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Talking Point is an online support and discussion forum, for anyone affected by dementia. It's a place to ask for advice, share information, join in discussions and feel supported.
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Sat. 2:4: Rang hospital at 10 a.m.. Brian has had two more seizures, one in night and one this a.m.. Bedside at 10.30, Danny washing him. I helped. Brian had eaten some porridge for breakfast. Now v. tired. Gave me lop-sided smile. Too tired to see flowers and card [for weddg. anniversary.] Left at 11.15.
Evening: v. sleepy at first. Sleep came in waves. Had had no lunch, bed all day. Ate soup, trifle, ice-cream, part mince & mashed pot., semolina, thickened water & fruit
Evening visit: arrived at 5 p.m.. Could not wake Brian. Supper arrived 5.20. Still totally unresponsive. Told nurse I would come back in 40 mins. to feed him. Back in 35 and still unresponsive.
Told nearest nurse I thought he might have had a "silent seizure" (he was apparently put back into bed at 2 p.m.) and 3 different people came to do "Obs". His temperature was lower than normal, his BP was up, he did not respond at all to pencil beam in his eyes. He later
Walked into Brian's ward this morning to comments of "Oh, what perfect timing": they were just about to wash and change him. I stood beside him while they washed his face and chest, and then when they moved on down I held his hands in mine. I could feel the stress building up in him as they removed his pad and washed him and began to shout "No, stop that." And it went on.
(And yet I had been told by one of the nurses that during the night he had been very good,