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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 34
    • Views: 19,669
    02-12-2014, 02:41 AM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 3,155
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 3,034
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 6,273
    05-01-2012, 02:18 PM
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  1. Need help!

    Because I'm 14 I'm finding it hard to understand FTD and what it actually does, I know some things about it but would like to know more about my Dads illness, can anyone help? Sent from my iPad using Talking Point

    Started by SophieAnn‎, Today 10:36 AM
    • Replies: 1
    • Views: 24
    Today, 10:39 AM
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  2. Is their anybody on here who is around 20?

    Hellooo, I'm Laura and I am 19, Mum was diagnosed with alzhiemers last year at 49, I have had some lovely support over the last few months on joining it has been overwhelming. Every one has been a lot older than me & I was wondering if their is anyone out their a similar age to me to talk to as...

    Started by LauraKx‎, 08-03-2012 03:58 PM
    7 Pages
    1 2 3 4 5 ... 7
    • Replies: 95
    • Views: 32,176
    Yesterday, 09:32 PM
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  3. UTI in progress!

    Going through a difficult few days at the moment while my husband battles through his first UTI. I am so grateful for this forum because it was here that I found out about UTIs a couple of years ago - and so I was aware of what would happen and what to look out for. Having said that it is still...

    Started by LynneMcV‎, 22-04-2015 10:53 PM
    • Replies: 11
    • Views: 468
    Yesterday, 08:12 PM
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  4. End stage falls

    Hi, Just wondering if anyone on here has any experience with end stage Alzheimer's? Everything I've read online only relates to elderly people and my mum is 59 so I've not got a clue how it could progress - I found out she's at the end stage on Easter Sunday and her nursing home called me a few...

    Started by hopefulasever‎, 23-04-2015 03:13 PM
    • Replies: 3
    • Views: 252
    23-04-2015, 06:49 PM
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  5. Esa

    Morning all Hope you're all enjoying the lovely sunshine I have here ATM I'm wondering if anyone has experience of ESA & can give me any guidelines that you may of figured out :) Von

    Started by vonvonvon‎, 12-04-2015 10:50 AM
    2 Pages
    1 2
    • Replies: 23
    • Views: 843
    23-04-2015, 04:58 PM
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  6. I'm 14 and need someone hopefully a similar age to talk to.

    My Dad has early onset frontotemporal dementia which seems to be progressing rather quickly. If anyone is a similar age to me I would like it if we could talk and support each other?

    Started by SophieAnn‎, 21-04-2015 04:37 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 612
    23-04-2015, 01:33 PM
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  7. Genetic testing

    I would like to know people's thoughts on genetic testing. My OH diagnosed with early onset Alzheimer's last year at age 59 we have two teen daughters. Has anyone else of similar ages gone ahead and had the test done? What/if any info did you give your children? Many sides to this including...

    Started by Rubylou‎, 20-04-2015 08:23 PM
    • Replies: 9
    • Views: 359
    23-04-2015, 05:57 AM
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  8. Buses

    I thought today was a good day. I decided to take a book back to the school I last worked at. I know which bus to catch, and it stops very close to the school entrance. When I got to my local bus stop I found out that the routes changed last week! A helpful driver told me how to get to...

    Started by john51‎, 20-04-2015 11:49 AM
    • Replies: 5
    • Views: 293
    20-04-2015, 04:14 PM
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  9. Feeling alone

    Hi My mum suffers with vascular dementia and at the moment I am finding it difficult to come to terms with. I have recently moved away from living close to my parents due to circumstances not related to the dementia and I am finding it difficult to deal with my mums problems. I am 22 and she is 47...

    Started by Kilgara‎, 08-03-2015 06:47 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 876
    17-04-2015, 06:22 AM
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  10. I'm in my 20's and my mum has dementia

    Hi everyone, I'm new to all of this. I didn't even know this site existed until I finally had the guts to google "young people who have a parent with dementia". I'm finding everything hard and I just feel like I have a hundred people around who can support me, but no one understands what it's like...

    Started by Lyla_W‎, 12-03-2015 08:26 PM
    3 Pages
    1 2 3
    • Replies: 32
    • Views: 1,797
    17-04-2015, 01:52 AM
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  11. Am I just supposed to let my mum live like this?

    My mum is 65, has FTD and lives in a care home. She regularly fluctuates between telling me that she hates it and wants to come home to not knowing who I am and being unable to communicate with me. I had a meeting with her consultant and social worker today who seemingly couldn't care less...

    Started by Beaky144‎, 14-04-2015 11:54 AM
    • Replies: 13
    • Views: 644
    15-04-2015, 08:44 PM
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  12. Contributions Towards Wedding

    Hi, My OH was diagnosed with Alzheimer's about 18 months ago. We have a LPA, I am his Attorney and he still has mental capacity. He just needs support at times. His daughter from his first marriage has just got engaged and naturally he will want to make a contribution towards the cost of her...

    Started by JigJog‎, 15-04-2015 02:13 PM
    • Replies: 8
    • Views: 277
    15-04-2015, 05:33 PM
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  13. Single mum seeking advice/support for teen sons whose dad has early onset Alzheimer's

    Hello - Thank you for reading this. My sons are aged 18/16 and their father (my ex husband), 59, is diagnosed with probable early onset Alzheimer's. He lives in the US. I would really appreciate any advice in how to support them through his decline, please. The 18 year old has deferred his start...

    Started by Londonmum‎, 09-01-2015 09:23 PM
    • Replies: 5
    • Views: 1,042
    13-04-2015, 10:13 PM
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  14. Frontotemporal Dementia - is anyone caring for someone who has this type of dementia?

    Hi Everyone, My mum has sadly been diagnosed with fronto-temporal dementia at 62 years old. She started showing signs of depression a few years ago, wanting to go to her room and sleep at variable times of the day. Since then, she has deteriorated rapidly, changing from a glamorous mother, who...

    Started by Rosiejones‎, 12-02-2015 11:39 AM
    fronto temporal dementia, fronto-temporal dementia, mum, mum has dementia, sadmness, young carer
    • Replies: 9
    • Views: 1,218
    13-04-2015, 04:30 PM
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  15. Mum is constantly abusive - can't take any more

    Mum, 60, has early-onset Alzheimer's. Three years in now. She spends every day ranting, swearing, shouting, screaming. Won't wash, won't brush teeth, refuses to take tablets, sometimes incontinent, carers are saying they might not come round any more because she's so aggressive, she's been tested...

    Started by justgettingby‎, 10-04-2015 10:53 PM
    • Replies: 4
    • Views: 531
    11-04-2015, 10:56 AM
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  16. Question Menopause and Early Onset Alzheimers

    So, my mother is 54 and was diagnosed with Early onset Alzheimers two years ago and showing symptoms for the past four years. Her mother was diagnosed when she was 47 years of age and my grand-father registered his interest in Dementia research where my grand-mother went through a number of testing...

    Started by carli1987‎, 07-04-2015 01:48 PM
    • Replies: 4
    • Views: 460
    07-04-2015, 08:24 PM
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  17. Alcohol induced dementia - help needed

    In desperate need of both insight and advice I am concerned that my mother may be showing signs of Korsakoff syndrome. As for her background, she has a history of alcohol abuse, including severe abuse stretching over 4/5 years. The alcoholism has now largely subsided, unfortunately not stopped...

    Started by concerned2015‎, 22-02-2015 07:46 PM
    alcohol induced, korsakoff dementia
    • Replies: 5
    • Views: 1,005
    05-04-2015, 12:09 AM
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  18. Progressive symptons

    Hello, I was wondering if anyone could shed some light on some of the symptoms that my mum has been displaying. She's got vascular dementia and only got her diagnosis in March 2014. Mum is unfortunately in a care home because my dad is unable to care for her. Just recently I've noticed that mum...

    Started by CHEZA27‎, 02-04-2015 08:04 PM
    • Replies: 5
    • Views: 543
    04-04-2015, 02:17 PM
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  19. Going crazy?

    Hello I am a 45 year old married, qualified sign language interpreting male. For some time now my family have noticed my inability to remember relatively recent significant events in our lives without the aid of photographs/film which I would normally be expected to remember without such aids....

    Started by Maxim‎, 03-04-2015 07:17 AM
    • Replies: 3
    • Views: 452
    03-04-2015, 10:35 AM
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  20. Conversation (or lack thereof)

    My mum has reached the stage where forming coherent sentences is increasingly difficult, and I'm finding it really hard to hold a conversation with her, particularly over the phone (as I live a good 2 hours away from my parents, but try to phone regularly). I don't live a particularly exciting...

    Started by queenquackers‎, 23-02-2015 11:14 AM
    • Replies: 11
    • Views: 820
    02-04-2015, 08:41 PM
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  21. I am 36 and I think I have early onset Alzheimer's. Terrified.

    I work in the city of London, am very career focussed and work long hours. I love working, it's what gets me out of bed each day. My dad developed early onset Alzheimer's disease when he was 46. I am just about to have my 36th birthday and I sense I too have now started my journey into full...

    Started by BWYNS‎, 30-03-2015 09:31 PM
    early onset
    • Replies: 8
    • Views: 721
    01-04-2015, 09:36 AM
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  22. All out of ideas

    Morning. I have a friend who is 58 and has been in a CH for 18 months. At first she thrived but her Alzheimers has deteriorated rapidly. She has been sectioned twice due to violent behaviour ( so out of character for her). The current issue is that since early December she has been singing a carol...

    Started by RosiePop‎, 21-03-2015 11:16 AM
    • Replies: 9
    • Views: 619
    28-03-2015, 10:10 PM
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  23. does anybody live near st ives cornwall that I could befriend

    Not lived here very long, I have early onset dementia, coming up to 54. Would love to meet anybody others for mutual support. Thankyou

    Started by seagull50‎, 27-03-2015 11:29 PM
    • Replies: 1
    • Views: 293
    28-03-2015, 12:41 AM
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  24. Using tablets to help people with Dementia

    Hi, My husband is 62 and was diagnosed with Alzheimer's two years ago. He is still very fit and active and walks every day. He is able to read still and likes TV. He finds it very difficult to do anything new now but does like to play Solitaire on his PC for about an hour, before moving...

    Started by JigJog‎, 06-03-2015 06:10 PM
    • Replies: 13
    • Views: 776
    25-03-2015, 11:59 AM
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  25. younger person with vad / small vessel disease

    hi everyone recently joined tp but have been diagnosed foe over 12 months now . not noticed this myself but have started shouting and swearing constantly and say inappropriate things out loud has any other sufferers had this type of problems

    Started by busta‎, 24-03-2015 10:53 AM
    • Replies: 1
    • Views: 327
    24-03-2015, 01:57 PM
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