Forum: Support for people with dementia and their carers

Hi everybody Does anyone have any experience of the recent white paper regarding Personalized budgets for continuing Health Care. I am particularly interested if anybody has been involved in any pilot schemes regarding this I know there are some going on in the UK not sure where though. Also...

I have just spoken to my Dad who is at the unit with Mum. Mums section was up on Thursday 15th January and we were advised after much pestering that we would be invited to a meeting this week,Dad has got there today to be told they are moving Mum today as for the second time she has been found...

I'm new to all of this. My husband was dignosed with Alzheimers 18 months ago and, until recently I have coped alone 24/7 with no break. I was told today that, because I have registered the Lasting Power of Attorney I am not eligible for any Direct Payments towards his Day Care. If I have to...

Posting this reminder in the main forum, for anyone who may be interested, as it takes place today, Tuesday 20 Jan 2009 at 11:00 - Dignity in Care webchat with Minister of State for Care Services, Phil Hope. http://www.publicquestion.com/

Hi, new to this forum, but needed some outlet to let off steam and concerns. My father started showing signs that were 'odd' just over a year ago. Very small things, but just not what he would have done before. Odd or what I would consider inappropriate clothing? Failing conversation...I...

Hi can anyone offer me some guidance? What actually constitutes the care that a carer in receipt of carers allowance should be providing, or that the cared for might expect? I've looked on the DWP site and seen their guidance for someone to claim carer's allowance but it seems to only...

Just a little history before a question. My dad has had a few trips out on a mini-bus with the home in the last year. Most recently, over last six months, he had one to the coast and one today to Richmond park, just a drive around and stop for tea and biscuits. On both ocassions dad has been...

Hi, My mum's been recently diagnosed with vascular dementia and I am finding the whole experience rather overwhelming. I just want to ensure that my mum's ok and happy - she's 82 and lives alone. Luckily she has an informed GP who put us in touch with a CPN - he is geeting her assessed by social...

Thank you to all of you who replied to my last entry. I know how valuable your time is, so appreciate your responses. Tomorrow we will be making our usual trip down to Devon and back. I sometimes wonder how long we can keep this up for, but like so many others of you in a similar situation, we...

I am new so not sure if this is the place for this question or not. My mother in law is having a hard time with memory. She lives out of state and relies on my brother in law for everything. the last time he called he said she was taken off her medicine for memory as he did not think it was...

I would say is now in the midle stages of mixed vascuala dementia /alzheimers. I have carers going in 2 times a day that where just going in to give her pils and see if she wanted anything done - to which of course she said no to! I get the care bumped up to them now going in to just make her a...

:( Not been on the forum for a while but wanted to thank everyone on here for all the help and advice they gave me when Dad first went into a care home, suffering from dementia and other medical problems. His condition after Christmas and New Year really went down hill and at the beginning of this...

Hi I am hoping somebody may have an idea or some advice. I am struggling a lot at the moment!:( My Mum was diagnised with early stages of Alzheimers a few months ago. My Mum is aware that she has the disease and I would imagine this has to be the hardest and cruelest part of the disease ever! ...

hello all, First I've just read a few post which have broken my heart, started the tears for you all, my dad and my family... but also tears to know we all know we're not alone. x Second, I recall reading about a certain Alzheimers diagnosis where people found they too carried the gene that...

Hello everyone :) I've spent all evening reading through these forums. What a fantastic bunch of people you all are. It's so...I don't know the right word...comforting? to know that other people are having EXACTLY the same experience as me. I've been nodding away at so many of the comments, I've...

ok, i just came back from my second visit to my AD uncle. the first time i promised to be strong and i walked in the nursing home with this. "be strong, you go in there to show concern to your aunt". i did better.. my aunt was there and we talked a bit. my uncle was somewhat asleep. BUT .. i...

Hello - my father has just been diagnosed with Vascular Dementia and has had a bad memory for some time. I was pretty upset at seeing the Channel 4 despatches programme last Monday but heartened at the discovery that Aricept can apparently help matters. Is this the case and how can you get these...

How do I convince my mum, it isn't safe for my dad to go shopping (very locally) or take his dog to the park alone? He's stage 5 (thereabouts), and altho his perception skills are ok-ish, his money skills, memory & mobility (he shuffles as he walks, and has a bad ankle & stiff knee) aren't. Uneven...

Having become bed bound six months ago my mother defies all logic. Physically she looks as well as ever.. All the things I was warned about, eg higher risk of constipation, well we used to have to admister Movicol before, has not been required since. We spent a year before with her...

went to see Edna to be faced by a closed door, the staff nurse came to the door to say Edna was ill along with most of the other residents, so they have a closed door I could have gone in if I hadn't been ill in the last 48 hours plus washed my hands first and again when I came out, but as I had B...

Hello, Stumbled across this forum by accident and thought it may help. I thought I'd start by explaining by situation sorry if it becomes long winded. My Mum aged 78 has Dementia, she is better in the mornings but by the evening and now frequently the afternoon she has no idea what is...

My wife has early onset Alzheimer's disease which manifests itself mainly as increasing difficulty estimating distances. I am told that this i a fairly common symptom, but not as in her case the major one. I am told there are many people out there who have cared for sufferers with this difficulty...

Hello, I'm new to the forum and so apologise upfront if this has been discussed before. My mum has a faulty heart valve that the doc says is too risky to replace and over the years of it being undetected it has caused Vascular Dementia, which after much heart searching etc resulted with her going...

Hello everyone I can't begin to tell you all how important Talking Point has become to me over the last 6 months or so - just gives me a sense of not being alone and offers so many wise words. I wonder if anyone can offer some suggestions please? My dad is 77. Up until May last year he was...

Hi, Its been 2 years since my dad began to show confusion with time of day. He would finish work at tea time but after about 30 minutes of being in his house, he would be thinking it was morning and he was late for work. Before he was diagnosed, I don't ever recall my dad being off work ill and...