Talking Point - Blogs http://forum.alzheimers.org.uk/blog.php A discussion forum for people with dementia and their carers en Wed, 19 Jun 2013 17:17:51 GMT vBulletin 1 http://forum.alzheimers.org.uk/images/styles/Alzheimers/misc/rss.jpg Talking Point - Blogs http://forum.alzheimers.org.uk/blog.php Tomorrow we say goodbye http://forum.alzheimers.org.uk/entry.php?4369-Tomorrow-we-say-goodbye Wed, 19 Jun 2013 03:01:05 GMT ---Quote (Originally by grobertson62)--- I joined this site 2 years ago and its the best thing i could have done The opportunity to write down those innermost thoughts and worries without censorship To be able to voice questions thoughts and feelings you are afraid to say out loud so here goes...
Quote Originally Posted by grobertson62 View Post
I joined this site 2 years ago and its the best thing i could have done
The opportunity to write down those innermost thoughts and worries without censorship
To be able to voice questions thoughts and feelings you are afraid to say out loud
so here goes
Am i heartbroken absolutely
Am i relieved absolutely
Am i glad its over absolutely
But for dad not me... I just feel......nothing nada empty.
I seem to have spent the last few weeks doing.....sorting the funeral. Arranging to have myop to remove cancer from myeye...having the funeral. Sort the will. Thelist is endless
Sorrt for rant
Gill
]]> grobertson62 http://forum.alzheimers.org.uk/entry.php?4369-Tomorrow-we-say-goodbye <![CDATA[How do you cope when your grandpa doesn't know who you are??]]> http://forum.alzheimers.org.uk/entry.php?4364-How-do-you-cope-when-your-grandpa-doesn-t-know-who-you-are Wed, 19 Jun 2013 00:59:42 GMT Hey my name is Amber and I'm 20 my grandpa has hat altzhmers for a few years now and recently has been going down hill very quickly, I'm finding it so hard to cope with it as he is my beat friend as well and whenever I had a problem in my life no matter how big or small he would always have advice to give me... And I have currently hit a wall I don't know where to go in life and I don't know how to cope... He was an amazing man and we were getting glipses of it up until recently where he just sits in his chair and sleeps or watches telly, he doesn't ignollege were even there he talks to his carers more then his family and that is so hard to watch he would give me the most amazing welcomes when I went too see him his face would light up and he would stand up for a cuddle and not sit until I had sat and we would talk about work and old times and now I'm lucky to get a smile... But now his face lights up for people he doesn't no! But when I enter he looks at me like why am I there and who am I it's breaking my heart and I could really use some advice!! I'll take any help I just want to know how to cope I know the pain won't stop!! ]]> BamBam...xxx http://forum.alzheimers.org.uk/entry.php?4364-How-do-you-cope-when-your-grandpa-doesn-t-know-who-you-are Making a start http://forum.alzheimers.org.uk/entry.php?4363-Making-a-start Tue, 18 Jun 2013 20:31:32 GMT I've decided to start blogging as I need to get it off my chest and I want to remember. You never know, some of this stuff might be helpful for others.

Mum is 71. When she was in her late 50s she kept telling me that there was something wrong with her brain but we all put our head in the sand. Since then it very very gradually got worse until when she was about 68 she had a memory test where they said she was okay but to come back in a year. She then refused to go back.

In Summer 2012 I decided she really needed to get checked out because she was struggling. She was diagnosed with dementia with possible alzheimers - she scored 20 on the MMSE. She started on Aricept which has been amazing but weird. She was tested again after six months on Aricept and was told that she scored 26!! 27 is considered normal. Mum is far from normal. We've been told they don't need to see her for a year.

So where is mum now? Although mum is much less confused since taking the Aricept, and seems to be able to remember things for longer, it seems to be masking some larger issues. She has stopped being able to shop and cook for herself. She also has some issues with money.

I live nearly 3 hours drive away from mum and desperately want her moved closer. We're in a funny position at the moment where we want her closer but will it make her worse? Will I be able to cope? What if I move her down here and then decide it's driving me crazy? I would have ruined what's left of her life. But what if she doesn't move down here? She'll have to have carers which she really doesn't want to happen, she's vulnerable, scared and lonely. Hmm.

Meanwhile, trying to get mum a place here is a bloody nightmare but I think that's possible enough for one night.

Chook x ]]> Chook http://forum.alzheimers.org.uk/entry.php?4363-Making-a-start