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Forum: Younger people with dementia and their carers

This forum is for people with dementia under the age of 65 and their carers, families and friends.

  1. Sticky Thread Sticky: Support with Familial Alzheimer's disease

    Thank you to KatherineW for making this post a 'sticky' :) If you have found this thread because you or a loved one is affected by Familial Alzheimer's Disease, I do hope that you will find it useful. There's not many of us but I hope that if you are here, you now know that you are not alone. ...

    Started by BungleGirl‎, 25-03-2012 02:15 PM
    3 Pages
    1 2 3
    young dementia
    • Replies: 33
    • Views: 15,363
    08-08-2014, 11:54 PM
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  2. Sticky Thread Sticky: Younger people with dementia and their carers - chat room topic

    Hi everyone, Recently, we invited younger people with dementia and their carers to our chat room session on Tuesday 25 February from 12-1pm. The transcript from the session can be viewed by clicking on the link below: To clarify, this discussion was intended for people with dementia...

    Started by SerenaS‎, 24-02-2014 04:04 PM
    • Replies: 0
    • Views: 1,649
    24-02-2014, 04:04 PM
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  3. Question Sticky Thread Sticky: Could you be part of the Talking Point team?

    Talking Point is growing, and we are on the lookout for new volunteers to help support the forum. Volunteers are key to the successful operation of Talking Point: we could not run the service without our dedicated teams of Hosts and Moderators. If you think you might like to be part of the...

    Started by KatherineW‎, 01-08-2013 04:10 PM
    • Replies: 0
    • Views: 1,887
    01-08-2013, 04:10 PM
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  4. Smile Sticky Thread Sticky: Welcome new members

    If you have just joined Talking Point, a very warm welcome to you. You are reading our Younger people with dementia and their carers forum. If you have dementia and are under 65, or are caring for a person with dementia who is under 65, you may find the following information useful: Young...

    Started by KatherineW‎, 05-01-2012 02:18 PM
    • Replies: 0
    • Views: 4,950
    05-01-2012, 02:18 PM
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  1. How to keep my wife's mind active while I'm at work

    I joined TP today. My wife had a confirmatory diagnosis of early-onset posterior cortical atrophy variant of AD earlier this year - she is 52. I am still working, though my employer is very understanding and lets me go home lunchtimes to check up on my wife, and I can stay there all afternoon (to...

    Started by Prospector‎, Today 09:24 AM
    • Replies: 10
    • Views: 157
    Today, 05:52 PM
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  2. Cramp in legs - alot

    Hi My mum is 64 and is on galantamine and memantine, she is getting an awful lot of cramp in her legs, seems to be inner thigh. It has happened twice in the past 3 days that i know of. She cant stand, starts shaking, goes white as sheet etc, i got a right fright when i saw her. Has anyone...

    Started by mcflod‎, Yesterday 11:39 AM
    • Replies: 3
    • Views: 142
    Yesterday, 03:13 PM
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  3. Not heard anything about Personal Independence Payment

    We applied for the Personal Independence Payment in April for my sister who is 59. It is now nearly October that is 6 months. Is anyone else experiencing this problem? I contacted them in June and they said they have received the papers but had a bit of a backlog!!!! I think 6 months is...

    Started by mumbasi‎, 28-09-2014 10:16 PM
    • Replies: 5
    • Views: 199
    Yesterday, 11:37 AM
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  4. Question PIP assessment, consultation appointment

    Hi, My husband has Frontolobe dementia, he is 61 years old. He was diagnosed last March. I had previously taken him to doctors 2years before with concerns about his mental health and behavior, the doctor said all was fine! Now with diagnosis I was unable to get power of attoney, but the reason for...

    Started by Beckam‎, 26-09-2014 08:24 PM
    • Replies: 3
    • Views: 142
    27-09-2014, 08:20 AM
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  5. Help with my wife's new medication Arisept

    My wife who is 61 has been diagnosed with Alzheimer's last week and has been prescribed Arisept 5 mg daily each morning since Wednesday . Since this day my wife has been having very bad episodes of confusion and of not recognising myself in the early part of the day she normally would have these...

    Started by Papa‎, 20-09-2014 04:50 PM
    • Replies: 6
    • Views: 302
    25-09-2014, 08:25 PM
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  6. Should I pursue diagnosis at 45?

    Hello My father died of Early Onset Alzheimers (diagnosed at 60, died at 70). My mother now has Alzheimers (diagnosed at 70, now at end stage). I am concerned for myself having it. I have a dreadful memory and have got lost in places i shouldn't eg how to get out of service centre toilets,...

    Started by sarahjanet‎, 23-09-2014 09:29 PM
    • Replies: 8
    • Views: 358
    24-09-2014, 03:53 PM
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  7. What do I do now?

    Hi all, Firstly, I am so sorry you've come across this post because it must mean you are having to deal with this difficult time. I'm 22 years old and last week my 54 year old mum was diagnosed with Alzheimer's Disease after undergoing tests for the last 3 and a half years. We have known...

    Started by Ellapops‎, 23-09-2014 07:48 AM
    early onset alzheimer's, mum
    • Replies: 7
    • Views: 269
    23-09-2014, 02:12 PM
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  8. New member

    Hi I am new to this forum and sadly new to Alzheimer's Papa

    Started by Papa‎, 16-09-2014 02:24 PM
    • Replies: 2
    • Views: 228
    16-09-2014, 03:59 PM
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  9. Younger people in existing care home system needs changing!

    My husband, age 57, has just had a weeks respite in a local care home in West Sussex. Although he seemed quite happy, it really is not the right place for him to be with people so much older than he is and most of them far less mobile and some on their very last legs. It was so bad, I couldn't ask...

    Started by merlot‎, 08-09-2014 04:14 PM
    2 Pages
    1 2
    care home, respite, young dementia
    • Replies: 16
    • Views: 755
    15-09-2014, 05:31 PM
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  10. Medication now being reduced

    Hi all my mums medication is now being reduced as the professionals involved don't think it is helping anymore. I didn't think this stage would come so quick mum has only been on articles 4 years:-( My dad has also been asked to think about respite as he so worn out as she refuses to go bed...

    Started by lucky‎, 07-09-2014 12:24 AM
    • Replies: 2
    • Views: 340
    08-09-2014, 10:50 PM
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  11. Is their anybody on here who is around 20?

    Hellooo, I'm Laura and I am 19, Mum was diagnosed with alzhiemers last year at 49, I have had some lovely support over the last few months on joining it has been overwhelming. Every one has been a lot older than me & I was wondering if their is anyone out their a similar age to me to talk to as...

    Started by LauraKx‎, 08-03-2012 03:58 PM
    6 Pages
    1 2 3 4 5 ... 6
    • Replies: 86
    • Views: 24,811
    08-09-2014, 07:53 PM
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  12. Speeding up

    My husband is 62 and was diagnosed with Alzheimers a few years ago. He usually walks very slowly and does everything in a very purposeful manner but in the last week he has started to walk really quickly at certain times of the day and jumps from one thing to another. He has also become more...

    Started by Bollywood‎, 28-08-2014 07:39 PM
    • Replies: 2
    • Views: 348
    08-09-2014, 07:41 PM
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  13. My husband has early on-set Alzheimer's and I'm new to this site

    Hi to all fellow sufferers My husband is 63 n I'm 45 we have a 6 month old baby girl I'm struggling to cope as I have no family support n find friends avoid us unfortunately my husband was my world n was a financial wizard I find my life lonely n have no idea what to expect or what resources r out...

    Started by Tracyfaria‎, 04-09-2014 11:14 AM
    • Replies: 8
    • Views: 589
    08-09-2014, 09:10 AM
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  14. Convincing AD sufferer to accept respite

    How do you manage to convince your AD sufferer to accept respite care for a few hours a week when they have refused it? Any advice would be useful. My dad is primary carer for my mum who is 59 and early onset. She is at the point now where she thinks people in the telly are real, everything has...

    Started by Kate1983‎, 10-08-2014 03:36 PM
    experience, help and assistance, respite
    • Replies: 7
    • Views: 651
    08-09-2014, 07:50 AM
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  15. Husband is 61 he need activity during the day but not day centres

    I'm looking for things to do for my husband to do during the day, as he get very low. I was thinking of clubs of social clubs for his age group, but where do I look. I don't want day centres.

    Started by carolannrose‎, 08-11-2013 04:48 PM
    • Replies: 9
    • Views: 1,398
    07-09-2014, 04:23 PM
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  16. My husband has early on-set alzheimers and I'm new to this site

    Really haven't figured out how to maneuver around yet. Hello to everyone!

    Started by Missinghim‎, 22-06-2014 06:48 PM
    2 Pages
    1 2
    • Replies: 15
    • Views: 1,526
    07-09-2014, 07:54 AM
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  17. Newbie here with early onset Alzheimer's Disease

    Hi all, I hope that I have posted in the right section. :) In June 2011, I was diagnosed with early onset Alzheimer's Disease... I was 45 years old. It really didn't come as a shock to be honest, because my family and I had been recognising the signs, because my mum is in the later stages of...

    Started by Daryl2510‎, 18-07-2012 11:23 AM
    8 Pages
    1 2 3 4 5 ... 8
    • Replies: 111
    • Views: 25,857
    31-08-2014, 08:15 PM
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  18. Surrey / SW London Area

    Hello all! I've been reading really helpful posts for a few months now and felt like joining in with discussions. Straight to the point... I was wondering whether anyone knew of any good groups or activities a young (55 year old) mum could participate in near Epsom/Banstead/Esher/Wimbledon?...

    Started by Kimberlumps‎, 30-08-2014 08:19 AM
    carer, early onset, hygiene
    • Replies: 6
    • Views: 394
    31-08-2014, 10:01 AM
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  19. Dementia unfriendly DVLA

    Last year, my hubby declared his dementia to the DVLA and was given a one year's limit on his licence which was due to be reviewed in May this year. The DVLA sent out the renewal stuff 90 days before the licence expired, which we quickly returned. We've heard nothing since then. So we were a bit...

    Started by bigsis‎, 28-08-2014 02:11 PM
    • Replies: 3
    • Views: 415
    30-08-2014, 02:24 PM
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  20. Talking to herself

    Hi my mum has been diagnosed now over 3 years but has deteriorated alot this last 3 months, more than iactaully realised Mum is talking to herself constantly now, shes looking at items say a chair and speaking to it like its my dog, she was looking at books on my table and started talking to them...

    Started by mcflod‎, 27-08-2014 02:09 PM
    • Replies: 3
    • Views: 310
    27-08-2014, 03:34 PM
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  21. Question Peer support for children whose parent has dementia

    I am currently working with a couple and they have a daughter is 8. They are looking for support for their daughter so that she has someone she can talk to about how she is feeling. We are going to look into what school can provide and they have tried barnardos but that didnt seem to run...

    Started by clojh21‎, 21-08-2014 09:07 AM
    • Replies: 4
    • Views: 625
    27-08-2014, 10:34 AM
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  22. tired of losing my mum :(

    My mum was diagnosed exactly three years ago today and I feel a bit of a wreck. I'm so tired of continually losing her, I just want her back :( she was diagnosed when she was 55 and I was only 19, I expected that by the age of 22 I'd be able to adjust and cope but it seems harder now than it did...

    Started by hopefulasever‎, 18-02-2014 03:02 PM
    • Replies: 5
    • Views: 999
    24-08-2014, 04:41 PM
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  23. Smile The Great North Run

    Hi everyone, I haven't posted for a while, but I look through most days. Hubby has now finished work but we are fighting that cause, its an up hill struggle but we will get there. I'm so proud of him he's doing The Great North run with our son as he would be unable to do it on his own and he has...

    Started by Brannybob‎, 24-08-2014 01:41 PM
    • Replies: 0
    • Views: 213
    24-08-2014, 01:41 PM
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  24. Any 16 year old carers on here ?

    Hello, my dad started with dementia when I was about 12 and this year we had to make the most difficult decision to put him in a nursing home. His violence had begun to escalate and he was very dependent on me and my mum. I feel very guilty that he is in a nursing home as I feel we should be caring...

    Started by emmamarie‎, 09-08-2014 12:14 PM
    • Replies: 2
    • Views: 442
    22-08-2014, 08:47 PM
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  25. Our family is being torn apart

    Hi My name is Claire (30) and my step-father Gareth (50) has familial early onset alzheimer's disease. He was diagnosed at 49 but showed symptoms for about a year before that. He has a large family background of this illness and his mother died of it also. He lives at home with my mum (46)...

    Started by cmcc‎, 22-08-2014 05:38 PM
    • Replies: 3
    • Views: 491
    22-08-2014, 07:47 PM
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