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Yonnie

How long?

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There's a tiny glimmer of hope.

Although the situation remains the same, no support is avilable because John has too much money yet is too ill to access it, the nurse in the community mental health team has offered to come and bathe John while Kate and I wash his clothes. This is not part of her job but she realises that allowing John to continue being unwashed, unkempt and smelly is simply not tenable.
This, however, is likely to be a one off.

Kate and I went to see the MP on Saturday. He has promised to investigate the case further and also to send us information about current government policy and strategy. He was quite open about the financial problems faced by the NHS in the light of a longer lived population and that the interpretation of the distinction between NHS care and social care varies from area to area. He said that one suggestion was that people should be encouraged to take out private insurance to set up funds for old age (I didn't like to say that I thought that National Insurance contributions were supposed to fulfil this function.)

I will let people know what information we receive. Incidentally, when I mentioned that I was keeping a blog he was very interested in any comments that I had receive; I am going to send him copies of posts so any comments will be welcomed.

Meanwhile, John's decline continues. He called me in yesterday because his telephone bill had arrived and he couldn't handle paying it. It became clear that he was losing his reading ability and was thrown into a panic by having to write his name.

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  1. Bodensee's Avatar
    Poor John, paid NI contributions during his working life and now he is cast aside like a bit of rubbish. Thank god for his neighbours, it seems that without your help this poor man would be left to live in his own filth, and only 69 year olds, I can't imagine elderly members of our royal family being left to get on with it and not be given the help they should be entitled to, are we really ' All In This Together' of course we are not. It does sound as though John needs more tests if he is going downhill rapidly, he may deficient in VitB12 and need quarterly injections, he may have a urine infection, he may have prion disease, he may qualify for the new trial vaccine for early onset AD (age range 50 - 80).
    Poor John, he really needs help, I applaude you Yonnie for contacting your MP, why dont you copy David Cameron in on this, or even our beloved adored Queen, she is 86 and no doubt could empathise with John's plight, what would she do if her husband was suffering like John? the care system does not seem to allow for people like John, no relatives, GP has not time, this is a sad reflection once again on the care system for older adults with neurologiocal problems. John is only 69 why has he got dementia in the first place?
    Keep the pressure up Yonnie, Mp's have to be held accountable and it is 'THEIR' job to help John, we are all in this together.
    Just another thought here, you could always contact your local paper, Jeremy VIne, Matthew Wright, so many stories recently about the failings in our care system we simply can't sit back and ignore them, as I have said this would not happen to royality would it.
    Updated 28-06-2012 at 10:26 AM by Bodensee
  2. greengirl's Avatar
    Hi, I am glad to hear that your MP is investigating. Usually a quick email to the Director of Adult Services from their MP wakes people up. In itself this does not reflect well on the authorities. Of course they, and his Dr may know something you don't but often being a good neighbour makes you responsible for someone's welfare.

    Social Services have a duty to investigate your concern as you are identifying someone at risk. Just because he has money, and in the end would pay for his care has no relevance to their duty to assess.

    His mental capacity needs assessing and Guardianship could be put in place, but as it sounds as if this man is asking for help they could just set up care/ safety net and reclaim monies later once they have sorted it out.

    gg
  3. jan1962's Avatar
    Hi there,

    just read your blogs regarding John, i would like to commend you for taking this gentleman under your wing. i cannot understand how SS can do so little for someone who had obvious care needs.

    i would make an appointment withe MP and ask him to come to Johns house so that he can see for himself what kind of living standard John has, it is all right for them sitting in their comfortable homes without as a by or leave for other less fortunate people.

    i would continue hounding SS and if you get no joy there i would write to the head of Adult Services and tell them of your concerns.

    as others have said this man has worked all his life paying tax and national insurance and what does he get for this, nothing, left to struggle which in this day and age i find unforgiveable.

    continue to shout and i hope sooner rather than later someone will listen. i would inform SS that if anything happens to this man you will hold them accountable.

    if need be write to the house of commons and let other MP know what is going on.

    as i said at the beginning you are a Jewel, more people should look out for people who are not able to look after themselves.

    keep up the pressure and i hope you manage to get the help John needs.

    keep going

    jan1962