Forum: Support for people with dementia and their carers

Hi We have carers going in 4 evenings a week to give mum an evening meal (the 3 days a week she goes out). However, they very rarely give her a meal. They ask if she wants anything and she either says she is not hungry or that she as already eaten. When I go over there, I find biscuits,...

Just spent 9 days with my mum. Love her dearly and can't stand being with her. Does that sound familiar? She's getting worse, but very slowly - doesn't think there's anything wrong with her - is really reliant on me and my sister and will only get more so. Can't imagine her ever accepting care...

HI I havent written up here for a while cause I thought I was coping ok but just recently she has got slightly worse . I went out for an hour today having been out with her all Morning gave her lunch ,told her I would be back in a couple of hours ..left a note etc..alll fine ...until I get back,...

I know the community hospital my dad is stuck in will say they are understaffed but there is a new problem which know one appears to be bothered about. I visit daily and over the last few days dads room has smelt of urine and this smell is also in the corridor. For the last couple of days the...

well, I am so looking forward to monday .... last tuesday, we had to put mum back into respite, this could end in a permanent choice :( thursday our friends horse died friday our dear dog got put down, saturday, mother in laws dog got put down saturday evening sister in law got rushed to...

A couple of months ago, we made the tough decision to out Dad in a care home. We chose one in particular as it was a familiar place for him and the manager seemed a bright and caring person. The past few weeks have been dreadful as they do not appear to be able to deliver even basic care needs....

Dad went to hospital from the care home, wasnt feeling well, hospital sent him back next day, a day later, care home call ambulance again, Dad not well again, if hospital kept him in first time and checked him properly he would not be ping ponging back and forwards. Turns out was his heart pace...

I know I put a post up of similar to this before but here goes again. My Dad been in and out of hospital. But the one he goes to is reported to be the worst in the country. Thats the one he goes to for his district which he is in, lets face it, not many around that area. On visiting my Dad...

My father has Alzeimers and has lived with me for the past 10 months unfortunately he became too difficult to cope with at home,constantly wandering around in the night and unresponsive to requests to go back to bed. He also had started to ramble and we could make no sense of what he was saying. ...

Hi everyone After my last post at the weekend when I lost it with dad and then felt incredibly guilty things have got worse. Dads wandering to my house has increased 12 times yesterday, he was also trying peoples garage locks (something he has never done before) was also aggressive on the phone...

All my adult life I have been preparing food that was lowish in fat and with minimal sugar and have cooked my way through innumerable weight reducing plans for both of us. Now I am confronted by a husband who only wants sweet foods and can't seem to eat anything not pureed or minced with the...

As it is a big topic in the news currently after the recent Panorama secret filming I have an idea but I do not know whether it would be possible or permissable so what does everyone think. I wonder whether we could start a thread about our experiences of this and all add our own stories. Then...

Mum has been just over a week in respite which will probably become permanent. :( The home is about an hour's journey away from me on public transport. Although she seems to be accepting the fact that she's there I know she isn't happy and would have preferred to be cared for by people she...

Mum in EMI for 6 months and has only once allowed the chiropdist to cut her toe nails and treat the hard skin on her feet. As the dementia progresses she has refused, even when I have been with her,chiropodist demonstrated on me what she is going to do, to have her feet done. I`ve even given...

Hi all, A year ago today we wre celebrating our Golden Wedding. Bungalow was decorated and friends and relations were popping in to see us and celebrate all over the weekend. It was lovely.Todayi am spending the day with maxine, going to take yellow roses up to bryans grave.(i had them in my...

For some time now my wife rolls some toilet paper up i find it in her knickers in her bra and everywhere round the house, she offers it to me as if she was giving me some kind of gift of course i accept it as one, just wandered if this is a one off though i suspect i am not the only one with this...

Does anyone else actually live 24/7 with someone who refuses to have a shower? My (grown up) kids tell me to just leave him to get on with it but my husband smells horrible and makes the room where he sits/lies smell and I really find it impossible to ignore it. It's even worse in the summer than...

Hi all, How do you all cope with the lonliness? Hubby just been diagnosed with vascular dementia after a stroke 4 years ago. He's no trouble really, I have to ask him to do everything- get up, eat, sit down etc and bless him he does it all no trouble. I wash him, dress him, trim his tash and...

New to forum not sure what to do or say yet, Looking for answers but we all know its a case of doing our best for our loved one. Dad died almost 4 years ago of cancer another dreadful disease. At that time we didn,t know it but mum was on the Alzheimer's path. Since then it has been a downward...

It seems very likely that my father is going to be started on Respiridone, and I'm wondering what experiences people here have had of it. My father has had very bad experiences with anti-psychotic drugs in the past but they were Haloperidol and Quetiapine. He hasn't taken Respiridone yet. I've...

Okay, I'll keep it simple...Mom diagnosed with alzheimers 10 years ago (now 77)...Dad, being her care giver, had heart attack Nov 2010, stroke Feb 2011, now has vascular dementia. After rehab(physical) for Dad, have moved them both into assisted living together 8 May.Both hate it, they believe...

I’ve only posted here once as things haven't been too bad but Dad's got so much worse in the past couple of months. He keeps accusing Mum of sneaking off to meet men and is convinced she doesn't love him any more. We have to lock the doors to prevent him from taking what he calls 'a long...

I have touched on this subject before but I am now in a real quandry. Yes. again, I know! But I have to make a decision by Monday morning. Does anyone have any experience of LA nursing homes? I have written a horredously long post here but have now deleted it and will come straight to the...

My husband can go for several days at a time exhibiting little memory difficulty at all, but there are others when he also seems to have trouble finding the names of things, for example on the weekend in the space of an hour secateurs were "scissors" "shears" and ""cutters" whilst a "branch" was a...