Hello, my dad started with dementia when I was about 12 and this year we had to make the most difficult decision to put him in a nursing home. His violence had begun to escalate and he was very dependent on me and my mum. I feel very guilty that he is in a nursing home as I feel we should be caring...

    Started by emmamarie‎, 09-08-2014 12:14 PM
    • Replies: 1
    • Views: 159
    09-08-2014, 12:28 PM
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  9. Unhappy information

    Is there a age that people under 65 donot go into a old peoples home when thay cannot be cared for no more at home is it legal fror under 65years:confused:

    Started by ten tiny finger‎, 07-08-2014 08:54 PM
    • Replies: 7
    • Views: 263
    08-08-2014, 07:07 AM
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  10. My husband has early on-set alzheimers and I'm new to this site

    Really haven't figured out how to maneuver around yet. Hello to everyone!

    Started by Missinghim‎, 22-06-2014 06:48 PM
    • Replies: 11
    • Views: 838
    04-08-2014, 05:52 PM
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  11. Is their anybody on here who is around 20?

    Hellooo, I'm Laura and I am 19, Mum was diagnosed with alzhiemers last year at 49, I have had some lovely support over the last few months on joining it has been overwhelming. Every one has been a lot older than me & I was wondering if their is anyone out their a similar age to me to talk to as...

    Started by LauraKx‎, 08-03-2012 03:58 PM
    6 Pages
    1 2 3 4 5 ... 6
    • Replies: 82
    • Views: 22,975
    01-08-2014, 11:25 AM
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  12. just heartbroken

    Hi I have not written on this forum some time ago but things since have been so difficult and overwhelming i have just 'got on with it'. Mum is 67 and was diagnosed with Alzheimer's with Frontal lobe damage 2.5 years ago. I appreciate this is for those under 65 however that's how it feels really...

    Started by mickeyblueeyes‎, 18-06-2014 12:22 PM
    • Replies: 11
    • Views: 1,033
    01-08-2014, 05:36 AM
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  13. New member. Mum is 62 and has been living with AD for at least 12 years

    A disease called Alzheimer’s Written in dedication to all the families living with Alzheimer’s and to my mum, dad and sister whom are riding this journey with me. Families living with Alzheimer’s seem to get isolated for it is like a death in a family, people do not know how to react or are...

    Started by LoriAustralia‎, 31-07-2014 08:02 AM
    • Replies: 0
    • Views: 236
    31-07-2014, 08:02 AM
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  14. Dad has Alzheimer's and my mum can not cope!

    Hi all, I would like to introduce my situation and any comments / help would be much appreciated. My dad was diagnosed with Alzheimer's about 4 years ago and he is now 58. I lived out of the country for 3 years recently and came back especially to spend time with my dad before he gets any...

    Started by Help1‎, 15-07-2014 11:09 AM
    • Replies: 7
    • Views: 522
    29-07-2014, 11:45 AM
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  15. Refuses to go to bed!

    Hi all haven't posted on here for a while but need some advice if possible. Just a quick update my mum was diagnosed 4and half years ago with early onset at age 59. There has been quite a dip in mums understanding and knowing people recently. However this past couple of weeks she is refusing to go...

    Started by lucky‎, 26-07-2014 10:04 PM
    • Replies: 4
    • Views: 383
    29-07-2014, 11:27 AM
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  16. I am 60 and grew up with Jimmy Hendrix and motown

    I feel I am on a mission, i have been trying to find groups i can attend for under 65s with dementia. none. They have tried very hard to persuade into going to a singing for the brain, when i asked what they sang it was all music from the years before and around the time i was born. The only...

    Started by avril‎, 26-07-2014 11:29 AM
    2 Pages
    1 2
    • Replies: 17
    • Views: 651
    29-07-2014, 11:03 AM
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  17. Mum has early onset dementia at 55

    Hi I've just joined. I'm currently 17 and my mum has early onset dementia. She has had it for about four years now and over the past year has got increasingly worse. To be honest I just feel like I'm crumbling inside and nothing that I can do to try and help myself makes me feel any better because...

    Started by Liv‎, 15-05-2014 11:22 PM
    2 Pages
    1 2
    • Replies: 18
    • Views: 1,700
    27-07-2014, 10:37 PM
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  18. Eileenelanor

    My husband was diagnosed with Early Onset Alzheimers when he was 67, gradually he has declined but not as we expected, it seems very slow deteriation but also very hard for me because he has this obsessive behaviour, and is very emotional gets angry and jealous of our Grandchildren or anyone that...

    Started by eileenelanor‎, 16-07-2014 10:54 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 695
    27-07-2014, 08:12 PM
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  19. Euthenasia, yet again, i thought we were over that!

    After silence on the subject for a year or so, mum's back at me again to do something about euthenasia for her. I went to visit for her 60th birthday for a few days with my children, and the moment my dad left the house she was talking about it again, inferring that I should help her to get some...

    Started by zeeeb‎, 25-07-2014 09:15 AM
    • Replies: 6
    • Views: 383
    26-07-2014, 12:24 AM
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  20. Buckinghamshire talking groups or cafes

    Hi, Does anybody know of any cafes or groups to go to in and around the Buckinghamshire area. Im based in Aylesbury. Thanks.

    Started by Tinkerbell123‎, 17-07-2014 01:02 PM
    • Replies: 4
    • Views: 278
    23-07-2014, 09:33 AM
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  21. Unhappy questions

    I am 52 and was diagnosed at 49 with young onset Alzheimer's. I was a plant engineer when diagnosed and haven't been employed since my diagnosis. I know I was in really bad shape when diagnosed, but, now one of my greatest battles is being in denial. I take aricept once daily and namenda twice...

    Started by Jim2374‎, 22-06-2014 05:30 PM
    • Replies: 8
    • Views: 799
    19-07-2014, 11:23 AM
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  22. National Hospital in London for neurology

    Hi Everyone! My mother in law who is 53 and been suffering with young dementia/ Alzheimers for the last year has been taken into a home in the last week! This is very sad and hard to deal with considering she is so young and so are we but she is so happy there - the happiest we have seen her...

    Started by Tinkerbell123‎, 17-07-2014 12:48 PM
    • Replies: 3
    • Views: 268
    17-07-2014, 09:57 PM
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  23. Relief

    I could have hugged a lady on the phone last Thursday I think it was. As a (now ex) teacher of 51 years old with vascular dementia I have been applying for Ill Health Retirement. Many thanks to all those on TP who gave me much valued advice about continuing at work. When they got all the...

    Started by john51‎, 13-07-2014 06:04 PM
    • Replies: 8
    • Views: 531
    13-07-2014, 07:56 PM
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  24. My boyfriend's dad has Alzheimer's

    Hi all, First of all, I found this amazing society yesterday, and it's amazing to see how supportive everyone is of each other, and I hope I can help contribute to the wonderful things the people on this site are doing. A few days ago my boyfriend (18) found out that his father may be...

    Started by andreamarie‎, 05-07-2014 12:08 PM
    alzheimer's, boyfriend, father, partner, support
    • Replies: 5
    • Views: 509
    13-07-2014, 04:19 PM
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  25. How to deal with negativity?

    Hi, I haven't posted for a while as Dad seems to have been keeping well, but tonight I feel really down! As well as being diagnosed with early onset two years ago at 59, at the end of last year he was also diagnosed with an extremely rare tumour, this was removed in January and things have been...

    Started by Janey_B_‎, 11-07-2014 10:56 PM
    • Replies: 2
    • Views: 503
    11-07-2014, 11:52 PM
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